3 Focus Group Screenshots

Appendix D: Screenshots - Focus group
* Probe questions are shown for clarity only. As with any focus group, probe questions will
only be asked if more information is needed.

National Institute of Nursing Research (NINR)
Pediatric Palliative Care Focus Group
OMB #: 0925-0653
Expiration Date: 03/31/2015
Public reporting burden for this collection of information is estimated to average
90 minutes per response, including the time for reviewing instructions, searching
existing data sources, gathering and maintaining the data needed, and completing
and reviewing the collection of information. An agency may not conduct or
sponsor, and a person is not required to respond to, a collection of
information unless it displays a currently valid OMB control number. Send
comments regarding this burden estimate or any other aspect of this collection of
information, including suggestions for reducing this burden, to: NIH, Project
Clearance Branch, 6705 Rockledge Drive, MSC 7974, Bethesda, MD 208927974, ATTN: PRA (0925-0653). Do not return the completed form to this address.

Welcome to this group session. Today we will be
discussing pediatric palliative care.
First, a few words about what will happen during this session.
You are currently connected online to me (the Moderator) and
numerous other participants. Over the next 90 minutes, you will
respond to the questions you see appear on the right-side of
your browser window. Please answer these questions openly
and honestly. Your answers to these questions are anonymous
and will not be seen by other participants.
Occasionally, you may find yourself waiting briefly as others
finish their answer. Please be patient for the next question
should you finish answering before others - the next question
will always appear shortly. At any time during the session, the
Moderator
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may begin an instant messaging chat discussion.
You should respond to the Moderator's questions as
the discussion proceeds. Note that for these chats,
you will also be able to see other participants'
comments and respond to them. Please be
courteous and polite.
All information disclosed during the focus group
meeting will be kept private under the Privacy Act
and none of the information discussed during the
open chats will be shared with any other individual or
organization outside of the purpose of this focus
group.
We greatly appreciate your participation and you will
receive a $40 honorarium for taking the time to
contribute your opinions tonight. However, you must
answer all of the questions throughout the session
until the Moderator finishes the session, or you will
not receive your honorarium.

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We greatly appreciate your participation and you will
receive a $40 honorarium for taking the time to
contribute your opinions tonight. However, you must
answer all of the questions throughout the session
until the Moderator finishes the session, or you will
not receive your honorarium.

If you are ready to get started, please select ‘Yes’ below and then click the Submit
button.
 Yes, let’s get started.

As I mentioned, today we will be discussing pediatric
palliative care. Palliative care is comprehensive
treatment of the discomfort, symptoms and stress of
serious illness with the goal to prevent and ease
suffering and improve the patient’s quality of life. It
is available to patients of any age and at any stage of
an illness, and in the pediatric setting, it is tailored to
meet the needs of this unique patient population
being treated for a serious illness or life-limiting
condition.
If you encounter any technical difficulties while
participating in this focus group, please send an
email to [email protected].

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If you are ready to get started, please select „Yes‟ below and then click the Submit
button.
 Yes, let‟s get started.
What does the term “palliative care” mean to you?
I am not familiar with the term.

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If you are ready to get started, please select „Yes‟ below and then click the Submit
button.
 Yes, let‟s get started.
What does the term “palliative care” mean to you?
I am not familiar with the term.

How comfortable are you initiating conversations about palliative care with
pediatric patients and their families?
 Very comfortable
 Somewhat comfortable
 Not very comfortable
 Not at all comfortable

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Moderator: What is most concerning to you when it comes to
discussing palliative care with pediatric patients and their families?
Scott: Not having the information.
Moderator: What barriers specifically prevent you from discussing
palliative care with your pediatric patients and their families?
Scott: Time constraints, lack of knowledge.
Moderator: What additional resources would be helpful to have
when discussing palliative care with pediatric patients and their
families?
Scott: Training on the topic/subject

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How beneficial do you believe the pilot program would be for people
like you?
 Very beneficial
 Somewhat beneficial
 Not very beneficial
 Not at all beneficial

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Moderator: What are your first impressions of this pilot program?
What about it stands out to you?
Scott: Seems like it would give me the knowledge I lack.
Moderator: How do you believe you would use this information from
this pilot program to care for your seriously ill pediatric patients?
Scott: I would use it daily for explaining to parents.

