Attachment A.1 Vanguard Downloadable Data Access Form

A.1 Vanguard Downloadable Data Access Form OMB# 0925-XXXX

XX/XX/2015

National Children’s Study Vanguard Downloadable Data Access Form

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Requesting Investigator Information
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NATIONAL CHILDREN’S STUDY VANGUARD DATA USER AGREEMENT

Terms & Conditions

The data owned by the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) is offered as an information and data resource for scientific research.

Users of National Children’s Study (NCS) Vanguard data agree to comply with all terms and conditions of the NICHD User Agreement during the registration process.

By accepting the NICHD User Agreement, you agree:

1. to use NCS resources for the purposes of archiving and accessing data obtained from scientific research with the intent of data sharing and reuse, and to notify the NCS Administrator of any breach in use

2. to use NCS data for scientific research in an institution with an approved assurance from the Department of Health and Human Services Office for Human Research Protections, and to not use the data for commercial purposes (or sell the data obtained from NICHD)

3. to preserve and protect the confidentiality of, and not attempt to identify, any individuals or households in the data

4. that archived data are provided without warranty or liability of any kind

5. to notify the NCS Administrator of any errors discovered in the archived data

6. to establish safeguards to prevent unauthorized viewing or release of NCS information or data

7. to comply with any charges that may apply for various services offered by NCS

8. to ensure that the means of access to NCS (such as passwords) are kept secure and not disclosed to anyone else

9. that personal data submitted by you are accurate to the best of your knowledge and kept up to date by you

10. that personal data provided by you may be used for administrative management of NCS and for reporting purposes with the goal of improving services offered by NCS

11. that any breach of the User Agreement could lead to termination of your access to the services

12. to complete NCS Data User Training.

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Check the box if you agree to the terms and conditions. I Agree

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Public reporting burden for this collection of information is estimated to average 10 minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to: NIH, Project Clearance Branch, 6705 Rockledge Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0647). Do not return the completed form to this address.