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pdfAttachment 7
Back-up Material
1
Attachment 7A
CHIS Advisory Board Roster
2
Advisory Board
CHAIR
S. Kimberly Belshé, Secretary
California Health and Human Services Agency
1600 Ninth Street, Room 460
Sacramento, CA 95814
Ph: 916-654-3345
Fax: 916-654-3343
Email: [email protected]
Carmela Castellano-Garcia, JD, Chief Executive Officer
California Primary Care Association
1215 K Street, Suite 700
Sacramento, CA 95814
Ph: 916-440-8170
Fax: 916-440-8172
Email: [email protected]
Alternate:
Sandra Shewry, Director
California Department of Health Services
Email: [email protected]
Alternate:
Disha Zaidi, Senior Data Analyst
Email: [email protected]
Bruce Chernof, MD, Director & Chief Medical Officer
LA County Department of Health Services
313 N. Figueroa Street, Room 912
Los Angeles, CA 90012
Ph: 213-240-8101
Fax: 213-481-0503
Email: [email protected]
MEMBERS
Denise Adams-Simms, MPH, Executive Director
California Black Health Network
7840 Mission Center Court, Suite 200
San Diego, CA 92108
Ph: 619-295-5413
Fax: 619-295-5749
Email: [email protected]
Alternate:
Paul Simon, MD, MPH, Director
Health Assessment and Epidemiology
Email: [email protected]
Lupe Alonzo-Diaz, MPAff, Executive Director
Latino Coalition for a Healthy California
1225 8th Street, Suite 500
Sacramento, CA 95814
Ph: 916-448-3234
Fax: 916-448-3248
Email: [email protected]
James Allen Crouch, MPH, Executive Director
California Rural Indian Health Board (CRIHBO)
nd
4400 Auburn Boulevard, 2 Floor
Sacramento, CA 95841-4129
Ph: 916-929-9761 X1010
Fax: 916-929-7246
Email: [email protected]
Alternate:
Veronica Montoya, MSPPM, Policy Director
Email: [email protected]
Alternate:
Carol Korenbrot, PhD, Director of Research
Email: [email protected]
Robert Benjamin, MD, MPH, President
California Public Health Association-North
555 12th Street, 10th Floor
Oakland, CA 94607-4046
Ph:
Fax:
Email: [email protected]
Lesley Cummings, MPA, Executive Director
California Managed Risk Medical Insurance Board
1000 G Street, Suite 450
Sacramento, CA 95814
Ph: 916-324-4695
Fax: 916-324-4878
Email: [email protected]
Alternate:
Vallita Lewis, Deputy Director
Benefits and Quality Monitoring Division
Email: [email protected]
3
Howard A. Kahn, Chief Executive Officer
L.A. Care Health Plan
555 W. Fifth Street, 18th Floor
Los Angeles, CA 90013-3036
Ph: 213-694-1250 X4151 or X4102
Fax: 213-694-1246
Email: [email protected]
C. Duane Dauner, MS, President
California Hospital Association
1215 K Street, Suite 800
Sacramento, CA 95814-3946
Ph: 916-552-7547
Fax: 916-552-7596
Email: [email protected]
Alternate:
Debby Rogers, Vice President, Quality and Patient Safety
Email: [email protected]
Alternate:
Rae Starr, Biostatistician
Email: [email protected]
Robert Friis, PhD, (SCPHA representative)
Professor & Chair, Health Sciences Department
California State University, Long Beach
1250 Bellflower Blvd.
Long Beach, CA 90840
Ph: 562-985-1537
Fax: 562-985-2384
Email: [email protected]
Laurence M. Lavin, Jr., Director
National Health Law Program
2639 S. La Cienega Blvd.
Los Angeles, CA 90034
Ph: 310-204-6010
Fax: 310-204-0891
Email: [email protected]
Alternate:
Ben Neufeld, Vice President SCPHA
Email: [email protected]
Alternate:
Doreena Wong, Staff Attorney
Email: [email protected]
Krista Hanni, MS, PhD (County representative)
Public Health Epidemologist, Monterey County Health
Department
1270 Natividad Road
Salinas, CA 93906-3122
Ph: 831-755-4586
Fax: 831-647-7650
Email: [email protected]
Wendy Lazarus, Founder & Co-President
Children’s Partnership
1351 3rd Street Promenade, Suite 206
Santa Monica, CA 90401
Ph: 310-260-1220, Ext. 11
Fax: 310-260-1921
Email: [email protected]
Alternate:
Kristen Testa, Director CA Children's Health Project
Email: [email protected]
Wyatt R. (Rory) Hume, DDS, PhD, Provost
Executive Vice President, Academic & Health Affairs
University of California
1111 Franklin Street, 12th Floor
Oakland, CA 94607-5200
Ph: 510-987-9697
Fax: 510-987-9715
Email: [email protected]
Jack Lewin, MD, President
California Medical Association
1201 J Street, Suite 200
Sacramento, CA 95814
Ph: 916-551-2038
Fax: 916-551-2070
Email: [email protected]
Alternate:
Charles L. (Larry) Gruder, PhD, Executive Director
Special Research Programs
Email: [email protected]
Alternate:
Robin Flagg, MPH, Associate Director
Government Programs, Center for Policy
Email: [email protected]
Elizabeth M. (Betsy) Imholz, Director
Consumers Union of U.S. Inc.
West Coast Regional Office
1535 Mission Street
San Francisco, CA 94103
Ph: 415-431-6747
Fax: 415-431-0906
Email: [email protected]
Donald B. Moulds, PhD, Director
Senate Office of Research
1020 N. Street, Suite 200
Sacramento, CA 95814
Ph: 916-445-1727
Fax: 916-324-3944
Email: [email protected]
4
Christopher Ohman, President and CEO
California Association of Health Plans
1415 L Street, Suite 850
Sacramento, CA 95814
Ph: 916-552-2910
Fax: 916-443-1037
Email: [email protected]
Ho L. Tran, MD, President and CEO
Asian & Pacific Islander American Health Forum
450 Sutter Street, Suite 600
San Francisco, CA 94108-3901
Ph: 415-954-9988 X302
Fax: 415-954-9999
Email: [email protected]
Alternate:
Ariella Birnbaum, Director, Regulatory Affairs
Email: [email protected]
Alternate:
Jan Liu, Policy Analyst
Email: [email protected]
Kris Perry, Executive Director
First 5 California
501 J Street, Suite 530
Sacramento, CA 95814
Ph: 916-323-0070
Fax: 916-323-0069
Email: [email protected]
Glennah Trochet, MD (CCLHO Representative)
Health Officer
Sacramento City
3701 Branch Center Road
Sacramento, CA 95827
Ph: 916-875-5881
Fax: 916-875-5888
Email: [email protected]
Anthony E. Wright, Executive Director
Health Access
1127 11th Street, #234
Sacramento, CA 95814
Ph: 916-442-2308
Fax: 916-497-0921
Email: [email protected]
Alternates:
Patricia Skelton, Research Specialist
Email: [email protected]
Don Taylor, Research Specialist
Email: [email protected]
Alonzo Louis Plough, MPH, PhD
Vice President for Program, Planning & Evaluation
The California Endowment
1000 North Alameda Street
Los Angeles, CA 90012
Ph: 818-932-3218
Fax: 818-703-4193
Email: [email protected]
Ellen Wu, MPH, Executive Director
California Pan-Ethnic Health Network
654 13th Street
Oakland, CA 94612
Ph: 510-832-1160 X304
Fax: 510-832-1175
Email: [email protected]
Alternate:
Peter Long, Program Officer
Email: [email protected]
Alternate:
Martin Martinez, Policy Director
Email: [email protected]
Sandra Shewry, Director
California Department of Health Services
1501 Capitol Avenue, Suite 6001, P.O. Box 942732
Sacramento, CA 94234-7320
Ph: 916-440-7400
Fax: 916-440-7404
Email: [email protected]
EX-OFFICIO
E. Richard Brown, PhD
Principal Investigator, California Health Interview Survey
Director, UCLA Center for Health Policy Research
10960 Wilshire Blvd., Suite 1550
Los Angeles, CA 90024
Ph: 310-794-0812
Fax: 310-794-2686
Email: [email protected]
Herrmann Spetzler, MA
Founder, California State Rural Health Association
Executive Director, Open Door Community Health Ctrs.
785 18th Street
Arcata, CA 95521
Ph: 707-826-8633 X124
Fax: 707=826-8638
Email: [email protected]
Greg Franklin, MHA
Deputy Director for Health Information
and Strategic Planning
California Department of Health Services
1501 Capitol Avenue, Suite 71.6031
MS 5000
Sacramento, CA 95814
Ph: 916-440-7350
Fax: 916-440-7357
Email: [email protected]
Alternate:
Lauri Medeiros, Executive Director
California State Rural Health Association
Email: [email protected]
5
David Grant, PhD
Acting Director, California Health Interview Survey
UCLA Center for Health Policy Research
10960 Wilshire Blvd., Suite 1550
Los Angeles, CA 90024
Ph: 310-794-0916
Fax: 310-794-2686
Email: [email protected]
Sue Holtby, MPH
Governing Board, California Health Interview Survey
Senior Research Scientist, Public Health Institute
210 High Street
Santa Cruz, CA 95060
Ph: 831-427-4980
Fax: 831-458-3659
Email: [email protected]
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Attachment 7B
CHIS Adult TAC Roster
7
CHIS 2007 Adult Questionnaire
Technical Advisory Committee (TAC)
Timothy Brown, PhD
Associate Director of Research
Petris Center on Health Care Markets
University of California, Berkeley
CHAIR
Anthony Iton, MD, MPH
Health Officer
Alameda County Public Health Department
Lily Chaput, MD, MPH
Chief, Heart Disease and Stroke Prevention
California Department of Health Services
TAC CONTACT
Sue Holtby, MPH
Senior Research Scientist
Public Health Institute
210 High Street
Santa Cruz, CA 95060
Ph: 831-427-4980
Fax: 831-458-3659
Email: [email protected]
Susan Cochran, PhD, MS
Professor
UCLA School of Public Health
Ruth Covell, MD
Associate Dean
UCSD School of Medicine
Allison Diamant, MD, MSHS
Assistant Professor
Division of General Internal Medicine and Health Services
Branch
UCLA School of Medicine
MEMBERS
Barbara Ainsworth, PhD
Professor and Chair
Department of Exercise & Nutritional Sciences
San Diego State University
Maria Rosario Araneta, PhD
Department of Family and Preventive Medicine
University of California, San Diego
Maura Donovan
Chief, Fiscal Analysis & Estimates Section Fiscal
Forecasting & Data Management Branch
California Department of Health Services
Yali Bair, PhD
Assist. Director, State Health Policy Research
University of California, Davis
George Flores, MD, MPH
Senior Program Officer
The California Endowment
Rachel Ballard-Barbash, MD, MPH
Associate Director
Applied Research Program
National Cancer Institute
Krista Hanni, MS, PhD
Public Health Epidemiologist
Office of the Health Officer/Epidemiology Unit
Monterey County Health Department
Elaine Batchlor, MD
Chief Medical Officer
L.A. Care Health Plan
Alternate: Rae Starr, Biostatistician
Robert Isman, DDS, MPH
Dental Health Consultant
California Department of Health Services
Gail Bolan, MD
Chief, STD Control Branch
California Department of Health Services
H. Stephen Kaye, PhD
Associate Adjunct Pro
Institute for Health and Aging
University of California, San Francisco
Nancy Breen, PhD
Program Officer, Applied Research Branch
National Cancer Institute
Allegra Kim, PhD, MS
Research Scientist, EPIC
California Department of Health Services
Jim Klein
Research Program Specialist
California Department of Health Services
8
Roberta Wyn, PhD
Associate Director for Research
UCLA Center for Health Policy Research
Vickie Mays, PhD
Professor
Director, Black C.A.R.E. Project
UCLA Department of Psychology
GUESTS
Robert Newcomb, PhD
Director, Center for Statistical Consulting
University of California, Irvine
Yogita Butani, BDS, MS
Department of Prevention and Restorative Dental Service,
Ca Dept. of Health Services
Amanda Noble, PhD
Research Program Specialist
Dept. of Justice, California
Cathyn Fan, MPH
Environmental Health Investigations Branch
California Department of Health Services
Carolyn Castillo Pierson, PhD
Chief, Office of Multicultural Health
California Department of Health Services
Gary He, PhD
Diabetes Program
California Department of Health Services
Nadereh Pourat, PhD
Senior Researcher
UCLA Center for Health Policy Research
Nisha Ghandi, MPH
Adult Immunization Coordinator
California Department of Health Services
Catherine Quinn
Executive Director
California Health Collaborative
Gala King, MPH
Environmental Health Investigations Branch
California Department of Health Services
Stan Rosenstein
