Att G -NBDPS Collaborators

CBDRP Collaborators’ List January 2012

Arkansas
Bettye S. Baxter, RN Research Nurse Coordinator/Data Collector Member, Interviewers Committee Member, Interviewer Managers Committee Provides secondary support for NBDPS interviewing and buccal collection. Serves as Project Coordinator for local studies.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5045 Fax: (501) 364-5050 [email protected]
Amy Bird, BS, RHIA Health Information Specialist Responsible for case ascertainment, abstraction, and coding of the medical records for the surveillance system, NBDPS and local studies, and acknowledging and responding to the NBDPS Clinician Reviewers.	ARHMS/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-8950 Fax: (501) 364-5107 [email protected]
Ashley S. Block, MA Research Associate Member, Communications Committee Conducts literature searches, assists faculty in editing research articles and in developing technical reports, letters of intent and research proposals for CBDRP.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5029 Fax: (501) 364-5050 [email protected]
Sarah J. Blossom, PhD Assistant Professor In collaboration with CBDRP faculty, develops new hypotheses and studies to examine maternal immune responses in mid trimester women with a fetal congenital heart defect diagnosis to understand from a mechanistic point of view if maternal immune deficits are an underlying etiological factor for structural birth defects. Research Specialty/Interests: Basic science Immunology/role of maternal immune response in birth defects	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way Little Rock, AR 72202 Phone: (501) 364-2861 Fax: (501) 364-3599 [email protected]
Gwen M. Bradford Administrative Assistant Provides administrative support to the Arkansas Reproductive Health Monitoring System and to the Arkansas Center.	ARHMS/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5000 Fax: (501) 364-5107 [email protected]
Angie Brock Office Manager/Financial Analyst Coordinates administrative support activities and operations and performs financial activities including budget development, purchasing, reports and projections related to the NBDPS and local studies.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5340 Fax: (501) 364-5107 [email protected]
Theangelo M. Calloway Health Information Specialist Responsible for case ascertainment, abstraction, and coding of the medical records for the surveillance system, NBDPS and local studies, and acknowledging and responding to the NBDPS Clinician Reviewers.	ARHMS/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5037 Fax: (501) 364-5107 [email protected]
Angela Chandler, MD Instructor Analyzes data and prepares manuscripts in collaboration with the CBDRP faculty.	University of Arkansas for Medical Sciences College of Medicine/Arkansas Children’s Hospital Pediatrics, Section of Neonatology 1 Children’s Way, Slot 512-5 Little Rock, AR 72202 Phone: (501) 364-1028 Fax: (501) 364-4264 [email protected]
Elizabeth Childers, PhD, MPH Epidemiologist Member, Data Analyst Group Responsible for data management, statistical analysis, and interpretation for projects related to the NBDPS and local studies.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 3333 Pinnacle Hills Parkway, Ste. 430 Rogers, AR 72758 Phone: (479) 286-2620 Fax: (479) 286-2655 [email protected]
Shimul Chowdhury, PhD ABMG Molecular Genetic s Fellow Analyses of data and development of manuscripts using NBDPS and local samples. Research Specialty/Interests: Exploring genetic and epigenetic mechanisms within the homocysteine pathway in congenital heart defects.	Sacred Heart Medical Center and Children’s Hospital 101. W. 8th Ave. Spokane, WA 99204 Phone: (509) 474-5124 [email protected]
Mario A. Cleves, PhD Director of Biostatistics/Professor of Pediatrics Participates in statistical analysis of genetic and environmental data and manuscript preparation for CBDRP and NBDPS.	University of Arkansas for Medical Sciences College of Medicine /Arkansas Children’s Nutrition Center 15 Children’s Way, Slot 512-20B Little Rock, AR 72202 Phone: (501) 364-5033 Fax: (501) 364-3947 [email protected]
Lori Delfos Administrative Assistant II Member, Communications Committee Provides administrative support to the researchers and to the NBDPS, assembling and disseminating study materials and conducting follow-up phone calls and reminder calls.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5044 Fax: (501) 364-5050 [email protected]
Stephen W. Erickson, PhD Statistical Geneticist/Assistant Professor Provides statistical and methodological guidance in the analysis of genomic microarrays and analysis of genetic and environmental data, and manuscript preparation for CBDRP and NBDPS. Research Specialty/Interests: Genetic and environmental causes of major structural birth defects, statistical analysis of high-density genomic microarrays.	University of Arkansas for Medical Sciences Biostatistics, College of Public Health 4301 West Markham, #781 Little Rock, AR 72205 Phone: 296-1556 Fax: 526-6729 [email protected]
Therese “TJ” Green, RN Research Nurse/Interviewer Member, Interviewers Committee Conducts evening and weekend NBDPS interviews and performs tracking and tracing as needed.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5039 Fax: (501) 364-5107 [email protected]
Charlotte A. Hobbs, MD, PhD Director and Professor of Pediatrics Member, Biologics Committee Member, Clinicians Committee Member, Congenital Heart Defects Working Group Member, Coordinating Council Member, Data Sharing Committee Member, Genetic Analyses Working Group Member, Infections Working Group Member, Micronutrients and NTDs Working Group Member, Nutrition Priority Committee Member, Questionnaire and Methods Committee As Principal Investigator, responsible for the overall scientific and fiscal responsibility of the CBDRP and NBDPS, directs and conducts studies of birth defects and prepares manuscripts and grants. Research Specialty/Interests: Genetic Epidemiology - Congenital heart defects, genomics, oxidative stress, folate-related pathways, diabetes, obesity, prematurity.	University of Arkansas for Medical Sciences College of Medicine Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5001 Fax: (501) 364-5050 [email protected]
Adriane Holloway, RHIT Health Information Specialist Responsible for case ascertainment, abstraction, and coding of the medical records for the surveillance system, NBDPS and local studies, and acknowledging and responding to the NBDPS Clinician Reviewers.	ARHMS/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5042 Fax: (501) 364-5107 [email protected]
Bruce B. Hulsey, BA Clinical Systems Analyst/Programmer Member, Data Managers Committee Responsible for managing, interfacing, designing, enhancing, and implementing all CBDRP software systems and securing, transferring, managing and maintaining the NBDPS Databases.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5043 Fax: (501) 364-5050 [email protected]
Patricia Izquierdo, BA Bilingual Interviewer/Extra Help Member, Interviewers Committee Conducts evening and weekend NBDPS interviews with the Spanish population and performs tracking and tracing as needed.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5029 Fax: (501) 364-5050 [email protected]
Stephen G. Kahler, MD Professor of Pediatrics Member, Clinicians Committee Responsible for reviewing Arkansas cases for the NBDPS to determine if they have met the specified case definition and inclusion criteria. Research Specialty/Interests: Inherited metabolic disorders, newborn screening, genetics, and biochemical aspects of autism.	University of Arkansas for Medical Sciences College of Medicine/Arkansas Children’s Hospital Genetics 1 Children’s Way, Slot 512-22 Little Rock, AR 72202 Phone: (501) 364-2966 Fax: (501) 364-1564 [email protected]
Mohammad A. Karim, MD, PhD Research Associate Responsible for processing samples for NBDPS and local studies, presenting data and participation in analyses and presentation of data. Research Specialty/Interests: Genetic, molecular and developmental basis of human diseases.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40B Little Rock, AR 72202 Phone: (501) 364-4599 Fax: (501) 364-2812 [email protected]
Lora D. Lawrence, RN Research Nurse/Project Coordinator and Primary Interviewer Member, Biologics Committee Member, Interviewers Committee Serves as the study coordinator and primary interviewer for NBDPS. Responsible for shipping the biologic samples to the CDC Central Lab.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5005 Fax: (501) 364-5050 [email protected]
Jingyun Li, MS Biostatistician Member, Data Analyst Group Conducting data manipulation and statistical analysis of genetic and environmental data for NBDPS and local studies; involved in the grant application and manuscript preparation.	University of Arkansas for Medical Sciences College of Medicine Biostatistics Program Arkansas Children’s Hospital Research Institute 1 Children’s Way, Slot 512-43 Little Rock, AR 72202 Phone: (501) 364-6515 Fax: (501) 364-1431 [email protected]
Stewart L. MacLeod, PhD Research Assistant Professor of Pediatrics Managing Director of Birth Defects Genomics Laboratory Member, Biologics Committee Directs laboratory personnel in the collection, purification, and use of NBDPS samples for the determination of the genetic basis of birth defects. Develops techniques and assays to ensure the quality of genetic lab data. Research Specialty/Interests: Molecular, genetic and epigenetic basis of complex diseases as well as birth defects.	University of Arkansas for Medical Sciences College of Medicine Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40B Little Rock, AR 72202 Phone: (501) 364-4616 Fax: (501) 364-2812 [email protected]
Sadia Malik, MD, MPH Associate Professor of Pediatrics Member, Congenital Heart Defects Working Group Reviews NBDPS cases with cardiac anomalies for accurate classification and coding, collaborates on epidemiologic studies, and conducts local research studies of heart defects. Research Specialty/Interests: Congenital heart disease	University of Arkansas for Medical Sciences College of Medicine/Arkansas Children’s Hospital Pediatric Cardiology 1 Children’s Way, Slot 512-3 Little Rock, AR 72202 Phone: (501) 364-1479 Fax: (501) 364-3667 [email protected]
Bridget Mosley, MP Epidemiologist Member, Data Analyst Group Responsible for assisting with design, implementation, statistical analysis, and evaluation of the surveillance system, oversees the quality of the NBDPS data to provide complete, clean, and edited clinical data and serves as the liaison to the Arkansas Department of Health Vital Statistics section.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-8951 Fax: (501) 364-5107 [email protected]
Quanda M. Moss, BS, RHIT Health Information Specialist Responsible for case ascertainment, abstraction, and coding of the medical records for the surveillance system, NBDPS and local studies, and acknowledging and responding to the NBDPS Clinician Reviewers.	ARHMS/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5028 Fax: (501) 364-5107 [email protected]
Debra S. Napoli Management Project Analyst II Provides administrative support to the PI and collaborating investigators for the NBDPS and local studies.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5001 Fax: (501) 364-5050 [email protected]
Todd G. Nick, PhD Director of Biostatistics/Professor of Pediatrics Provides methodological guidance and statistical expertise to all aspects of study design, data management and statistical analysis of genetic and environmental data, and manuscript preparation for CBDRP and NBDPS. Research Specialty/Interests: Genetic and environmental causes of major structural birth defects.	University of Arkansas for Medical Sciences College of Medicine Biostatistics Program Arkansas Children’s Hospital Research Institute 1 Children’s Way, Slot 512-43 Little Rock, AR 72202 Phone: (501) 364-5373 Fax: (501) 364-1431 [email protected]
Christopher E. Randolph, BS Laboratory Research Assistant Responsible for DNA extraction, quantification and genotyping of samples for NBDPS and local studies, assists with organizing the laboratory and ordering reagents and lab supplies and assists with posters and presentations for local and national scientific meetings.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40B Little Rock, AR 72202 Phone: (501) 364-4599 Fax: (501) 364-2812 [email protected]
James M. Robbins, PhD Professor of Pediatrics and Psychiatry and Associate Director, CARE Member, Data Sharing Group Member, Coding Committee Member, Socioeconomic Working Group Participates in study design, conducts clinical intervention trials and large population-based survey research and prepares manuscripts for CBDRP and NBDPS. Research Specialty/Interests: Effectiveness of child health services on health outcomes and the measurement of health status for infants, children, and adolescents. Has extensive experience in survey measurement issues in population-based studies.	University of Arkansas for Medical Sciences College of Medicine Center for Applied Research and Evaluation (CARE) 1 Children’s Way, Slot 512-26 Little Rock, AR 72202 Phone: (501) 364-3300 Fax: (501) 364-1552 [email protected]
Gerald B. Schaefer, MD Professor of Pediatrics and Genetics Founding Director, Division of Medical Genetics University of Arkansas for Medical Sciences Section Chief, Division of Genetics and Metabolism Member, Clinicians Committee Responsible for classifying 200 noncardiac cases per year included in the pooled NBDPS data. Research Specialty/Interests: Human clinical genetics with emphasis in neurogenetics and neurodevelopmental disabilities; utilization of computerized image analysis to quantify developmental changes in the brain, the face, and the inner ear.	University of Arkansas for Medical Sciences College of Medicine/ Arkansas Children’s Hospital Genetics 1 Children’s Way, Slot 512-22 Little Rock, Arkansas 72202 Phone: (501) 364-2971 Fax: (501) 364-1564 [email protected]
Veronica J. Smith, MBA Administrative Director of Research and Operations NBDPS Study Manager Member, Biologics Committee Member, Communications Committee Member, Interviewer Managers Committee Responsible for coordinating research activities, managing the business-related aspects of the CBDRP and serving as the NBDPS study manager responsible for facilitating NBDPS-related activities.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40 Little Rock, AR 72202 Phone: (501) 364-5038 Fax: (501) 364-5050 [email protected]
Xinyu Tang, PhD Biostatistician/Assistant Professor Member, Data Analyst Group Responsible for conducting data manipulation and statistical analysis of genetic and environmental data for NBDPS and local studies; involved in the grant application and manuscript preparation.	University of Arkansas for Medical Sciences College of Medicine Biostatistics Program Arkansas Children’s Hospital Research Institute 1 Children’s Way, Slot 512-43 Little Rock, AR 72202 Phone: (501) 364-6616 Fax: (501) 364-1431 [email protected]
Donald E. Turner, Jr., BA Laboratory Research Technician/Inventory Specialist Responsible for all aspects related to sample inventory, i.e., sample login (database entry), sample labeling, sample storage, tracking, retrieval, and organization of the samples within the laboratory information management system and freezers.	Birth Defects Research/Arkansas Children’s Hospital Research Institute 13 Children’s Way, Slot 512-40B Little Rock, AR 72202 Phone: (501) 364-4599 Fax: (501) 364-2812 [email protected]
Ashley Weedn, MD Clinical Assistant Professor/General Academic Pediatrics Fellow Preparing manuscript in collaboration with the CBDRP faculty on prenatal detection of birth defects in the NBDPS.	1200 N. Phillips Blvd, Suite 12400 Oklahoma City, OK 73104 Phone: (405) 271-4407 [email protected]

