1. Benefits of Advocacy Involvement in the Research Setting

Attach 1 Benefits of Advocacy in Research.doc

Generic Submission for Formative Research, Pre-testing, Stakeholder Measures and Advocate Forms at NCI

1. Benefits of Advocacy Involvement in the Research Setting

OMB: 0925-0641

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Benefits of Advocacy Involvement in Research Setting


  • Advocates/patients have helped to refine the nature of the research question to increase its relevance to research consumers.


  • Input from advocates/patients has resulted in expanding the research scope of inquiry.


  • The specific disease-related knowledge of advocates/patients has refined the choice of research tools.


  • Advocates/patients have aided in expediting recruitment.


  • Advocate/patient participation has aided in recruiting disparate groups, leading to greater diversity in the participating population.


  • Advocate/patient input has led to a higher level of participation by the targeted research population.


  • Research outcomes have been enhanced by advocate/patient input, helping to make research more meaningful to consumers.


  • Advocates/patients have improved the data collection process or efforts.


  • Advocates/patients have provided an expanded viewpoint during analysis or interpretation of results.


  • Advocate/patient participation has improved the usability of research results to consumers.


  • Advocate/patient expertise has aided in increasing dissemination of research results to an audience beyond the narrow scientific community.


  • Advocate/patient input has assisted in setting funding priorities.


  • Advocates’/patients’ unique experience with disease has improved the informed consent process.


  • Advocates/patients have improved the participant involvement process.


  • Advocate/patient involvement has improved project credibility in both the research and consumer communities.


  • Advocate/patient involvement has improved the likelihood of research being funded.


  • Advocate/patient involvement has increased the likelihood of ethical review/IRB approval.

File Typeapplication/msword
File TitleBenefits of Advocacy Involvement in Research Setting
Authorbells
Last Modified ByBailey, Karla (NIH/NCI) [E]
File Modified2014-07-11
File Created2010-04-14

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