Attachment 12 - Part A Bibliographical References

Attachment 12:

Part A Bibliographical References

Part A Bibliographical References

¹ "What Is Sickle Cell Anemia?" NHLBI, NIH. Web. 8 Aug. 2012. <http://www.nhlbi.nih.gov/health/dci/Diseases/Sca/SCA_WhoIsAtRisk.html>.

² "What You Should Know About Sickle Cell Disease." CDC. Web. Oct. 2012. <http://www.cdc.gov/ncbddd/sicklecell/documents/SCD%20factsheet_What%20is%20SCD.pdf>.

³ Smith LA, Oyeku SO, Homer C, Zuckerman B. Sickle cell disease: a question of equity and quality. Pediatrics. 2006; 117(5): 1763-70.

⁴ Quinn CT, Rogers ZR, McCavit TL, Buchanan GR. Improved survival of children and adolescents with sickle cell disease. Blood. 2010; 115(17): 3447-52.

⁵ American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, Transitions Clinical Report Authoring Group. Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home. Pediatrics 2011;128:182-200.

⁶ Bloom SR, Kuhlthau K, Van Cleave J, Knapp AA, Newacheck P, Perrin JM. Health care transition for youth with special health care needs. J Adolescent Health. 2012: in press.

⁷ Treadwell M, Telfair J, Gibson RW, Johnson S, Osunkwo I. Transition from pediatric to adult care in sickle cell disease: establishing evidence-based practice and directions for research. Am J Hematol. 2011; 86(1): 116-20.

⁸ Sobota A, Neufeld EJ, Sprinz P, Heeney MM. Transition from pediatric to adult care for sickle cell disease: results of a survey of pediatric providers. Am J Hematol. 2011; 86(6): 512-5.

⁹ McClellan CB, Schatz JC, Puffer E, Sanchez CE, Stancil MT, Roberts CW. Use of handheld wireless technology for a home-based sickle cell pain management protocol. J Pediatr Psychol. 2009; 34(5): 564-73.

¹⁰ Katz DL, Nordwall B. Novel interactive cell-phone technology for health enhancement. J Diabetes Sci Technol. 2008; 2(1): 147-53.

¹¹ Boulos MNK, Wheeler S, Tavares C, Jones R. How smartphones are changing the face of mobile and participatory healthcare: an overview, with example from eCAALYX. Biomed Eng Online. 2011; 10(24): 1-14.

¹² Forjuoh SN, Reis MD, Couchman GR, Ory MG, Mason S, Molonket-Lanning S. Incorporating PDA use in diabetes self-care: a central Texas Primary Care Research Network (CenTexNet) study. J Am Board Fam Med. 2007; 20(4): 375-84.

¹³ Malone DC, Saverno KR. Evaluation of a wireless handheld medication management device in the prevention of drug-drug interactions in a Medicaid population. J Manag Care Pharm. 2012; 18(1): 33-45.

¹⁴ Alsos OA, Das A, Svanæs D. Mobile health IT: the effect of user interface and form factor on doctor-patient communication. Int J Med Inform. 2012; 81(1): 12-28.

¹⁵ "Sickle Cell Disease: Increasing Access and Improving Care." The Office of Minority Health. Web. 8 Aug. 2011. <http://minorityhealth.hhs.gov/templates/browse.aspx?lvl=2>.

¹⁶ Atkin, Karl, and Sangeeta Chattoo. "Approaches to conducting qualitative research in ethnically diverse populations." Health and social research in multiethnic societies (2006): 95-115.

¹⁷ Treadwall, Marsha J., Lakenya McClough, and Elliott Vichinsky. "Using Qualitative and Quantitative Strategies to Evaluate Knowledge and Perceptions about Sickle Cell Disease and Sickle Cell Trait." Journal of the National Medical Association 98.5 (2006): 704-10. Web. Oct. 2012. <http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2569269/>.

¹⁸ Crosby, Lori E., Avani C. Modi, Kathleen L. Lemanek, Shanna M. Guilfoyle, Karen A. Kalinyak, and Monica J. Mitchell. "Perceived Barriers to Clinic Appointments for Adolescents With Sickle Cell Disease." Journal of Pediatric Hematology/Oncology 31.8 (2009): 571-76. Web. <http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2750821/>.

¹⁹ Carroll, Aaron E., David G. Marrero, and Melinda M. Swenson. "Why Do Adolescents With Type 1 Diabetes and Their Parents Participate in Focus Groups?" Research and Theory for Nursing Practice 21.2 (2007): 135-42. Web. <http://www.ncbi.nlm.nih.gov/pubmed/17564300>.

²⁰ Cornelius, JB, JS Lawrence, JC Howard, D. Shah, A. Poka, D. McDonald, and AC White. "Adolescents' Perceptions of a Mobile Cell Phone Text Messaging-enhanced Intervention and Development of a Mobile Cell Phone-based HIV Prevention Intervention." Journal for Specialists in Pediatric Nursing 17.1 (2012): 61-69. Web. <http://www.ncbi.nlm.nih.gov/pubmed/22188273>.

²¹ Carroll, Aaron E., David G. Marrero, and Melinda M. Swenson. "Why Do Adolescents With Type 1 Diabetes and Their Parents Participate in Focus Groups?" Research and Theory for Nursing Practice 21.2 (2007): 135-42. Web. <http://www.ncbi.nlm.nih.gov/pubmed/17564300>.

²² "The Use of Incentives in Surveys." Council of Professional Associations on Federal Statistics. Web. Oct. 2012. <http://www.copafs.org/seminars/use_of_incentives_in_surveys.aspx>.

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