Mailed Invitation Packet

Appendix M: Introductory Packet
Study Brochure
Response Card
Study Posters

Study Brochure

What is CADDRE?
CADDRE is a ground-breaking study with the
following main goals:

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To learn about what causes developmental
delays in children
To learn about how genes and environment
affevt child development
To learn more about the characteristics of
children with autism spectrum disorders (ASDs)
and what causes these disorders

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CENTERS FOR DISEASE CONTROL AND PREVENTION
NATIONAL CENTER ON BIRTH DEFECTS
AND DEVELOPMENTAL DISABILITIES
1600 CLIFTON ROAD, MAILSTOP E-86
ATLANTA, GEORGIA 30333

SERVI CE S

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DE PAR
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OF

HEALT H &

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CADDRE stands for the Centers for Autism and
Developmental Disabilities Research and
Epidemiology. Six sites were formed across the US for
this study to better understand child development and
look at possible risk factors of developmental delays
and ASDs.

S

Why is it called the National CADDRE
Study: Child Development
and Autism?

The National CADDRE Study:
Child Development and Autism

The CADDRE study will include nearly 2,000 children
and their parents. This is the largest national study on
ASDs and developmental disabilities to date.

BY TAKING PART IN THIS STUDY, YOU MAY BE ABLE TO HELP US FIND THE CAUSES OF ASD AND MAY CONTRIBUTE TO THE PREVENTION OF ASDS.

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What will you be asked to do?

Answer questions about your child’s
development and your family’s medical history
Allow us to do a brief exam and perform
developmental tests on your child
Give small samples of your and your child’s
blood, cells from inside your mouthg, and
your child’s hair
Give us access to the mother’s and child’s
medical records

Who can be part of CADDRE?
The CADDRE studies are being done in six
sites in the U.S.

C a l i f o r n i a . Alameda . Santa Clara
C o l o r a d o . Arapahoe . Adams

. Boulder . Broomfield . Denver
. Douglas . Jefferson
G e o r g i a . Clayton . Cobb . DeKalb
. Fulton . Gwinnett
M a r y l a n d . Anne Ar undel . Baltimore
. Car roll . Cecil . Harford . Howard
. Baltimore City
N o r t h C a r o l i n a . Alamance
. Chatham . Davidson . Durham
. Forsyth . Guilford . Johnston
. Orange . Randolph . Wake
P e n n s y l v a n i a . Chester . Montgomer y
. Philadelphia

How can you lear n more about
this study?
Visit the study website at:
www.cdc.gov/ncbddd/dd/aic/states
You can also contact your local study site:
Kaiser Permanente Division of Research
Oakland, CA 94612
510.620.3700
Colorado Department of Public Health
and Environment
Denver, CO 80246-1530
303.315.0066
303.692.2680
National Center on Birth Defects
and Developmental Disabilities
Atlanta, GA 30333
404.498.3800
Johns Hopkins University
Baltimore MD 21205
877.868.8014
University of North Carolina at Chapel Hill
Chapel Hill, NC 27599-7435
919.966.2068

Do you need to pay money to join
CADDRE?
No! All the evaluations we do are at no cost to you.

What about your privacy?
Any information you give to the CADDRE study
will be kept strictly confidential. It will never be
shared with any individual, service provider, school,
or agency outside of the study.

University of Pennsylvania School of Nursing
The Children’s Hospital of Pennsylvania
Philadelphia, PA 19104
215.573.2469
215.590.7474

Who is funding CADDRE?
The National CADDRE Study is funded by the
Centers for Disease Control and Prevention, as part of
the Children’s Health Act of 2000 .

BY TAKING PART IN THIS STUDY, YOU MAY BE ABLE TO HELP US FIND THE CAUSES OF ASD AND MAY CONTRIBUTE TO THE PREVENTION OF ASDS.

Response Card

Front:
CADDRE STUDY

Back:
CADDRE STUDY:
____I would like to learn more about this project
____I am NOT interested in learning more about this project
Name:________________________
I can be reached at:
(address)_______________________
_______________________________
(telephone) ____________
(email)___________
I prefer to be reached by (circle one):
Telephone
Mail
E-mail
Best time to reach me is (circle one):
Morning
Afternoon
Early Evening

Study ID:__________

Study Posters