Deputy Director, Medical Care Services California
Department of Health Services
Neena Murgai, PhD
Epidemiologist
Alameda County Department of Public Health
Alina Salganicoff, PhD
VP and Director, Women’s Health Policy
Kaiser Family Foundation
Merideth Milet, MPH
Environmental Health Investigations Branch
California Department of Health Services
Robert F. Saltz, PhD
Director, Survey Research and Methodology
Prevention Research Center
Svetlana Smorodinsky, MPH
Environmental Health Investigations Branch
California Department of Health Services
Joe Selby, MD, MPH
Director, Division of Research
Kaiser Permanente Northern California
James Sutocky
Research Program Specialist
Office of Health Information and Research
California Department of Health Services
Sharon Sugarmen, MS, RD, FDA
Research Scientist
California Department of Health Services
Danell Watkins
Applied Research Branch
National Cancer Institute
Terri Thorfinnson, JD
Chief, Office of Women’s Health
California Department of Health Services
Sandra Witt, PhD
Director of Epidemiology
Alameda County Department of Public Health
Roger Trent, PhD
Chief, Injury Surveillance and EpidemiologyCalifornia
Department of Health Services
9
EX-OFFICIO
E. Richard Brown, PhD
Principal Investigator,
California Health Interview Survey
Director,
UCLA Center for Health Policy Research
Greg Franklin, MHA
Deputy Director for Health Information and Strategic Planning
California Department of Health Services
Sue Holtby, MPH
Governing Board,
California Health Interview Survey
Senior Research Scientist,
Public Health Institute
John Kurata, PhD, MPH
Director,
California Health Interview Survey
UCLA Center for Health Policy Research
STAFF
David Grant, PhD
Survey Operations Manager for the California Health Interview Survey
UCLA Center for Health Policy Research
Jane McKendry, PhD
CHIS Coordinator
Office of Health Information & Research
California Department of Health Services
Michael Quinn
Chief, Office of Health Information and Research
California Department of Health Services
Jennifer Tsui, MPH
Research Associate
UCLA Center for Health Policy Research
Elaine Zahnd, PhD
Senior Research Scientist
Public Health Institute
10
Attachment 7C
CHIS Multicultural TAC Roster
11
CHIS 2007 Multicultural Health
Technical Advisory Committee (TAC)
March 7, 2006 – Oakland , CA
CHAIR
Raquel Donoso
Deputy Director
Latino Issues Forum
Ellen Wu, MPH
Executive Director
California Pan-Ethnic Health Network
Mary Anne Foo, MPH
Executive Director
Orange County Asian and Pacific Islander Community
Alliance (OCAPICA)
TAC CONTACT
Ninez Ponce, PhD, MPP
Co-PI,California Health Interview Survey
UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Ph: 310-794-0992
Fax: 310-794-2686
Email: [email protected]
Rachel Guerrero
Chief, Office of Multicultural Services
Department of Mental Health
MEMBERS
Denise Herd, PhD
Associate Dean for Student Affairs
Associate Professor
University of California, Berkeley
Denise Adams Simms, MPH
Executive Director
California Black Health Network
Miya Iwataki
Director, Office of Diversity Programs
Los Angeles County Dept of Health Services
Lupe Alonzo-Diaz
Executive Director
Latino Coalition for a Healthy California
Marjorie Kagawa-Singer, PhD, RN, MN
Associate Professor
UCLA School of Public Health
Richard S. Baker, MD
Program Director
Research Centers in Minority Institutions
Charles R. Drew Univ. Biomedical Research Center
Josea Kramer, PhD
Associate Director, Education/Evaluation
Sepulveda Geriatric Research Education Clinical
Center (GRECC)
Nancy Breen, PhD
Economist, Applied Research Branch
National Cancer Institute
Vickie Mays, PhD
Director, Black CARE Project
UCLA Department of Psychology
Audrey Burwell
Office of Minority Health
US Dept of Health & Human Services
Fernando S. Mendoza, MD, MPH
Chief, Division of General Pediatrics
Stanford University School of Medicine
Peter DiClementine
MMCD
California Department of Health Services
Joel Moskowitz, PhD
Director
Center for Family and Community Health
University of California, Berkeley
James Allen Crouch, MPH
Executive Director
California Rural Indian Health Board, Inc.
Arnab Mukherjea, MPH
Co-Chair, Executive Board of Directors
South Asian Public Health Association
University of California, Berkeley
12
Yolanda Partida, MSW, DPA
National Program Director
Hablamos Juntos Project
Tomas Rivera Policy Institute
Cary Sanders
Northern California Policy Analyst
California Immigrant Welfare Collaborative
Rena Pasick, DrPH
Director, Prevention Services
Northern California Cancer Center
EX-OFFICIO
E. Richard Brown, PhD
Principal Investigator,
California Health Interview Survey
Director,
UCLA Center for Health Policy Research
Carolyn Castillo Pierson, PhD
Chief, Office of Multicultural Health
CA Department of Health Services
Delight Satter, MPH
Director, American Indian & Alaska Native Research
Program
UCLA Center for Health Policy Research
Greg Franklin, MHA
Deputy Director for Health Information and
Strategic Planning
California Department of Health Services
Reshma Shamasunder
Director
California Immigrant Welfare Collaborative
Sue Holtby, MPH
Governing Board,
California Health Interview Survey
Senior Research Scientist,
Public Health Institute
Beatriz Solis, MPH
Director, Cultural & Linguistic Services
LA Care Health Plan
John Kurata, PhD, MPH
Director
California Health Interview Survey
UCLA Center for Health Policy Research
Dong Suh
Public Relations & Development Coordinator
Asian Health Services
STAFF
Sora Park Tanjasiri, MPH, DrPH
Associate Professor
California State University, Fullerton
David Grant, PhD
Assistant Director for Survey Operations
California Health Interview Survey
UCLA Center for Healthy Policy Research
Ho Tran
President and CEO
Asian Pacific Islander American Health Forum
Jane McKendry, PhD
CHIS Coordinator
Office of Health Information & Research
California Department of Health Services
Doreena Wong, JD
Staff Attorney
National Health Law Program
Michael Quinn
Chief, Office of Health Information and Research
California Department of Health Services
Antronette Yancey, MD, MPH
Associate Professor
UCLA School of Public Health, Department of Health
Services
Ninez Ponce, PhD, MPP
Co-PI,California Health Interview Survey
UCLA Center for Health Policy Research
GUESTS
Gilbert C. Gee, PhD
Assistant Professor
University of Michigan School of Public Health
Jennifer Tsui, MPH
Research Associate
California Health Interview Survey
UCLA Center for Health Policy Research
Christina Tucker
Research Associate
Latino Coalition for a Healthy California
Elaine Zahnd, PhD
Senior Research Scientist
Public Health Institute
13
Attachment 7D
CHIS Sampling and Methodology TAC Roster
14
CHIS 2005 Sample Design and
Survey Methodology
Technical Advisory Committee (TAC)
CHAIR
Linda Bourque, PhD
Professor
UCLA School of Public Health
73-274B CHS, Box 951772
Los Angeles, CA 90095-1772
Ph: 310-825-4053
Fax: 310-794-1805
E-Mail: [email protected]
A. A. Afifi, PhD
Dean Emeritus and Professor
UCLA School of Public Health
51-239C CHS, Box 951772
Los Angeles, CA 90095-1772
Ph: 310-825-0707
Fax: 310-276-2113
E-Mail: [email protected]
Nancy Breen, PhD
Program Officer
National Cancer Institute
6120 Executive Boulevard
Rockville, MD 20852
Ph: 301-496-4675
Fax: 301-435-3710
E-Mail: [email protected]
TAC CONTACT
David Grant, PhD
Survey Operations Manager
California Health Interview Survey
UCLA Center for Health Policy Research
10911 Weyburn Avenue, Suite 300
Los Angeles, CA 90024
Ph: 310-794-0916
Fax: 310-794-2686
Email: [email protected]
J. Michael Brick, PhD
Vice President
Westat Statistical Group
1650 Research Blvd.
Rockville, MD 20850-3129
Ph: 301-294-2004, 301-251-1500
Fax: 301-294-2034
E-Mail: [email protected]
MEMBERS
Ronald Andersen, PhD
Professor Emeritus
UCLA School of Public Health
61-243A CHS, Box 951772
Los Angeles, CA 90095-1772
Ph: 310-206-1810
Fax: 310-825-3317
E-Mail: [email protected]
Susan Cochran, PhD, MS
Professor
UCLA School of Public Health
71-245A CHS, Box 951772
Los Angeles, CA 90095-1772
Ph: 310-206-9310
Fax: 310-206-6039
E-Mail: [email protected]
Thomas R. Belin, PhD
Associate Professor, Biostatistics
UCLA School of Public Health
51-267C CHS, Box 951772
Los Angeles, CA 90095-1772
Ph: 310-206-7361
Fax: 310-206-7361
E-Mail: [email protected]
William Cumberland, PhD
Professor and Chair, Dept of Biostatistics
UCLA School of Public Health
51-236B CHS, Box 951772
Los Angeles, CA 90095-1772
Ph: 310-206-9621
Fax: 310-267-2113
E-Mail: [email protected]
Sandy Berry, MA
Survey Research Group
RAND
1700 Main Street
Santa Monica, CA 90407
Ph: 310-393-0411 x7779
Fax: 310-451-6921
E-Mail: [email protected]
15
MEMBERS, continued
Bill Davis, PhD
Statistician
National Cancer Institute
6130 Executive Blvd. PN/4096
Bethesda, MD 20892
Ph: 301-594-3582
Fax: 304-480-2046
E-Mail: [email protected]
Michael Link, PhD
Senior Survey Methodologist
Behavioral Surveillance Branch
Centers for Disease Control & Prevention
4770 Buford Highway, NE, Mailstop K-66
Atlanta, GA 30341-3717
Ph: 770-488-5444
Fax: 770-488-8150
E-Mail: [email protected]
Bonnie D. Davis, PhD
Research Program Director, Survey Research Group
Public Health Institute
1700 Tribute Road, Suite 100
Sacramento, CA 95815-4402
Ph: 916-779-0331
Fax: 916-779-0265
E-Mail: [email protected]
Laura Lund, MA
Research Program Specialist
Office of Health Information & Research
California Department of Health Services
305 "S" Street, Third Floor, P.O. Box 942732
Sacramento, CA 94234-7320
Ph: 916-445-6337
Fax: 916-324-5599
E-Mail: [email protected]
Mark DiCamillo
Sr. Vice President
Field Research Corporation
222 Sutter Street, 2nd Floor
San Francisco, CA 94108
Ph: 415-392-5763
Fax: 415-434-2541
E-Mail: [email protected]
Joel Moskowitz, PhD
Director
Center for Family and Community Health
UC Berkeley School of Public Health
140 Warren Hall
Berkeley, CA 94720-7360
Ph: 510-643-7314
Fax: 510-643-7316
E-Mail: [email protected]
Sherman Edwards
Vice President
Westat Statistical Group
1650 Research Blvd.
Rockville, MD 20850-3129
Ph: 301-294-3993
Fax: 301-294-3928
E-Mail: [email protected]
Linda Pickle, PhD
Senior Mathematical Statistician
Statistical Research and
Applications Branch
National Cancer Institute
6130 Executive Blvd. , EPN 313- MSC 7344
Bethesda, MD 20892
Ph: 301-402-9344
Fax: 301-435-3710
E-Mail: [email protected]
Ismael Flores-Cervantes
Westat Statistical Group
1650 Research Blvd.
Rockville, MD 20850-3129
Ph: 301-251-1500
Fax: 301-294-2034
E-Mail: [email protected]
Susan Pinkus
Director, Los Angeles Times Poll
Los Angeles Times
202 W. 1st Street
Los Angeles, CA 90012
Ph: 213-237-7993
Fax: 213-237-2505
E-Mail: [email protected]
Holly Hoegh, PhD
Research Scientist, Survey Research Group
Cancer Surveillance Section
California Department of Health Services
P.O. Box 843732, MS 5000
Sacramento, CA 95815
Ph: 916-779-0334
Fax: 916-779-0265
E-Mail: [email protected]
16
Michael Quinn
Chief, Planning & Data Analysis Section
California Dept. of Health Services
304 “S” Street, Third Flr., P.O. Box 942732
Sacramento, CA 94234-7320
Ph: 916-445-6348
Fax: 916-324-5599
E-Mail: [email protected]
John Kurata, PhD, MPH
Director, California Health Interview Survey
UCLA Center for Health Policy Research
10911 Weyburn Avenue, Suite 300
Los Angeles, CA 90024
Ph: 310-794-0946
Fax: 310-794-2686
Email: [email protected]
John Rolph, PhD
Professor and Chair
Information & Operations Mgmt.
