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pdfPediatric Quality of Life Inventory TM (PedsQL TM)
SCALING AND SCORING OF THE
Pediatric Quality of Life Inventory™
TM
PedsQL
Mapi Research Trust
27 rue de la Villette
69003 Lyon
France
Phone: +33 (0) 4 72 13 65 75
Fax: +33 (0) 4 72 13 66 82
Contact:
Marie-Pierre Emery
E-mail: [email protected]
Version 6: updated October 2010
James W. Varni, Ph.D.
Professor
Department of Pediatrics, College of Medicine
Professor, Department of Landscape
Architecture and Urban Planning, College of
Architecture
3137 TAMU
College Station, Texas 77843-3137
USA
E-mail : [email protected]
Page 1 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Infant Scales ...................................................................................................................4
PARENT Report for Infants (ages 1-24 months).............................................................................4
PedsQL TM 4.0 Generic Core Scales .................................................................................................7
PARENT Report for Toddlers (ages 2-4) ........................................................................................7
PedsQL TM 4.0 Generic Core Scales .................................................................................................9
CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages
13-18) ...............................................................................................................................................9
PedsQL TM 4.0 Generic Core Scales ...............................................................................................11
YOUNG ADULT Report (ages 18-25) and ADULT Report (ages over 26).................................11
PedsQL TM 4.0 SF15 Short Form Generic Core Scales.................................................................13
PARENT Report for Toddlers (ages 2-4) CHILD and PARENT Reports for Young Children
(ages 5-7), Children (ages 8-12), Teens (ages 13-18)....................................................................13
PedsQLTM General Well-Being Scale.............................................................................................16
CHILD, ADOLESCENT and YOUNG ADULT Report (ages 8-25 years of age) .......................16
PedsQL TM 3.0 Arthritis Module ....................................................................................................18
PARENT Report for Toddlers (ages 2-4) ......................................................................................18
PedsQL TM 3.0 Arthritis Module ....................................................................................................20
CHILD and PARENT Reports for Young Children (ages 5-7) .....................................................20
PedsQL TM 3.0 Arthritis Module ....................................................................................................22
CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) ..............................22
PedsQL TM 3.0 Asthma Module ......................................................................................................24
PARENT Report for Toddlers (ages 2-4) ......................................................................................24
PedsQL TM 3.0 Asthma Module ......................................................................................................26
CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages
13-18) .............................................................................................................................................26
PedsQL TM 3.0 SF22 Short Form Asthma Module.......................................................................28
PARENT Report for Toddlers (ages 2-4) ......................................................................................28
PedsQL TM 3.0 SF22 Short Form Asthma Module .......................................................................30
CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages
13-18) .............................................................................................................................................30
PedsQL TM Brain Tumor Module...................................................................................................32
PARENT Report for Toddlers (ages 2-4) ......................................................................................32
PedsQL TM Brain Tumor Module...................................................................................................34
CHILD and PARENT Reports for Young Children (ages 5-7) .....................................................34
PedsQL TM Brain Tumor Module...................................................................................................36
CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) ..............................36
PedsQL TM 3.0 Cancer Module .......................................................................................................38
PARENT Report for Toddlers (ages 2-4) ......................................................................................38
PedsQL TM 3.0 Cancer Module .......................................................................................................40
CHILD and PARENT Reports for Young Children (ages 5-7) .....................................................40
PedsQL TM 3.0 Cancer Module .......................................................................................................42
CHILD and PARENT Reports for Children (ages 8-12), Teens (ages 13-18) ..............................42
PedsQL TM 3.0 Cardiac Module......................................................................................................45
PARENT Report for Toddlers (ages 2-4) ......................................................................................45
PedsQL TM 3.0 Cardiac Module......................................................................................................47
CHILD and PARENT Reports for Young Children (ages 5-7) .....................................................47
PedsQL TM 3.0 Cardiac Module......................................................................................................49
CHILD and PARENT Reports for Children (ages 8-12) and Teens (ages 13-18) ........................49
PedsQL TM 3.0 Cerebral Palsy Module ..........................................................................................51
Version 6: updated October 2010
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Pediatric Quality of Life Inventory TM (PedsQL TM)
PARENT Report for Toddlers (ages 2-4) ......................................................................................51
PedsQL TM 3.0 Cerebral Palsy Module ..........................................................................................53
CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages
13-18) .............................................................................................................................................53
PedsQL TM Cognitive Functioning Scale........................................................................................55
PedsQL TM 3.0 Diabetes Module.....................................................................................................57
PedsQL TM 3.2 Diabetes Module.....................................................................................................59
PedsQL TM 3.0 End Stage Renal Disease Module .........................................................................61
PARENT Report for Toddlers (ages 2-4) ......................................................................................61
PedsQL TM 3.0 End Stage Renal Disease Module .........................................................................63
CHILD and PARENT Reports for Young Children (ages 5-7), Children (ages 8-12), Teens (ages
13-18) .............................................................................................................................................63
PedsQL TM 2.0 Family Impact Module ..........................................................................................65
PARENT Report ............................................................................................................................65
PedsQL TM Gastrointestinal Symptom Scale (GSS) .....................................................................68
PARENT Proxy Report..................................................................................................................68
PedsQLTM Healthcare Satisfaction Generic Module ....................................................................70
PedsQLTM Healthcare Satisfaction Hematology / Oncology Module..........................................72
PedsQL TM Multidimensional Fatigue Scale..................................................................................74
PedsQL TM 3.0 Neuromuscular Module.........................................................................................76
PedsQL TM Oral Health Scale .........................................................................................................78
PedsQL TM Pediatric Pain Coping InventoryTM (PPCI) ...............................................................80
PARENT Report for Children and Teens (ages 5-18) ...................................................................80
CHILD Report for Children (ages 5-12), Teens (ages 13-18) .......................................................80
PedsQL TM Pediatric Pain Questionnaire TM (PPQ) .....................................................................82
PedsQL TM Present Functioning Visual Analogue Scale (PedsQL TM VAS) ..............................84
CHILD and PARENT reports for CHILD (ages 5-18) ..................................................................84
PedsQL TM 3.0 Rheumatology Module...........................................................................................86
PARENT Report for Toddlers (ages 2-4) ......................................................................................86
PedsQL TM 3.0 Rheumatology Module...........................................................................................88
CHILD and PARENT reports for Young Children (ages 5-7) ......................................................88
PedsQL TM 3.0 Rheumatology Module...........................................................................................90
CHILD and PARENT reports for Children (ages 8-12) and Teens (ages 13-18)..........................90
PedsQL TM 3.0 Transplant Module ................................................................................................92
Version 6: updated October 2010
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Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Infant Scales
PARENT Report for Infants (ages 1-24 months)
Version 6: updated October 2010
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Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Infants (ages 1-24 months) of the PedsQLTM Infant Scales is composed of
36 items for infants ages 1-12 months and 45 items for infants ages 13-24 months comprising 5
dimensions.