Use the following contact information for questions about the activities of the Arkansas Center for Birth Defects Research & Prevention:

Charlotte Hobbs, MD, PhD, Director

Toll-free: 1-877-662-4567

Telephone: 501-364-5001 Fax: 501-364-5107

California
Suzan Carmichael, PhD Associate Professor NBDPS Responsibilities: Co-Investigator, Epidemiologist CBDRP Committee/Working Group Membership: Coordinating Council, Data Sharing Committee, Nutrition working group, Epi/Analyst group, Questionnaire/Methods Working Group, GAWG Areas of research interest/specialty: nutrition, stress, SES, endocrine-related exposures, genes, hypospadias, clefts, neural tube defects, craniosynostosis	Stanford University Medical School Office Bldg. 1265 Welch Road, Rm. X111 Stanford, CA 94305-5415 Phone: 650.736.0735 Fax: 650.721.5751 [email protected]
Richard H. Finnell, PhD Professor NBDPS Responsibilities: Co-Investigator CBDRP Committee/Working Group Membership: Biologics	Dell Pediatric Research Institute University of Texas at Austin School of Human Ecology 1400 Barbara Jordan Blvd. DRP 2.808 Austin, TX 78723 Phone: 713-677-7777 Fax: 713-677-7790 [email protected]
Elizabeth (Liz) Harris Study Coordinator NBDPS Responsibilities: Study Coordinator CBDRP Committee/Working Group Membership: Communications, Interviewers	Stanford University Phone: 510-382-0835 Fax: 510-383-9366 [email protected]
Edward J. Lammer, MD Clinical Geneticist NBDPS Responsibilities: Co-Investigator CBDRP Committee/Working Group Membership: Clinicians, Biologics Areas of research interest/specialty: dysmorphology, congenital heart defects, gastroschisis, orofacial clefts	Children’s Hospital Oakland Research Institute 5700 Martin Luther King Jr. Way Oakland, CA 94609-1673 Phone: 510-450-7646 Fax: 510-450-7910 [email protected]
Chen Ma Research Analyst CBDRP Committee/Working Group Membership: Epi/Analyst Group	Stanford University Medical School Office Building 1265 Welch Road, Rm X109 Stanford, CA 94305-5460 Phone: 650-736-0728 Fax: 650-721-5751 [email protected]
Gary Shaw, DrPH Professor NBDPS Responsibilities: Principal Investigator CBDRP Committee/Working Group Membership: Coordinating Council, Data Sharing Committee, Nutrition Working group, GAWG Areas of Research interest/specialty: genes, nutrients, neural tube defects, heart, clefts	Stanford University Medical School Office Bldg 1265 Welch Road, Rm x159 Stanford, CA 94305-5460 (650) 721-5746 (650) 721-5751 fax [email protected]
John Witte, PhD Professor of Epidemiology & Biostatistics Associate Director, Institute for Human Genetics NBDPS Responsibilities: Co-Investigator	University of California, San Francisco 513 Parnassus Ave Room S965 Box 0794 San Francisco, CA 94143-0794 Phone 415-502-6882 Fax 415-476-1356 [email protected]
Wei Yang Research Analyst NBDPS Responsibilities: Research Analyst CBDRP Committee/Working Group Membership: Epi-Analyst	Stanford University Medical School Office Building 1265 Welch Road, Rm X109 Stanford, CA 94305-5460 Phone: 650-736-0620 Fax: 650-721-5751 [email protected]
Huiping Zhu, MD., PhD Research Assistant Professor NBDPS Responsibilities: Biologics management, genetic research CBDRP Committee/Working Group Membership: Biologics	Dell Pediatric Research Institute Department of Nutritional Science College of Natural Sciences University of Texas at Austin 1400 Barbara Jordan Blvd Austin, Texas 78723 Phone: 713-677-7410 Fax: 713-677-7784 [email protected]

For questions about the activities of the Stanford University:

Gary Shaw, DrPH or Suzan Carmichael, PhD

Telephone: 650-721-5746 and Fax: 650-721-5751

Iowa
Paul Romitti, PhD Associate Professor, Department of Epidemiology Director, Iowa Registry for Congenital and Inherited Disorders CBDRP/NBDPS Responsibilities: Principal Investigator/Director CBDRP Committee/Working Group Membership: Analyst, Biologics, Coordinating Council, Data Sharing, and Questionnaire/Methods Committees; Caffeine/Tobacco/Alcohol/Drugs, Environment, Genetic Analysis, Medications, and Occupation Research Working Groups; Abstract/Manuscript Reviewer Areas of research interest/specialty: Alcohol, Genetics, Medications, Occupation, and Tobacco	College of Public Health, The University of Iowa 200 Hawkins Dr, C21-E GH Iowa City, IA 52242 Phone: (319) 384-5012 Fax: (319) 353-8711 [email protected]
Erin Balkenende, MPH Research Assistant, Department of Epidemiology CBDRP/NBDPS Responsibilities: Survey and Sampling Assistant CBDRP Committee/Working Group Membership: Interviewers Committee	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W245H Iowa City, IA 52242 Phone: (319) 335-4916 Fax: (319) 335-4095 erin-fitzharris@uiowa.edu
Julee Bormet, BA Research Associate, Department of Epidemiology CBDRP/NBDPS Responsibilities: NBDPS Study Manager CBDRP Committee/Working Group Membership: Communications Committee	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W265 Iowa City, IA 52242 Phone: (319) 335-4090 Fax: (319) 335-4095 [email protected]
Trudy Burns, PhD Professor, Department of Epidemiology CBDRP/NBDPS Responsibilities: Co-Investigator/Biostatistician CBDRP Committee/Working Group Membership: Abstract/Manuscript Reviewer Areas of research interest/specialty: Statistical Genetics	College of Public Health, The University of Iowa 200 Newton Rd, 2199 WL Iowa City, IA 52242 Phone: (319) 335-9620 Fax: (319) 384-5004 [email protected]
Yanyan Cao, MS Graduate Research Assistant, Department of Epidemiology CBDRP/NBDPS Responsibilities: Epidemiologist CBDRP Committee/Working Group Membership: Analyst	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W265 Iowa City, IA 52242 Phone: (319) 335-4104 Fax: (319) 335-4095 [email protected]
Kristin Caspers, PhD Assistant Research Scientist, Department of Epidemiology CBDRP/NBDPS Responsibilities: Co-Investigator/Epidemiologist CBDRP Committee/Working Group Membership: Analyst, Coordinating Council, and Data Sharing Committees; Caffeine/Tobacco/Alcohol/Drugs, Environment and Occupation Research Working Groups; Abstract/Manuscript Reviewer Areas of research interest/specialty: Alcohol, Environment, Occupation, and Tobacco	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W245B Iowa City, IA 52242 Phone: (319) 335-4101 Fax: (319) 335-4095 [email protected]
Florence Foo, MA Application Developer, Department of Epidemiology CBDRP/NBDPS Responsibilities: Surveillance Data Manager CBDRP Committee/Working Group Membership: Data Managers Committee	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W260C Iowa City, IA 52242 Phone: (319) 335-4004 Fax: (319) 335-4030 [email protected]
Jacquie Green, AA Research Assistant, Department of Epidemiology CBDRP/NBDPS Responsibilities: Survey and Sampling Assistant CBDRP Committee/Working Group Membership: Interviewers Committee	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W245H Iowa City, IA 52242 Phone: (319) 335-4579 Fax: (319) 335-4095 jacquie-green@uiowa.edu
Rhinda Goedken, BA Research Specialist, Department of Epidemiology CBDRP/NBDPS Responsibilities: Laboratory Manager   CBDRP Committee/Working Group Membership: Biologics Committee; Genetic Analysis Working Group	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W245K Iowa City, IA  52242 Phone: (319) 335-4586 Fax: (319) 335-4095 [email protected]
Sue Gorton, RN, BSN, HIM Health Records Specialist, Department of Epidemiology CBDRP/NBDPS Responsibilities: Surveillance Clinical Editor	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W260 Iowa City, IA 52242 Phone: (319) 335-4002 Fax: (319) 335-4030 [email protected]
Lori Jarmon, MA Research Support Manager, Department of Epidemiology CBDRP/NBDPS Responsibilities: Associate Director of Research Operations CBDRP Committee/Working Group Membership: Communications, Interviewer Managers, Interviewers, and Questionnaire/Methods Committees Areas of research interest/specialty: Methods	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W245F Iowa City, IA 52242 Phone: (319) 335-4503 Fax: (319) 335-4095 [email protected]
Vijaya Kancherla, PhD Pierre Decoufle Fellow, DD Branch, NCBDDD, CDC CBDRP/NBDPS Responsibilities: Epidemiologist CBDRP Committee/Working Group Membership: Analyst Committee Areas of research interest/specialty: Alcohol, Caffeine, Medications, and Tobacco	National Center for Birth Defects and Developmental Disabilities Centers for Disease Control and Prevention 1825 Century Center Blvd 3rd Floor Atlanta, GA 30345 Phone: (404) 498-4293 Fax: (319) 335-4095 [email protected]
Kim Keppler-Noreuil, MD Clinical Professor, Department of Pediatrics, Division of Medical Genetics; Program Director for the Medical Genetics Residency Program; Clinical Director of Birth Defects, Iowa Registry for Congenital & Inherited Disorders CBDRP/NBDPS Responsibilities: Co-Investigator/Clinical Reviewer CBDRP Committee/Working Group Membership: Clinicians Committee; Abstract/Manuscript Reviewer Areas of research interest/specialty: Clinical Studies of Cloacal Exstrophy (or OEIS complex); Hydrocephalus, and other brain malformations	Division of Medical Genetics The University of Iowa Hospitals and Clinics 200 Hawkins Dr, W126 GH Iowa City, IA 52242 Phone: (319) 356-2674 Fax: (319) 356-3347 [email protected]
Dan Kitzmann, BA Application Developer, Department of Epidemiology CBDRP/NBDPS Responsibilities: Surveillance Research Data Manager CBDRP Committee/Working Group Membership: Data Managers Committee	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W245A Iowa City, IA 52242 Phone: (319) 335-4898 Fax: (319) 335-4095 [email protected]
Jenell Lentz, BS Research Support Coordinator, Department of Epidemiology CBDRP/NBDPS Responsibilities: Program Manager	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W260B Iowa City, IA 52242 Phone: (319) 335-4088 Fax: (319) 335-4095 [email protected]
Dong Liang, PhD Postdoctoral Research Scholar, Department of Epidemiology CBDRP/NBDPS Responsibilities: Biostatistician CBDRP Committee/Working Group Membership: Analyst Committee Areas of research interest/specialty: Environment, Geospatial Analysis	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W265 Iowa City, IA 52242 Phone: (319) 335-4542 Fax: (319) 335-4095 [email protected]
Jennifer (Alm) Makelarski, PhD Senior Research Project Professional, The University of Chicago CBDRP/NBDPS Responsibilities: Epidemiologist CBDRP Committee/Working Group Membership: Analyst Committee Areas of research interest/specialty: Alcohol and Pesticides	The University of Chicago 5841 S. Maryland Ave, MC 2050 Chicago, IL 60637 Phone: (773) 834-9877 Fax: (773) 834-5664 [email protected]
Lina Moreno Uribe, PhD Assistant Professor, Department of Orthodontics, Dows Institute for Dental Research CBDRP/NBDPS Responsibilities: Co-Investigator CBDRP Committee/Working Group Membership: Analyst Committee Areas of research interest/specialty: Alcohol, Genetics, Obesity, and Tobacco	College of Dentistry The University of Iowa Hospitals and Clinics 801 Newton Rd, N401 DSB Iowa City, IA 52242 Phone: (319) 335-8912 [email protected]
Jeffrey C. Murray, MD Professor, Department of Pediatrics CBDRP/NBDPS Responsibilities: Co-Investigator/Clinical and Molecular Geneticist CBDRP Committee/Working Group Membership: Biologics Committee; Genetic Analysis Working Group; Abstract/Manuscript Reviewer Areas of research interest/specialty: Genetics	Carver College of Medicine The University of Iowa Hospitals and Clinics 200 Hawkins Dr, 2182 ML Iowa City, IA 52242 Phone: (319) 335-6897 Fax: (319) 335-6970 [email protected]
Daryl Murry, PharmD Associate Professor, Department of Pharmaceutical Sciences and Experimental Therapeutics CBDRP/NBDPS Responsibilities: Co-Investigator CBDRP Committee/Working Group Membership: Abstract/Manuscript Reviewer Areas of research interest/specialty: Pharmacogenomics	College of Pharmacy, The University of Iowa 115 South Grand Ave, S425 PHAR Iowa City, IA 52242 Phone: (319) 335-8157 Fax: (319) 335-9349 [email protected]
Soman Puzhankara, MS Research Manager, Department of Epidemiology CBDRP/NBDPS Responsibilities: Research Data Manager CBDRP Committee/Working Group Membership: Data Managers Committee	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W245C Iowa City, IA 52242 Phone: (319) 335-4583 Fax: (319) 335-4095 [email protected]
Carissa Rocheleau, PhD Fellow, NIOSH CBDRP/NBDPS Responsibilities: Epidemiologist CBDRP Committee/Working Group Membership: Analyst Committee; Environment and Occupation Research Working Groups Areas of research interest/specialty: Occupation	National Institute for Occupational Safety and Health 4676 Columbia Parkway, R-15 Cincinnati, Ohio 45226 Phone: (513) 841-4110 Fax: 513-841-4486 [email protected]
Taehyun Roh, MS Graduate Research Assistant, Department of Epidemiology CBDRP/NBDPS Responsibilities: Toxicologist CBDRP Committee/Working Group Membership: Analyst Committee	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W265 Iowa City, IA 52242 Phone: (319) 335-4588 Fax: (319) 335-4095 [email protected]
Wayne Sanderson, PhD, CIH Professor and Chair, Department of Occupational and Environmental Health CBDRP/NBDPS Responsibilities: Co-Investigator CBDRP Committee/Working Group Membership: Occupation Research Working Group; Abstract/Manuscript Reviewer Areas of research interest/specialty: Occupation	College of Public Health, University of Kentucky 121 Washington Avenue, Suite 213 Lexington, KY 40536-0003 Phone: (859) 218-2227 Fax: (859) 257-8811 [email protected]
Pradeep Shukla, PhD Associate Research Scientist, Department of Epidemiology CBDRP/NBDPS Responsibilities: Co-Investigator/Molecular Epidemiologist CBDRP Committee/Working Group Membership: Analyst and Biologics Committees; Environment, Genetic Analysis, and Occupation Working Groups; Abstract/Manuscript Reviewer Areas of research interest/specialty: Alcohol, Environment, Genetics, Occupation, and Tobacco	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W245D Iowa City, IA 52242 Phone: (319) 335-8585 Fax: (319) 335-4095 [email protected]
Lixian Sun, MS Statistician/Biostatistician, Department of Epidemiology CBDRP/NBDPS Responsibilities: Biostatistician CBDRP Committee/Working Group Membership: Analyst Committee	267 Curtner Ave #25 Palo Alto, CA 94306 Phone: (319) 400-6431 [email protected]
Theo Tamini, MS Graduate Research Assistant, Department of Epidemiology CBDRP/NBDPS Responsibilities: Epidemiologist CBDRP Committee/Working Group Membership: Analyst Committee	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W265 Iowa City, IA 52242 Phone: (319) 335-4036 Fax: (319) 335-4095 [email protected]
Angela Trujillo Research Assistant, Department of Epidemiology CBDRP/NBDPS Responsibilities: Bilingual Survey and Sampling Assistant CBDRP Committee/Working Group Membership: Interviewers Committee	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W245H Iowa City, IA 52242 Phone: (319) 335-4575 Fax: (319) 335-4095 [email protected]
George Wehby, PhD Assistant Professor, Department of Health Management and Policy CBDRP/NBDPS Responsibilities: Co-Investigator CBDRP Committee/Working Group Membership: Analyst Committee Areas of research interest/specialty: Alcohol, Genetics, Obesity, and Tobacco	College of Public Health, The University of Iowa 200 Hawkins Dr, E205 GH Iowa City, IA 52242 Phone: (319) 384-5133 Fax: (319) 384-5125 [email protected]
Peter Weyer, PhD Associate Director, Center for Health Effects of Environmental Contamination CBDRP/NBDPS Responsibilities: Co-Investigator CBDRP Committee/Working Group Membership: Environment Working Group; Abstract/Manuscript Reviewer Areas of research interest/specialty: Environment	College of Public Health, The University of Iowa UI Research Park 100 BVC Room W140 Iowa City, IA 52242 Phone: (319) 335-4014 Fax: (319) 335-4747 [email protected]