University of Southern California
BRI 401A, University Park, MC: 1421
Los Angeles, CA 90089-1421
Ph: 213-740-4829
Fax: 213-740-7313
E-Mail: [email protected]
Greg Franklin, MHA
Deputy Director for Health Information and
Strategic Planning
California Department of Health Services
1501 Capitol Avenue, Suite 71.6031
Sacramento, CA 94372-7320
Ph: 916-440-7350
Fax: 916-440-7357
E-Mail: [email protected]
Kim Shoaf, DrPH
Center for Public Health & Disaster Relief
UCLA School of Public Health
1145 Gayley Avenue, #304
Los Angeles, CA 90024
Ph: 310-794-0840
Fax: 310-794-0889
E-Mail: [email protected]
Sue Holtby, MPH
Governing Board
California Health Interview Survey
Senior Research Scientist
Public Health Institute
210 High Street
Santa Cruz, CA 95060
Ph: 831-427-4980
Fax: 831-458-3659
Email: [email protected]
William Wright, PhD
Chief, Cancer Surveillance Section
Department of Health Services
601 North 7th Street, PO Box 942732, MS 592
Sacramento, CA 94234-7320
Ph: 916-322-5863
Fax: 916-327-4657
E-Mail: [email protected]
STAFF
Neetu Chawla
Research Assistant
California Health Interview Survey
UCLA Center for Health Policy Research
10911 Weyburn Avenue, Suite 300
Los Angeles, CA 90024
Ph: 310-794-8362
Fax: 310-794-2686
Email: [email protected]
Hongjian Yu, PhD
Associate Director for Statistical Support
UCLA Center for Health Policy Research
10911 Weyburn Avenue, Suite 300
Los Angeles, CA 90024
Ph: 310-794-0923
Fax: 310-794-2686
E-Mail: [email protected]
Jenny Chia, PhD
Senior Statistician, Survey Production Manager
California Health Interview Survey
UCLA Center for Health Policy Research
10911 Weyburn Avenue, Suite 300
Los Angeles, CA 90024
Ph: 310-794-0937
Fax: 310-794-2686
Email: [email protected]
EX-OFFICIO
E. Richard Brown, PhD
Principal Investigator, California Health Interview Survey
Director, UCLA Center for Health Policy Research
10911 Weyburn Avenue, Suite 300
Los Angeles, CA 90024
Ph: 310-794-0812
Fax: 310-794-2686
Email: [email protected]
17
David Grant, PhD
Survey Operations Manager,
California Health Interview Survey
UCLA Center for Health Policy Research
10911 Weyburn Avenue, Suite 300
Los Angeles, CA 90024
Ph: 310-794-0916
Fax: 310-794-2686
Email: [email protected]
Karen Markus
Administrator
California Health Interview Survey
UCLA Center for Health Policy Research
10911 Weyburn Avenue, Suite 300
Los Angeles, CA 90024
Ph: 310-794-0925
Fax: 310-794-2686
Email: [email protected]
Lee Habte, MA
Data Access Center Manager
California Health Interview Survey
UCLA Center for Health Policy Research
10911 Weyburn Avenue, Suite 300
Los Angeles, CA 90024
Ph: 310-794-2684
Fax: 310-794-2686
Email: [email protected]
Sunghee Lee, PhD
Survey Statistician and Technical Manager
California Health Interview Survey
UCLA Center for Health Policy Research
10911 Weyburn Avenue, Suite 300
Los Angeles, CA 90024
Ph: 310-794-2399
Fax: 310-794-2686
Email: [email protected]
Jeff Luck, PhD
Co-Principal Investigator
UCLA School of Public Health
Box 951772
Los Angeles, CA 90095-1772
Ph: 310-206-4744
Fax: 310-206-4722
Email: [email protected]
Ninez Ponce, PhD
Co-Principal Investigator
UCLA School of Public Health
Box 951772
Los Angeles, CA 90095-1772
Ph: 310-206-4021
Fax: 310-825-53317
Email: [email protected]
Elaine Zahnd, PhD
Senior Research Scientist
Public Health Institute
2001 Addison Street, Suite 210
Berkeley, CA 94703
Ph: 925-283-6432
Fax: 925-283-6432
Email: [email protected]
18
Attachment 7E
Data Disclosure Advisory Committee Roster
19
Data Disclosure
Advisory
Committee
MEMBERS
George B. (Peter) Abbott, MD, MPH
3320 Brookwood Road
Sacramento, CA 95821
Ph: 916-283-4778
Fax: 916-283-4778(call first)
Email: [email protected]
Representing: California State Rural Health Association
Lauri Medeiros (Alternate)
Executive Director,
California State Rural Health Association
2000 L Street, #100
Sacramento, CA 95814
Ph: 916-930-9330
Fax: 916-930-9329
Email: [email protected]
Representing: California State Rural Health Association
Sue Holtby, MPH
Senior Research Scientist, Public Health Inst.
210 High Street
Santa Cruz, CA 95060
Ph: 831-427-4980
Fax: 831-427-4984
Email: [email protected]
Martin Martinez, MPP
Policy Director
The California Pan-Ethnic Health Network
654 Thirteenth St.
Oakland, CA 94612
Ph: 510-832-1160 X302
Fax: 510-832-1175
Email: [email protected]
E. Richard Brown, PhD
Principal Investigator, CHIS
Director, UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Ph: 310-794-0812
Fax: 310-794-2686
Email: [email protected]
Michael Quinn
Chief, Office of Health Information & Research
California Department of Health Services
MS 5103, Building 174
PO Box 997410
Sacramento, CA 95899-7410
Ph: 916-552-8102
Fax: 916-650-6889
Email: [email protected]
David Grant, PhD
Acting Director, CHIS
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Ph: 310-794-0946
Fax: 310-794-2686
Email: [email protected]
Gary Feldman, MD
Health Officer, Riverside County
4065 County Circle Drive #412
Riverside, CA 92503
Ph: 951-358-5050
Fax: 909-358-4529
Email: [email protected]
Representing: California Conference of Local Health
Officers
(CCLHO)
Sarah Mack, MPH (Alternate)
Branch Chief, Health Statistics
Riverside County Health Department
4065 County Circle Drive, #412
Riverside, CA 92503
Ph: 951-358-6181
Fax: 909-358-5348
Email: [email protected]
Representing: CCLHO
Robert Friis, PhD
Chairman, Department of Health Sciences
California State University Long Beach
1250 Bellflower Boulevard
Long Beach, CA 90840
Ph: 562 985-1537
Email: [email protected]
Representing: California Public Health
Association
Jane McKendry (Alternate)
CHIS Coordinator, Office of Health Information
& Research
Center for Health Statistics
California Department of Health Services
MS 5103, Building 174
PO Box 997410
Sacramento, CA 95899-7410
Ph: 916-552-8113
Email: [email protected]
20
David Berrigan, PhD, MPH
Applied Research Program
National Cancer Institute
Executive Plaza North MDC 7344, Room 4009A
Bethesda, MD 20892-7344
Ph: 301-451-4301
Fax: 301-435-3710
Email: [email protected]
Representing: NCI
STAFF
Lee Habte, MA
Data Access Center Manager, CHIS
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Ph: 310-794-2684
Fax: 310-794-2686
Email: [email protected]
Brandon Traudt
Data Access Center Coordinator
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Ph: 310-794-8319
Fax: 310-794-2686
Email: [email protected]
Jeff Luck, PhD
Co-Principal Investigator, CHIS
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Ph: 310-206-4744
Fax: 310-206-2686
Email: [email protected]
21
Attachment 7F
CHIS 2007 Mode Planning Workgroup
Roster
22
CHIS 2007 Mode Planning
Workgroup Roster
Thomas R.Belin, PhD
Professor
UCLA School of Public Health
Department of Biostatistics
51-267 CHS
Mail Code 177220
William G. Cumberland, PhD
Professor
UCLA School of Public Health
Department of Biostatistics
51-236B CHS
Mail Code 177220
Sandy Berry, MA
Survey Research Group
RAND
1700 Main Street
Santa Monica, CA 90407
Bill Davis, PhD
Survey Statistician
National Cancer Institute
6130 Executive Blvd., PN/4096
Bethesda, MD 20892
J. Michael Brick, PhD
Vice President
Westat
1650 Research Blvd.
Rockville, MD 20850-3129
Don A.Dillman, PhD
Deputy Director for Research & Development
Social and Economic Sciences Research Ctr.
Washington State University
133 Wilson Hall
P.O. Box 644014
Pullman, WA 99164-4014
E. Richard Brown, PhD
Director
UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Sherman Edwards, PhD
Vice President
Westat
1650 Research Blvd.
Rockville, MD 20850-3129
David Cantor
Westat
1650 Research Blvd.
Rockville, MD 20850-3129
Greg Franklin, MHA
Deputy Director
Health Information and Strategic Planning
California Department of Health Services
P.O. Box 843732 MS 5000
Sacramento, CA 94372-7320
Barbara L. Carlson, PhD
Mathematica Policy Research
P.O. Box 2393
Princeton, NJ 08543-2393
David Grant, PhD
Assistant Director
California Health Interview Survey
UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Jenny Chia, PhD
Senior Statistician
UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
23
Jane McKendry
CHIS Coordinator, Office of Health Information &
Research
Center for Health Statistics
California Department of Health Services
P.O. Box 997410 MS 5103
Sacramento, CA 95899-7410
Robert M.Groves, PhD
Director, Survey Research Center
Institute for Social Research
1355 ISR Building
P.O. Box 1248
Ann Arbor, MI 48106
Lee Habte
Assistant Director
California Health Interview Survey
UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Lorraine T. Midanik, PhD
Associate Dean and Professor
University of California, Berkeley
Department of Social Welfare
120 Haviland Hall
Berkeley, CA 94720-7400
John Hall, PhD
Mathematica Policy Research
P.O. Box 2393
Princeton, NJ 08543-2393
Ann Nguyen, MPH
Research Associate
California Health Interview Survey
UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Sue Holtby, MPH
Senior Research Scientist
Public Health Institute
210 High Street
Santa Cruz, CA 95060
Frank Potter, PhD
Mathematica Policy Research
P.O. Box 2393
Princeton, NJ 08543-2393
May Jawad, PhD
Research & Survey Support Manager
California Health Interview Survey
UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Michael Quinn
Chief, Office of Health Information & Research
Center for Health Statistics
California Department of Health Services
P.O. Box 997410 MS 5101
Sacramento, CA 95899-7410C.
John Kurata, PhD
Director, California Health Interview Survey
UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
Nathaniel Schenker, PhD
Senior Scientist for Research & Methodology
National Center for Health Statistics
Centers for Disease Control & Prevention
3311 Toledo Road, Room 3209
Hyattsville, MD 20782
Sunghee Lee, PhD
Survey Methodologist/Technical Survey Mgr.
California Health Interview Survey
UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
James Sutocky
Research Program Specialist,
Office of Health Information & Research
Center for Health Statistics
California Department of Health Services
P.O. Box 997410
Sacramento, CA 94372-7320
Michael W. Link, PhD
Senior Survey Methodologist
Centers for Disease Control & Prevention
Behavioral Surveillance Branch
4770 Buford Highway, NE
Mailstop K-66
Atlanta, GA 30341-3717
24
Elaine Zahnd, PhD
Senior Research Scientist
Public Health Institute
555 12th Street, 10th Floor
Oakland, CA 94607-4046
Hongjian Yu, PhD
Director, Statistical Support
UCLA Center for Health Policy Research
10960 Wilshire Blvd, Suite 1550
Los Angeles, CA 90024
25
Attachment 7G
CHIS Data Security Policies
26
California Health Interview Survey (CHIS)
Data Security Policies
The data collection contractor for the California Health Interview Survey will have the primary responsibility to ensure
the protection of any identifiable data on respondents. In its contract, the data collection contractor will be required to
abide by the UCLA human subject research guidelines. Specific confidentiality protection procedures follow:
•
Secured Electronic Access to Raw Data: All data will be stored electronically on computers with secured
access. Only designated individuals will have access to the raw survey data.
•
Secured Backup of Data: Backups of data files will be stored in a separate locked facility. Access to these
files will be limited to designated individuals and only in case of emergency (e.g. primary data source
destroyed by fire).
•
Consent for Contact Information: After confirming or providing their address information near the end of
the survey, the CHIS adult respondents are asked if they would be willing to participate in follow-up surveys.
Respondents are provided with three choices: (1) Yes; (2) Maybe; and (3) Definitely No. If respondents
answer “yes” or “maybe,” they are considered to have given contact consent to be re-contacted for follow-up
studies. If the respondent refuses, then the interviewer will thank the respondent for participating in the survey
and terminate the interview.
•
Separation of Contact Data from other Data: At the completion of data collection, Westat will separate the
contact data (name and address, if collected, as well as telephone numbers) and any other data items that may
reveal the identity of the respondent (e.g. birthdate). This information will be stored in an ID file, which will
be archived with secured access.
•
Data Deliverables without Respondent Identifiers: The data collection contractor will deliver to the CHIS
PI at the UCLA Center for Heatlh Policy Research the analysis data files without the ID file. Only month and
year of birth will be included in the analysis files delivered to the Center..
•
Destruction of the ID File: This information will be stored in two separate ID files: one that contains contact
data on respondents who have agreed to be re-contacted for potential follow-back studies (ID_Recontact_OK)
and another that contains information on all other CHIS respondents. The ID file for potential follow-back
study participants (ID_Recontact_OK) will be archived by the data collection contractor for five years
effective at the completion of the data collection. Unless requested by the CHIS PI at UCLA for an extension,
the ID file (ID_Recontact_OK) will be destroyed at the end of the five-year period. The ID file for CHIS
respondents who have not agreed to be re-contacted for follow-back studies (ID_No_Recontact) will be
maintained for 90 days after delivery of the final data file and then destroyed.