DESCRIPTION OF THE QUESTIONNAIRE (INFANTS 1-12 MONTHS):
Dimensions
Physical
Functioning
Physical
Symptoms
Emotional
Functioning
Social
Functioning
Cognitive
Functioning
Number of
Items
6
Cluster of
Items
1-6
Reversed
Scoring
1-6
10
1-10
1-10
12
1-12
1-12
4
1-4
1-4
4
1-4
1-4
Direction of Dimensions
Higher scores indicate
better HRQOL.
DESCRIPTION OF THE QUESTIONNAIRE (INFANTS 13-24 MONTHS):
Dimensions
Physical
Functioning
Physical
Symptoms
Emotional
Functioning
Social
Functioning
Cognitive
Functioning
Number of
Items
9
Cluster of
Items
1-9
Reversed
Scoring
1-9
10
1-10
1-10
12
1-12
1-12
5
1-5
1-5
9
1-9
1-9
Direction of Dimensions
Higher scores indicate
better HRQOL.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of
the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
Scoring
Procedure
Step 1: Transform Score
No
Scores are transformed on a scale from 0 to 100.
Items are reversed scored and linearly transformed to a 0-100 scale as follows:
Version 6: updated October 2010
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Pediatric Quality of Life Inventory TM (PedsQL TM)
0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores
Score by Dimensions:
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed.
• Mean score = Sum of the items over the number of items answered.
Psychosocial Health Summary Score = Sum of the items over the number of
items answered in the Emotional, Social, and Cognitive Functioning Scales.
Physical Health Summary Score = Sum of the items over the number of items
answered in the Physical Functioning and Physical Symptoms Scales.
Interpretation
and Analysis
of Missing Data
Total Score: Sum of all the items over the number of items answered on all the
Scales.
If more than 50% of the items in the scale are missing, the Scale Scores should
not be computed.
If 50% or more items are completed: Impute the mean of the completed items in
a scale.
Version 6: updated October 2010
Page 6 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 4.0 Generic Core Scales
PARENT Report for Toddlers (ages 2-4)
Version 6: updated October 2010
Page 7 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (ages 2-4) of the PedsQLTM 4.0 Generic Core Scales is
composed of 21 items comprising 4 dimensions.
DESCRIPTION OF THE QUESTIONNAIRE:
Dimensions
Physical
Functioning
Emotional
Functioning
Social
Functioning
School
Functioning
Number of
Items
8
Cluster of
Items
1-8
Reversed
Scoring
1-8
5
1-5
1-5
5
1-5
1-5
3
1-3
1-3
Direction of Dimensions
Higher scores indicate
better HRQOL.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of
the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as follows:
0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores
Scoring
Procedure
Score by Dimensions:
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed.
• Mean score = Sum of the items over the number of items answered.
Psychosocial Health Summary Score = Sum of the items over the number of
items answered in the Emotional, Social, and School Functioning Scales.
Physical Health Summary Score = Physical Functioning Scale Score
Interpretation
and Analysis
of Missing Data
Total Score: Sum of all the items over the number of items answered on all the
Scales.
If more than 50% of the items in the scale are missing, the Scale Scores should
not be computed.
If 50% or more items are completed: Impute the mean of the completed items in
a scale.
Version 6: updated October 2010
Page 8 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 4.0 Generic Core Scales
CHILD and PARENT Reports for Young Children (ages 5-7),
Children (ages 8-12), Teens (ages 13-18)
Version 6: updated October 2010
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Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQLTM 4.0 Generic Core Scales for:
-
Young Children (ages 5-7),
Children (ages 8-12),
And Teens (ages 13-18),
are composed of 23 items comprising 4 dimensions.
DESCRIPTION OF THE QUESTIONNAIRE:
Dimensions
Physical
Functioning
Emotional
Functioning
Social
Functioning
School
Functioning
Number of
Items
8
Cluster of
Items
1-8
Reversed
scoring
1-8
5
1-5
1-5
5
1-5
1-5
5
1-5
1-5
Direction of Dimensions
Higher scores indicate
better HRQOL.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Young Child
(ages 5-7) child report
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as follows:
0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Step 2: Calculate Scores
Score by Dimensions:
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Psychosocial Health Summary Score = Sum of the items over the number of
items answered in the Emotional, Social, and School Functioning Scales.
Physical Health Summary Score = Physical Functioning Scale Score
Interpretation
and Analysis
of Missing Data
Total Score: Sum of all the items over the number of items answered on all the
Scales.
If more than 50% of the items in the scale are missing, the Scale Scores should
not be computed.
If 50% or more items are completed: Impute the mean of the completed items in
a scale.
Version 6: updated October 2010
Page 10 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 4.0 Generic Core Scales
YOUNG ADULT Report (ages 18-25) and ADULT Report (ages
over 26)
Version 6: updated October 2010
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Pediatric Quality of Life Inventory TM (PedsQL TM)
The Young Adult and Adult Reports of the PedsQLTM 4.0 Generic Core Scales for:
-
Young Adults (ages 18-25),
Adults (ages over 26),
are composed of 23 items comprising 4 dimensions.