For questions about the activities of the Iowa Center for Birth Defects Research & Prevention:

Julee Bormet, Iowa NBDPS Study Manager

Telephone: 319-335-4090

Fax: 319-335-4095

Massachusetts
Marlene Anderka, ScD, MPH Director, Epidemiologist CBDRP/NBDPS Responsibilities: Principal Investigator, MA Center CBDRP Committee/Working Group Membership: Coordinating Council (Chair 2011); Data Sharing Committee (Data Sharing Editor 7/06-12/06; Data Sharing Chair 1/08-6/08 and 1/10-6/10); Environmental/Occupational work group; Caffeine, alcohol, tobacco and illicit drugs work group; Epidemiologist/Analyst work group; Genetic Analysis work group; Drug screen work group; Twin work group (Chair) Areas of research interest/specialty: Surveillance, maternal and child health, reproductive epidemiology, nutrition in pregnancy and early childhood, medication use in pregnancy.	MA Dept. of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: (617) 624-6045 Fax: (617) 624-5574 [email protected]
Roberta Aucoin, RN Medical Records Abstractor CBDRP/NBDPS responsibilities: Medical records abstraction.	MA Dept. of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: (617) 624-5510 Fax: (617) 624-5574 [email protected]
Elizabeth Bingay, MS Epidemiologist	MA Dept. of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: (617) 624-5572 Fax: (617) 624-5574 [email protected]
Christopher Borger, MPH Epidemiologist CBDRP/NBDPS Responsibilities: Data analysis, NBDPS control selection, data requests	MA Dept of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: 617-624-5596 Fax: 617-624-5574 [email protected]
Howard Cabral, PhD, MPH Biostatistician, Co-Investigator Craniofacial Project	Dept. of Biostatistics Boston University School of Public Health 715 Albany Street, T4E Boston, MA 02118 Tel: (617) 638-5024 Fax (:617) 638-6484 [email protected]
Kelly Diringer Getz, MPH Graduate Student Intern	MA Dept of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: 617-624-5092 Fax: (617) 624-5574 [email protected]
Sonia Hernandez-Diaz, MD, DrPH Associate Professor of Epidemiology Areas of research interest/specialty: Pharmacoepidemiology; Reproductive epidemiology; Epidemiological methods for design and analysis of observational studies	Harvard School of Public Health Kresge Bldg. Room 816 677 Huntington Ave. Boston, MA 02115 Phone: (617) 432-3942 Fax: (617) 566-7805 [email protected]
Cathleen A. Higgins, BA Data Coordinator/Research Analyst CBDRP/NBDPS responsibilities: Data analysis, quality control audits, supervisor of reporting, medical record abstraction and data entry; NBDPS and case review.	MA Dept. of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: (617) 624-5510 Fax: (617) 624-5574 [email protected]
Lewis B. Holmes, MD Clinical Geneticist and Teratologist CBDRP/NBDPS responsibilities: Co-PI, Massachusetts Center. Areas of research interest/specialty: Identifying causes of congenital malformations, Identifying human teratogens	Mass. General Hospital for Children Genetics Unit, CPZS-5-504 175 Cambridge Street Boston, MA 02114-7696 Phone: (617) 726-1742 Fax: (617) 724-1911 [email protected]
Kathryn Killoran, BSN, RN, MPH Spanish-speaking Nurse Interviewer/Backup Nurse interviewer	16 Seagrave Road Cambridge,MA 02140 617 864- 0653 [email protected] [email protected] [email protected]
Milton Kotelchuck, PhD, MPH Professor, Department of Community Health Sciences Boston University School of Public Health (BUSPH) Senior Scientist in Maternal and Child Health MGH Center for Child and Adolescent Health Policy MassGeneral Hospital for Children, and Visiting Professor of Pediatrics Harvard Medical School	Dept. of Community Health Sciences Boston University School of Public Health 801 Massachusetts Ave., Rm 434 Boston, MA 02118 Phone: 617-414-1413 Fax: 617-638-4483 [email protected] 50 Staniford Street, Suite 901 Boston, MA 02114 617-724-3594 [email protected]
Angela E. Lin, MD Clinical Geneticist CBDRP/NBDPS responsibilities: Case review, heart classification CBDRP Committee/Working Group Membership: Clinicians Committee, Heart Study Group; Heterotaxy Study group (leader) Areas of research interest/specialty: Heart defects especially heterotaxy and left-sided defects, descriptive analyses, risk factor studies	MA DPH, Birth Defects Monitoring Program 250 Washington St., 5th Floor Boston, MA 02108 MGH Genetics Unit 185 Washington St., Simches 2222 Boston, MA 02114 Phone: (617) 726-1561 (MGH only) Fax: (617) 726-1566 [email protected]
Susan P. Littlefield, RN, MPH Nurse Interviewer	98 Downer Ave Hingham, MA 02043 Phone: (781) 740-1784 Fax: [email protected] [email protected]
Chia-ling Penny Liu, RN, MPH, ScD Researcher/Data Analyst	2 North Park Street Watertown, MA 02472 Phone: (617) 924-2060 Fax: (617) 924-2060 [email protected]
Carol Louik, ScD Epidemiologist CBDRP/NBDPS responsibilities: Data analysis CBDRP Committee/Working Group Membership: Environmental/occupational working group, Environmental/occupational priorities subgroup, questionnaire and methods committee, Drug screening working group Areas of research interest/specialty: Medication and herbal use in pregnancy, Occupational exposures	Slone Epidemiology Center 1010 Commonwealth Ave. Boston, MA 02215 Phone: (617) 734-6006 Fax: (617) 738-5119 [email protected]
Rebecca Lovering, MPH Study Coordinator CBDRP/NBDPS responsibilities: Study coordinator NBDPS Committees/working groups: Interviewer committee, Biologics committee, Communications committee, and Interviewer managers/supervisors committee.	MA Dept. of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: (617) 624-5529; 1-888-302-2101 Fax: (617) 624-5574 [email protected]
Allen A. Mitchell, MD Director, Slone Epidemiology Center at Boston University Professor of Epidemiology and Pediatrics, Boston University Schools of Public Health and Medicine CBDRP/NBDPS responsibilities: Co-PI, Massachusetts Center; PI Slone component of Massachusetts Center; Collaborator/consultant on drug-birth defect analyses. NBDPS Committees/working groups: Data Sharing Committee; Chair, Drug Screening Working Group; Questionnaire/Methods Committee    Areas of research interest/specialty: Risks and safety of medication use in pregnancy; Pharmacogenomics and birth defects; Epidemiologic study design, survey research	Slone Epidemiology Center 1010 Commonwealth Avenue Boston, MA 02215 Phone: (617) 734-6006 Fax: (617) 738-5119 [email protected]
Gerlinde S. Munshi, MA Administrative Director, MA Center for Birth Defects Research and Prevention CBDRP/NBDPS Responsibilities: Administrative support and oversight for the center’s study activities NBDPS Committees/working groups: Interviewer committee	MA Dept. of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: (617) 624-5507 Fax: (617) 624-5574 [email protected]
Ellen M. Nylen, RN Medical Records Abstractor CBDRP/NBDPS responsibilities: Medical records abstraction.	MA Dept. of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: (617) 624-5510 Fax: (617) 624-5574 [email protected]
Samantha Parker, MSPH Data Analyst	Slone Epidemiology Center 1010 Commonwealth Avenue Boston, MA 02215 Phone: 617-734-6066 Email: [email protected]
Barbara R. Pober, MD, MPH Professor of Pediatrics, Harvard Medical School CBDRP/NBDPS Responsibilities: Clinical Geneticist Areas of research interest/specialty: Genetic factors in congenital diaphragmatic hernia	Center for Human Genetics Simches Research Building 185 Cambridge Street, Room 222 Boston, MA 02114 Phone: (617) 726-1561 Fax: (617) 726-1566 [email protected] [email protected]
Christine Seidman, MD Medicine and Genetics Areas of research interest/specialty: cardiology, genetics of adult and pediatric cardiac disease	Harvard Medical School Department of Genetics 77 Avenue Louis Pasteur NRB-256 Boston, MA 02115 Phone: (617) 432-7871 Fax: (617) 432-7832 [email protected]
Jon Seidman, PhD Geneticist Areas of research interest/specialty: Genetic basis of cardiomyopathies and congenital cardiac malformations	Harvard Medical School Department of Genetics 77 Avenue Louis Pasteur NRB-256 Boston, MA 02115 Phone: (617) 432-7871 Fax: (617) 432-7832 [email protected]
Daniel J. Sexton, MS, RHIA Case Reviewer/Abstractor CBDRP/NBDPS responsibilities: Case review in clinical database, coding and case note follow up.	MA Dept. of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: (617) 624-5546 Fax: (617) 624-5574 [email protected]
Lori A. Tetrault, BS, CCS, CPC Medical Records Abstractor CBDRP/NBDPS responsibilities: Medical records abstraction.	MA Dept. of Public Health Bureau of Family Health and Nutrition 250 Washington St., 5th Floor Boston, MA 02108 Phone: (617) 624-5510 Fax: (617) 624-5574 [email protected]
Carla Van Bennekom, MPH Epidemiologist CBDRP/NBDPS responsibilities: Data analysis Areas of research interest/specialty:  Pharmacoepidemiology, evaluation of pregnancy risk management programs	Slone Epidemiology Center 1010 Commonwealth Avenue Boston, MA 02215 Phone: (617) 734-6006 Fax: (617) 738-5119 [email protected]
Martha Werler, ScD, MPH Professor CBDRP/NBDPS responsibilities: Epidemiologist: formulation of research questions, data analyses, manuscript writing, abstract writing, poster presentations, and shaping of research agendas. NBDPS Committees/working groups: Member Medication Projects Priorities Group; Member, Methods and Questionnaire Committee; Chair, Drug        Screening Working Group; Ad hoc member of Coordinating Council Areas of research interest/specialty: Vasoactive exposures, Vascular disruption defects, Medications, Vitamin supplementation, and Dietary intake.	Slone Epidemiology Center 1010 Commonwealth Avenue Boston, MA 02215 Phone: (617) 734-6006 Fax: (617) 738-5119 [email protected]
Marie-Noel Westgate, M.S. Senior Research Coordinator, Active Malformations Surveillance Program Teratology Unit, Brigham and Women’s Hospital CBDRP/NBDPS responsibilities: Report and Abstract cases ascertained at Brigham and Women’s Hospital.	Teratology Department Brigham and Women's Hospital 75 Francis St Boston, MA 02115 Phone: (617) 732-4268 Fax: : (617) 724-1911 [email protected]