•
Authorization for Use of the ID File: Any person wishing to use the ID file for a follow-back study during
the archive period will be required to seek review and authorization by both the CHIS Principal Investigator at
UCLA and their home institution's Institutional Review Board, which must have a Multi-Party Assurance
Agreement with the federal government. Authorized users of the ID file will be required to sign an agreement
indicating that the data will be used for research purposes only and that the identity of the respondents will not
be revealed to unauthorized individuals or in any reports. Only the CHIS survey data contractor, will be
authorized to re-contact subjects on behalf of the California Health Interview Survey.
27
Release of Data: To meet the overall objectives of CHIS, data files (not the ID file) will be distributed to
project funders. Files designated for public use will be further edited to prevent analysis that could allow
identification of individual respondents. Steps include removing all information that may be used to identify a
respondent (e.g. birth month, highly specific ethnicities), topcoding outlier variables such as income or other
continuous variables that may lead to disclosure, removal of sensitive data, and adding noise to records that
could identify members of small populations. In addition, public use files provided to local health departments
will be only be released at the stratum level. All strata have a minimum population of 100,000. Public use
files available on the Internet will present statewide data only, and will contain no sub-state geographic
identifiers.
CHIS data estimates will be presented through an internet-based system for tailored and descriptive statistics,
called AskCHIS. Queries can be posed and responses generated automatically in graphical or tabular format
and provided to requesters on-line. Algorithms that suppress estimates with small numbers and with sensitive
data have been implemented to prevent disclosure of confidential.
Data involving small geographic areas will only be available to authorized researchers through the UCLA Data
Access Center, a secure, supervised data analysis facility. Through the implementation of stringent security
controls, disclosure review procedures, and staff monitoring, the confidentiality and anonymity of respondents
will be ensured. Modeled after the Research Data Center at the National Center for Health Statistics, the Data
Access Center has a control workstation and printer in a separate room accessible to staff only. All email,
Internet, telephone, USB port, or floppy disk drive capabilities have been disabled, and workstations are
supported by a server that has no outside network connections. All output, printouts, and media must be
reviewed by the Manager of the Data Access Center before they are released to researchers to remove from the
Center.
28
Attachment 7H
CHIS Geographic Strata and Selection Probabilities
29
RDD Sample: Geographic Strata and Selection Probabilities
Stratum ID
Stratum
DOF 2007
HHs Estimate
Proportion Dist
of HHs
Adult
Adolescent
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
25
26
27
28
29
30
31
32
33
34
35
36
37
38
39
40
41
42
43
Los Angeles
San Diego
Orange
Santa Clara
San Bernardino
Riverside
Alameda
Sacramento
Contra Costa
Fresno
San Francisco
Ventura
San Mateo
Kern
San Joaquin
Sonoma
Stanislaus
Santa Barbara
Solano
Tulare
Santa Cruz
Marin
San Luis Obispo
Placer
Merced
Butte
Shasta
Yolo
El Dorado
Imperial
Napa
Kings
Madera
Monterey
Humboldt
Nevada
Mendocino
Sutter
Yuba
Lake
San Benito
Tehama-Glenn-Colusa
Del Norte-Lassen-ModocPlumas-Sierra-Siskiyou-Trinity
3,372,542
1,114,534
1,033,150
603,330
624,980
648,868
573,249
541,384
387,973
287,876
341,217
269,241
262,741
246,460
225,664
187,166
171,805
145,512
144,589
126,811
94,909
101,858
100,335
120,875
78,654
86,473
72,645
72,327
67,871
47,730
49,846
41,793
41,796
134,133
53,323
41,062
35,679
31,130
23,350
27,348
18,011
39,625
58,915
0.2629
0.0869
0.0805
0.0470
0.0487
0.0506
0.0447
0.0422
0.0302
0.0224
0.0266
0.0210
0.0205
0.0192
0.0176
0.0146
0.0134
0.0113
0.0113
0.0099
0.0074
0.0079
0.0078
0.01
0.01
0.01
0.01
0.01
0.01
0.00
0.00
0.00
0.00
0.01
0.00
0.00
0.00
0.00
0.00
0.00
0.00
0.00
0.00
10,246
3,386
3,139
1,833
1,899
1,971
1,742
1,645
1,179
875
1,037
818
798
749
686
600
600
600
600
600
600
600
600
600
600
600
600
600
600
500
500
500
500
600
500
500
500
500
500
500
500
500
500
874
329
262
148
200
190
136
148
97
101
42
79
64
77
63
40
53
56
55
59
60
46
52
52
61
48
48
67
48
66
32
50
45
63
41
41
36
54
52
39
71
48
42
44
Tuolumne-Calaveras-AmadorInyo-Mariposa-Mono-Alpine
77,768
0.01
500
32
48,000
4,266
Total
12,826,550
30
CHIS 2007 Preliminary RDD Sample Design
Approximate Design Effects for the CHIS 2007 Sample
The following table shows the approximate design effects for the CHIS 2007. The data source for adjusted
household and population counts is the California Department of Finance (DOF) 2007 population estimates. These
approximations do not reflect the oversampling of high density areas, and they use population counts rather than adult
counts. Further, they can only be produced for the groups found in the DOF files. In spite of these limitations, we
consider these estimates to be sufficiently valid for purposes of estimating design effect.
Table 1. Approximate design effect for the CHIS 2007 sample
Population
Nominal Sample Design Effect Effective Sample
Total Adults
OMB White alone non-Latino
OMB African American alone non-Latino
OMB American Indian alone non-Latino
OMB Asian alone non-Latino
OMB Native Hawaiian or Pacific Islander
48,000
26,317
2,938
546
4,462
129
1.15
1.16
1.04
1.25
1.05
1.10
41,891
22,669
2,820
437
4,264
118
OMB Multiple race non-Latino
Adults Latino
1,010
12,597
1.16
1.11
870
11,308
For comparisons, we computed the design effects using the 2000 data defined at the block group level and
present them in Table 2. The data also include population counts for household and adults for the groups as of 2000.
As expected, they are a slightly higher due to the oversampling. However, these design effect do not reflect any
differential population growth among the counties since 2000.
31
Table 2. CHIS 2007 Design effect for selected groups based on 2000 data
Population
Total Adults
Nominal Sample
Design Effect
Effective Sample
48,000
1.18
40,569
Total Chinese Adults
1243
1.10
1,131
Total Japanese Adults
503
1.13
445
Total Filipino Adults
995
1.10
907
Total Korean Adults
498
1.13
439
Total Vietnamese Adults
502
1.11
453
4,832
1.15
4,202
80
1.14
70
210
1.18
177
Adults Latino Asian alone
45
1.17
39
Adults Latino Pac. Isl. Alone
12
1.20
10
5,957
1.18
5,030
Adults Latino Two or more races
675
1.17
575
Adults Latino Any Amr Indian
321
1.18
273
Adults Non-Latino
36,190
1.18
30,654
Adults Non-Latino White alone
27,119
1.20
22,534
2,721
1.07
2,534
462
1.32
351
4,505
1.10
4,080
Adults Non-Latino Pac. Isl. alone
114
1.13
100
Adults Non-Latino Other race alone
195
1.29
152
1075
1.25
861
956
1.25
762
Adults White alone
31,951
1.20
26,611
Adults Latino
11,810
1.17
10,115
2,801
1.07
2,606
671
1.29
520
4,550
1.10
4,119
125
1.14
110
Adults Other race alone
6,152
1.19
5,181
Adults Two or more races
1,750
1.22
1436
Adults Any Amr Indian
1277
1.25
1022
Adults Latino White alone
Adults Latino Afr Amer alone
Adults Latino Amr Indian alone
Adults Latino Other race alone
Adults Non-Latino Afr Amer alone
Adults Non-Latino Amr Indian alone
Adults Non-Latino Asian alone
Adults Non-Latino Two or more races
Adults Non-Latino Any Amr Indian
Adults Afr Amer alone
Adults Amr Indian alone
Adults Asian alone
Adults Pac. Isl. alone
32
Attachment 7I
Organizations using CHIS Data
33
Attachment 7H
•
More than 1315 individuals have downloaded the CHIS Public Use Files from the UCLA Center for Health Policy
Research's web site. There have been 4156 total downloads of all the PUF files available.
•
More than 10,000 individuals have used AskCHIS, the online data query system to conduct analysis and generate
state or local-level estimates using CHIS data. To date, 179,500 individual queries have been made via AskCHIS.
•
CHIS 2001, CHIS 2003, and CHSI 2005 funders, who actively promote and use CHIS data, include the:
o California Department of Health Services
o The California Endowment
o National Cancer Institute
o Centers for Disease Control
o The Robert Wood Johnson Foundation
o First Five California
o California Department of Managed Care
o California Department of Health Services Office of Disability and Health
o California Department of Mental Health
o LA Health Care
o Kaiser Permanente
o California Area Indian Health Services
o Alameda County Health Services Agency
o Solano County Public Health Department
o County of San Diego, Public Health Services
o Marin County Department of Health and Human Services
•
There are many other users of CHIS data products, including local health departments, research institutions, and
other health and community organizations. Although we do not have complete information on all the
organizations that have used CHIS data for their needs, the tables on the following pages provide information on
some of the organizations that are actively using CHIS data, the peer-reviewed publications that have been
generated based on CHIS data, and the impact of CHIS data.
34
Organizations Using
CHIS Data: Representative
Organizations
Research Institutions
Agency for Healthcare Research and Policy
Applied Survey Research
Boston University
California Health Benefits Review Program
California Institute for County Government,
San Francisco, CA
California Institute for Rural Studies
California State University Fresno
California State University Long Beach
Center on Budget and Policy Priorities,
Washington DC
Center on Policy Initiatives, San Diego, CA
Charles R. Drew University of Medicine and
Science
Children’s Hospital and Research Center,
Oakland, CA
Columbia University
Community Organizations
African American Coalition on Health
American Association of Retired Persons
Asian and Pacific Islander Bay Area Health
Council
Blue Cross of CA State Programs
California Health Collaborative
Contra Costa County Health Services
Department of Health Services
California Primary Care Association
California Pan-Ethnic Network
Central California Children's Institute
Central California Policy Institute
Department of Social Services
El Dorado County Public Health Department
Health Services Agency
Humboldt County
Community Clinic Association of Los Angeles
County
The Community Action to Fight Asthma
Imperial County Public Health Department
Kern County
First Five of Marin County
Kings County Department of Health Services
First Five of Monterey County
Long Beach Department of Health and Human
Services
Los Angeles County
Greater Los Angeles Veterans Health
Administration
Harvard University
First Five of San Benito County
Johns Hopkins
PolicyLink, Oakland, CA
First Five of Santa Barbara County
Fresno West Coalition for Economic
Development
First Five of San Diego County
35
Local Health Departments
Alameda County Public Health Department
Calaveras County
City of Berkeley
Marin County Department of Health and Human
Services
Mendocino County
Merced County Health Department
Research Institutions
Princeton University
Community Organizations
Fresno Metro Ministry
Public Health Institute of California
Public Policy Institute of California, San
Francisco, CA
RAND
San Francisco General Hospital
San Francisco State University
SRI International, Menlo Park, CA
Stanford University
Health San Diego
Kaiser Permanente Health
Trust for Public Land, Los Angeles, CA
University of California, Berkeley
University of California, Davis
University of California, Irvine
University of California, Los Angeles
University of California San Diego
University of California San Francisco
University of Chicago
University of Massachusetts
University of Michigan
University of Southern California
University of Utah
Los Angeles County Children's Health Initiative
Madera One by One Leadership
Monterey Apollonia Foundation
Monterey Clinica De Salued Del Valle
Monterey Department of Social and
Employment Services
Monterey County Farm to School Partnerships
Monterey Department of Social Services
NICOS Chinese Health Coalition
Pajaro Valley Community Health Trust
San Diego American Indian Health Care
San Diego Business Healthcare Connection
San Diego Community Health Improvement
Partners
San Diego League of Women Voters
San Diego Mountain Health
San Diego Scripps Health
Siskiyou County
San Francisco Community Clinic Consortium
San Francisco Southeast Asian Community
Center
Sequoia Community Health Centers
Santa Barbara County Kids Network
Union of Pan Asian Communities
36
Local Health Departments
Napa County Health and Human Services
Agency
Nevada County
Orange County Health Care Agency
Pasadena Public Health Department
Placer County Human Health Services
Riverside County
Sacramento County
San Bernardino County
San Diego County Public Health Services
San Francisco County
San Joaquin County
San Luis Obispo County
San Mateo County
Santa Barbara County
Santa Clara County Public Health Department
Santa Cruz County
Shasta County
Sierra County
Solano County
Sonoma County
Stanislaus County
Sutter County Division of Health Services
Trinity County
Tulare County
Ventura County
Yolo County Health Department
California Health Interview Survey
Peer-reviewed Journal Articles
October 2006
Berrigan D, Troiano RP, McNeel T, Disogra C, Ballard-Barbash R. Active transportation increases adherence to
activity recommendations. American Journal of Preventive Medicine. Sept. 2006; 31(3):210-6.