DESCRIPTION OF THE QUESTIONNAIRE:
Dimensions
Physical
Functioning
Emotional
Functioning
Social
Functioning
School
Functioning
Number of
Items
8
Cluster of
Items
1-8
Reversed
scoring
1-8
5
1-5
1-5
5
1-5
1-5
5
1-5
1-5
Direction of Dimensions
Higher scores indicate
better HRQOL.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as follows:
0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Step 2: Calculate Scores
Score by Dimensions:
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Psychosocial Health Summary Score = Sum of the items over the number of
items answered in the Emotional, Social, and School Functioning Scales.
Physical Health Summary Score = Physical Functioning Scale Score
Interpretation
and Analysis
of Missing Data
Total Score: Sum of all the items over the number of items answered on all the
Scales.
If more than 50% of the items in the scale are missing, the Scale Scores should
not be computed.
If 50% or more items are completed: Impute the mean of the completed items in
a scale.
Version 6: updated October 2010
Page 12 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 4.0 SF15
Short Form Generic Core Scales
PARENT Report for Toddlers (ages 2-4)
CHILD and PARENT Reports for Young Children (ages 5-7),
Children (ages 8-12), Teens (ages 13-18)
Version 6: updated October 2010
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Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (ages 2-4) and the Child & Parent Reports for Young Children
(ages 5-7), Children (ages 8-12) and Teens (ages 13-18) of the PedsQLTM 4.0 SF15 Generic
Core Scales are composed of 15 items comprising 4 dimensions.
DESCRIPTION OF THE SF15 QUESTIONNAIRE:
Dimensions
Physical
Functioning
Emotional
Functioning
Social
Functioning
School
Functioning
Number of
Items
5
Cluster of
Items
1-5
Reversed
Scoring
1-5
4
1-4
1-4
3
1-3
1-3
3
1-3
1-3
Direction of Dimensions
Higher scores indicate
better HRQOL.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of
the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scales: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Young Child
self-report
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as follows:
0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Scores
Scoring
Procedure
Score by Dimensions:
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Psychosocial Health Summary Score = Sum of the items over the number of
items answered in the Emotional, Social, and School Functioning Scales.
Physical Health Summary Score = Physical Functioning Scale Score
Total Score: Sum of all the items over the number of items answered on all the
Scales.
Version 6: updated October 2010
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Pediatric Quality of Life Inventory TM (PedsQL TM)
If more than 50% of the items in the scale are missing, the Scale Scores should
Interpretation
not be computed.
and Analysis
of Missing Data
If 50% or more items are completed: Impute the mean of the completed items in
a scale.
Version 6: updated October 2010
Page 15 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQLTM General Well-Being Scale
CHILD, ADOLESCENT and YOUNG ADULT Report (ages 8-25
years of age)
Version 6: updated October 2010
Page 16 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM General Well-Being Scale is composed of 6 items for ages 8-25 years of age, and
1 overall General Health item.
DESCRIPTION OF THE QUESTIONNAIRE (ages 8-25 years):
Dimensions
General WellBeing
Dimensions
General Health
Number of
Items
6
Cluster of
Items
1-6
Reversed
Scoring
No
Direction of Dimensions
Number of
Items
1
Cluster of
Items
1
Reversed
Scoring
No
Direction of Dimensions
Higher scores indicate
better HRQOL.
Higher scores indicate
better HRQOL.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of
the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are linearly transformed to a 0-100 scale as follows: 0=0, 1=25, 2=50,
3=75, 4=100.
Step 2: Calculate Scores
Scoring
Procedure
Score by Dimensions:
• If more than 50% of the items in the scale are missing, the scale score
should not be computed.
• Mean score = Sum of the items over the number of items answered.
• The General Health item is not included in the scale score, but is reported
separately.
If more than 50% of the items in the scale are missing, the Scale Score should
Interpretation
not be computed.
and Analysis
of Missing Data
If 50% or more items are completed: Impute the mean of the completed items in
a scale.
Version 6: updated October 2010
Page 17 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Arthritis Module
PARENT Report for Toddlers (ages 2-4)
Version 6: updated October 2010
Page 18 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (ages 2-4) of the PedsQL TM 3.0 Arthritis Module is composed of
14 items comprising 3 dimensions.
DESCRIPTION OF THE ARTHRITIS MODULE:
Cluster of
Items
1-4
Reversed
Scoring
1-4
Direction of Dimensions
Pain and Hurt
Number of
Items
4
Daily Activities
5
1-5
1-5
Higher scores indicate
lower problems.
Treatment
5
1-5
1-5
Dimensions
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed
• Mean score = Sum of the items over the number of items answered
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 19 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Arthritis Module
CHILD and PARENT Reports for Young Children (ages 5-7)
Version 6: updated October 2010
Page 20 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQL TM 3.0 Arthritis Module for Young Children (ages
5-7) are composed of 20 items comprising 5 dimensions.
DESCRIPTION OF THE ARTHRITIS MODULE:
Pain and Hurt
Number of
Items
4
Cluster of
Items
1-4
Reversed
Scoring
1-4
Daily Activities
5
1-5
1-5
Treatment
5
1-5
1-5
Worry
3
1-3
1-3
Communication
3
1-3
1-3
Dimensions
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always) for the parent report
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the child report
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 21 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Arthritis Module
CHILD and PARENT Reports for Children (ages 8-12), Teens
(ages 13-18)
Version 6: updated October 2010
Page 22 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQL TM 3.0 Arthritis Module for:
- Children (ages 8-12),
- And Teens (ages 13-18),
are composed of 22 items comprising 5 dimensions.
