005_Sickle Cell_Pe 005_Sickle Cell_PedsQL_Parents_Teens

Sickle Cell Disease Program Evaluations

ATTACH_K_PedsQL-4.0-Core-PA_teens

Sickle Cell Disease Treatment Demonstration Program (SCDTDP) Evaluation - PedsQL for Parents

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PedsQL 2


ID#__________________________


Date:________________________




PedsQL

Pediatric Quality of Life

Inventory


Version 4.0



PARENT REPORT for TEENS (ages 13-18)





DIRECTIONS


On the following page is a list of things that might be a problem for your teen.

Please tell us how much of a problem each one has been for your teen

during the past ONE month by circling:


0 if it is never a problem

1 if it is almost never a problem

2 if it is sometimes a problem

3 if it is often a problem

4 if it is almost always a problem


There are no right or wrong answers.

If you do not understand a question, please ask for help.













In the past ONE month, how much of a problem has your teen had with …


Physical Functioning (problems with…)

Never

Almost Never

Some-times

Often

Almost Always

1. Walking more than one block

0

1

2

3

4

2. Running

0

1

2

3

4

3. Participating in sports activity or exercise

0

1

2

3

4

4. Lifting something heavy

0

1

2

3

4

5. Taking a bath or shower by him or herself

0

1

2

3

4

6. Doing chores around the house

0

1

2

3

4

7. Having hurts or aches

0

1

2

3

4

8. Low energy level

0

1

2

3

4


Emotional Functioning (problems with…)

Never

Almost Never

Some-times

Often

Almost Always

1. Feeling afraid or scared

0

1

2

3

4

2. Feeling sad or blue

0

1

2

3

4

3. Feeling angry

0

1

2

3

4

4. Trouble sleeping

0

1

2

3

4

5. Worrying about what will happen to him or her

0

1

2

3

4


Social Functioning (problems with…)

Never

Almost Never

Some-times

Often

Almost Always

1. Getting along with other teens

0

1

2

3

4

2. Other teens not wanting to be his or her friend

0

1

2

3

4

3. Getting teased by other teens

0

1

2

3

4

4. Not able to do things that other teens his or her age can do

0

1

2

3

4

5. Keeping up with other teens

0

1

2

3

4


School Functioning (problems with…)

Never

Almost Never

Some-times

Often

Almost Always

1. Paying attention in class

0

1

2

3

4

2. Forgetting things

0

1

2

3

4

3. Keeping up with schoolwork

0

1

2

3

4

4. Missing school because of not feeling well

0

1

2

3

4

5. Missing school to go to the doctor or hospital

0

1

2

3

4


PedsQL 4.0 - Parent (13-18) Not to be reproduced without permission Copyright © 1998 JW Varni, Ph.D. All rights reserved

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