Brown, E.R., Holtby, S., Zahnd, E., Abbott, G.B. Community-based participatory research in the California Health
Interview Survey. Preventing Chronic Disease [serial online]. Oct. 2005. Available from: URL:
http://www.cdc.gov/pcd/issues/2005/oct/05_0046.htm.
California Health Benefits Review Program (CHBRP). (2005). Implementation of Assembly Bill 1996: University
of California Analysis of Legislation Mandating Health Care Benefits and Service. Report to Governor and
Legislature from the University of California. Oakland, CA: CHBRP. 06-01.
Carpenter, C. Self-reported sexual orientation and earnings: Evidence from California. Industrial and Labor
Relations Review. 2005; 58(2): 258-273.
Chen, J.Y., Diamant, A., Pourat, N., & Kagawa-Singer, M. Racial/ethnic disparities in the use of preventive services
among the elderly. American Journal of Preventive Medicine. Dec. 2005; 29(5):388-395.
Cho, J. & Juon, H.S. Assessing overweight and obesity risk among Korean Americans in California using World
Health Organization Body Mass Index Criteria for Asians. Preventing Chronic Disease. Jul. 2006; 3(3).
Constantine, N.A. & Moskowitz, J.M. California Adolescents' Use of Family Planning Services. Perspectives on
Sexual and Reproductive Health. Nov. 2004; 36(6): 288.
Cook, P.J. & Sorenson, S.B. The gender gap starts young: Survey responses by teenagers regarding guns in the
home. Journal of Quantitative Criminology, Forthcoming, 2006.
Coombs, N.J., Taylor, R., Wilcken, N., Fiorica, J., & Boyages, J. Hormone replacement therapy and breast cancer
risk in California. Breast Journal. Nov. / Dec. 2005; 11(6): 410-415.
De Alba, I., Hubbell, F.A., McMullin, J.M., Sweningson, J.M., & Saitz, R. Impact of U.S. citizenship status on
cancer screening among immigrant women. Journal of General Internal Medicine. Mar. 2005; 20(3): 290-296.
De Alba, I., Ngo-Metzger, Q., Sweningson, J.M., & Hubbell, F.A. Pap smear use in California: Are we closing the
racial/ethnic gap? Preventive Medicine. Jun. 2005; 40(6): 747-755.
Diamant AL, Babey SH, Hastert TA, Brown ER. Less than one-quarter of California adults walk regularly. Policy
Brief UCLA Cent Health Policy Res. 2006 Aug; (PB2006-4):1-12.
Etzioni, D.A., Ponce, N.A., Babey, S.H., Spencer, B.A., Brown, E.R., Ko, C.Y. Chawala, N., Breen, N., &
Klabunde, C.N. A population-based study of colorectal cancer test use: Results from the 2001 California Health
Interview Survey. Cancer. Dec. 2004; 101(11): 2523-2532.
Guendelman, S., Angulo, V., & Oman, D. Access to health care for children and adolescents in working poor
families: Recent findings from California. Medical Care. Jan. 2005; 43(1): 68-78.
Guendelman, S., Wier, M., Angulo, V., Oman, D. The effects of child-only insurance coverage and family coverage
on health care access and use: Recent findings among low-income children in California. Health Services Research.
Feb. 2006; 41(1): 125-47.
37
Guendelman, S., Angulo, V., Wier, M., & Oman, D. Overcoming the odds: Access to care for immigrant children in
working poor families in California. Child Health Journal. Nov. 2005; 15:1-12.
Hemenway, D. & Miller, M. Gun threats against and self-defense gun use by California adolescents. Archives of
Pediatric and Adolescent Medicine. 2004; 158: 395-400.
Isong, U. & Weintraub, J.A. Determinants of dental service utilization among 2 to 11-year-old California children.
Journal of Public Health Dentistry. 2005; 65(3): 138-145.
Kandula, N.R. & Lauderdale, D.S. Leisure time, non-leisure time, and occupational physical activity in Asian
Americans. Annals of Epidemiology. Apr. 2005; 15(4): 257-265.
Kandula NR, Wen M, Jacobs EA, Lauderdale DS. Low rates of colorectal, cervical, and breast cancer screening in
Asian Americans compared with non-Hispanic whites: cultural influences or access to care? Cancer. May 2006.
Kim J, Shin H. Public Health Insurance Enrollment among Immigrants and Nonimmigrants: Findings from the
2001 California Health Interview Survey. Journal of Immigrant Minority Health. 2006 Jun 14.
Kincheloe J, Brown ER, Frates J, Call KT, Yen W, Watkins J. Can we trust population surveys to count Medicaid
enrollees and the uninsured? Health Affairs (Millwood). 2006 Jul-Aug;25(4):1163-7.
Kominski, G.F., Ripps, J.C., Laugesen, M.J., Cosway, R.G. & Pourat, N. The California cost and coverage model:
Analyses of the financial impacts of benefit mandates for the California legislature. Health Services Research. 2006
Jun;41(3 Pt 2):1027-44.
Lauderdale DS, Wen M, Jacobs EA, Kandula NR. Immigrant Perceptions of Discrimination in Health Care: The
California Health Interview Survey 2003. Medical Care. 2006 Oct;44(10):914-920.
Lopez-Zetina, J., Lee, H. & Friis, R. The link between obesity and the built environment. Evidence from an
ecological analysis of obesity and vehicle miles of travel in California. Health Place. Oct. 2005. [Epub ahead of
print.]
Maxwell, A.E., Bernaards, C.A. & McCarthy, W.J. Smoking prevalence and correlates among Chinese- and
Filipino-American adults: Findings from the 2001 California Health Interview Survey. American Journal of
Preventive Medicine. Aug. 2005; 41(2): 693-699.
McMenamin, S.B., Halpin, H.A., & Ganiats, T.G. Assessing the public health impact of state health benefit
mandates. Health Research and Educational Trust. Forthcoming, 2006.
Meng, Y.Y., Babey, S.H., Brown, E.R., Malcolm, E., Chawla, N. & Lim, Y.W. Emergency department visits for
asthma: The role of frequent symptoms and delay in care. Annals of Allergy, Asthma, and Immunology. Feb. 2006;
96(2): 291-297.
Miller, M. & Hemenway, D. Unsupervised firearm handling by California adolescents. Injury Prevention. 2004; 10:
163-168.
Oliver, T.R. & Singer, R.F. Health services research as a source of legislative analysis and input: The role of the
California Health Benefits Review Program. Health Research and Educational Trust. Forthcoming, 2006.
Ponce, N., Hays, R.D. & Cunningham, W.E. Linguistic Disparities in Health Care Access and Health Status Among
Older Adults. Journal of General Internal Medicine. 2006 Jul;21(7):786-91.
Ponce, N., Ku, L., Cunningham, W. & Brown, E.R. Language barriers to health care access among Medicare
beneficiaries. Inquiry. Spring 2006; 43: Forthcoming, 2006.
38
Ponce, N., Lavarreda, S.A., Yen, W., Brown, E.R., DiSogra, C. & Satter, D. The California Health Interview Survey
2001: Translation of a Major Survey for California’s Multiethnic Population. Public Health Reports. Jul. / Aug.
2004; 119: 388-395.
Ramirez, A., Farmer, C.G., Grant, D. & Papachristou, T. Disability and preventive cancer screening: Results from
the 2001 California Health Interview Survey. American Journal of Public Health. Nov. 2005; 95(11): 2057-2064.
Rice, T., Lavarreda, S.A., Ponce, N.A. & Brown, E.R. The impact of private and public health insurance on
medication use for adults with chronic diseases. Medical Care Research and Review. Apr. 2005; 62(2): 231-249.
Satter, D.E., Seals, B.F., Chia, Y.J., Gatchell, M. & Burhansstipanov, L. American Indians and Alaska Natives in
California: Women's cancer screening and results. Journal of Cancer Education. Spring 2005; 20 (Suppl. 1): 58-64.
Satter, D.E., Veiga-Ermert, A., Burhansstipanov, L., Pena, L. & Restivo, T. Communicating respectfully with
American Indian and Alaska Natives: Lessons from the California Health Interview Survey. Journal of Cancer
Education. Spring 2005; 20(1): 49-51.
Seals, B.F., Burhansstipanov, L., Satter, D.E., Chia, Y.J. & Gatchell, M. California American Indian and Alaska
Natives Tribal Groups' Care Access and Utilization of Care: Policy Implications. Journal of Cancer Education. 2006
Spring; 21(1 suppl): S15-S21.
Solorio, M.R., Yu, H., Brown, E.R., Beccerra, L. & Gelberg, L. A comparison of Hispanic and White adolescent
females' use of family planning services in California. Perspectives on Sex and Reproductive Health. Jul. / Aug.
2004; 36(4): 157-161.
Solorio, M.R., Yu, H., Brown, E.R., Beccerra, L. & Gelberg, L. California Adolescents' Use of Family Planning
Services. Perspectives on Sex and Reproductive Health. Nov. 2004; 36(6): 289.
Sorenson, S.B. & Vittes, K.A. Adolescents and firearms: A California statewide survey. American Journal of Public
Health. May 2004; 92: 852-858.
Spencer, B.A., Babey, S.H., Etzioni, D.A., Ponce, N.A., Brown, E.R., Yu, H., Chawla, N. & Litwin, M.S. A
population-based survey of prostate-specific antigen testing among California men at higher risk for prostate
carcinoma. Cancer. Jan. 2006; 106(4): 765-774.
Stevens, G.D., Seid, M. & Halfon, N. Enrolling vulnerable, uninsured but eligible children in public health
insurance: Association with health status and primary care access. Pediatrics. Apr. 2006; 117(4): e751-759.
Stevens, G.D., Seid, M., Mistry, R. & Halfon, N. Disparities in primary care for vulnerable children: The influence
of multiple risk factors. Health Services Research. Apr. 2006; 41(2): 507-531.
Swan, J., Breen, N., Burhansstipanov, L., Satter, E.E., Davis, W.W., McNeel, T., & Snipp, C.M. Cancer screening
and risk factor rates among American Indians. American Journal of Public Health. Feb. 2006; 96(2): 340-350.
Tang, H., Greenwood, G.L., Cowling, D.W., Lloyd, J.C., Roeseler, A.G. & Bal, D.G. Cigarette smoking among
lesbians, gays, and bisexuals: How serious a problem (United States). Cancer Causes Control. Oct. 2004; 15(8):
797-803.
Tang, H., Shimizu, R. & Chen Jr., M.S. English language proficiency and smoking prevalence among California’s
Asian Americans. Cancer. Dec. 2005; 104 (Suppl. 12): 2982-2988.
Trivedi AN, Ayanian JZ. Perceived discrimination and use of preventive health services. Journal of General
Internal Medicine. 2006 Jun;21(6):553-8.
Unger, J.B., Soto, C. & Baezconde-Garbanati, L. Perceptions of ceremonial and nonceremonial uses of tobacco by
American-Indian adolescents in California. Journal of Adolescent Health. Apr. 2006; 38(4): 443.e9-16.
39
Vittes, K.A. & Sorenson, S.B. Recreational use of firearms among adolescents. Health Education and Behavior.
Dec. 2005; 32(6): 751-766.
Walter, L.C., Lindquist, K. & Covinsky, K.E. Relationship between health status and use of screening
mammography and Papanicolaou smears among women older than 70 years of age. Annals of Internal Medicine.
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Xia, Q., Osmond, D.H., Tholandi, M., Pollack, L.M., Zhou, W., Ruiz, J.D. & Catania, J.A. HIV prevalence and
sexual risk behaviors among men who have sex with men: Results from a statewide population-based survey in
California. Journal of Acquired Immune Deficiency Syndromes. Feb. 2006; 41(2): 238-245.
Yang, H., Schnall, PL., Jaurequi, M., Su, TC., & Baker, D. Work hours and self-reported hypertension among
working people in California. Hypertension. 2006 Oct;48(4):744-50.
Yu, S.M., Huang, Z.J., Schwalberg, R.H., & Nyman, R.M. Parental English proficiency and children's health
services access. American Journal of Public Health. 2006 Aug;96(8):1449-55.
40
Attachment 7J
Federal Register Privacy Act System of
Records 09-25-0200
41
42
[Federal Register: April 7, 1997 (Volume 62, Number 66)]
[Notices]
[Page 16596-16602]
From the Federal Register Online via GPO Access [wais.access.gpo.gov]
[DOCID:fr07ap97_dat-89]
----------------------------------------------------------------------DEPARTMENT OF HEALTH AND HUMAN SERVICES
National Institutes of Health
Privacy Act of 1974; New System of Records
Agency: National Institutes of Health, HHS.
Action: Notification of a New System of Records.