DESCRIPTION OF THE ARTHRITIS MODULE:
Pain and Hurt
Number of
Items
4
Cluster of
Items
1-4
Reversed
Scoring
1-4
Daily Activities
5
1-5
1-5
Treatment
7
1-7
1-7
Worry
3
1-3
1-3
Communication
3
1-3
1-3
Dimensions
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure
Interpretation and
Analysis
of missing data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 23 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Asthma Module
PARENT Report for Toddlers (ages 2-4)
Version 6: updated October 2010
Page 24 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (ages 2-4) of the PedsQL TM 3.0 Asthma Module is composed of
26 items comprising 4 dimensions.
DESCRIPTION OF THE ASTHMA MODULE:
Asthma
Number of
Items
11
Cluster of
Items
1-11
Reversed
Scoring
1-11
Treatment
9
1-9
1-9
Dimensions
Worry
3
1-3
1-3
Communication
3
1-3
1-3
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 25 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Asthma Module
CHILD and PARENT Reports for Young Children (ages 5-7),
Children (ages 8-12), Teens (ages 13-18)
Version 6: updated October 2010
Page 26 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQL TM 3.0 Asthma Module for:
- Young Children (ages 5-7),
- Children (ages 8-12),
- And Teens (ages 13-18),
are composed of 28 items comprising 4 dimensions.
DESCRIPTION OF THE ASTHMA MODULE:
Asthma
Number of
Items
11
Cluster of
Items
1-11
Reversed
Scoring
1-11
Treatment
11
1-11
1-11
Worry
3
1-3
1-3
Communication
3
1-3
1-3
Dimensions
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the child report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 27 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 SF22
Short Form Asthma Module
PARENT Report for Toddlers (ages 2-4)
Version 6: updated October 2010
Page 28 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (ages 2-4) of the PedsQL TM 3.0 SF22 Asthma Module is
composed of 20 items comprising 2 dimensions.
DESCRIPTION OF THE SF22 ASTHMA MODULE:
Asthma
Number of
Items
11
Cluster of
Items
1-11
Reversed
Scoring
1-11
Treatment
9
1-9
1-9
Dimensions
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 29 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 SF22
Short Form Asthma Module
CHILD and PARENT Reports for Young Children (ages 5-7),
Children (ages 8-12), Teens (ages 13-18)
Version 6: updated October 2010
Page 30 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQLTM 3.0 SF22 Asthma Module for:
- Young Children (ages 5-7),
- Children (ages 8-12),
- And Teens (ages 13-18)
are composed of 22 items comprising 2 dimensions.
DESCRIPTION OF THE SF22 ASTHMA MODULE:
Asthma
Number of
Items
11
Cluster of
Items
1-11
Reversed
Scoring
1-11
Treatment
11
1-11
1-11
Dimensions
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child R
Report for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 31 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Brain Tumor Module
PARENT Report for Toddlers (ages 2-4)
Version 6: updated October 2010
Page 32 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (ages 2-4) of the PedsQLTM Brain Tumor Module is composed of
17 items comprising 5 dimensions.
DESCRIPTION OF THE BRAIN TUMOR MODULE:
Dimensions
Pain and Hurt
Number of
Items
3
Cluster of
Items
1-3
Reversed
Scoring
1-3
3
1-3
1-3
Movement and
Balance
Procedural
Anxiety
Nausea
3
1-3
1-3
5
1-5
1-5
Worry
3
1-3
1-3
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never a problem) to 4 (Almost always a
problem)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 33 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Brain Tumor Module
CHILD and PARENT Reports for Young Children (ages 5-7)
Version 6: updated October 2010
Page 34 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent and Child Reports for Young Children (ages 5-7) of the PedsQL TM Brain Tumor
Module are composed of 23 items comprising 6 dimensions.
DESCRIPTION OF THE BRAIN TUMOR MODULE:
Dimensions
Cognitive
Problems
Pain and Hurt
Number of
Items
6
Cluster of
Items
1-6
Reversed
Scoring
1-6
3
1-3
1-3
3
1-3
1-3
Movement and
Balance
Procedural
Anxiety
Nausea
3
1-3
1-3
5
1-5
1-5
Worry
3
1-3
1-3
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 35 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Brain Tumor Module
CHILD and PARENT Reports for Children (ages 8-12), Teens
(ages 13-18)
Version 6: updated October 2010
Page 36 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent and Child Reports for Children (ages 8-12) and Teens (ages 13-18) of the
PedsQLTM Brain Tumor Module are composed of 24 items comprising 6 dimensions.
DESCRIPTION OF THE BRAIN TUMOR MODULE:
Dimensions
Cognitive
Problems
Pain and Hurt
Number of
Items
7
Cluster of
Items
1-7
Reversed
Scoring
1-7
3
1-3
1-3
3
1-3
1-3
Movement and
Balance
Procedural
Anxiety
Nausea
3
1-3
1-3
5
1-5
1-5
Worry
3
1-3
1-3
Direction of Dimensions
Higher scores indicate
lower problems
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never a problem) to 4 (Almost always a
problem)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 37 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Cancer Module
PARENT Report for Toddlers (ages 2-4)
Version 6: updated October 2010
Page 38 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (ages 2-4) of the PedsQLTM 3.0 Cancer Module is composed of
25 items comprising 8 dimensions.
DESCRIPTION OF THE CANCER MODULE:
Dimensions
Pain and Hurt
Number of
Items
2
Cluster of
Items
1-2
Reversed
Scoring
1-2
5
1-5
1-5
3
1-3
1-3
3
1-3
1-3
3
1-3
1-3
3
1-3
1-3
3
1-3
1-3
3
1-3
1-3
Nausea
Procedural
Anxiety
Treatment Anxiety
Worry
Cognitive
Problems
Perceived
Physical
Appearance
Communication
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed to a 0 to 100 scale.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Total Score: Sum of all the items over the number of items answered on all
the Scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 39 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Cancer Module
CHILD and PARENT Reports for Young Children (ages 5-7)
Version 6: updated October 2010
Page 40 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQLTM 3.0 Cancer Module for Young Children (ages 57), are composed of 26 items comprising 8 dimensions.
