In-Dept Interviews with Health Care Consumers

Form Approved

OMB No. 0920-XXXX

Exp. Date XX/XX/20XX

ATTACHMENT E

GUIDE FOR IN-DEPTH INTERVIEWS WITH HEALTH CARE CONSUMERS

Public reporting burden of this collection of information is estimated to average 1 hour per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to CDC/ATSDR Reports Clearance Officer; 1600 Clifton Road NE, MS D-74, Atlanta, Georgia 30333; ATTN: PRA (0920-XXXX)

Guide for In-Depth Interviews with

Health Care Consumers

Practices regarding Preventive Health Behaviors and Screenings

Note: IDIs will be conducted with consumers only if needed to follow up on the FG discussions. If conducted, the goal of the IDIs will be to further explore consumers’ personal experiences with lung cancer testing, especially with consumers who have had spiral CT scans. IDI data will complement FG data by providing the opportunity to further explore participants’ knowledge, behavior, attitudes, and perceptions related to lung cancer screening and testing. While final IDI interview questions will depend upon the FG findings, possible domains, topics, and questions are provided under section II below.

I. Introduction:

 

Good [morning/afternoon/evening], may I speak with __________?    My name is ________________.  I’m from RTI, an organization that does health-related research.

 

Project Objective:

We’re holding discussions like these for the Centers for Disease Control and Prevention (CDC), a government agency. The CDC wants to learn about people’s opinions and experiences related to certain health issues.

 

You were chosen for this discussion today because you took part in a focus group discussion for this study at [LOCATION OF FG] in [MONTH OF FG]. Today I would like to ask you some questions to follow-up on what you discussed during that focus group. The process will take approximately an hour. Can we begin now or do you need to schedule the interview for another time?

[IF AN ALTERNATIVE TIME IS PREFERRED, RECORD INTERVIEW DETAILS BELOW AND END CALL.]

INTERVIEW DATE:____________________________

INTERVIEW TIME:____________________________

TELEPHONE NUMBER:_________________________

 

Please remember that this is not a test of any kind. There are no right or wrong answers. You are helping us learn about people’s opinions and experiences related to certain health issues. So please feel free to say anything and everything you think. We will not connect anyone's name to what they say. I’ll be taking notes while we are talking but to make sure I don’t miss anything that you say, I’d like to tape record our interview today. May I have your permission to tape record our interview?

___ Yes

___ No

 

Your participation is completely voluntary. You can choose not to answer any questions at any time. You may also choose to end our discussion at any time. At the end of the interview, we’ll send you a check in the mail for $25.00 dollars.

 

Do you have any questions?

 

 

Interview Process:

As you may remember you attended a focus group where we asked about your opinions and experiences related to certain health issues. During our discussion today, I’m going to ask you some questions to follow-up on that discussion. 

 

9. Do you have any questions before we get started?

Okay, let’s get started.

II. Interview Topics and Potential Questions

Domain: Focus group reflection and warm-up

Potential topics:

• Reflections about FG participation

• Behavior change as a result of FG participation

• Motivation for participation in IDI

Potential questions:

• What did you think about the focus group discussion?

• Did you discuss your participation in the group with anyone? Family member? Doctor?

• Why did you choose to participate in this interview today?

• How you are feeling now about doing this interview?

Domain: Pre-screening

Potential topics:

• Initial reactions to testing

• Experiences with consumer education and counseling

• Informed consent

• Information about risks and consequences of testing

Potential questions:

• In the focus group, you said you had a [INSERT SCREENING TEST] for your lungs. What questions did you have when you were first offered the test?

• Were your questions answered?

• Did anyone provide you with information or support prior to testing? Who?

• What were you told, if anything, about your options regarding the test?

• What were your expectations going into your testing experience?

Domain: Testing process

Potential topics:

• Reactions to the testing process

• Understanding of the testing process

• Subsequent actions after the testing process

Potential questions:

• What was the process you went through to decide what to do in terms of getting the test?

• What did you find to be the hardest part of deciding to get the test?

• How would you describe your testing experience overall?

• Please walk me through what happened during the test step-by-step.

• What advice would you have for others who might receive a similar test?

Domain: Test results

Potential topics:

• Mechanism for receiving results

• Understanding results

• Satisfaction with results

• Consumer education about results

Potential questions:

• How did your health care provider give you your test results?

• How long did it take to get your results after you had the test?

• Who provided you with the results?

• Was anyone with you to help you understand what happens next with testing process and results?

• What questions did you have about the results of your test?

• Were your questions answered?

Domain: Overall satisfaction

Potential topics:

• Consumer satisfaction level

• Changes to the testing process

• Insurance coverage and testing costs

Potential questions:

• Were you satisfied with the testing process? Why or why not?

• What would you most like to have changed about the process?

• What are your thoughts about the cost of the test?

• Looking back on this whole process, was there anything you would have done differently?

3. Closing

Thank you for your time today. Your feedback is very important to CDC. As I mentioned earlier, you will receive a check for $25 as a thank you for your time today. [INTERVIEWER TURNS OFF AUDIO RECORDER]. May I confirm the spelling of your first and last name? Next may I have the address where you would like the check to be sent?

NAME: _______________________________________________________

ADDRESS: _______________________________________________________

CITY: _______________________________________________________

ZIP CODE: _______________________________________________________