----------------------------------------------------------------------Summary: In accordance with the requirements of the Privacy Act, the National Institutes of Health (NIH) is publishing a
notice of a new system of records, 09-25-0200, ``Clinical, Epidemiologic and Biometric Studies of the National Institutes of
Health (NIH), HHS/NIH/OD.'' This system notice serves as an umbrella system for most NIH clinical, epidemiologic and
biometric research studies. Thirty-eight existing NIH system notices were subsumed under this notice (listed in the system
notice under System Manager(s)), to reduce the number and avoid future proliferation of like system notices. We are also
proposing routine uses for this new system; with two exceptions, these routine uses were already contained in the preceding
system notices. The first new routine use will allow disclosure to authorized organizations which provide health services to
subject individuals or provide third-party reimbursement or fiscal intermediary functions. The purpose of the disclosure is to
plan for or provide such services, bill or collect third-party reimbursements. The second new routine use will allow disclosure
for the purpose of reporting child, elder, or spousal abuse or neglect, or any other type of abuse or neglect as required by
State or Federal law.
Dates: NIH invites interested parties to submit comments on the proposed internal and routine uses on or before May 7, 1997.
NIH has sent a report of a New System to the Congress and to the Office of Management and Budget (OMB) on November
6, 1996. This system of records will be effective 40 days from the date of publication unless NIH receives comments on the
routine uses which would result in a contrary determination.
Address: Please submit comments to: NIH Privacy Act Officer, Building 31, Room 1B05, 31 Center Drive MSC 2075,
Bethesda, MD 20892-2075, 301-496-2832. Comments received will be available for inspection at this same address from 9
a.m. to 3 p.m., Monday through Friday.
For further information contact: NIH Privacy Act Officer, Building 31, Room 1B05, 31 Center Drive MSC 2075, Bethesda,
MD 20892-2075, 301-496-2832. The numbers listed above are not toll free.
Supplementary information: The National Institutes of Health (NIH) proposes to establish a new system of records:
09-25-0200, ``Clinical, Epidemiologic and Biometric Studies of the National Institutes of Health (NIH), HHS/NIH/OD.'' This
umbrella system of records will be used by NIH staff to document, track, monitor and evaluate NIH clinical, epidemiologic
and biometric research activities. This inclusive system notice will achieve agency administrative efficiencies, avoiding
confusion created by the current fragmented pool of Institute, Center and Division (ICD) system notices. Because of its
unique organizational structure, NIH has, over the recent decades, experienced a proliferation of almost identical system
notices that differ only by disease/disorder under study or ICD interest. This system notice subsumes thirty-eight existing
system notices and will offer coverage for research not currently covered by an appropriate system notice. The consolidation
of similar research systems of records into one generic-type notice will also serve the public interest. It will alleviate burden
on the public associated with multiple attempts at notification, access and correction of record information when individuals
are not sure which research system notice applied to their study participation.
The system will comprise records about individuals as relevant to a particular research study. Examples include, but are not
limited to: Name, study identification number, address, relevant telephone numbers, Social Security Number (voluntary),
driver's license number, date of birth, weight, height, sex, race; medical, psychological and dental information, laboratory
and diagnostic testing results; registries; social, economic and demographic data; health services utilization; insurance and
hospital cost data, employers, conditions of the work environment, exposure to hazardous substances/compounds;
information pertaining to stored biologic specimens (including blood, urine, tissue and genetic materials), characteristics and
activities of health care providers and educators and trainers (including curriculum vitae); and associated correspondence.
The amount of information recorded on each individual will be only that which is necessary to accomplish the purpose of the
system.
The records in this system will be maintained in a secure manner compatible with their content and use. NIH and contractor
staff will be required to adhere to the provisions of the Privacy Act and the HHS Privacy Act Regulations. The System
Manager will control access to the data. Only authorized users whose official duties require the use of such information will
have regular access to the records in this system. Authorized users are HHS employees, and contractors responsible for
implementing the research.
Records may be stored on index cards, file folders, computer tapes and disks (including optical disks), photography media,
microfiche, microfilm, and audio and video tapes. Manual and computerized records will be maintained in accordance with
the standards of Chapter 45-13 of the HHS General Administration Manual, ``Safeguarding Records Contained in Systems
of Records,'' supplementary Chapter PHS hf:45-13, the Department's Automated Information System Security Program
Handbook, and the National Institute of Standards and Technology Federal Information Processing Standards (FIPS Pub. 41
and FIPS Pub. 31). Data on computer files is accessed by keyword known only to authorized users. Access to information
is thus limited to those with a need to know. Rooms where records are stored are locked when not in use. During regular
business hours rooms are unlocked but are controlled by on-site personnel. Researchers authorized to conduct research on
biological specimens will typically access to the system through the use of encrypted identifiers sufficient to link individuals
with records in such a manner that does not compromise confidentiality of the individual. All authorized users of personal
information in connection with the performance of their jobs protect information from public view and from unauthorized
personnel entering an unsupervised office. Depending upon the sensitivity of the information in the record, additional
safeguard measures are employed.
The routine uses proposed for this system are compatible with the stated purposes of the system. The first routine use permits
disclosure of a record for an authorized research purpose under specified conditions. The second routine use permitting
disclosure to a congressional office is proposed to allow subject individuals to obtain assistance from their representatives in
Congress, should they so desire. Such disclosure would be made only pursuant to a request of the individual.
The third routine use allows disclosure to the Department of Justice for use in litigation. The fourth routine use allows
disclosure of records to contractor, grantee, experts, consultants or volunteers who have been engaged by the agency to assist
in the performance of a service related to this system of records and who need to have access to the records in order to
perform the activity. The fifth routine use allows disclosure to certain relevant third parties (e.g., relatives, prior employees,
Motor Vehicle Administration, State vita statistics offices) when necessary to obtain information on morbidity and mortality
experiences and to locate individuals for follow-up studies. The sixth routine use allows disclosure to tumor registries for
maintenance of health statistics. The seventh routine use allows the PHS to inform the sexual and/or needle-sharing partner(s)
of a subject individual who is infected with the human immunodeficiency virus (HIV) of their exposure to HIV, or to disclose
such information to State or local public health departments under specified circumstances. The eighth routine use allows
disclosure of certain diseases and conditions, including infectious diseases, to appropriate representatives of State or Federal
Government as required by State or Federal law. The ninth routine use allows records to be disclosed to authorized
organizations which provide health services to subject individuals or provide third-party reimbursement or fiscal intermediary
functions, for the purpose of planning for or providing such services, billing or collecting third-party reimbursements. The
tenth routine use allows disclosure to organizations deemed qualified by the Secretary, DHHS, to carry out quality
assessment, medical audits or utilization reviews. The eleventh routine use allows information to be disclosed for the purpose
of reporting child, elder or spousal abuse or neglect, or any other type of abuse or neglect as required by State or Federal law.
The following notice is written in the present, rather than future tense, in order to avoid the unnecessary expenditure of public
funds to republish the notice after the system has become effective.
Dated: October 30, 1996.
Anthony L. Itteilag,
Deputy Director for Management, National Institutes of Health.
09-25-0200
SYSTEM NAME:
Clinical, Epidemiologic and Biometric Studies of the National Institutes of Health (NIH), HHS/NIH/OD.
SECURITY CLASSIFICATION:
None.
SYSTEM LOCATION:
Records are located at NIH and Contractor research facilities which collect or provide research data for this system.
Contractors may include, but are not limited to: Research centers, clinics, hospitals, universities, medical schools, research
institutions/foundations, national associations, commercial organizations, collaborating State and Federal Government
agencies, and coordinating centers. A current list of sites, including the address of any Federal Records Center where records
from this system may be stored, is available by writing to the appropriate Coordinator listed under Notification Procedure.
CATEGORIES OF INDIVIDUALS COVERED BY THE SYSTEM:
Adults and/or children who are the subjects of clinical, epidemiologic, and biometric research studies of the NIH.
Individuals with disease. Individuals who are representative of the general population or of special groups including, but not
limited to: Normal controls, normal volunteers, family members and relatives; providers of services (e.g., health care and
social work); health care professionals and educators, and demographic sub-groups as applicable, such as age, sex, ethnicity,
race, occupation, geographic location; and groups exposed to real and/or hypothesized risks (e.g., exposure to biohazardous
microbial agents).
CATEGORIES OF RECORDS IN THE SYSTEM:
The system contains data about individuals as relevant to a particular research study. Examples include, but are not limited
to: Name, study identification number, address, relevant telephone numbers, Social Security Number (voluntary), driver's
license number, date of birth, weight, height, sex, race; medical, psychological and dental information, laboratory and
diagnostic testing results; registries; social, economic and demographic data; health services utilization; insurance and
hospital cost data, employers, conditions of the work environment, exposure to hazardous substances/compounds;
information pertaining to stored biologic specimens (including blood, urine, tissue and genetic materials), characteristics and
activities of health care providers and educators and trainers (including curriculum vitae); and associated correspondence.
AUTHORITY FOR MAINTENANCE OF THE SYSTEM:
``Research and Investigation,'' ``Appointment and Authority of the Directors of the National Research Institutes,''
``National Cancer Institute,'' ``National Eye Institute,'' ``National Heart, Lung and Blood Institute,'' ``National Institute on
Aging,'' ``National Institute on Alcohol Abuse and Alcoholism,'' ``National Institute on Allergy and Infectious Diseases,''
``National Institute of Arthritis and Musculoskeletal and Skin Diseases,'' ``National Institute of Child Health and Human
Development,'' ``National Institute on Deafness and Other Communication Disorders,'' ``National Institute of Dental
Research,'' ``National Institute of Diabetes, and Digestive and Kidney Diseases,'' ``National Institute of Drug Abuse,''
``National Institute of Environmental Health Sciences,'' ``National Institute of Mental Health,'' ``National Institute of
Neurological Disorders and Stroke,'' and the ``National Center for Human Genome Research,'' of the Public Health Service
Act. (42 U.S.C. 241, 242, 248, 281, 282, 284, 285a, 285b, 285c, 285d, 285e, 285f, 285g, 285h, 285i, 285j, 285l, 285m, 285n,
285o, 285p, 285q, 287, 287b, 287c, 289a, 289c, and 44 U.S.C. 3101.)
PURPOSE(S)
To document, track, monitor and evaluate NIH clinical, epidemiologic and biometric research activities.
ROUTINE USES OF RECORDS MAINTAINED IN THE SYSTEM, INCLUDING CATEGORIES OF USERS AND THE
PURPOSES OF SUCH USES:
1. A record may be disclosed for a research purpose, when the Department: (A) has determined that the use or disclosure
does not violate legal or policy limitations under which the record was provided, collected, or obtained; e.g., disclosure of
alcohol or drug abuse patient records will be made only in accordance with the restrictions of confidentiality statutes and
regulations 42 U.S.C. 241, 42 U.S.C. 290dd-2, 42 CFR part 2, and where applicable, no disclosures will be made inconsistent
with an authorization of confidentiality under 42 U.S.C. 241 and 42 CFR part 2a; (B) has determined that the research
purpose (1) cannot be reasonably accomplished unless the record is provided in individually identifiable form, and (2)
warrants the risk to the privacy of the individual that additional exposure of the record might bring; (C) has required the
recipient to (1) establish reasonable administrative, technical, and physical safeguards to prevent unauthorized use or
disclosure of the record, (2) remove or destroy the information that identifies the individual at the earliest time at which
removal or destruction can be accomplished consistent with the purpose of the research project, unless the recipient has
presented adequate justification of a research or health nature for retaining such information, and (3) make no further use or
disclosure of the record except (a) in emergency circumstances affecting the health or safety of any individual, (b) for use in
another research project, under these same conditions, and with written authorization of the Department, (c) for disclosure to
a property identified person for the purpose of an audit related to the research project, if information that would enable
research subjects to be identified is removed or destroyed at the earliest opportunity consistent with the purpose of the audit,
or (d) when required by law; and (D) has secured a written statement attesting to the recipient's understanding of, and
willingness to abide by, these provisions.
2. Disclosure may be made to a Member of Congress or to a Congressional staff member in response to an inquiry of the
Congressional office made at the written request of the constituent about whom the record is maintained.
3. The Department of Health and Human Services (HHS) may disclose information from this system of records to the
Department of Justice when: (a) The agency or any component thereof; or (b) any employee of the agency in his or her
official capacity where the Department of Justice has agreed to represent the employee; or (c) the United States Government,
is a party to litigation or has an interest in such litigation, and by careful review, the agency determines that the records are
both relevant and necessary to the litigation and the use of such records by the Department of Justice is therefore deemed by
the agency to be for a purpose that is compatible with the purpose for which the agency collected the records.
4. Disclosure may be made to agency contractors, grantees, experts, consultants, collaborating researchers, or volunteers
who have been engaged by the agency to assist in the performance of a service related to this system of records and who need
to have access to the records in order to perform the activity. Recipients shall be required to comply with the requirements of
the Privacy Act of 1974, as amended, pursuant to 5 U.S.C. 552a(m).