For questions about the activities of the Massachusetts Center for Birth Defects Research & Prevention:

Marlene Anderka
Toll Free: 1-888-302-2101/Telephone: (617) 624-6045 
Fax:  (617) 624-5574

New York
Erin M. Bell, Ph.D. Associate Professor CBDRP/NBDPS responsibilities: Co-PI, epidemiological analyses: asthma and CVMs, advisor for doctoral students using NBDPS data for dissertations, oversight of interviews NBDPS Committees/working groups: Data Sharing committee, Environmental/occupational working group Areas of research interest/specialty: environmental and occupational exposures and adverse reproductive outcomes including birth defects, GIS techniques in exposure assessment, pesticides and air pollution	School of Public Health Department of Environmental Health Sciences One University Place, Rm. 1155 Rensselaer, NY 12077 Phone: (518) 402-0375 Fax: (518) 402-0380 [email protected]
Marilyn Browne, PhD Research Scientist CBDRP/NBDPS responsibilities: Co-PI, Develop research proposals, data analysis, report writing, analyst training NBDPS Committees/working groups: Biologics, Coordinating Council, Data Sharing, Epi-Analyst, Medications screen, Environmental working group, Genetic analysis working group Areas of research interest/specialty: environmental health, medications, methods	Flanigan Square, Room 200 547 River Street Troy, NY 12180 Phone: (518) 402-7974 Fax: (518) 402-7769 [email protected]
Tonia Carter, PhD Epidemiologist CBDRP/NBDPS responsibilities: Develop research proposals and analysis NBDPS Committees/working groups: Environmental and Occupational Areas of research interest/specialty: Maternal and Child Health, Environmental Health and Reproductive Outcomes	Center for Human Genetics Marshfield Clinic 1000 North Oak Ave Marshfield, WI 54449 Tel: 715-221-6467 Fax: 715-389-4950 [email protected]
Alissa R. Caton, PhD Research Scientist (Epidemiologist) CBDRP/NBDPS responsibilities: Develop research proposals, data analysis, manuscript preparation, NY geocoding liaison NBDPS Committees/working groups: Data sharing (manuscript/abstract review), environmental and occupational, medication screening Areas of research interest/specialty: Medications, maternal chronic diseases environmental exposures, biliary atresia; abdominal wall defects, GIS, improving surveillance	New York State Department of Health Center for Environmental Health Bureau of Environmental and Occupational Epidemiology Flanigan Square 547 River St., Room 200 Troy, NY 12180 Phone: (518) 402-7977 Fax: (518) 402-7959 [email protected]
Philip Cross, BS Assistant Bureau Director, Bureau of Environmental Epidemiology and Occupational Health CBDRP/NBDPS responsibilities: oversight of state birth defects surveillance system.	Flanigan Square 547 River Street, Room 200 Troy, NY 12180 Phone: (518) 402-7954 Fax: (518) 402-7959 [email protected]
Charlotte Druschel, MD, MPH Principal Investigator CBDRP/NBDPS responsibilities: Oversight of Project, develop research agenda NBDPS Committees/working groups: Clinicians, Data Sharing (voting member), Questionnaire & Methods; Cleft, Environmental/Occupational, Heart, NTD, Stress, Social-Economic, Limb Diaphragmatic hernia Areas of research interest/specialty: Perinatal epidemiology, maternal illness, environmental exposures and reproductive outcomes	Congenital Malformations Registry 547 River Street, Room 200 Troy, NY 12180 Phone: (518) 402-7771 Fax: (518) 402-7769 [email protected]
Michele L. Herdt-Losavio, PhD, MPH Epidemiologist, PhD Student CBDRP/NBDPS responsibilities: proposal development and analysis Areas of research interest/specialty: Occupation and reproductive outcomes	Flanigan Square, Room 200 547 River Street Troy, NY 12180 Phone: (518) 402-7950 Fax: (518) 402-7959 [email protected]
Rena R, Jones, MS Research Scientist (Analyst) CBDRP/NBDPS responsibilities: proposal development and analysis, manuscript preparation NBDPS Committees/working groups: Occupational working group Areas of research interest/specialty: Occupation and reproductive outcomes	Flanigan Square, Room 200 547 River Street Troy, NY 12180 Phone: (518) 402-7958 Fax: (518) 402-7959 [email protected]
Sharon Kasperek, MPH Field Staff CBDRP/NBDPS responsibilities: Ascertain cases and controls, abstract needed information, transmit to main office, follow up as necessary NBDPS Committees/working groups: Communications	NYS DOH Western Regional Office 584 Delaware Avenue Buffalo, NY 14202-1295 Phone: (716) 847-4365 Fax: (716) 847-4333 [email protected]
Christine L Kielb MS Research Scientist (Analyst) CBDRP/NBDPS responsibilities: proposal development, data analysis, manuscript preparation Areas of research interest/specialty: reproductive outcomes	Flanigan Square, Room 200 547 River Street Troy, NY 12180 Phone: (518) 402-7989 Fax: (518) 402-7959 [email protected]
Russell S. Kirby, PhD, MS, FACE Collaborator Areas of research interest/specialty: abdominal wall, mortality and malformations	Department of Community and Family Health College of Public Health, University of South Florida 13201 Bruce B. Downs Blvd, MDC56 Tampa FL 33612 Phone : 813-396-2347 Fax : 813-974-7830 [email protected]
Shao Lin, PhD Senior Epidemiologist CBDRP/NBDPS responsibilities: proposal development and analysis Areas of research interest/specialty: environmental effects on health outcomes, asthma research, reproductive health, birth defects	547 River Street, Room 200 Troy, NY 12180-2216 Phone: (518) 402-7962 Fax: (518) 402-7769 [email protected]
Nancy Mahoney Study Coordinator CBDRP/NBDPS responsibilities: Oversight of day to day activities, assist PI NBDPS Committees/working groups: Communications	Congenital Malformations Registry Flanigan Square, Room 200 547 River Street Troy, NY 12180 Phone: (518) 402-7990 Fax: (518) 402-7769 [email protected]
James L, Mills, MD, MS Collaborator Areas of research interest/specialty: Folate genes, FAS	Division of Epidemiology, Statistics & Prevention Research, DHHS 6100 Building, Room 7B03 NICHD, NIH Bethesda, MD 20892 Phone: (301) 496-5394 Fax: (301) 402-2084 [email protected]
Moshe Klompus Field Staff CBDRP/NBDPS responsibilities: Ascertain cases and controls, abstract needed information, transmit to main office, follow up as necessary	NYSDOH – New Rochelle Office 145 Huguenot Street New Rochelle, NY 10801-5228 Phone: (914) 654-7114 (845) 358-4857 Fax: (845) 358-4857 [email protected]
Pricila Mullachery Field Staff CBDRP/NBDPS responsibilities: Ascertain cases and controls, abstract needed information, transmit to main office, follow up as necessary	NYSDOH – New Rochelle Office 145 Huguenot Street New Rochelle, NY 10801-5228 Phone: (914) 654-7114 (845) 358-4857 Fax: (845) 358-4857 [email protected]
Roxana Moslehi, Ph.D. Assistant Professor, Genetic Epidemiologist Areas of research interest/specialty: Genetic abnormalities leading to gestational complications	Department of Epidemiology and Biostatistics School of Public Health State University of New York (SUNY) at Albany One Discovery Drive Rensselaer, NY 12144-3456 Phone: (518) 591-7225 Fax: (518) 591-7201 [email protected]
JeanPierre W. Munsie, MSPH Research Scientist CBDRP/NBDPS responsibilities: proposal development, data analysis, manuscript preparation Areas of research interest/specialty: environmental effects on health outcomes, maternal asthma and birth defects	547 River St, Room 200 Flanigan Square Troy, NY 12180 Phone: (518) 402-7995 Fax: (518) 402-7959 [email protected]
Luther K. Robinson, MD Clinical Reviewer CBDRP/NBDPS responsibilities: Clinical Reviewer , assist field staff NBDPS Committees/working groups: Clinicians committee Areas of research interest/specialty: FAS	Division of Genetics Children’s Hospital of Buffalo 936 Delaware Ave Buffalo New York Phone: (716) 888-1365 Fax: (716) 888-1368 [email protected]
Aida Soim, MS Research Scientist (Analyst) CBDRP/NBDPS responsibilities: proposal development, data analysis, manuscript preparation NBDPS Committees/working groups: Environmental working group Areas of research interest/specialty: Environmental Exposures, Reproductive Outcomes	New York State Department of Health Bureau of Environmental and Occupational Epidemiology 547 River Street, Room 200, Troy, NY, 12180 Phone: (518) 402-7979 Fax: (518) 402-7959 [email protected]
Thomas Talbot, MS Collaborator CBDRP/NBDPS responsibilities: oversight of geocoding, developing updated surveillance system, developing studies using geocoding NBDPS Committees/working groups: Environmental and Occupational Work Groups	Congenital Malformations Registry Flanigan Square, Room 200 547 River Street Troy, NY 12180 Phone: (518) 402-7990 Fax: (518) 402-7769 [email protected]

For questions about the activities of the New York Center for Birth Defects Research & Prevention:

Charlotte Druschel, Marilyn Browne

Telephone: 518-402-7990 Fax:  518-402-7769

North Carolina
Arthur S. Aylsworth, MD Professor of Pediatrics and Genetics CBDRP/NBDPS responsibilities: Review cases, classify cases, participate in research NBDPS Committees/working groups: Clinicians committee Areas of research interest/specialty: Phenotyping for genetic studies; Causes of the common disorders in pediatrics – i.e., birth defects, intellectual disability, and short stature	Division of Genetics and Metabolism University of North Carolina, CB# 7487 Medical School Wing E, Room 116 Chapel Hill, NC  27599-7487 Phone: (919) 966-4202 Fax: (919) 966-3025 [email protected]
Patricia Basta, PhD Research Associate Co-Manager UNC BioSpecimen Processing Facility CBDRP/NBDPS responsibilities: Participate in research; Oversee local biospecimen documentation and storage NBDPS Committees/working groups: Biologics	University of North Carolina Gillings School of Global Public Health Department of Erpidemiology, CB #7435 Chapel Hill, NC 27599 Phone: (919) 843-3860 Fax: (919) 966-2089 [email protected]
Jeannette T. Bensen, PhD Research Assistant Professor Molecular Genetics and Epidemiology CBDRP/NBDPS responsibilities: Support local laboratory activities (DNA extraction), participate in research NBDPS Committees/working groups: Biologics, GAWG Areas of research interest/specialty: Immunogenetics, in particular the influence of inflammation in complex disease in well-characterized clinical or population-based sample groups with the goal being identification of risk groups for targeted intervention strategies or altered treatment methods; Cytokine gene mapping, SNP map development, haplotype analysis, and gene-gene interaction in multiethnic epidemiologic studies	University of North Carolina Lineberger Comprehensive Cancer Center-North 1700 Airport Road, CB #7295 Chapel Hill, NC 27599-7295 Phone: (919) 843-1017 Fax: (919) 966-4275 [email protected]
Tania A. Desrosiers, PhD Epidemiologist/Analyst CBDRP/NBDPS responsibilities: Participate in research; provide analytic support and QA/QC for NBDPS data collection NBDPS Committees/working groups: EPI-Analyst; Occupational working group; Environmental working group Areas of research interest/specialty: Environmental and occupational risk factors for perinatal and pediatric outcomes, including birth defects and FGR	NC Birth Defects Monitoring Program 222 N. Dawson Street 1908 Mail Service Center Raleigh, NC 27699 Phone: (919) 715-0268 Fax: (919) 715-4489 [email protected] University of North Carolina Gillings School of Global Public Health Department of Epidemiology 137 East Franklin Street, Suite 32 Chapel Hill, NC 27514 Phone: (919) 843-6199 Fax: (919) 966-6650 [email protected]
Montserrat Fuentes, PhD Professor of Statistics NBDPS Responsibilities: participate in research Areas of research interest/specialty: spatial-temporal statistics, bayesian inference, uncertainty analysis, risk assessment, environmental health statistics.	North Carolina State University Department of Statistics Patterson Hall 209 G Box 8203 Raleigh, NC 27695 Phone: 919-515-1921 Fax: 919-515-1169 [email protected]
William E. Funk, PhD Research Assistant Professor NBDPS Responsibilities: participate in research Areas of research interest/specialty: analytical chemistry and mass spectrometry, methods to extract and measure exposure biomarkers in dried blood spots	Northwestern University Department of Anthropology 1810 Hinman Avenue Evanston, IL 60208-1310 Phone: 847-467-6208 Fax: 847-467-1778 [email protected]
Katie Harmsen, MA Clinical QC Coordinator CBDRP/NBDPS responsibilities: Clinical data review, QA/QC, NBDPS coding	NC Birth Defects Monitoring Program 222 N. Dawson Street 1908 Mail Service Center Raleigh, NC 27699 Phone: (919) 715-4496 Fax: (919) 715-4489 [email protected]
Amy H. Herring, ScD Associate Professor Biostatistics CBDRP/NBDPS responsibilities: Consultation on statistical analysis Areas of research interest/specialty: Statistical methods for reproductive and environmental epidemiology, including missing data, joint models for longitudinal and survival data, latent variables, Bayesian methods, and exposure assessment	University of North Carolina Gillings School of Global Public Health Department of Biostatistics, CB #7420 Chapel Hill, NC 27599 Phone: (919) 843-6368 Fax: (919) 966-3804 [email protected]
Tom Luben, PhD Epidemiologist CBDRP/NBDPS responsibilities: participate in research NBDPS Committees/working groups: Environmental working group Areas of research interest/specialty: Environmental epidemiology	US EPA 109 TW Alexander Drive Durham, NC 27711 Phone: (919) 541-5762 Fax: [email protected]
Kimberly A. Ludwig, BS Programmer Analyst CBDRP/NBDPS responsibilities: Day-to-day data management and oversight of databases; development for systems pertaining to NCCBDRP operations, including user reports and electronic interfaces between systems NBDPS Committees/working groups: Centers, Data Managers	University of North Carolina Gillings School of Global Public Health Department of Epidemiology 137 East Franklin Street, Suite 32 Chapel Hill, NC 27514 Phone: (919) 966-2439 Fax: (919) 966-6650 [email protected]
Manjoo Mittal, PhD Analyst/Statistician CBDRP/NBDPS responsibilities: Participate in research; provide analytic support and QA/QC for NBDPS data collection. NBDPS Committees/working groups: Areas of research interest/specialty: Health statistics	NC Birth Defects Monitoring Program 1908 Mail Service Center Cotton Building Raleigh, NC 27699-1908 Phone: (919) 715-4477 Fax: (919) 715-4489 [email protected]
Robert E. Meyer, PhD Director of NC Birth Defects Monitoring Program CBDRP/NBDPS responsibilities: Co-Principal Investigator for NBDPS, Investigator and collaborator for local studies NBDPS Committees/working groups: Centers, Coordinating Council, Data Sharing Areas of research interest/specialty: occupational/environmental epidemiology and geographic analysis	NC Birth Defects Monitoring Program 1908 Mail Service Center Cotton Building Raleigh, NC 27699-1908 Phone: (919) 715-4476 Fax: (919) 715-4489 [email protected]
Andrew F. Olshan, PhD Professor and Chair, Epidemiology CBDRP/NBDPS responsibilities: Principal Investigator for NBDPS, Investigator and collaborator for Local Studies NBDPS Committees/working groups: Centers, Coordinating Council, Biologics, Biologics Subcommittee, GAWG, Data Sharing Areas of research interest/specialty: Genetic and environmental risk factors for reproductive and pediatric outcomes, including birth defects; epidemiologic methods and the role of paternal exposures in the etiology of developmental outcomes	University of North Carolina Gillings School of Global Public Health Department of Epidemiology, CB #7435 2101B McGavran-Greenberg Hall Chapel Hill, NC 27599-7435 Phone: (919) 966-7424 Fax: (919) 966-2089 [email protected]
Anna Maria Siega-Riz, PhD Professor, Nutrition & Epidemiology Associate Chair Epidemiology CBDRP/NBDPS responsibilities: participate in research NBDPS Committees/working groups: Data Sharing, Nutrition Areas of research interest/specialty: Diet methodology, nutritional exposures and reproductive outcomes, maternal and child nutrition, dietary trends in the US	University of North Carolina Gillings School of Global Public Health Department of Epidemiology, CB #7435 2105-A McGavran-Greenberg Hall Chapel Hill, NC 27599 Phone: (919) 962-8410 Fax: (919) 966-9159 [email protected]
Daniela Sotres-Alvarez, PhD UNC Biostatistics Postdoctoral Researcher CBDRP/NBDPS responsibilities: participate in research	University of North Carolina Gillings School of Global Public Health Department of Biostatistics, CB #7420 Chapel Hill, NC 27599 Phone: (919) 966-7281 Fax: (919) 966- dsotres@bios.unc.edu
Jeanette A. Stingone, MPH UNC Epidemiology PhD Student NBDPS Responsibilities: participate in research NBDPS Committees/working groups: Environmental working group Areas of research interest/specialty: Environmental risk factors for perinatal and pediatric outcomes; air pollution epidemiology	University of North Carolina Gillings School of Global Public Health Department of Epidemiology, CB #7435 Chapel Hill, NC 27599 Phone: (919) 966-1610 [email protected]
Jennifer Stock, BS Field Coordinator CBDRP/NBDPS responsibilities: Manage NBDPS clinical data collection	NC Birth Defects Monitoring Program 222 N. Dawson Street 1908 Mail Service Center Raleigh, NC 27699 Phone: (919) 715-0263 Fax: (919) 715-4489 [email protected]
Joshua Warren, PhD Biostatistics Postdoctoral Researcher CBDRP/NBDPS responsibilities: participate in research Areas of research interest/specialty: statistical research; environmental risk factors, air pollution, agricultural pesticides	University of North Carolina Gillings School of Global Public Health Department of Biostatistics, CB #7420 Chapel Hill, NC 27599 Phone: (919) 966-6368 Fax: (919) 966-3804 [email protected]
Jennifer Winston, UNC Geography PhD Student NBDPS Responsibilities: participate in research NBDPS Committees/working groups: Environmental working group Areas of research interest/specialty: geography of water/environmental exposures, atrazine in drinking water	University of North Carolina Gillings School of Global Public Health Department of Epidemiology, CB #7435 Chapel Hill, NC 27599 Phone: (919) 966- [email protected]
Kathryn Wisniewski, BS Applications Analyst CBDRP/NBDPS responsibilities: Creation of edited datasets for analysis NBDPS Committees/working groups: Epi-Analysts, Questionnaire Methods, Interviewer Areas of research interest/specialty: Data collection methodology, SAS software and training	University of North Carolina Gillings School of Global Public Health Dept of Epidemiology, CB# 8050 137 East Franklin Street, Suite 32 Chapel Hill, NC 27514 Phone: (919) 966-2068 Fax: (919) 966-6650 Kathy_Wisniewski@unc.edu
Christina B. Venturi, PhD Surveillance Specialist CBDRP/NBDPS responsibilities: clinical abstraction and coding, Participate in research NBDPS Committees/working groups: Centers, Biologics Areas of research interest/specialty: molecular biology, genetics, genetic and nutritional etiology of birth defects	NC Birth Defects Monitoring Program 1908 Mail Service Center Raleigh, NC 27699 Phone: (919) 715-0515 Fax: (919) 715-4489 [email protected]
Alison Woomert, PhD Project Director CBDRP/NBDPS responsibilities: Oversee implementation of NBDPS protocols for interview/biologics collection, clinical entry, general accrual, communications materials, data deliveries and reporting. NBDPS Committees/working groups: Centers, Epi-Analyst, Biologics, Communications, Interviewer, Interview Managers Areas of research interest/specialty: medical sociology; data collection methodology; socio-economic status and occupation; health promotion; smoking and lifestyle risk factors	University of North Carolina Gillings School of Global Public Health Department of Epidemiology, CB# 8050 137 East Franklin Street, Suite 302 Chapel Hill, NC 27514 Phone: (919) 966-8301 Fax: (919) 966-6650 [email protected]
Jing Zhou, UNC Biostatistics PhD Student CBDRP/NBDPS responsibilities: participate in research Areas of research interest/specialty: statistical research; data analysis methods, validation of results	University of North Carolina Gillings School of Global Public Health Department of Biostatistics, CB #7420 Chapel Hill, NC 27599 Phone: (919) 966-6368 Fax: (919) 966- 3804 jingzhou@email.unc.edu

For questions about the activities of the North Carolina Center for Birth Defects Research & Prevention:

Alison Woomert, Project Manager

Toll-free: 1-877-204-5994

Telephone: 919-966-8301, Fax:  919-966-6650

Texas
A. J. Agopian, Ph.D., CGC Research Coordinator, Genetic Counselor TCBDRP Responsibilities: Data Analyst, Texas Center for Birth Defects Research & Prevention NBDPS Committees/Working Groups: Genetic Analyses Work Group Areas of Research Interest: Genetic epidemiology of birth defects; genome-wide association studies; applying hypothesis-generating approaches; neural tube defects; congenital heart defects;	Human Genetics Center Division of Epidemiology and Disease Control University of Texas at Houston  School of Public Health 1200 Herman Pressler Drive Houston, TX 77030 Phone: 713-500-9815 Fax: 713-500-9958 Email: [email protected]
John W. Belmont, M.D., Ph.D., FAAP, FACMG Co-Director, Cardiovascular Genetics Clinic Texas Children’s Hospital Professor, Baylor College of Medicine CBDRP/NBDPS Responsibilities: Clinical genetics and classification of cardiovascular birth defects NBDPS Committees/Working Groups: Heart Defect Work Group, Genetic Analyses Work Group, & Biologics Work Group Areas of Research Interest: Metabolic disorders	Baylor College of Medicine Departments of Molecular and Human Genetics, and Pediatrics One Baylor Plaza, T-826 Houston, TX  77030 Phone: (713) 798-4634 Fax: (713) 798-8142 Email: [email protected]
Jean D. Brender, Ph.D. Associate Dean for Research & Professor, Texas A&M University System Health Science Center School of Rural Public Health NBDPS Committees/Working Groups: Environmental Work Group and Data Sharing Manuscript Reviewer Areas of Research Interest: Paternal and maternal occupation and birth defects; Environmental exposures and birth defects; Nitrates, nitrites, nitrosatable drugs and selected birth defects; and Neural tube defects	Texas A&M School of Rural Public Health Department of Epidemiology & Biostatistics TAMU Health Science Center 201 SRPH Administration Building Mail Stop 1266 TAMU College Station, TX 77843-1266 Phone: (979) 862-1573 Fax: (979) 458-1877 Email: [email protected]
Mark A. Canfield, Ph.D. Branch Manager, Texas Department of State Health Services CBDRP/NBDPS Responsibilities: Chief Administrator & Co-Principal Investigator, Texas Center for Birth Defects Research & Prevention NBDPS Committees/Working Groups: Coordinating Council, Data Sharing Committee, Annual Meeting Work Group, Genetic Analyses Working Group, and Data Sharing Manuscript Reviewer Areas of Research Interest: Epidemiology of neural tube and other defects in Hispanics; Population-based risk factor surveys of women of childbearing age; Folic acid and the prevention of birth defects; Newborn screening disorders; Outcomes of children with selected birth defects; and Descriptive studies and epidemiologic methods	Birth Defects Epidemiology and Surveillance Branch Texas Department of State Health Services PO Box 149347, Mail Code 1964 Austin TX 78714-9347 Phone: (512) 776-6158 Fax: (512) 776-7330 Email: [email protected]
Amy Case, MAHS Consultant, Solvitur Consulting Services CBDRP/NBDPS Responsibilities: Data Sharing Manuscript Reviewer Areas of Research Interest: Public policy applications of birth defects data and research; Public awareness of birth defects etiology; Linking birth defects data and service planning/outcomes; Women’s knowledge and attitudes toward preconception health; Adolescent reproductive health	Solvitur Consulting Services 512 E. 27th Street Vancouver WA 98663 Phone: (512) 565-1687 Email: [email protected]
James A. Dyer, Ph.D. Senior Study Director, Public Policy Research Institute Associate Professor, Texas A&M University CBDRP/NBDPS Responsibilities: Texas Computer-Assisted Telephone Interview (CATI) Survey Implementation Lead; Survey research and sampling methodology; Tracking, tracing, locating, and enrolling study subjects; and Participation rates and statistical analysis	Texas A&M University Public Policy Research Institute 329 H.C. Dulie Bell Bldg. Room 309-H College Station, TX  77843-4476 Toll-free:  1-800-338-0119 Phone: (979) 845-1025 Fax: (979) 845-0249 Email: [email protected]
Mary K. Ethen, M.P.H. Epidemiologist, Texas Department of State Health Services Areas of Research Interest: Descriptive epidemiology of birth defects; Alcohol consumption during pregnancy; Birth defects surveillance methods; Prenatal detection of birth defects; Pregnancy outcomes and birth defects; Survival of children with birth defects; and Fetal Alcohol Spectrum Disorders (FASD)	Birth Defects Epidemiology and Surveillance Branch Texas Department of State Health Services PO Box 149347, Mail Code 1964 Austin TX 78714-9347 Phone: (512) 776-2052 Fax: (512) 776-7330 Email: [email protected]
Noha Farag, Ph.D. Epidemic Intelligence Service Officer, Centers for Disease Control and Prevention Texas Department of State Health Services Areas of Research Interest: Stress, Physical Activity, Obesity and Cardiovascular Disease	Birth Defects Epidemiology & Surveillance Branch Texas Department of State Health Services PO Box 149347, Mail Code 1964 Austin TX 78714-9347 Phone: (512) 776-6304 Fax: (512) 776-7330 Email: [email protected]
Richard H. Finnell, Ph.D. Professor CBDRP/NBDPS Responsibilities: Texas Molecular Geneticist NBDPS Committees/Working Groups: NTD Work Group, Genetic Analysis Working Group, NBDPS Biologics Committee, and Data Sharing Manuscript Reviewer Areas of Research Interest: Genetic susceptibility to complex birth defects; Candidate genes related to folic acid metabolism and transport; Gene-environment interaction studies of complex birth defects; Medical genetics and genetic counseling; Mouse models of human genetic disorders; and Identification of genetic factors contributing to complex birth defects	Dell Pediatric Research Institute University of Texas at Austin| School of Human Ecology 1400 Barbara Jordan Blvd, DRP 3.838 Austin, Texas 78723 Phone: (512) 495-3001 Lab Number: (512) 495-3008 Fax: (512) 495-4945 Email: [email protected]
David Fixler, M.D. Professor of Pediatrics, University of Texas Southwestern Medical School Pediatric Cardiologist, Children’s Medical Center Areas of Research Interest: Pediatric cardiology; Clustering of congenital heart defects in space/time; Environmental causes of heart defects; Outcome of congenital cardiac defects over the first 2-5 yrs of life, using the birth defects registry and the state death registry	Children’s Medical Center 1935 Motor St. Dallas, Texas 75235 Phone: (214) 456-2339 Fax: (214) 456-6154 Email: [email protected]
S. Shahrukh Hashmi, M.D., M.P.H., Ph.D. Asst. Professor of Pediatrics, The University of Texas Medical School at Houston Director, Bioinformatics Core, Pediatric Research Center, The University of Texas Medical School at Houston NBDPS Committees/Working Groups: Infection and Fever Coding Sub-committee Areas of Research Interest: Gene-environment interaction; Epidemiology of orofacial clefts; and Teratogenic effects of maternal hyperthermia	The University of Texas Medical School at Houston Department of Pediatrics 6431 Fannin St, MSB 3.142B Houston, TX  77030 Phone: (713) 500-5709 Fax: (713) 500-5689 Email: [email protected]
Jacqueline T. Hecht, Ph.D. Professor of Pediatrics, The University of Texas Medical School at Houston Director, Pediatric Research Center, The University of Texas Medical School at Houston Vice Chair for Research, The University of Texas Medical School at Houston Director Emeritus, Genetics Counseling Program, UT Health Science Center NBDPS Committees/Working Groups: Orofacial Cleft Work Group, Biologics Committee, and Data Sharing Manuscript Reviewer Areas of Research Interest: Medical genetics and genetic counseling; Natural history/outcome studies of skeletal dysplasia; Genetics and epidemiologic studies of orofacial clefts; Genetic and epidemiologic study of clubfoot; Gene discovery in nonsyndromic cleft lip and palate and isolated clubfoot.	The University of Texas Medical School at Houston Department of Pediatrics 6431 Fannin St, MSB 3.136 Houston, TX  77030 Phone: (713) 500-5764 Fax: (713) 500-5689 Email: [email protected]
Adrienne Hoyt, M.S., M.P.H., M.A.I.S. Epidemiologist, Texas Department of State Health Services TCBDRP Responsibilities: Lead Data Analyst, Texas Center for Birth Defects Research & Prevention Areas of Research Interest: Environmental and occupational exposures, caffeine, socio-demographic factors, teen mothers, survival analysis.	Birth Defects Epidemiology and Surveillance Branch Texas Department of State Health Services PO Box 149347, Mail Code 1964 Austin TX 78714-9347 Phone: (512) 776-6381 Fax: (512) 776-7330 Email: [email protected]
John C. Huber Jr., Ph.D. Assistant Professor of Biostatistics, Texas A&M School of Rural Public Health Areas of Research Interest: Genetic Epidemiology; Longitudinal/Multilevel Data Analysis; and Categorical Data Analysis	Texas A&M Health Science Center Texas A&M School of Rural Public Health Department of Epidemiology and Biostatistics 218 SRPH Administration Bldg. College Station, TX 77843-1266 Phone: (979) 862-3432 Fax: (979) 458-1877 Email: [email protected]
Zeina Khodr, M.S., M.P.H. Graduate Assistant, University of Texas Health Science Center at Houston TCBDRP Responsibilities: Data Analyst, Texas Center for Birth Defects Research & Prevention	University of Texas Health Science Center at Houston School of Public Health 1200 Herman Pressler Drive, RAS E513 Houston, TX 77030 Phone: (713) 500-9822 Fax: (713) 500-9264 Email: [email protected]
Peter H. Langlois, Ph.D. Senior Epidemiologist, Texas Department of State Health Services CBDRP/NBDPS Responsibilities: Co-Principal Investigator, Texas Center for Birth Defects Research & Prevention NBDPS Committees/Working Groups: Data Sharing Committee, Coordinating Council, Environmental Work Group, Occupation Work Group, and Data Sharing Manuscript Reviewer Areas of Research Interest: Environmental/occupational epidemiology of birth defects, geographic approaches, research methods	Birth Defects Epidemiology and Surveillance Branch Texas Department of State Health Services PO Box 149347, Mail Code 1964 Austin TX 78714-9347 Phone: (512) 776- 6183 Fax: (512) 776-7330 Email: [email protected]
Tunu Loponi, Ph.D. Programmer, Texas Education Agency TCBDRP Responsibilities: Data Analyst, Texas Center for Birth Defects Research & Prevention NBDPS Committees/Working Groups: Data Sharing Manuscript Reviewer Areas of Research Interest: Data reliability and validity; Statistical analysis principles and procedures; Economics of birth defects; and Socio-cultural aspects of birth defects	Texas Education Agency Accountability Research Division 1701 N. Congress Avenue Austin, TX   78701 Phone: (512) 463-8983 Email: [email protected]
Reggie I. Louis, M.S. Project Coordinator, Texas Department of State Health Services CBDRP/NBDPS Responsibilities: Texas Clinical Database Technician, Study Coordinator Texas Center for Birth Defects Research and Prevention NBDPS Committees/Working Groups: Communications Committee, Interviewers Committee, and Biologics Committee Areas of Research Interest: Geographic investigation of birth defects; Socio-cultural aspects of birth defects; and Spatial Analysis	Birth Defects Epidemiology & Surveillance Branch Texas Department of State Health Services PO Box 149347, Mail Code 1964 Austin TX 78714-9347 Phone: (512) 776-2004 Toll Free: 1-888-844-4633 Fax: (512) 776-7330 Email: [email protected]
Philip J. Lupo, Ph.D. Assistant Professor, University of Texas Health Science Center at Houston TCBDRP Responsibilities: Data Analyst, Texas Center for Birth Defects Research & Prevention NBDPS Committees/Working Groups: Analyst Committee, Environmental Working Group, Occupational Working Group Areas of Research Interest: Environmental and occupational epidemiology; Genetic epidemiology, Gene-environment interactions.	The University of Texas School of Public Health, Human Genetics Center, Division of Epidemiology 1200 Herman Pressler Drive, RAS E511 Houston, TX   77030 Phone: (713) 500-9241 Fax: (713) 500-9264 Email: [email protected]
Lisa K. Marengo, M.S. Epidemiologist, Texas Department of State Health Services TCBDRP Responsibilities: Data Analyst, Coordinate Data Requests, Data Linkage, Texas Center for Birth Defects Research and Prevention Areas of Research Interest: Twin Studies	Birth Defects Epidemiology & Surveillance Branch Texas Department of State Health Services PO Box 149347, Mail Code 1964 Austin TX 78714-9347 Phone: (512) 776- 6657 Fax: (512) 776-7330 Email: [email protected]
Eric A. Miller, Ph.D. Senior Research Fellow, National Center for Health Statistics Centers for Disease Control and Prevention NBDPS Committees/Working Group: Data Sharing Manuscript Reviewer Areas of Research Interest: Preconception care; Pre-term births and low birth weight, disparities in risk and outcomes.	Centers for Disease Control and Prevention Office of Applied Epidemiology National Center for Health Statistics Phone: (301) 458-4463 Email: [email protected]
Laura E. Mitchell, Ph.D. Professor and Associate Dean for Research, University of Texas School of Public Health NBDPS Committees/Working Groups: Data Sharing Manuscript Reviewer Areas of Research Interest: Genetic epidemiology of structural malformations; Neural tube defects, orofacial clefts, congenital heart defects; Evaluation of maternal genetic effects as risk factors for human birth defects; Genetic epidemiological methods; and Gene-environment interactions	University of Texas Health Science Center at Houston School of Public Health, Department of Epidemiology 1200 Herman Pressler Dr., Room E547 Houston, TX 77030-3900 Phone: (713) 500-9954 Fax: (713) 500-0900 Email: [email protected]
Karen Moffitt, M.P.H. Data Linkage Specialist, Texas Department of State Health Services TCBDRP Responsibilities: Data Analyst, Coordinate Data Requests, Data Linkage, Texas Center for Birth Defects Research and Prevention	Birth Defects Epidemiology & Surveillance Branch Texas Department of State Health Services PO Box 149347, Mail Code 1964 Austin TX 78714-9347 Phone: (512) 776- 6657 Fax: (512) 776-7330 Email: [email protected]
Manju Monga, M.D. Baylor College of Medicine NBDPS Committees/Working Groups: Data Sharing Manuscript Reviewer Areas of Research Interest: Maternal and fetal medicine; and Obstetrics & Gynecology	Baylor College of Medicine Department of Obstetrics, Gynecology Houston, Texas 77030 Email: [email protected]
Wendy N. Nembhard, Ph.D. Assistant Professor, University of South Florida Areas of Research Interest: Maternal and Child Health Epidemiology	University of South Florida, College of Public Health Department of Epidemiology and Biostatistics 13201 Bruce B. Downs Blvd., MDC 056 Tampa, FL 33612-3805 Phone: (813) 974-6861 Fax: (813) 974-4719 Email: [email protected]
Roberta Ness M.D., M.P.H. Dean, University of Texas School of Public Health Areas of Research Interest: Reproductive epidemiology; and the epidemiology of ovarian cancer	University of Texas Health Science Center at Houston School of Public Health 1200 Herman Pressler Drive, RAS W114A Houston, TX   77030 Phone: (713) 500-9052 Email: [email protected]
Hope Northrup, M.D. Director, Division of Medical Genetics Professor of Pediatrics, The University of Texas Medical School at Houston Areas of Research Interest: Medical Genetics, Molecular Genetics of Human Disease, Tuberous Sclerosis, and Spina Bifida	The University of Texas Medical School at Houston Department of Pediatrics 6431 Fannin Drive, MSB 3.144 Houston, TX  77030 Phone: (713) 500-5760 Email: [email protected]
Alicia M. Novoa, M.P.H. Project Manager, Public Policy Research Institute TCBDRP Responsibilities: Data Collection Operations Manager NBDPS Committees/Working Groups: Communications, Interviewers, and Biologics Committees Areas of Research Interest: Act in the capacity of liaison between PPRI and DSHS personnel; Tracking, tracing, and locating study participants; Maintain all related personnel on task; Survey research, sampling methodology; Development of research methodology & implementing research procedures; and Educating and improving health of the Latino community	Texas A&M University Public Policy Research Institute 329 H.C. Dulie Bell Bldg. Room 309-H College Station, TX  77843-4476 Toll-free: 1-800-338-0119 Phone: (979) 862-1891 Fax: (979) 845-0249 Email: [email protected]
Angela Scheuerle, M.D. Clinical Reviewer, Director, Tesserae Genetics CBDRP/NBDPS Responsibilities: Texas Clinical Geneticist NBDPS Committees/Working Groups: Clinicians Committee, and Data Sharing Manuscript Reviewer Areas of Research Interest: Teratology and dysmorphology; Consanguinity and birth defects; Medical ethics; Clinical genetics; and Syndrome delineation	9702 Vinewood Drive Dallas, TX 75228 Phone: (214) 327-1696 Alternate Phone: (972) 566-6524 Fax: (972) 566-2024 Email: [email protected]
Andrea Sesock, B.S. Project Supervisor, Public Policy Research Institute CBDRP/NBDPS Responsibilities: Texas CATI Supervisor NBDPS Committees/Working Groups: Interviewers Committee and Biologics Committee	Texas A&M University Public Policy Research Institute 329 H.C. Dulie Bell Bldg. Room 309-H College Station, TX  77843-4476 Toll-free: 1-800-338-0119 Phone: (979) 845-8800 Fax: (979) 845-0249 Email: [email protected]
Lucina Suarez, Ph.D. Section Director, Texas Department of State Health Services Adjunct Full Professor of Biostatistics, Texas A&M School of Rural Public Health TCBDRP Responsibilities: Project Director, Texas Neural Tube Defect Project Areas of Research Interest: NTDs and nutritional risk factors in Mexican Americans; Epidemiologic and statistical methods; and Survey methods	Environmental Epidemiology & Disease Registries Texas Department of State Health Services 1100 W.49th Street, Mail Code 1964, T-711 Austin, TX 78756 Phone: (512) 776-7381 Fax: (512) 776-7689 Email: [email protected]
Elaine Symanski, Ph.D. Associate Professor, University of Texas, School of Public Health Areas of Research Interest: Environmental and Occupational Epidemiology	University of Texas Health Science Center at Houston School of Public Health Division of Epidemiology, Human Genetics & Environmental Sciences 1200 Herman Pressler Drive, RAS E-643 Houston, Texas 77030 Phone: (713) 500-9238 Fax: (713) 500-9264 Email: [email protected]
Jorge Trevino, M.A.I.S. Regional Supervisor, Birth Defects Epidemiology & Surveillance Branch Texas Department of State Health Services TCBDRP Responsibilities: Regional Field Surveillance Operations Areas of Research Interest: Surveillance Techniques & Systems; Record Management; Environmental Exposures & NTDs; Direct Intervention NTD Recurrence Activities; Special Investigations (i.e. intussusceptions, heart defects)	Birth Defects Epidemiology & Surveillance Branch Texas Department of State Health Services 601 W. Sesame Drive Harlingen, TX 78550 Phone: (956) 444-3262 Fax: (956) 444-3296 Email: [email protected]
Jim Vanbeek, M.S. Senior IT Manager, Public Policy Research Institute CBDRP/NBDPS Responsibilities: Texas Database Manager Areas of research Interest: Database management & web application development	Texas A&M University Public Policy Research Institute 329 H.C. Dulie Bell Bldg. Room 329 College Station, TX  77843-4476 Toll-free: 1-800-338-0119 Phone: (979) 845-9377 Fax: (979) 845-0249 Email: [email protected]
Kim Waller, Ph.D. Associate Professor, University of Texas Health Science Center at Houston NBDPS Committees/Working Groups: NBDPS Analyst Committee; Data Sharing Manuscript Reviewer; and Nutrition Work Group Areas of Research Interest: Glycemic control and birth defects (obesity, diabetes, dieting behavior); Epidemiology of: malformations of the central nervous system, congenital diaphragmatic hernia & congenital hypothyroidism and achondroplasia; NIH-funded study on prenatal diagnosis of birth defects; and Use of birth certificates, fetal death certificates, and data linkage for research in perinatal epidemiology	University of Texas Health Science Center at Houston School of Public Health, Department of Epidemiology 1200 Herman Pressler Drive, Suite E-619 Houston, TX   77030 Phone: (713) 500-9155 Fax: (713) 500-9264 Email: [email protected]
F. Benjamin Zhan, Ph.D. Professor and Director, Texas Center for Geographic Information Science NBDPS Committees/Working Groups: Data Sharing Manuscript Reviewer TCBDRP Responsibilities: Consultant, Projects Examining Relations Between Environmental Exposures and Adverse Health Outcomes, Texas Center for Birth Defects Research & Prevention Areas Of Research Interest: Geographic Information Science; Spatial analysis; Environment and human health; and Transportation	Texas Center for Geographic Information Science Department of Geography Texas State University 601 University Drive San Marcos, TX 78666 Phone: (512) 245-8846 Fax: (512) 245-8353 Email: [email protected]
Huiping Zhu, M.D., Ph.D. Research Assistant Professor CBDRP/NBDPS Responsibilities: Texas Coordinator for Processing of Biologic Specimens NBDPS Committees/Working Groups: Genetic Analyses Work Group, Biologics Work Group, and Data Sharing Manuscript Reviewer Areas of Research Interest: Laboratory analyses of genetic markers and risk for selected birth defects; Genetics of complex birth defects; Gene-environment interactions; Candidate gene association study; and Genome-wide association study	Dell Pediatric Research Institute Department of Nutritional Science College of Natural Sciences University of Texas at Austin 1400 Barbara Jordan Blvd Austin, Texas 78723 Phone: 512-495-3003 Email: [email protected]

