eConsent Administer Focus Group Sessions Across Patient Population

Our Goal Today

We want to better understand what information you need so you can make informed decisions about providing others access to your health information.

       

15 Minutes:  Introduction to Consent and How Health Care Professionals and Health Care Payers might electronically access your Health Care Information

40 Minutes:  Group discussion

5 Minutes:  Wrap up and thank you

 

• •U.S. Department of Health and Human Services contracted the APP Design Team to develop Consent educational materials and technology 

• •We are conducting focus groups with New Yorkers (YOU!) to help us identify what Consent topics are most important to you  

• •The results of the focus groups will help us to develop better Consent educational materials and technology 

 

How Might My Health Care Information
Be Electronically Collected and Accessed?

 

Who is My Health Information Exchange?

HEALTHeLINK is the Health Information
Exchange (HIE) for Western New York

• •Collaborates with health care providers  

   in Western New York

• •Provides a safe, secure network for 

   exchange of data

• •Non-Profit organization focused on
  improving the quality of health care 

 

In this Area, Health Information Exchange Participants Include:

Hospitals	Radiology Centers	Labs
•Kaleida Health System	•Windsong	•Quest
•Catholic Health System	•Spectrum Radiology	•X-Cell Laboratories
•ECMC	•Southtowns Radiology	•Genetic Diagnostic Laboratories
•Roswell Park Cancer Institute	•Buffalo MRI
•Niagara Falls Memorial	•Diagnostic Imaging
•WCA (Jamestown)
•Mt. Saint Mary's
•United Memorial Medical Center
•Upper Allegheny Health System (Olean)
•Brooks  Memorial

 

What Parts of My Health Care Information Might Be Electronically Accessible?

• •Diagnosis 

• •Health history  

• •Laboratory tests 

• •Radiology reports and images 

• •Medication history 

• •May include Sensitive Personal Health Information such as: 

•Alcohol or drug abuse problems	•Mental health conditions
•Genetic diseases or tests	•Birth control and abortion
•HIV/AIDS	•Sexually transmitted infections

 

Legal Considerations

• •Storing, transmitting and accessing patient Health Care Information is subject to specific requirements and guidelines: 

• • • • • •Statutes 

• • • 1. • •Laws 

… at the Federal, State, and Local levels

Consent is a very complex topic!

 

Who Might Have Access to My
Health Care Information?

• •Health Care Providers, Health Insurance Payer Case Managers, and Health Insurance Payer Disease Management Nurses may access your information:
   

• • IF you have given permission and they are directly involved in your care, 

OR

• • In the event of a medical emergency, unless you have specifically denied medical emergency access. 

 

What are My Health Care Information Sharing Consent Options?

• •Yes:  I give consent for all Participants who are involved in my care to access ALL of my electronic health information through HEALTHeLINK. 

• •Yes/Except:  I give consent for all Participants who are involved in my care to access ALL of my electronic health information through HEALTHeLINK EXCEPT the following Participants (Participants Name/Address to be listed by patient). 

• •No/Except: I deny consent for all Participants who are involved in my care to access my electronic health information through HEALTHeLINK for any purpose, EXCEPT in a medical emergency. 

• •No/Never:  I deny consent for all Participants who are involved in my care to access my electronic health information through HEALTHeLINK for any purpose, INCLUDING in a medical emergency. 

Author2012-01-26T14:54:51.890000000

The page number alignment for 10+ is different from through #9.  Should be consistently placed.

 

Focus Group Discussion

 

THANK YOU
FOR YOUR TIME!

Your support TODAY will help us build
better educational material and technology
to enable informed consent decisions
TOMORROW

 

BACKUP SLIDES

 

References – Acronyms

Acronym	Definition
ECMC	Erie County Medical Center
HIE	Health Information Exchange
HIV/AIDS	Human Immunodeficiency Virus/Acquired Immunodeficiency Syndrome
MRI	Magnetic Resonance Imaging
WCA	Women’s Christian Association (Hospital in Jamestown, NY)

 

References – Links to Additional Information

For additional information on the following topics, please refer to the links provided:

1. • •General Information on Federal Laws, Regulations, and Guidance Related to Health Information 

1. • • •http://healthit.hhs.gov/portal/server.pt/community/healthit_hhs_gov__regulations_and_guidance/1496  

     • •http://www.healthit.gov/patients-families/protecting-your-privacy-security  

   • •Health Insurance Portability and Accountability Act (HIPAA) of 1996 

     • •http://www.hhs.gov/ocr/privacy/hipaa/understanding/consumers/index.html  

   • •Health Information Technology for Economic and Clinical Health (HITECH) Notice of Proposed Rule 

     • •http://www.hhs.gov/ocr/privacy/hipaa/administrative/enforcementrule/hitechenforcementifr.html  

     • •http://www.hhs.gov/ocr/privacy/hipaa/understanding/coveredentities/nprmhitech.pdf.  

 

References – Links to Additional Information

For additional information on the following topics, please refer to the links provided:

1. • •New York State Statutes/Policies Related to Personal Health Information 

1. • • •http://www.health.ny.gov/technology/statewide_policy_guidance.htm   

     • •http://www.nyehealth.org/images/files/File_Repository16/heal5/PrivSec_PPs_V2.pdf  

• •HEALTHeLINK Information and Policies 

• • •http://wnyhealthelink.com/  

  • •http://wnyhealthelink.com/files/HEALTHeLINK_Policies_09-16-11_v1.pdf  

 

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