5. Information from this system may be disclosed to Federal agencies, State agencies (including the Motor Vehicle
Administration and State vital statistics offices, private agencies, and other third parties (such as current or prior employers,
acquaintances, relatives), when necessary to obtain information on morbidity and mortality experiences and to locate
individuals for follow-up studies. Social Security numbers, date of birth and other identifiers may be disclosed: (1) To the
National Center for Health Statistics to ascertain vital status through the National Death Index; (2) to the Health Care
Financing Agency to ascertain morbidities; and (3) to the Social Security Administration to ascertain disabilities and/or
location of participants. Social Security numbers may also be given to other Federal agencies, and State and local agencies
when necessary to locating individuals for participation in follow-up studies.
6. Medical information may be disclosed in identifiable form to tumor registries for maintenance of health statistics, e.g.,
for use in epidemiologic studies.
7. (a). PHS may inform the sexual and/or needle-sharing partner(s) of a subject individual who is infected with the human
immunodeficiency virus (HIV) of their exposure to HIV, under the following circumstances: (1) The information has been
obtained in the course of clinical activities at PHS facilities carried out by PHS personnel or contractors; (2) The PHS
employee or contractor has made reasonable efforts to counsel and encourage the subject individual to provide the
information to the individual's sexual or needle-sharing partner(s); (3) The PHS employee or contractor determines that the
subject individual is unlikely to provide the information to the sexual or needle-sharing partner(s) or that the provision of
such information cannot reasonably be verified; and (4) The notification of the partner(s) is made, whenever possible, by the
subject individual's physician or by a professional counselor and shall follow standard counseling practices.
(b). PHS may disclose information to State or local public health departments, to assist in the notification of the subject
individual's sexual and/or needle-sharing partner(s), or in the verification that the subject individual has notified such sexual
or needle-sharing partner(s).
8. Certain diseases and conditions, including infectious diseases, may be reported to appropriate representatives of State or
Federal Government as required by State or Federal law.
9. Disclosure may be made to authorized organizations which provide health services to subject individuals or provide
third-party reimbursement or fiscal intermediary functions, for the purpose of planning for or providing such services, billing
or collecting third-party reimbursements.
10. The Secretary may disclose information to organizations deemed qualified to carry out quality assessment, medical
audits or utilization reviews.
11. Disclosure may be made for the purpose of reporting child, elder or spousal abuse or neglect or any other type of abuse
or neglect as required by State or Federal law.
POLICIES AND PRACTICES FOR STORING, RETRIEVING, ACCESSING, RETAINING,
AND DISPOSING OF RECORDS IN THE SYSTEM:
STORAGE:
Records may be stored on index cards, file folders, computer tapes and disks (including optical disks), photography media,
microfiche, microfilm, and audio and video tapes. For certain studies, factual data with study code numbers are stored on
computer tape or disk, while the key to personal identifiers is stored separately, without factual data, in paper/computer files.
RETRIEVABILITY:
During data collection stages and follow-up, retrieval is by personal identifier (e.g., name, Social Security Number,
medical record or study identification number, etc.). During the data analysis stage, data are normally retrieved by the
variables of interest (e.g., diagnosis, age, occupation).
SAFEGUARDS:
1. Authorized Users: Access to identifiers and to link files is strictly limited to the authorized personnel whose duties
require such access. Procedures for determining authorized access to identified data are established as appropriate for each
location. Personnel, including contractor personnel, who may be so authorized include those directly involved in data
collection and in the design of research studies, e.g., interviewers and interviewer supervisors; project managers; and
statisticians involved in designing sampling plans. Other one-time and special access by other employees is granted on a
need-to-know basis as specifically authorized by the system manager. Researchers authorized to conduct research on
biologic specimens will typically access the system through the use of encrypted identifiers sufficient to link individuals with
records in such a manner that does not compromise confidentiality of the individual.
2. Physical Safeguards: Records are either stored in locked rooms during off-duty hours, locked file cabinets, and/or
secured computer facilities. For certain studies, personal identifiers and link files are separated and stored in locked files.
Computer data access is limited through the use of key words known only to authorized personnel.
3. Procedural Safeguards: Collection and maintenance of data is consistent with legislation and regulations in the
protection of human subjects, informed consent, confidentiality, and confidentiality specific to drug and alcohol abuse
patients where these apply. When anonymous data is provided to research scientists for analysis, study numbers which can be
matched to personal identifiers will be eliminated, scrambled, or replaced by the agency or contractor with random numbers
which cannot be matched. Contractors who maintain records in this system are instructed to make no further disclosure of the
records. Privacy Act requirements are specifically included in contracts for survey and research activities related to this
system. The OHS project directors, contract officers, and project officers oversee compliance with these requirements.
Personnel having access are trained in Privacy Act requirements. Depending upon the sensitivity of the information in the
record, additional safeguard measures may be employed.
4. Implementation Guidelines: DHHS Chapter 45-13 and supplementary Chapter PHS.hf: 45-13 of the HHS General
Administration Manual and Part 6, ``ADP System Security'' of the HHS ADP Systems Security Manual.
RETENTION AND DISPOSAL:
Records are retained and disposed of under the authority of the NIH Records Control Schedule contained in NIH Manual
Chapter 1743, Appendix 1--``Keeping and Destroying Records'' (HHS Records Management Manual, Appendix B-361), item
3000-G-3, which allows records to be kept as long as they are useful in scientific research. Collaborative Perinatal Project
records are retained in accordance with item 3000-G-4, which does not allow records to be destroyed. William A. White
Clinical Research Program medical records (Saint Elizabeths Hospital, NIMH) are retained for 5 years after last discharge or
upon death of a patient and then transferred to the Washington National Records Center, where they are retained until 30
years after discharge or death. Refer to the NIH Manual Chapter for specific conditions on disposal or retention instructions.
SYSTEM MANAGER(S) AND ADDRESS:
See Appendix I for a listing of current system managers. This system is for use by all NIH Institutes, Centers, and
Divisions. The following system notices have been subsumed under this umbrella system notice.
09-25-0001
09-25-0010
09-25-0015
09-25-0016
09-25-0026
09-25-0028
09-25-0031
09-25-0037
09-25-0038
09-25-0039
09-25-0040
09-25-0042
09-25-0044
09-25-0046
09-25-0053
09-25-0057
09-25-0060
09-25-0067
09-25-0069
09-25-0074
09-25-0077
09-25-0126
09-25-0128
09-25-0129
09-25-0130
09-25-0134
09-25-0142
09-25-0143
09-25-0145
09-25-0148
Clinical Research: Patient Records, HHS/NIH/NHLBI
Research Resources: Registry of Individuals Potentially Exposed to Microbial Agents, HHS/NIH/NCI
Clinical Research: Collaborative Clinical Epilepsy Research, HHS/NIH/NINDS
Clinical Research: Collaborative Perinatal Project, HHS/NIH/NINDS
Clinical Research: Nervous System Studies, HHS/NIH/NINDS
Clinical Research: Patient Medical Histories, HHS/NIH/NINDS and HHS/NIH/NIDCD
Clinical Research: Serological and Virus Data in Studies Related to the Central Nervous System,
HHS/NIH/NINDS
Clinical Research: The Baltimore Longitudinal Study of Aging, HHS/NIH/NIA
Clinical Research: Patient Data, HHS/NIH/NIDDK
Clinical Research: Diabetes Mellitus Research Study of Southwestern American Indians,
HHS/NIH/NIDDK
Clinical Research: Southwestern American Indian Patient Data, HHS/NIH/NIDDK
Clinical Research: National Institute of Dental Research Patient Records, HHS/NIH/NIDR
Clinical Research: Sensory Testing Research Program, HHS/NIH/NIDR
Clinical Research: Catalog of Clinical Specimens from Patients, Volunteers and Laboratory Personnel,
HHS/NIH/NIAID
Clinical Research: Vision Studies, HHS/NIH/NEI
Clinical Research: Burkitt's Lymphonma Registry, HHS/NIH/NCI
Clinical Research: Division of Cancer Treatment Clinical Investigations, HHS/NIH/NCI
Clinical Research: National Cancer Incidence Surveys, HHS/NIH/NCI
NIH Clinical Center Admissions of the National Cancer Institute, HHS/NIH/NCI
Clinical Research: Division of Cancer Biology and Diagnosis Patient Trials, HHS/NIH/NCI
Biological Carcinogenesis Branch Human Specimen Program, HHS/NIH/NCI
Clinical Research: National Heart, Lung, and Blood Institute Epidemiological and Biometric Studies,
HHS/NIH/NHLBI
Clinical Research: Neural Prosthesis and Biomedical Engineering Studies, HHS/NIH/NINDS
Clinical Research: Clinical Research Studies Dealing with Hearing, Speech, Language and Chemosensory
Disorders, HHS/NIH/NIDCD
Clinical Research: Studies in the Division of Cancer Cause and Prevention, HHS/NIH/NCI
Clinical Research: Epidemiology Studies, National Institute of Environmental Health Sciences,
HHS/NIH/NIEHS
Clinical Research: Records of Subjects in Intramural Research, Epidemiology, Demography and Biometry
Studies on Aging, HHS/NIH/NIA
Biomedical Research: Records of Subjects in Clinical, Epidemiologic and Biometric Studies of the
National Institute of Allergy and Infectious Diseases, HHS/NIH/NIAID
Clinical Trials and Epidemiological Studies Dealing with Visual Disease and Disorders in the National Eye
Institute, HHS/NIH/NEI
Contracted and Contract-Related Research: Records of Subjects in Clinical, Epidemiological and
Biomedical Studies of the National Institute of Neurological Disorders and Stroke and the National
Institute on Deafness and Other Communication Disorders, HHS/NIH/NINDS and HHS/NIH/NIDCD
09-25-0152
Biomedical Research: Records of Subjects in National Institute of Dental Research Contracted
Epidemiological and Biometric Studies, HHS/NIH/NIDR
09-25-0153
Biomedical Research: Records of Subjects in Biomedical and Behavioral Studies of Child Health and
Human Development, HHS/NIH/NICHD
09-25-0154
Biomedical Research: Records of Subjects: 1) Cancer Studies of the Division of Cancer Prevention and
Control, HHS/NIH/NCI; and 2) Women's Health Initiative (WHI) Studies, HHS/NIH/OD
09-25-0170
Diabetes Control and Complications Trial (DCCT) Data System, HHS/NIH/NIDDK
09-25-0172
Clinical Research: National Center for Human Genome Research, HHS/NIH/NCHGR
09-25-0201
Clinical Research: National Institute of Mental Health Patient Records, HHS/NIH/NIMH
09-25-0205
Alcohol, Drug Abuse, and Mental Health Epidemiologic and Biometric Research Data, HHS/NIH/NIAAA,
HHS/NIH/NIDA and HHS/NIH/NIMH
09-25-0212
Clinical Research: Neuroscience Research Center Patient Medical Records, HHS/NIH/NIMH
NOTIFICATION PROCEDURE:
To determine if a record exists, write to the appropriate ICD Privacy Act Coordinator listed below. In cases where the
requestor knows specifically which System Manager to contact, he or she may contact the System Manager directly (See
Appendix I). Notification requests should include: Individual's name; current address; date of birth; date, place and nature of
participation in specific research study; name of individual or organization administering the research study (if known); name
or description of the research study (if known); address at the time of participation; and in specific cases, a notarized
statement (some highly sensitive systems require two witnesses attesting to the individual's identity). A requestor must verify
his or her identity by providing either a notarization of the request or by submitting a written certification that the requestor is
who he or she claims to be and understands that the knowing and willful request for acquisition of a record pertaining to an
individual under false pretenses is a criminal offense under the Act, subject to a five thousand dollar fine.
Individuals will be granted direct access to their medical records unless the System Manager determines that such access is
likely to have an adverse effect (i.e., could cause harm) on the individual. In such cases when the System Manager has
determined that the nature of the record information requires medical interpretation, the subject of the record shall be
requested to designate, in writing, a responsible representative who will be willing to review the record and inform the
subject individual of its contents at the representative's discretion. The representative may be a physician, other health
professional, or other responsible individual. In this case, the medical/dental record will be sent to the designated
representative. Individuals will be informed in writing if the record is sent to the representative. This same procedure will
apply in cases where a parent or guardian requests notification of, or access to, a child's or incompetent person's medical
record. The parent or guardian must also verify (provide adequate documentation) their relationship to the child or
incompetent person as well as his or her own identity to prove their relationship. If the requester does not know which
Institute, Center or Division Privacy Act Coordinator to contact for notification purposes, he or she may contact directly the
NIH Privacy Act Officer at the following address: NIH Privacy Act Officer, Office of Management Assessment, Building 31,
Room 1B05, 31 Center Drive MSC 2075, Bethesda, MD 20892-2075.