For questions about the activities of the Texas Center for Birth Defects Research & Prevention:

Reggie I. Louis, M.S., Project Coordinator

Telephone: 512-776-2004   Fax: 512-776-7330

Utah
Michael J. Bamshad, M.D. Professor CBDRP/NBDPS responsibilities: Oversees the laboratory for DNA extraction, local study, participate in research NBDPS Committee/Working Groups: Biologics Areas of research interest/specialty: Major focus is to understand how genetic variation is distributed among human populations, the evolutionary processes that generated these patterns and how such variation influences similarities and differences in phenotypic features, particularly disease susceptibility, among humans. This focus enables my lab to address fundamental questions about the origins and affinities of humans, develop novel strategies to find disease susceptibility alleles, and characterize genetic variants influencing an assortment of health-related conditions. Of particular interest is in finding genetic variants that influence birth defects and complex, chronic diseases of childhood.	Dept .of Pediatrics Div. Of Genetics & Developmental Medicine University of Washington School of Medicine Box 356320 1959 NE Pacific Street, HSB RR349 Seattle, WA 98195 Phone: (206) 221-4131 Fax: (206) 221-5132 [email protected]
Steven B. Bleyl, M.D., Ph.D. Assistant Professor CBDRP/NBDPS responsibilities: clinician, participate in research NBDPS Committee/Working Groups: Clinician, researcher Areas of research interest/specialty: Molecular genetics of cardiovascular defects with a major focus on anomalies of the inflow tract, including TAPVR. Modeling of human heart defects in chick and mouse. Genetic study of human hearing loss and deafness.	Dept. of Pediatrics Division of Medical Genetics 2C412 SOM 50 North Medical Dr. Salt Lake City, UT 84132 Phone: (801) 581-8943 Fax: (801) 585-7252 [email protected]
Lorenzo Botto, M.D. Professor CBDRP/NBDPS responsibilities: Reviews cases, participate in research NBDPS Committee/Working Groups: Clinicians, Data Sharing, Center and Heart Working Group, Epi/analyst Areas of research interest/specialty: Epidemiology and etiology of birth defects, in particular, heart defects.	University of Utah Health Sciences Center Division of Medical Genetics 2C412 SOM 50 N. Mario Cappechi Dr. Salt Lake City, UT 84132 Utah Birth Defect Network 44 N. Mario Cappechi Dr Salt Lake City, UT 84114 P.O. Box 144699 Salt Lake City, UT 84114-4699 Phone (801) 584-8468 Fax (801) 883-4668 [email protected]
Jan Byrne, M.D. Associate Professor CBDRP/NBDPS responsibilities: Reviews cases, participate in research NBDPS Committee/Working Groups: Clinicians Areas of research interest/specialty: Management of pregnancies complicated by fetal birth defects and maternal genetic disorders, maternal PKU, cystic fibrosis in pregnancy, prenatal diagnosis, fetal dysmorphology, ultrasound diagnosis of birth defects.	University of Utah Health Sciences Center Division of Maternal Fetal Medicine Dept. Ob-Gyn 2B.200 50 N. Mario Cappechi Dr. Salt Lake City, UT 84132 Phone: (801) 585-5156 Fax: (801) 585-2594 [email protected]
John Carey, M.D., M.P.H. Professor CBDRP/NBDPS responsibilities: Reviews cases, participate in research NBDPS Committee/Working Groups: Clinicians Areas of research interest/specialty: The delineation of human malformation syndromes, the etiology of congenital defects, the genetics of deafness, human cytogenetic disorders	University of Utah Health Sciences Center Division of Medical Genetics 2C412 SOM 50 N. Mario Cappechi Dr. Salt Lake City, UT 84132 Phone: (801) 587-6605 Fax: (801) 587-6609 [email protected]
Marcia L. Feldkamp, Ph.D., P.A., M.S.P.H. Assistant Professor CBDRP/NBDPS responsibilities: Oversees Utah Center, participates in research NBDPS Committee/Working Groups: Clinicians, Data Sharing, Centers, Epi/analyst Areas of research interest/specialty: Understand how genes contribute either in isolation or in concert with environmental exposures for birth defect etiology. Investigate biomarkers closer to the time of conception	University of Utah Health Sciences Center Division of Medical Genetics 2C412 SOM 50 N. Mario Cappechi Dr. Salt Lake City, UT 84132 Utah Birth Defect Network 44 N. Mario Cappechi Dr Salt Lake City, UT 84114 P.O. Box 144699 Salt Lake City, UT 84114-4699 Phone (801) 584-8490 Fax (801) 883-4668 [email protected]
Sean Firth, Ph.D., M.P.H. Director, National Children’s Study Utah Vanguard Center Assistant Professor CBDRP/NBDPS responsibilities: participates in research Areas of research interest/specialty: Pharmacological exposures and genetics as risk factors for birth defects. Investigating gene/drug & gene/environment interactions.	Department of Pediatrics University of Utah Health Sciences Center 295 Chipeta Way Salt Lake City, UT 84108 P.O. Box 581289 Salt Lake City, UT 84158 Phone: (801) 587-7462 Fax: (801)587-8969 [email protected]
Jane A. Johnson, M.S. IT Analyst CBDRP/NBDPS responsibilities: Oversee all database modules for surveillance and research, replication of CATI and Clinical database NBDPS Committee/Working Groups: Data Manager, Epi/Analyst	Utah Birth Defect Network Utah Department of Health PO Box 144699 Salt Lake City, UT 84114-4699 Phone (801) 883-4642 Fax (801) 323-1566 [email protected]
Sergey Krikov, M.S. Research Analyst CBDRP/NBDPS responsibilities: Research data sets compilation, analysis, and management; Validation of software and research results NBDPS Committee/Working Groups: Epi/analyst Areas of research interest/specialty: Prediction models, Representation of biomedical knowledge, Application of knowledge discovering methods in the biomedical domain	University of Utah Health Sciences Center Division of Medical Genetics or Utah Birth Defect Network Physical Address: 44 N. Mario Cappechi Dr Salt Lake City, UT 84114 Mailing Address: P.O. Box 144699 Salt Lake City, UT 84114-4699 Phone: (801) 584-8546 Fax: (801) 883-4668 [email protected]
Marcella C. Montoya, A.A. Health Program Specialist CBDRP/NBDPS responsibilities: Interviewer, Spanish Interviewer NBDPS Committee/Working Groups: Interviewer	Utah Birth Defect Network Utah Department of Health PO Box 144699 Salt Lake City, UT 84114-4699 Phone (801) 883-4644 Fax (801) 883-4668 [email protected]
Ronald G. Munger, Ph.D., M.P.H. Professor, Dept. Nutrition and Food Sciences Director, Center for Epidemiologic Studies CBDRP/NBDPS responsibilities: Analytical support and research studies Areas of research interest/specialty: Nutritional epidemiology, maternal nutrition and risk of birth defects, dietary assessment with food frequency questionnaires, oral clefts, case-control study design and epidemiologic data analysis, use of geographic information systems and spatial analyses in birth defects surveillance and studies, biomarkers in studies of maternal and child health, statistical analyses of gene-nutrient interactions, metabolomic approaches to the study of gene-nutrient interactions, folate and b-vitamin nutrition, zinc nutrition, diabetes, obesity, high-glycemic diets and reproductive health, and International health--especially the Philippines, China, Singapore, Thailand, Japan and other Asian countries	Center for Epidemiologic Studies UMC 4450 Utah State University Logan, UT 84335-4450 Phone: (435) 797-2122 Fax: (435) 797-2771 [email protected]
Amy E. Nance, M.P.H. Research Project Coordinator CBDRP/NBDPS responsibilities: Project Coordinator NBDPS Committee/Working Groups: Center, Communications, Interviewer, Biologics, and Data Manager	Utah Birth Defect Network Utah Department of Health PO Box 144699 Salt Lake City, UT 84114-4699 Phone (801) 883-4661 Fax (801) 323-1578 [email protected]
Patty D. Smith, B.S. Health Program Specialist CBDRP/NBDPS responsibilities: Interviewer NBDPS Committee/Working Groups: Interviewer	Utah Birth Defect Network Utah Department of Health PO Box 144699 Salt Lake City, UT 84114-4699 Phone (801) 883-4645 Fax (801) 883-4668 [email protected]
Sivithee Srisukhumbowornchai, M.S. Research Analyst CBDRP/NBDPS responsibilities: analysis of NBDPS data for specific projects under the direction of Dr. Botto and Dr. Feldkamp NBDPS Committee/Working Groups: Epi/analyst	University of Utah Health Sciences Center Division of Medical Genetics Utah Birth Defect Network 44 N. Mario Cappechi Dr Salt Lake City, UT 84114 P.O. Box 144699 Salt Lake City, UT 84114-4699 Phone (801) 883-4667 Fax (801) 883-4668 [email protected]

For questions about the activities of the Utah Center for Birth Defects Research & Prevention:

Amy Nance, Project Coordinator

Toll-free: 866-818-7096
Telephone:  801-883-4661 Fax:  801-883-4668

CDC/Atlanta
Elizabeth Ailes, PhD EIS Officer NBDPS Responsibilities: Areas of research interest/specialty:	CDC/NCBDDD Phone: (404) 498-3934 [email protected]
Jose Fernando Arena, MD, PhD Medical Officer NBDPS Responsibilities: Local reviewer, case classifier CBDRP Committee/Working Group: clinicians Areas of research interest/specialty: clinical genetics, cancer and birth defects	CDC/NCBDDD Phone: (404) 498- 3924 [email protected]
Cheryl S. Broussard, PhD Health Scientist NBDPS Responsibilities: Chair, Medication working group; Data analysis CBDRP Committee/Working Group: Epi-Analyst	CDC/NCBDDD Phone: (404) 498-3949 [email protected]
Cynthia H. Cassell, PhD Epidemiologist Areas of research interest/specialty: Etiology of neural tube defects and orofacial clefts; referral to services, health service utilization, costs, and outcomes of infants and children with birth defects	CDC/NCBDDD Phone: (404) 498-1308 [email protected]
Chris L. Cosper, BIT Data Manager NBDPS Responsibilities: Lead Data Manager, CBDRP Website Administrator CBDRP Committee/Working Group: Data Manager Leader	CDC/NCBDDD Phone: (404) 498-3939 [email protected]
Krista Stimson Crider, PhD Molecular Geneticist NBDPS Responsibilities: epidemiological analysis Areas of research interest/specialty: Genetics, epigenetics, folic acid and DNA methylation	CDC/NCBDDD Phone: (404) 498-3893 [email protected]
April Dawson, BS Orise Fellow NBDPS Responsibilities: epidemiological analysis Areas of research interest/specialty: multiple births	CDC/NCBDDD Phone: (404) 498-3912 [email protected]
Owen Devine, PhD Statistician	CDC/NCBDDD Phone: 404-498-3073 [email protected]
Jaime l. Frias, MD Visiting Scientist(contractor, Carter Consulting) NBDPS Responsibilities: Clinical reviewer CBDRP Committee/Working Group: Clinicians Areas of research interest/specialty: Genetics and Dysmorphology.
Margaret Gallagher, Ph.D. Microbiologist NBDPS Responsibilities: In charge of the NBDPS Centralized Laboratory CBDRP Committee/Working Group: Biologics Committee	Centers for Disease Control and Prevention 4770 Buford Hwy Chamblee, GA 30341 Phone: (770) 488-3612 Fax: (770) 488-4005 [email protected]
Suzanne Gilboa, PhD, MHS Epidemiologist CBDRP Committee/Working Group: Environmental/Occupational Working Group Areas of research interest/specialty: diabetes and obesity during pregnancy, medication during pregnancy and environmental/occupational exposures	CDC/NCBDDD Phone: (404) 498-4425 [email protected]
Sammy Gill EIS Officer NBDPS Responsibilities: Areas of research interest/specialty:	CDC/NCBDDD Phone: (404) 498-0126 [email protected]
Ridgely Fisk Green, PhD, M.M.Sc Pediatric Genetics Researcher (Contractor, Carter consulting) NBDPS Responsibilities: Family history coding Areas of research interest/specialty: Genetics, Family history, parental age studies	CDC/NCBDDD Phone: (404) 498- 3884 [email protected]
Peggy Honein, PhD, MPH Birth Defects Branch Chief NBDPS Responsibilities: Epidemiologist, general oversight/management role CBDRP Committee/Working Groups: Coordinating Council, Medications priority working group Areas of research interest/specialty: Birth defects epidemiology, maternal smoking, medications	CDC/NCBDDD Phone: (404) 498-3921 [email protected]
Jodi Jackson, PhD Molecular geneticist NBDPS Responsibilities: epidemiological analysis Areas of research interest/specialty: genetics, cytogenetic testing	CDC/NCBDDD Phone: (404) 498- 3561 [email protected]
Mary M. Jenkins, PhD Molecular Geneticist NBDPS Responsibilities: Biologics Coordinator CBDRP Committee/Working Groups: Biologics Committee Leader, Genetic Analysis Working Group Areas of research interest/specialty:	CDC/NCBDDD Phone: (404) 498-3889 [email protected]
Christina C. Lawson, Ph.D. Research Epidemiologist NBDPS Responsibilities: Parental occupational exposure assessment and analysis CBDRP Committee/Working Groups: Occupational Areas of research interest/specialty: Occupational causes of Birth defects	CDC/NIOSH 4676 Columbia Parkway MS R-15 Cincinnati, OH 45226 Phone: (513) 841-4171 [email protected]
Cara T. Mai, MPH Public Health Analyst NBDPS Responsibilities: CBDRP Communications Committee Chair CBDRP Committee/Working Groups: Communications	CDC/NCBDDD Phone: (404) 498-3918 [email protected]
Marques Merriweather Atlanta Data Manager (Contractor – Abt Associates) NBDPS Responsibilities: Atlanta Tracking System	CDC/NCBDDD Phone: (404) 498-3931 [email protected]
Cindy Moore, MD, PhD Division of Birth Defects and Developmental Disabilities Director	CDC/NCBDDD Phone: 404-498-3927 [email protected]
Kim Newsome, MPH, BSN NBDPS Project Manager/Health Scientist NBDPS Responsibilities: Day-to-day coordination of NBDPS, Data Sharing Coordinator	CDC/NCBDDD Phone: (404) 498-0605 [email protected]
Shannon O’Brien, BS Biologist (Contractor, Battelle) NBDPS Responsibilities: NBDPS Centralized Laboratory CBDRP Committee/Working Groups: Biologics Committee	Centers for Disease Control and Prevention 4770 Buford Hwy Chamblee, GA 30341 Phone: (770) 488-7204 [email protected]
Richard Olney, MD, MPH Team Leader/Pediatric Genetics NBDPS Responsibilities: Case classification CBDRP Committee/Working Groups: Clinicians Committee, Limb Defect Working Group Areas of research interest/specialty: clinical genetics, family history, prenatal diagnosis, limb deficiencies, neural tube defects, and omphalocele	CDC/NCBDDD Phone: (404) 498-3879 [email protected]
Kara Duwe Polen, MPH Epidemiologist, Communications Specialist NBDPS Responsibilities: Communications Committee, NBDPS and CDC websites, Epidemiologist Areas of research interest/specialty: medications, environmental exposures	CDC/NCBDDD Phone: (404) 498-3914 [email protected]
Bill Paradies, BBA, Accounting Public Health Analyst NBDPS Responsibilities: Administrative and Management	CDC/NCBDDD Phone: (404) 498-3919 [email protected]
Jennita Reefhuis, PhD Principal Investigator NBDPS Responsibilities: Lead epidemiologist for NBDPS CBDRP Committee/Working Groups: Coordinating Council, Data Sharing Committee, Environmental/Occupational Working Groups Areas of research interest/specialty: Assisted reproductive technology, occupation, medications	CDC/ NCBDDD Phone: (404) 498-3917 [email protected]
Tiffany Riehle-Colarusso, MD, MSE Medical Officer NBDPS Responsibilities: Case classification of hearts and management of Heart Classification data file, CDC Reviewer for cases with congenital heart defects, participation in analyses CBDRP Committee/Working Groups: Clinicians Committee Areas of research interest/specialty: Congenital heart defects, diabetes & obesity related to birth defects and specifically hearts	CDC/NCBDDD Phone: (404) 498-3805 [email protected]
Stuart Shapira, MD, PhD Medical Officer NBDPS Responsibilities: Clinician Committee Chair, local reviewer, case classifier CBDRP Committee/Working Groups: Clinicians Committee Areas of research interest/specialty: clinical genetics, birth defects associations, amniotic band syndrome, intestinal atresia	CDC/NCBDDD Phone: (404) 498-3882 [email protected]
John Sims, BAE Lead Programmer (Contractor, 2020 Company) NBDPS Responsibilities: Development of NBDPS Software	CDC/NCBDDD Phone: (404) 498-3938 [email protected]
Keith Story Programmer (Contractor, 2020 Company) NBDPS Responsibilities: NBDPS software programming	CDC/NCBDDD Phone: (404) 498-3936 Hwl8@cdc.gov
Carolyn Sullivan, BS, MT(ASCP) Health Researcher (Contractor, Abt Associates) NBDPS Responsibilities: Atlanta NBDPS Manager CBDRP Committee/Working Groups: Biologics Committee, Clinicians Committee	CDC/NCBDDD Phone: (404) 498-3942 [email protected]
Phoebe Thorpe, MD, MPH Medical Officer                Areas of research interest/specialty:  Birth defects epidemiology and prevention; maternal conditions, including diabetes and obesity; medication and herbal exposures	CDC/NCBDDD Phone: (404) 498-3877 [email protected]
Sarah Tinker, PhD, MPH Epidemiologist, Principal Investigator NBDPS Responsibilities: Atlanta Principal Investigator, Leader of NBDPS Epi-Analyst group, epidemiological analyses CBDRP Committee/Working Group Membership: Coordinating council, Data sharing committee, Leader of the Analyst group, Infant Mortality Working Group and Environmental Working Group Areas of research interest/specialty: Epi methods, injuries, sensitivity analysis	CDC/NCBDDD Phone: (404) 498-3509 [email protected]
Tineka Yowe-Conley, MPA Public Health Analyst NBDPS Responsibilities: Administrative and Management	CDC/NCBDDD Phone: (404) 498-3941 [email protected]

For questions about the activities of the CDC Center for Birth Defects Research & Prevention:

Project Manager: Kim Newsome

Telephone:  404-498-0605

Fax: 404-498-3550

Unless otherwise noted, fax and mailing address for CDC collaborators is the following:

1600 Clifton Road; Mailstop E-86; Atlanta, GA 30333/ Fax = (404) 498-3550

	Abt Associates, Inc.
Rebecca Devlin Data Operations Manager NBDPS responsibilities: Coordinate Atlanta NBDPS data collection activities CBDRP Committee/Working Groups: Interviewer Committee/Interviewer Conference Calls; Communications; Biologics Areas of research interest/specialty:   Interviewing/data collection methodology		Abt SRBI 640 N LaSalle Street, Suite 640 Chicago, IL 60654 Phone: (312) 529-9705 Fax: (312) 529-9716 [email protected]
Ray Hildonen On-Site Data Collection Manager NBDPS responsibilities: Oversee on-site data collection activities CBDRP Committee/Working Groups: Interviewer Committee/Interviewer Conference Calls Area(s) of research specialty and research interest: Survey research		Abt SRBI Mass Venture Center 100 Venture Way, Suite 100 Hadley, MA 01035 Phone: (413) 835-2119 Fax: (413) 835-2139 [email protected]
Ricki Jarmon Project Quality Advisor Job responsibilities for the CBDRP and NBDPS: Data collection quality advisor Area(s) of research specialty and research interest: Survey research		Abt SRBI 55 Wheeler Street Cambridge, MA 02138 Phone: (617) 386-2601 Fax: (617) 386-2622 [email protected]
Kyle Silkey Data Manager Job responsibilities for the CBDRP and NBDPS: Data transfers, data management and programming for Atlanta NBDPS. CBDRP Committee/Working Groups: Data Managers		Abt SRBI 6200 E Thomas Road, Suite 101 Scottsdate, AZ 85251 Phone: (602) 412-2605 Fax: (602) 412-2608 [email protected]
Katie Labrecque Supervisor (Interviewing, Coding, Biologics) NBDPS responsibilities: Supervise interviewers and coders, and coordinate mailings CBDRP Committee/Working Groups: Interviewer Committee/Interviewer Conference Calls Area(s) of research specialty and research interest: Survey research		Abt SRBI Mass Venture Center 100 Venture Way, Suite 100 Hadley, MA 01035 Phone: (413) 835-2100 Fax: (413) 835-2139 [email protected]
Cathy Murphy Coding Task Leader/Supervisor NBDPS responsibilities: Supervise coders CBDRP Committee/Working Groups: Interviewer Conference Calls Areas of research interest/specialty:  Coding, questionnaire review, providing usable data for analysis		Abt Associates 5001 South Miami Boulevard, Suite 210 Durham, NC 27703 Phone : (919) 294-7752 Fax : (617) 386-8401 [email protected]
Gabriella Newes-Adeyi, PhD, MPH Project Leader/Senior Associate NBDPS Responsibilities:   Manage NBDPS CDC contractor activities CBDRP Committee/Working Groups:  Interviewer Committee/Interviewer Conference Calls; Communications; Biologics Areas of research interest/specialty:   Interviewing/data collection methodology		Abt Associates 4550 Montgomery Avenue, Suite 800 North Bethesda, MD 20814-3343 Phone: (301) 634-1758 Fax: (301) 828-9623 [email protected]
Deborah Klein Walker Vice President/Principle Associate NBDPS responsibilities: Senior project advisor CBDRP Committee/Working Groups: Area(s) of research specialty and research interest: surveillance methodology		Abt Associates 55 Wheeler Street Cambridge, MA 02138 Phone: (617) 349-2390 Fax: [email protected]

For questions about the activities of the Abt Associates Inc. Center for Birth Defects Research & Prevention:

Gabriella Newes-Adeyi, Project Leader

Telephone: (301) 634-1758 Fax: (301) 828-9623

Battelle
Erika Camargo Data Collection Supervisor NBDPS Responsibilities:   Supervise interviews for NC NBDPS CBDRP Committee/Working Groups:  Interviewer Committee/Interviewer, Conference Calls; Communications. Areas of research interest/specialty:   Interviewing/data collection methodology; Spanish interviewing	Battelle/CPHRE 100 Capitola Drive, Suite 200 Durham, NC 27713-4411 Phone: (919) 544-3717 X144 Fax: (919) 544-0830 [email protected]
Fred Crane Assistant Data Manager NBDPS Responsibilities:   Data transfers, data management and programming for NCNBDPS. CBDRP Committee/Working Groups:  Data Managers	Battelle/CPHRE 100 Capitola Drive, Suite 200 Durham, NC 27713-4411 Phone: (919) 544-3717 X110 Fax: (919) 544-0830 [email protected]
Diana E Gray, MPH Project Leader NBDPS Responsibilities:   Project Manager for data collection for NC NBDPS (interviewing and biologics). CBDRP Committee/Working Groups:  Interviewer Committee/Interviewer Conference Calls; Communications. Areas of research interest/specialty:   Research/data collection methodology; health promotion; injury prevention.	Battelle/CPHRE 100 Capitola Drive, Suite 200 Durham, NC 27713-4411 Phone: (919) 544-3717 X168 Fax: (919) 544-0830 [email protected]
Charles Knott, MPA Battelle Site Director, Program Manager Job responsibilities for the CBDRP and NBDPS: Assure resources for Atlanta and NC NBDPS contracts. Area(s) of research specialty and research interest: Survey research	Battelle/CPHRE 100 Capitola Drive, Suite 200 Durham, NC 27713-4411 Phone: (919) 544-3717 X105 Fax: (919) 544-0830 [email protected]
Emily Reid, BA Assistant Data Manager Job responsibilities for the CBDRP and NBDPS: Assists with data management and mailings for Atlanta and NC NBDPS. Centerwide coder. CBDRP Committee/Working Groups: Coding Issues Area(s) of research specialty and research interest: Medical, drug, and occupation coding. BLAISE programming.	Battelle/CPHRE 100 Capitola Dr., Suite 200 Durham, NC 27713-4411 Phone: (919) 544-3717 X166 Fax: (919) 544-0830 [email protected]
Linda Youngblood, BS Mailing Coordinator Job responsibilities for the CBDRP and NBDPS: Produce mailings for Atlanta and NC NBDPS interviewing and buccal kits. Centerwide coding. CBDRP Committee/Working Groups: Communications. Area(s) of research specialty and research interest: Medical, drug, and occupation coding.	Battelle/CPHRE 100 Capitola Drive, Suite 200 Durham, NC 27713-4411 Phone: (919) 544-3717 X106 Fax: (919) 544-0830 [email protected]

For questions about the activities of the Battelle Center for Birth Defects Research & Prevention:

Diana (Dee) Gray, Project Leader (NC NBDPS)

Telephone: (919) 544-3717 X168 Fax: (919) 544-0830

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