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Please indicate how much you agree or disagree with each of the following
statements about the message
I learned something new after seeing the
teaching modules
I would be likely to try the examples
provided in the teaching modules
I would share the information presented
in the teaching modules with my
colleagues

How beneficial do you believe this video would be for people like
you?
 Very beneficial
 Somewhat beneficial
 Not very beneficial
 Not at all beneficial

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Please respond to the Moderator’s questions in the Discussion Room chat

Moderator: How would you sum up in just a few words your first impression of this
tool? Do you like it? Not like it? Why?
Scott: I liked it. Seems to be comprehensive.
Moderator: How do you feel about the tone of the video?
Scott: Seemed fine to me.
Moderator: How do you feel about the format of this information?
Scott: I like the video format
Moderator: Let’s discuss this a bit more. How realistic were the examples in the
teaching modules?
Scott: They seem to be realistic but I don’t have experience to say for sure.
Moderator: What makes it difficult to carry out the recommendations outlined in the
teaching modules?
Scott: Time constraints.
Moderator: Do you see yourself using this or something like it in the future? Why?
Why not?
Scott: Sure, if it is easily available.
Moderator: Which actions, if any, are you likely to implement? Why? Why not?
Scott: I’d be open to all of them.
Moderator: What could be changed to make it more effective?
Scott: Not sure.
Moderator: Thinking back to the information the pilot program is trying to convey, is
there anything else you would add?
Scott: Not to this. no

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Please indicate how much you agree or disagree with each of the following
statements about the message
I learned something new after reading it
I would be likely to try the exercises
outlined
I would share the information in the
document with my colleagues

How beneficial do you believe this document would be for people like
you?
 Very beneficial
 Somewhat beneficial
 Not very beneficial
 Not at all beneficial

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Please respond to the Moderator’s questions in the Discussions Room chat.

Moderator: How would you sum up in just a few words your first impression of this
tool? Do you like it? Not like it? What makes you say that?
Scott: I like it but not as much as the video
Moderator: How do you feel about the tone of the document?
Scott: The tone was fine
Moderator: How do you feel about the language used in the document?
Scott: Language was easy to follow.
Moderator: How do you feel about the format in which the information was presented?
Scott: Fine for this although I like the video more
Moderator: Let’s discuss this a bit more. Do you disagree with any of the recommendations provided in the worksheet? If so, which ones and why?
Scott: I don’t disagree with them.
Moderator: Do you see yourself using this or something like it in the future? Why?
Why not?
Scott: I could but a worksheet can be cumbersome
Moderator: Which actions, if any, are you likely to implement? Why? Why not?
Scott: All of them are possible.
Moderator: What could be changed to make it more effective?
Scott: Nothing, seems fine.
Moderator: What makes it difficult to carry out the recommendations outlined in the
worksheet?
Scott: Time constraints. Having worksheet handy.
Moderator: Thinking back to the information the pilot program is trying to convey, do
you feel like anything is missing? What additional topics would you want covered in
the worksheet?
Scott: None that I can think of.

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Palliative Care: Conversations Matter

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Palliative Care: Choices for Children

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Palliative Care: Conversations Matter

Now that you’ve seen the potential campaign names, which name…?
Most catches your attention
Is most compelling to you
Best fits the pilot program
description you read earlier

Palliative Care: Choices for Children

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potential tag lines

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Easing symptoms and enhancing lives.

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Discussing options and enhancing lives.

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TAG A
Easing symptoms and enhancing lives.

TAG B
Discussing options and enhancing lives.

Which tag…?

Tag A

Tag B

Most catches your attention
Is most compelling to you
Best fits the pilot program
description you read earlier

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Moderator: Let’s discuss these names as a group. We’ll start by discussing the
Name and Tag A. What about this particular combination is most engaging? If you
did NOT find this engaging, what specifically was less engaging about it?
Scott: It was more attention grabbing.
Moderator: What about the Name and Tag B. What about this particular combination is most engaging? If you did NOT find this engaging, what specifically was less
engaging about it?
Scott: I liked it but just not as much as A.

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Now that you’ve seen the potential logos, which one catches your attention the
most?
 Logo A
 Logo B
 Logo C
 Logo D

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Moderator: Let’s discuss Logo A. What about it is especially attention-getting or
appealing?
Scott: I liked the graphics and colors.
Moderator: What do you like or dislike about the graphics of this logo?
Scott: Graphics are great for this one.
Moderator: Now, let’s discuss Logo B. What about it is especially attention-getting
or appealing?
Scott: A bit more dull than A. Not as attention grabbing.
Moderator: What do you like or dislike about the graphics of this logo?
Scott: Graphics aren’t bad but color choices don’t fit.
Moderator: Thinking back to the information the pilot program is trying to convey,
what additional information or tools would you need to help you talk about palliative
care to pediatric patients and their families?
Scott: None that I can think of.
Moderator: Is there anything else you would add that you think could enhance the
pilot program?
Scott: No, I don’t think so.

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