Purpose of this Discussion Group/Interview
You are being asked to participate in a discussion being held by the Oak Ridge Associated Universities (ORAU) on behalf of the Centers for Disease Control and Prevention (CDC). In the discussion, you will be asked your opinions and experiences regarding CDC’s SLE Self-Management Tool. Your answers can help efforts to improve resources available to help patients with Systemic Lupus Erythematosus. The discussion will be 2 hours (or 45 minutes for one-on-one interviews) and will be video and audio recorded to be sure we get an accurate record of your comments.
Please remember that:
You choose to participate.
You are not required to answer the questions.
This session should last about two hours.
The discussion will be video and audio recorded.
Researchers may be watching and listening to the discussion.
You are free to leave at any time or refuse recording without any penalty.
Risks
The risks of your participation are expected to be minimal. This means that the risks are not expected to be greater than the risks persons may normally find in their daily life.
Benefits
There are no direct benefits to you as part of the study. However, your comments may help improve the CDC SLE Self-Management Tool which may help you and others with effective self-management of SLE.
Information Safeguards
We will keep the information you give us private and protected to the extent allowed by law. Your name will not be used in the final report. No statement you make will be linked to you by name. Only members of the research staff will be allowed to look at the records. When we present this study or publish its results, your name or other facts that point to you will not show or be used.
Persons to Contact
If you have questions about this session, or taking part in it, you may call or email
Ben Wilburn
865-574-7753
| File Type | application/vnd.openxmlformats-officedocument.wordprocessingml.document |
| Author | Wilburn, Ben |
| File Modified | 0000-00-00 |
| File Created | 2021-01-24 |