DESCRIPTION OF THE CANCER MODULE:
Dimensions
Pain and Hurt
Number of
Items
2
Cluster of
Items
1-2
Reversed
Scoring
1-2
5
1-5
1-5
3
1-3
1-3
3
1-3
1-3
3
1-3
1-3
4
1-4
1-4
3
1-3
1-3
3
1-3
1-3
Nausea
Procedural
Anxiety
Treatment Anxiety
Worry
Cognitive
Problems
Perceived
Physical
Appearance
Communication
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Total Score: Sum of all the items over the number of items answered on all
the Scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 41 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Cancer Module
CHILD and PARENT Reports for Children (ages 8-12), Teens
(ages 13-18)
Version 6: updated October 2010
Page 42 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQL TM 3.0 Cancer Module for:
- Children (ages 8-12),
- And Teens (ages 13-18)
are composed of 27 items comprising 8 dimensions.
DESCRIPTION OF THE CANCER MODULE:
Dimensions
Pain and Hurt
Number of
Items
2
Cluster of
Items
1-2
Reversed
Scoring
1-2
5
1-5
1-5
3
1-3
1-3
3
1-3
1-3
3
1-3
1-3
5
1-5
1-5
3
1-3
1-3
3
1-3
1-3
Nausea
Procedural
Anxiety
Treatment Anxiety
Worry
Cognitive
Problems
Perceived
Physical
Appearance
Communication
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Interpretation
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Total Score: Sum of all the items over the number of items answered on all
the Scales.
If more than 50% of the items in the scale are missing, the Scale Scores
Version 6: updated October 2010
Page 43 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
and Analysis
of Missing Data
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 44 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Cardiac Module
PARENT Report for Toddlers (ages 2-4)
Version 6: updated October 2010
Page 45 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (age 2-4) of the PedsQLTM 3.0 Cardiac Module is composed of
23 items comprising 6 dimensions.
DESCRIPTION OF THE CARDIAC MODULE:
Dimensions
Heart problems
and Treatment
Number of
Items
7
Cluster of
Items
1-7
Reversed
Scoring
1-7
3
1-3
1-3
3
1-3
1-3
Treatment II
Perceived
Physical
Appearance
Treatment Anxiety
Cognitive
Problems
Communication
4
1-4
1-4
3
1-3
1-3
3
1-3
1-3
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed to a 0 to 100 scale.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 46 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Cardiac Module
CHILD and PARENT Reports for Young Children (ages 5-7)
Version 6: updated October 2010
Page 47 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQLTM 3.0 Cardiac Module for Young Children (ages 57) are composed of 25 items comprising 6 dimensions.
DESCRIPTION OF THE CARDIAC MODULE:
Dimensions
Heart Problems
and Treatment
Number of
Items
7
Cluster of
Items
1-7
Reversed
Scoring
1-7
3
1-3
1-3
3
1-3
1-3
Treatment II
Perceived
Physical
Appearance
Treatment Anxiety
Cognitive
Problems
Communication
4
1-4
1-4
5
1-5
1-5
3
1-3
1-3
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 48 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Cardiac Module
CHILD and PARENT Reports for Children (ages 8-12) and
Teens (ages 13-18)
Version 6: updated October 2010
Page 49 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQLTM 3.0 Cardiac Module for::
- Children (ages 8-12),
- And Teens (ages 13-18)
are composed of 27 items comprising 6 dimensions.
DESCRIPTION OF THE CARDIAC MODULE:
Dimensions
Heart Problems
and Treatment
Number of
Items
7
Cluster of
Items
1-7
Reversed
Scoring
1-7
5
1-5
1-5
3
1-3
1-3
Treatment II
Perceived
Physical
Appearance
Treatment Anxiety
Cognitive
Problems
Communication
4
1-4
1-4
5
1-5
1-5
3
1-3
1-3
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 50 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Cerebral Palsy Module
PARENT Report for Toddlers (ages 2-4)
Version 6: updated October 2010
Page 51 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (ages 2-4) of the PedsQLTM 3.0 Cerebral Palsy Module is
composed of 22 items comprising 5 dimensions.
DESCRIPTION OF THE CEREBRAL PALSY MODULE:
Dimensions
Daily Activities
Number of
Items
5
Cluster of
Items
1-5
Reversed
Scoring
1-5
5
1-5
1-5
4
1-4
1-4
4
1-4
1-4
4
1-4
1-4
Movement and
Balance
Pain and Hurt
Fatigue
Eating Activities
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed to a 0 to 100 scale.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 52 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Cerebral Palsy Module
CHILD and PARENT Reports for Young Children (ages 5-7),
Children (ages 8-12), Teens (ages 13-18)
Version 6: updated October 2010
Page 53 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQLTM 3.0 Cerebral Palsy Module for:
- Young Children (ages 5-7),
- Children (ages 8-12),
- And Teens (ages 13-18)
are composed of 35 items comprising 7 dimensions.
DESCRIPTION OF THE CEREBRAL PALSY MODULE:
Dimensions
Daily Activities
Number of
Items
9
Cluster of
Items
1-9
Reversed
Scoring
1-9
4
1-4
1-4
5
1-5
1-5
4
1-4
1-4
4
1-4
1-4
5
1-5
1-5
4
1-4
1-4
School Activities
Movement and
Balance
Pain and Hurt
Fatigue
Eating Activities
Speech and
Communication
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 54 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Cognitive Functioning Scale
Version 6: updated October 2010
Page 55 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM Cognitive Functioning Scale is composed of 6 items comprising 1 dimension.