NIH Privacy Act Coordinators
Office of the Director, (OD), NIH
Associate Director for Disease Prevention, OD, NIH
Building 1, Room 260
1 Center Drive
Bethesda, MD 20892
National Cancer Institute (NCI)
Privacy Act Coordinator, NCI, NIH
Building 31, Room 10A34
31 Center Drive
Bethesda, MD 20892
National Eye Institute (NEI)
Privacy Act Coordinator, NEI, NIH
Building 31, Room 6A-19
31 Center Drive
Bethesda, MD 20892
National Heart, Lung and Blood Institute (NHLBI)
Privacy Act Coordinator, NHLBI, NIH
Building 31, Room 5A08
31 Center Drive
Bethesda, MD 20892
National Institute on Aging (NIA)
Privacy Act Coordinator, NIA, NIH
Building 31, Room 2C12
31 Center Drive
Bethesda, MD 20892
National Institute on Alcohol Abuse and Alcoholism (NIAAA)
Privacy Act Coordinator, NIAAA, NIH
Wilco Building, Suite
6000 Executive Blvd., MSC 7003
Bethesda, MD 20892-7003
National Institute of Allergy and Infectious Diseases (NIAID)
Privacy Act Coordinator, NIAID, NIH
Solar Building, Room 3C-23
6003 Executive Blvd.
Bethesda, MD 20892
National Institute of Arthritis and Musculoskeletal and Skin
Diseases (NIAMS)
Privacy Act Coordinator, NIAMS, NIH
Natcher Building, Room 5QS49
45 Center Drive
Bethesda, MD 20892
National Institute of Child Health and Human Development (NICHD)
Privacy Act Coordinator, NICHD, NIH
6100 Executive Blvd., Room 5D01
North Bethesda, MD 20892
National Institute on Deafness and Other Communication Disorders (NIDCD)
Privacy Act Coordinator, NIDCD, NIH
Building 31, Room 3C02
9000 Rockville Pike
Bethesda, MD 20892
National Institute of Dental Research (NIDR)
Privacy Act Coordinator, NIDR, NIH
Building 31, Room 2C-35
31 Center Drive, MSC 2290
Bethesda, MD 20892-2290
National Institute of Diabetes and Digestive and Kidney Disease (NIDDK)
Privacy Act Coordinator, NIDDK, NIH
Building 31, Room 9A47
31 Center Drive
Bethesda, MD 20892
National Institute on Drug Abuse (NIDA)
Privacy Act Coordinator, NIDA, NIH
Parklawn Building, Room 10A-42
5600 Fishers Lane
Rockville, Maryland 20857
National Institute of Environmental Health Sciences (NIEHS)
Chief, Epidemiology Branch, NIEHS, NIH
P.O. Box 12233
Research Triangle Park
North Carolina 27709
National Institute of Mental Health (NIMH)
Privacy Act Coordinator, NIMH, NIH
Parklawn Building, Room 7C-22
5600 Fishers Lane
Rockville, Maryland 20857
National Institute of Neurological Disorders and Stroke (NINDS)
Privacy Act Coordinator, NINDS, NIH
Federal Building, Room 816
7550 Wisconsin Avenue
Bethesda, MD 20892
National Center for Human Genome Research (NCHGR)
Chief, Office of Human Genome Communications, NGHGR, NIH
Building 38A, Room 617
9000 Rockville Pike
Bethesda, Maryland 20892
RECORD ACCESS PROCEDURE:
Same as notification procedures. Requesters should reasonably specify the record contents being sought. An individual
may also request an accounting of disclosures of his/her record, if any.
CONTESTING RECORD PROCEDURE:
Contact the appropriate official at the address specified under Notification Procedure, and reasonably identify the record,
specify the information being contested, and state corrective action sought, with supporting information to show how the
record is inaccurate, incomplete, untimely, or irrelevant.
RECORD SOURCE CATEGORIES:
The system contains information obtained directly from the subject individual by interview (face-to-face or telephone),
written questionnaire, or by other tests, recording devices or observations, consistent with legislation and regulation regarding
informed consent and protection of human subjects. Information is also obtained from other sources, including but not
limited to: Referring medical physicians, mental health/alcohol/drug abuse or other health care providers; hospitals;
organizations providing biological specimens; relatives; guardians; schools; and clinical medical research records.
SYSTEMS EXEMPTED FROM CERTAIN PROVISIONS OF THE ACT:
None.
Appendix I: System Managers and Addresses
Office of the Director, NIH
Associate Director for Disease Prevention, OD, NIH
Building 1, Room 260
1 Center Drive
Bethesda, MD 20892
National Cancer Institute
Computer Systems Analyst, DCBD, NCI, NIH
Executive Plaza North, Room 344
Bethesda, MD 20892
American Burkitt's Lymphoma Registry
Division of Cancer Etiology, NCI, NIH
Executive Plaza North, Suite 434
6130 Executive Blvd.
Bethesda, MD 20892
Chief, Genetic Epidemiology Branch, EBP, DCE, NCI, NIH
Executive Plaza North, Suite 439
6130 Executive Blvd.
Bethesda, MD 20892
Chief, Clinical Genetics Section
Clinical Epidemiology Branch, DCE, NCI, NIH
Executive Plaza North, Suite 400
6130 Executive Blvd.
Bethesda, MD 20892
Program Director, Research Resources
Biological Carcinogenesis Branch, DCE, NCI, NIH
Executive Plaza North, Room 540
6130 Executive Blvd.
Bethesda, MD 20892
Chief, Environmental Epidemiology Branch, DCE, NCI, NIH
Executive Plaza North, Room 443
6130 Executive Blvd.
Bethesda, MD 20892
Associate Director, Surveillance Program, DCPC, NCI, NIH
Executive Plaza North, Room 343K
6130 Executive Blvd.
Bethesda, MD 20892
Head, Biostatistics and Data Management Section, DCT, NCI, NIH
8601 Old Georgetown Road
Bethesda, MD 20892
Chief, Clinical Research Branch
Biological Response Modifiers Program
Frederick Cancer Research and Development Center, DCT, NCI, NIH
501 W. 7th Street, Suite #3
Frederick, MD 21701
Deputy Branch Chief, Navy Hospital
NCI--Naval Medical Oncology Branch, DCT, NCI, NIH
Building 8, Room 5101
Bethesda, MD 20814
Chief, Pharmaceutical Management Branch
Cancer Therapy Evaluation Program, DCT, NCI, NIH
Executive Plaza North, Suite 804
Bethesda, MD 20892
Director, Extramural Clinical Studies, BRB, BRMP, DCT, NCI, NIH
Frederick Cancer Research and Development Center
Fort Detrick
Frederick, MD 21701
National Eye Institute
Clinical Director, NEI, NIH
Building 10, Room 10N-202
10 Center Drive
Bethesda, MD 20892
Director, Division of Biometry and Epidemiology, NEI, NIH
Building 31, Room 6A-52
31 Center Drive
Bethesda, MD 20892
National Heart Lung and Blood Institute
Administrative Officer, Division of Intramural Research, NHLBI, NIH
Building 10 Room 7N220
10 Center Drive, MSC 1670
Bethesda, MD 20892-1670
Senior Scientific Advisor, OD
Division of Epidemiology and Clinical Applications, NHLBI, NIH
Federal Building, 220
7550 Wisconsin Avenue
Bethesda, MD 20892
National Institute on Aging
Computer Scientist, Longitudinal Studies Branch, IRP, NIH
Gerontology Research Center, GRC
4940 Eastern Avenue
Baltimore, MD 21224
Associate Director, Epidemiology,
Demography and Biometry Program, NIA, NIH
Gateway Building, Suite 3C309
7201 Wisconsin Avenue
Bethesda, MD 20892
National Institute on Alcohol Abuse and Alcoholism
Deputy Director, Division of Biometry and Epidemiology, NIAAA, NIH
Willco Building, Suite 514
6000 Executive Blvd., MSC 7003
Bethesda, MD 20892-7003
Deputy Director, Div. of Clinical and Prevention Res., NIAAA, NIH
Willco Building, Suite 505
6000 Executive Blvd., MSC 7003
Bethesda, MD 20892-7003
National Institute of Allergy and Infectious Diseases
Chief, Respiratory Viruses Section, LID, NIAID, NIH
Building 7, Room 106
9000 Rockville Pike
Bethesda, MD 20892
Chief, Hepatitis Virus Section, LID, NIAID, NIH
Building 7, Room 202
9000 Rockville Pike
Bethesda, MD 20892
Chief, Epidemology and Biometry Branch, DMID, NIAID, NIH
Solar Building, Room 3A24
Bethesda, Maryland 20892
Special Assistant, Clinical Research Program, DAIDS, NIAID, NIH
Solar Building, Room 2C-20
6003 Executive Blvd.
Bethesda, MD 20892
National Institute of Arthritis and Musculoskeletal and Skin Diseases
Clinical Director, NIAMS, NIH
Building 10, Room 9S205
10 Center Drive
Bethesda, MD 20892
National Institute of Child Health and Human Development
Chief, Contracts Management Branch, NICHD, NIH
Executive Plaza North, Room 7A07
6100 Executive Blvd.
North Bethesda, MD 20892
National Institute on Deafness and Other Communication Disorders
Acting Director of Intramural Research, NIDCD, NIH
Building 31, Room 3C02
31 Center Drive
Bethesda, MD 20892
Director, Division of Human Communication, NIDCD, NIH
Executive Plaza South, Room 400B
6120 Executive Boulevard
Rockville, MD 20852
National Institute of Dental Research
Deputy Clinical Director, NIDR, NIH
Building 10, Room 1N-113
10 Center Drive, MSC 1190
Bethesda, MD 20892-1190
Research Psychologist, Clinical Invsetigations, NIDR, NIH
Building 10, Room 1N114
10 Center Drive, MSC 1190
Bethesda, MD 20892-1190
Chief, Contract Management Section
Extramural Program, NIDR, NIH
Natcher Building, Room 4AN-44B
45 Center Drive, MSC 6402
Bethesda, MD 20892-6402
National Institute of Diabetes and Digestive and Kidney Diseases
Chief, Clinical Investigations, NIDDK, NIH
Building 10, Room 9N222
10 Center Drive
Bethesda, MD 20892
Chief, Phoenix Clinical Research Section, NIDDK, NIH
Phoenix Area Indian Hospital, Room 541
4212 North 16th Street
Phoenix, Arizona 85016
Chief, Diabetes Research Section, DPB, DDEMD, NIDDK, NIH
Natcher Building, Room 5AN-18G
45 Center Drive, MSC 6600
Bethesda, MD 20892
National Institute on Drug Abuse
Privacy Act Coordinator, NIDA, NIH
Parklawn Building, Room 10A-42
5600 Fishers Lane
Rockville, Maryland 20857
National Institute of Environmental Health Sciences
Chief, Epidemiology Branch, NIEHS, NIH
P.O. Box 12233
Research Triangle Park
North Carolina 27709
National Institute of Mental Health
Director, Intramural Research Program, NIMH, NIH
Building 10, Room 4N-224
9000 Rockville Pike
Bethesda, MD 20205
Privacy Act Coordinator, NIMH, NIH
Parklawn Building, Room 7C22
5600 Fishers Lane
Rockville, Maryland 20857
Clinical Director, Neuroscience Research Center, DIRP, NIMH
Saint Elizabeths Hospital,
William A. White Building, Room 133
2700 Martin Luther King Jr., Avenue, SE
Washington, DC 20032
National Institute of Neurological Disorders and Stroke
Chief, Epilepsy Branch, NINDS, NIH
Federal Building, Room 114
7750 Wisconsin Avenue
Bethesda, MD 20892
Chief, Development Neurology Branch, NINDS, NIH
Federal Building, NIH
7550 Wisconsin Avenue
Bethesda, MD 20892
Assistant Director, CNP, DIR, NINDS, NIH
Building 10, Room 5N226
10 Center Drive
Bethesda, MD 20892
Deputy Chief, Laboratory of Central Nervous Systems Studies
Intramural Research Program, NINDS, NIH
Building 36, Room 5B21,
9000 Rockville Pike
Bethesda, MD 20892
Director, Division of Fundamental Neurosciences, NINDS, NIH
Federal Building, Room 916
7550 Wisconsin Ave
Bethesda, MD 20892
Director, Division of Convulsive, Developmental and Neuromuscular Disorders, NINDS, NIH
Federal Building, Room 816
7550 Wisconsin Avenue
Bethesda, MD 20892
Director, Division of Demyelinating Atrophic, and Dementing Disorders, NINDS, NIH
Federal Building, Room 810
7550 Wisconsin Avenue
Bethesda, MD 20892
Director, Division of Stroke and Trauma, NINDS, NIH
Federal Building, Room 8A08
7550 Wisconsin Avenue
Bethesda, MD 20892
National Center for Human Genome Research
Chief, Office of Human Genome Communications, NCHGR, NIH
Building 38A, Room 617
9000 Rockville Pike
Bethesda, MD 20892
[FR Doc. 97-8592 Filed 4-4-97; 8:45 am]
BILLING CODE 4140-01-M
| File Type | application/pdf |
| File Title | Microsoft Word - Attachment 7fn.doc |
| Author | Karen |
| File Modified | 2007-01-16 |
| File Created | 2007-01-16 |