No number SEED Brochure Appendix M.2

SEED Brochure – Text Only

Front:

Study to Explore Early Development

SEED

Inside Flap:

We Need You

SEED is being done by the Centers for Autism and Developmental Disabilities Research and Epidemiology (CADDRE). Centers in six states across the country are taking part in the study.

Inside:

Study to Explore Early Development: You could be asked to take part.

What is SEED?

SEED stands for Study to Explore Early Development. The study will look at possible causes and risks for developmental delays and autism spectrum disorders (ASDs).

SEED is a ground-breaking research study with the goals of learning:

• What causes developmental delays in children.

• What causes ASDs.

• What are the common traits among children with ASDs.

• How genes and the environment affect child development.

Children 2 through 5 years of age will be asked to take part in the study.

Included will be families of:

• Children with ASDs.

• Children with other developmental disabilities.

• Children without developmental disabilities.

It is important for all invited families to take part so we can learn more about differences in child development. Your participation will help us look for genes and other factors that might be related to autism and developmental delays.

SEED will include nearly 2,700 children and their parents. It is the largest national study on ASDs and developmental disabilities to date.

What will your family gain from taking part in SEED?

• A free developmental evaluation for your child.

• A summary of your child’s evaluation results.

• Incentives to thank you for your family’s participation in the study.

• Expert information on child development.

What will you be asked to do?

• Answer questions about your child’s development and your family’s medical history.

• Go to a brief medical examination and developmental testing with your child.

• Give small samples of blood and cheek cells from you and your child.

• Give a small sample of your child’s hair.

• Give permission to view mother’s and child’s medical records.

Any information you give to SEED will be kept strictly private. It will never be shared with anyone else. Only study staff and you will be able to look at your information.

Back:

Who can be a part of SEED?

Children who were:

• Born from September 2003 through August 2005.

• Born in and still living in the counties listed in the following box.

Georgia

Children born in and still living in Cobb, Clayton, DeKalb, Fulton, and Gwinnett counties, may be asked to take part in SEED.

Georgia SEED is being done by: Centers for Disease Control and Prevention

National Center on Birth Defects and Developmental Disabilities

To find out more:

Georgia SEED

1600 Clifton Road, MS E-86

Atlanta, GA 30333

404-498-3870

http://www.cdc.gov/seed.htm