DESCRIPTION OF THE COGNITIVE FUNTIONING SCALE:
Dimensions
Number of
Items
Cluster of
Items
Reversed
Scoring
Cognitive
Functioning
6
1-6
1-6
Direction of Dimensions
Higher scores indicate
lower problems
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
Scoring Procedure follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Total Score
Sum of all the items over the number of items answered
If more than 50% of the items in the scale are missing, the Scale Score
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 56 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Diabetes Module
Version 6: updated October 2010
Page 57 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM 3.0 Diabetes Module is composed of 28 items comprising 5 dimensions.
DESCRIPTION OF THE DIABETES MODULE:
Diabetes
Number of
Items
11
Cluster of
Items
1-11
Reversed
Scoring
1-11
Treatment I
4
1-4
1-4
Treatment II
7
1-7
1-7
Worry
3
1-3
1-3
Communication
3
1-3
1-3
Dimensions
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure Step 2: Calculate scores by Dimension
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Total Score: Sum of all the items over the number of items answered on all
the Scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 58 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.2 Diabetes Module
Version 6: updated October 2010
Page 59 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM 3.2 Diabetes Module is composed of 33 items comprising 5 dimensions for ages
13-45 years. For ages 2-12 years, the PedsQLTM 3.2 Diabetes Module is composed of 32 items
comprising 5 dimensions (one less item for the Worry Scale).
DESCRIPTION OF THE DIABETES MODULE:
Diabetes
Number of
Items
11
Cluster of
Items
1-11
Reversed
Scoring
1-11
Treatment I
4
1-4
1-4
Treatment II
7
1-7
1-7
Worry
3
1-3
1-3
Communication
3
1-3
1-3
Dimensions
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure Step 2: Calculate scores by Dimension
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Total Score: Sum of all the items over the number of items answered on all
the Scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 60 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 End Stage Renal Disease
Module
PARENT Report for Toddlers (ages 2-4)
Version 6: updated October 2010
Page 61 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (ages 2-4) of the PedsQLTM 3.0 End Stage Renal Disease
Module is composed of 13 items comprising 4 dimensions.
DESCRIPTION OF THE END STAGE RENAL DISEASE MODULE:
Dimensions
General Fatigue
About My Kidney
Disease
Treatment
Problems
Worry
Number of
Items
3
Cluster of
Items
1-3
Reversed
Scoring
1-3
4
1-4
1-4
3
1-3
1-3
3
1-3
1-3
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed to a 0 to 100 scale.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Total Score: Sum of all the items over the number of items answered on all
the Scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 62 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 End Stage Renal Disease
Module
CHILD and PARENT Reports for Young Children (ages 5-7),
Children (ages 8-12), Teens (ages 13-18)
Version 6: updated October 2010
Page 63 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQLTM 3.0 End Stage Renal Disease Module for:
- Young Children (ages 5-7),
- Children (ages 8-12),
- And Teens ages (13-18)
are composed of 34 items comprising 7 dimensions.
DESCRIPTION OF THE END STAGE RENAL DISEASE MODULE:
Dimensions
General Fatigue
About My Kidney
Disease
Treatment
Problems
Family and Peer
Interaction
Worry
Perceived
Physical
Appearance
Communication
Number of
Items
4
Cluster of
Items
1-4
Reversed
Scoring
1-4
5
1-5
1-5
4
1-4
1-4
3
1-3
1-3
10
1-10
1-10
3
1-3
1-3
5
1-5
1-5
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Young
Children (ages 5-7) child report
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores
Score by Dimensions:
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Total Score: Sum of all the items over the number of items answered on all
the Scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 64 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 2.0 Family Impact Module
PARENT Report
Version 6: updated October 2010
Page 65 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent report of the PedsQLTM 2.0 Family impact Module is composed of 36 items comprising
8 dimensions.
DESCRIPTION OF THE FAMILY IMPACT MODULE:
Dimensions
Physical
Functioning
Emotional
Functioning
Social
Functioning
Cognitive
Functioning
Number of
Items
6
Cluster of
Items
1-6
Reversed
Scoring
1-6
5
1-5
1-5
4
1-4
1-4
5
1-5
1-5
Communication
Worry
Daily
Activities
Family
Relationships
3
1-3
1-3
5
1-5
1-5
3
1-3
1-3
5
1-5
1-5
Direction of Dimensions
Higher scores indicate better
functioning.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed to a 0 to 100 scale.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0
Scoring
Procedure
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Step 3: Total Scores
• The Total Score is the sum of all 36 items divided by the number of items
answered
• The Parent HRQL Summary Score (20 items) is computed as the sum of
the items divided by the number of items answered in the Physical,
Emotional, Social, and Cognitive Functioning scales.
• The Family Functioning Summary Score (8 items) is computed as the
sum of the items divided by the number of items answered in the Daily
Activities and family Relationships scales.
Version 6: updated October 2010
Page 66 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
Interpretation
and Analysis
of Missing Data
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 67 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Gastrointestinal
Symptom Scale (GSS)
PARENT Proxy Report
Version 6: updated October 2010
Page 68 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PARENT proxy report PedsQLTM Gastrointestinal Symptom Scale is composed of 9 items
comprising 1 dimension.
DESCRIPTION OF THE GASTROINTESTINAL SYMPTOM SCALE:
Dimensions
Gastrointestinal
Symptoms
Number of
Items
9
Cluster of
Items
1-9
Reversed
Scoring
1-9
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate Total Score
Sum of all the items over the number of items answered on all the Scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 69 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQLTM Healthcare Satisfaction
Generic Module
Version 6: updated October 2010
Page 70 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM Healthcare Satisfaction Generic Module is composed of 24 items comprising 6
dimensions.
DESCRIPTION OF THE MODULE:
Number of
Items
5
Cluster of
Items
1-5
Inclusion of Family
4
1-4
Communication
5
1-5
Technical Skills
3
1-3
Emotional Needs
4
1-4
Overall
Satisfaction
3
1-3
Dimensions
Information
Reversed
Scoring
No
Direction of Dimensions
Higher scores indicate
higher satisfaction.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
items
Extension of the
Scoring Scale
5-point Likert scale: 0 (Never) to 4 (Always) and Not Applicable
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are scored and linearly transformed to a 0-100 scale as follows: 0=0,
1=25, 2=50, 3=75, 4=100
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If 50% or more items are completed, the Mean score = Sum of the
items divided by the number of items answered in the scale,
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed.
