Appendix B_SCDTDP Data Summit Participants

Appendix B: SCDTDP Data Summit Participants

SDCTDP Data Summit Participants
Organization	Contact Person	Role	E-mail
Boston Medical Center	William Adams, MD	Pediatrician, informatics researcher	[email protected]
Northeast Coordinating Center	Michele Ako	Research intern, pediatric hematology
Northeast Coordinating Center	Nina Anderson	Primary care provider	[email protected]
SCDAA	Mary Brown	President & CEO of the Sickle Cell Disease Foundation of California	[email protected]
NICHQ	Emily Clermont	Senior Project Manager
Northeast Coordinating Center	Alice Cohen	Hematologist	[email protected]
Heartland Sickle Cell Disease Network	Ben Cooper	Data Manager	[email protected]
AHRQ	Denise Dougherty	Federal Partner	[email protected]
Emory University School of Medicine	Jim Eckman	Hematologist	[email protected]
NICHQ	Patricia Finnerty	Improvement Advisor	[email protected]
FDA	Jonathan Goldsmith	Federal Partner	[email protected]
CDC	Althea Grant	Epidemiologist	[email protected]
The Johns Hopkins School of Medicine	Carlton Haywood	Epidemiologist, clinical researcher, patient with SCD	[email protected]
NICHQ	Charlie Homer	Pediatrician, former CEO of NICHQ
CDC	Mary Hulihan	Health Sciences Researcher	[email protected]
Pacific Sickle Cell Regional Collaborative	Alan Ikeda	Pediatric Hematologist	[email protected]
HRSA	Donnell Ivy	Project Officer	[email protected]
Boston Medical Center	Trish Kavanagh	Pediatrician	[email protected]
Heartland Sickle Cell Disease Network	Allison King	Pediatric Hematologist	[email protected]
NHLBI	Norma Lerner	Federal Partner	[email protected]
HRSA	Michael Lu	Associate Administrator, MCHB, HRSA	[email protected]
Sickle Cell Treatment and Outcomes Research in the Midwest (STORM)	Tammy Nordheim	Project Manager	[email protected]
Pacific Sickle Cell Regional Collaborative	Diane Nugent	Pediatric Hematologist	[email protected]
NICHQ/ Children’s Hospital at Montefiore	Suzette Oyeku	Pediatrician, NCC Medical Director	[email protected]
Pacific Sickle Cell Regional Collaborative	Susan Paulukonis	Epidemiologist	[email protected]
HRSA	Madelyn Reyes	Federal Partner	[email protected]
NIH	Yaffa Rubinstein	Federal Partner	[email protected]
Sickle Cell Treatment and Outcomes Research in the Midwest (STORM)	Kay Saving	Pediatric Hematologist	[email protected]
HRSA	Joan Scott	Genetic Service Branch Chief, Division of Services for Children with Special Health Needs, Health Resources and Services Administration	[email protected]
NICHQ	Avery Seefeld	Project Manager
Sickle Cell Treatment and Outcomes Research in the Midwest (STORM)	Lisa Shook	Health services researcher	[email protected]
The Children’s Hospital of Philadelphia	Kim Smith-Whitley	Pediatric hematologist	[email protected]
Northeast Coordinating Center	Rosalyn Stewart	Pediatrician	[email protected]
HRSA	Bonnie Strickland	retired	retired
Northeast Coordinating Center	John Strouse	Pediatric hematologist	[email protected]
HRSA	Christina Turgel	Federal Partner	[email protected]
NICHQ	Kate Vaughan	Associate Director
FDA	Nicole Verdun	Federal Partner	[email protected]
NHLBI	Ellen Werner	Program Director at National Heart, Lung, and Blood Institute/NIH	[email protected]
Northeast Coordinating Center	Lauren Whiteman	Program Coordinator; Analyst	[email protected]