Data Collection System

Ryan White HIV/AIDS Program Part B AIDS Drug Assistance Program (ADAP) – the ADAP Data Report (ADR)

Explanation on Burden Estimate for Data Collection System

The one-time burden estimate of 47,082 hours for the Data Collection System takes into account the time and effort necessary for grantees to adjust existing or develop new data collection systems to collect the elements that HRSA is requesting. Some grantees have established data systems that are capable of producing the required reports with minimal effort, while other grantees will need technical assistance to establish effective systems. To comply with the proposed information collection, all grantees will need to either establish or modify, and maintain a data system that is capable of collecting and reporting the required client-level data elements for clients enrolled in the ADAP.

HRSA does not require grantees to use a specific data collection system.  Rather, grantees are expected to modify existing or develop new data collection systems to collect and report the required data elements for both the Grantee and Client Reports in the specified formats.  These data systems are maintained locally and HRSA does not have any access to these systems.  Modifications to these data systems are necessary to initially meet the new requirements and as such, are only represented in the year one burden.

HRSA anticipates that grantees receiving ADAP funds have data systems that fall into three general categories: Grantees may use CAREWare (HRSA’s own database system), a different proprietary vendor system, or a custom system to collect and maintain data on ADAP clients. CAREWare, a HRSA Information Technology investment, is available at no cost to all Ryan White HIV/AIDS Program grantees as an option for grantees to consider in meeting their reporting needs. CAREWare includes a module specific to ADAP which will be updated to collect all data required for the ADR and to submit the data in the required XML format.