Total Score: Mean score = Sum of all the items in all scales divided by the
number of items answered on all the scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in the scale.
Page 71 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQLTM Healthcare Satisfaction
Hematology / Oncology Module
Version 6: updated October 2010
Page 72 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM Healthcare Satisfaction Hematology / Oncology Module is composed of 25 items
comprising 6 dimensions.
DESCRIPTION OF THE MODULE:
Dimensions
Number of
Items
Cluster of
Items
3
1-3
5
4
5
4
4
1-5
1-4
1-5
1-4
1-4
General
Satisfaction
Information
Inclusion of Family
Communication
Technical Skills
Emotional Needs
Reversed
Scoring
No
Direction of Dimensions
Higher scores indicate
higher satisfaction.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale: 1 (Very dissatisfied) to 5 (Very satisfied)
No
Scores are transformed on a scale from 0 to 100
Step 1: Transform Score
Items are scored and linearly transformed to a 0-100 scale as follows:
1=0, 2=25, 3=50, 4=75, 5=100.
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Scores by Dimensions
• If 50% or more items are completed, the Mean score = Sum of the
items divided by the number of items answered in the scale,
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed.
Total Score: Mean score = Sum of all the items in all scales divided by the
number of items answered on all the scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in the scale.
Page 73 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Multidimensional Fatigue Scale
Version 6: updated October 2010
Page 74 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM Multidimensional Fatigue Scale is composed of 18 items comprising 3 dimensions.
DESCRIPTION OF THE MULTIDIMENSIONAL FATIGUE MODULE:
Dimensions
General Fatigue
Number of
Items
6
Cluster of
Items
1-6
Reversed
Scoring
1-6
Direction of Dimensions
6
1-6
1-6
Higher scores indicate
lower problems.
6
1-6
1-6
Sleep/Rest
Fatigue
Cognitive Fatigue
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score= Sum of the items over the number of items answered.
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Total Score: Sum of all the items over the number of items answered on all
the Scales
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 75 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Neuromuscular Module
Version 6: updated October 2010
Page 76 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
Child and Parent Reports of the PedsQLTM 3.0 Neuromuscular Module for:
- Children (ages 8-12),
- And Teens (ages 13-18),
are composed of 25 items comprising 3 dimensions.
-
Young Child Report (ages 5-7) only consists of the 17-item About My Neuromuscular Disease
Scale, Parent Report for ages 2-18 includes all 3 dimensions and all 25 items,
DESCRIPTION OF THE NEUROMUSCULAR MODULE:
Dimensions
Number of
Items
Cluster of
Items
Reversed
Scoring
17
1-17
1-17
3
1-3
1-3
5
1-5
1-5
About My
Neuromuscular
Disease
Communication
About Our Family
Resources
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring Procedure Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
Interpretation and
Analysis
of missing data
Version 6: updated October 2010
Total Score: Sum of all the items over the number of items answered on all
the Scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 77 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Oral Health Scale
Version 6: updated October 2010
Page 78 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM Oral Health Scale is composed of 5 items comprising 1 dimension.
DESCRIPTION OF THE ORAL HEALTH SCALE:
Dimensions
Number of
Items
Cluster of
Items
Reversed
Scoring
Oral Health
5
1-5
1-5
Direction of Dimensions
Higher scores indicate
lower problems
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
Scoring Procedure follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
Step 2: Calculate Total Score
Sum of all the items over the number of items answered
If more than 50% of the items in the scale are missing, the Scale Score
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 79 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Pediatric Pain Coping
InventoryTM (PPCI)
PARENT Report for Children and Teens (ages 5-18)
CHILD Report for Children (ages 5-12), Teens (ages 13-18)
Version 6: updated October 2010
Page 80 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report of the PedsQLTM Pediatric Pain Coping Inventory™ for Children (ages 5-12)
and Teens (ages 13-18) is composed of 41 items comprising 5 dimensions.
The Child Reports of the PedsQLTM Pediatric Pain Coping Inventory™ for:
- Children (ages 5-12)
- And teens (ages 13-18)
are composed of 41 items comprising 5 dimensions.
See Varni, J.W. et al. (1996). Development of the Waldron/Varni Pediatric Pain Coping Inventory.
Pain, 67, 141-150, for scoring instructions for the a priori and empirically-derived scale scores.
DESCRIPTION OF THE PEDIATRIC PAIN COPING INVENTORY:
Dimensions
Cognitive SelfInstruction
Number of
Items
7
Problem-Solving
10
Distraction
9
Seeks Social
Support
Catastrophizing /
Helplessness
9
6
Cluster of
Items
12, 22, 23, 24,
31, 32, 40
1, 2, 11, 15,
26, 27, 30, 33,
34, 35
6, 8, 9, 10, 14,
16, 17, 18, 19
3, 4, 7, 13, 28,
29, 37, 38 ,39
5, 20, 21, 25,
36, 41
Reversed
Scoring
No
Direction of Dimensions
Higher scores indicate
greater use of the coping
strategy.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
3-point Likert scale from 0 (Never) to 2 (Often)
No
Scores are transformed on a scale from 0 to 2.
Calculate Scale Scores
Sum of all the items over the number of items answered for each Scale.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 81 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Pediatric Pain Questionnaire TM
(PPQ)
Version 6: updated October 2010
Page 82 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM Pediatric Pain Questionnaire™ is composed of 3 items.
DESCRIPTION OF THE QUESTIONNAIRE:
Dimensions
Present Pain
Number of
Items
1
Cluster of
Items
1
Reversed
Scoring
No
Worst Pain
1
2
Direction of Dimensions
Higher score = higher
pain intensity.
The third item refers to the localisation of pain and is not scored.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
10cm (100mm) VAS scales from 0 (Not hurting / No discomfort / No pain) to
10 (100) (Hurting a whole lot / Very uncomfortable / Severe pain)
No
0-10cm or 0-100mm
Scoring Procedure Present pain and worst pain are scored separately.
The score is based on line length to the nearest 0.5 cm (5mm).
Interpretation and
Analysis
There is no imputation process since these are single item VAS scales.
of Missing Data
Version 6: updated October 2010
Page 83 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM Present Functioning
Visual Analogue Scale (PedsQL TM VAS)
CHILD and PARENT reports for CHILD (ages 5-18)
Version 6: updated October 2010
Page 84 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM Present Functioning Visual Analogue Scale is composed of 6 items.
DESCRIPTION OF THE SCALE:
Dimensions
Present
Functioning
Number of
Items
6
Cluster of
Items
1-6
Reversed
Scoring
No
Direction of Dimensions
Higher score = higher
distress or intensity.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
Scoring Procedure
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
100mm VAS scales from 0 to 100
No
0-100
-
PedsQL VAS Total Symptom Score = average of all six items
PedsQL VAS Emotional Distress Summary Score = mean of the
anxiety, sadness, anger, and worry items
There is no imputation process since these are single item VAS scales.
Page 85 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Rheumatology Module
PARENT Report for Toddlers (ages 2-4)
Version 6: updated October 2010
Page 86 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Parent Report for Toddlers (age 2-4) of the PedsQLTM 3.0 Rheumatology Module is
composed of 14 items comprising 3 dimensions.
DESCRIPTION OF THE RHEUMATOLOGY MODULE:
Dimensions
Pain and Hurt
Number of
Items
4
Cluster of
Items
1-4
Reversed
Scoring
1-4
Direction of Dimensions
5
1-5
1-5
Higher scores indicate
lower problems.
5
1-5
1-5
Daily Activities
Treatment
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed to a 0 to 100 scale.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 87 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Rheumatology Module
CHILD and PARENT reports for Young Children (ages 5-7)
Version 6: updated October 2010
Page 88 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQLTM 3.0 Rheumatology Module for Young Children
(ages 5-7) are composed of 20 items comprising 5 dimensions.
DESCRIPTION OF THE RHEUMATOLOGY MODULE:
Dimensions
Pain and Hurt
Number of
Items
4
Cluster of
Items
1-4
Reversed
Scoring
1-4
5
1-5
1-5
5
1-5
1-5
3
1-3
1-3
3
1-3
1-3
Daily Activities
Treatment
Worry
Communication
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the child report for
Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 89 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Rheumatology Module
CHILD and PARENT reports for Children (ages 8-12) and Teens
(ages 13-18)
Version 6: updated October 2010
Page 90 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The Child and Parent Reports of the PedsQLTM 3.0 Rheumatology Module for:
- Children (ages 8-12),
- And Teens (ages 13-18)
are composed of 22 items comprising 5 dimensions.
DESCRIPTION OF THE RHEUMATOLOGY MODULE:
Dimensions
Pain and Hurt
Number of
Items
4
Cluster of
Items
1-4
Reversed
Scoring
1-4
5
1-5
1-5
7
1-5
1-5
3
1-3
1-3
3
1-3
1-3
Daily Activities
Treatment
Worry
Communication
Direction of Dimensions
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point Likert scale from 0 (Never) to 4 (Almost always)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Scoring
Procedure
Interpretation
and Analysis
of Missing Data
Step 2: Calculate Scores by Dimensions
• If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
• Mean score = Sum of the items over the number of items answered.
There is no Total Score
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed items
in a scale.
Version 6: updated October 2010
Page 91 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
PedsQL TM 3.0 Transplant Module
Version 6: updated October 2010
Page 92 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
The PedsQLTM 3.0 Transplant Module is composed of 46 items comprising 8 dimensions.
DESCRIPTION OF THE TRANSPLANT MODULE:
Number of
Items
Cluster of
Items
Reversed
Scoring
9
1-9
1-9
8
1-8
1-8
8
1-8
1-8
Pain and Hurt
3
1-3
1-3
Worry
7
1-7
1-7
Treatment Anxiety
4
1-4
1-4
How I Look
3
1-3
1-3
Communication
4
1-4
1-4
Dimensions
Direction of Dimensions
About My
Medicines I
About My
Medicines II
My Transplant and
Others
Higher scores indicate
lower problems.
SCORING OF DIMENSIONS:
Item Scaling
Weighting of
Items
Extension of the
Scoring Scale
5-point scale from 0 (Never) to 4 (Almost always)
3-point scale: 0 (Not at all), 2 (Sometimes) and 4 (A lot) for the Child Report
for Young Children (ages 5-7)
No
Scores are transformed on a scale from 0 to 100.
Step 1: Transform Score
Items are reversed scored and linearly transformed to a 0-100 scale as
Scoring Procedure follows: 0=100, 1=75, 2=50, 3=25, 4=0.
Step 2: Calculate scores by Dimension
Version 6: updated October 2010
Page 93 of 94
Pediatric Quality of Life Inventory TM (PedsQL TM)
•
•
Interpretation and
Analysis
of Missing Data
Version 6: updated October 2010
If more than 50% of the items in the scale are missing, the scale scores
should not be computed,
Mean score = Sum of the items over the number of items answered.
Total Score: Sum of all the items over the number of items answered on all
the Scales.
If more than 50% of the items in the scale are missing, the Scale Scores
should not be computed.
If 50% or more items are completed: Impute the mean of the completed
items in a scale.
Page 94 of 94
| File Type | application/pdf |
| File Title | SCALING AND SCORING OF THE |
| Author | MAPI |
| File Modified | 2011-03-16 |
| File Created | 2010-10-11 |