Survey

CDC/ATSDR Formative Research and Tool Development

AttA2_Survey instrument (screenshots)

Formative Research to Identify Common and Unique Barriers to the Exchange of Hospitalization and ED Data

OMB: 0920-1154

Document [pdf]
Download: pdf | pdf
CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Introduction
This survey is being used to gather information on behalf of the Centers for Disease and Control
and Prevention (CDC) about your Environmental Public Health Tracking Program's hospitalization
data (inpatient and Emergency Department) and the partnership you have with the data provider .
Your state or cities environmental public health tracking program will be referred to as “your
program” throughout the survey. We appreciate your responses.
CDC estimates the average public reporting burden for this collection of information as 255 minutes
per response, including the time for reviewing instructions, searching existing data/information
sources, gathering and maintaining the data/information needed, and completing and reviewing the
collection of information. An agency may not conduct or sponsor, and a person is not required to
respond to a collection of information unless it displays a currently valid OMB control number.
Send comments regarding this burden estimate or any other aspect of this collection of
information, including suggestions for reducing this burden, to: CDC/ATSDR Information Collection
Review Office, 1600 Clifton Road NE, MS D-74, Atlanta, Georgia 30333; ATTN: PRA (0920-1154)
You can go back and review/edit previous answers by selecting the PREV button at the bottom of
each page.
To begin, please provide the following information about your program:
* 1. Name of your organization or department

* 2. Your position

* 3. State or city represented

* 4. Please indicate how many years you’ve been with your program
0-3 years
4-12 years
13-20 years

1

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Types and Source
Next, we want to learn about the types and source of administrative health care data your program
receives for Tracking applications.
* 5. Which types of healthcare administrative claims data does your program receive or have access to for
Tracking applications? Check all that apply.
Inpatient Discharge

Observation stay files

Emergency Department Discharge

All-Payer Claims

Outpatient/non-inpatient Discharge
Other healthcare administrative claims data (for example, Ambulatory Surgery, etc.)

* 6. Does the same organization provide the inpatient discharge and emergency department discharge data
to your Tracking program?
Yes
No

2

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Provider
* 7. What is the name of the agency/organization/department that provides your program with the inpatient
and emergency department discharge data?

3

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Agreement
Next, we want to learn about the agreements your program has in place with the data
agency/organization/department that provides your program with these data.
* 8. What type of agreement does your program have in place to acquire your programs data? Check all that
apply.
No agreement in place

Interagency Agreement

Data Use Agreement or Data Sharing Agreement

IRB review was required

Memorandum of Understanding
Other (please specify)

4

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Agreement
* 9. On a scale of 1 to 5 how easy was it to establish the agreement
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about establishing the agreement please let us know here

* 10. What year did your program first establish this agreement with this data
agency/organization/department? If you don’t know the year, please write don’t know.

* 11. How often does your program renew this agreement?
Annually

Every 4-5 years

Every 2 years

As needed

Every 3 years

Unknown

Other (please specify)

* 12. On a scale of 1 to 5 how easy is it to amend or add to the agreement?
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about amending the agreement please let us know here

5

6

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Cost of Data
* 13. How much does your program pay per year to access the data?
Our program doesn’t pay a fee

$1001-$5000

$1-$500

Over $5000

$501-$1000

Unknown

Other (please specify)

7

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Timeliness of the data
Next, we’re going to ask about the timeliness of the data your program receives from the
agency/organization/department.
* 14. How often does your program receive the data?
Monthly
Quarterly
Annually
Unknown
Other (please specify)

* 15. What is the most recent time period of data that your program has received?

Inpatient Start Date

DD/MM/YYYY
Inpatient End Date

DD/MM/YYYY
Emergency Department Start Date

DD/MM/YYYY
Emergency Department End Date

DD/MM/YYYY

* 16. Does your program receive these data according to the specified schedule in your agreement?
Yes
No specified schedule in our agreement
No
No agreement in place

8

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Timeliness of the data
17. What reason does the data agency/organization provide for the lag time/delay in your program
receiving the data?

9

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data transmission
* 18. How does your program receive these data?
CD or thumb drive
Secure email
Secure FTP site
Web Portal
Granted access a specified database
Other (please specify)

10

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Acquired Data Attributes
The next section explores the details of the data your programs receives for environmental public
health tracking purposes.
* 19. What type of dataset is your program receiving as it relates to Protected Health Information (PHI)?
Record level identifiable data set (with PHI)
Record level de-identified data set (with PHI removed)
Aggregated data set (not record level)
Other (please specify)

* 20. What is the spatial resolution of the data your program receives?
Street address level
Census tract level
Zip code level
County level
Other (please specify)

* 21. Does your program receive the necessary variables to identify transfers?
Yes, patient id is provided
Yes, a combination of variables such as age, date of birth, date of admission, etc is provided
No, but data provider identifies/flags transfers
No, data are too aggregated to identify transfers

11

* 22. What is the scope of the data your program receives as it relates to your ability to calculate NCDMs?
We receive full records/all discharges for all diagnosis (in addition to those needed to calculate NCDMs).
We only receive records/discharges with specified data elements required to calculate NCDMs
Other (please specify)

* 23. On a scale of 1 to 5 how easy is it to request additional data elements and or records/discharges in the
data your receive?
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about requesting additional data elements please let us know here

24. What data elements/fields, if any is your program NOT getting that you need?
What is the reason given by the data provider as to why NOT?

12

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States
Next we will ask you about how your programs accesses data on your states residents discharged
in bordering states.
* 25. Does your program receive data on your states’ residents that were discharged in facilities in bordering
states?
Yes, all bordering states
Yes, some but not all bordering states
No

13

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States
* 26. List the bordering states that your program receive data for your residents from and who provides the
data.
State

Who provides the data

Most recent year
of data

1.
2.
3.
4.
5.
6.
7.
8.

14

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States
* 27. Approximately how often does your program receive the data on your residents discharged in bordering
states?
Monthly
Quarterly
Annually
Unknown
Other (please specify)

* 28. On a scale of 1 to 5 how easy is the process for getting data on your states residents discharged in
your bordering state(s)?
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about acquiring data on your states residents discharged in bordering states please let us know
here

15

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States
* 29. Has your program attempted to get these data?
Yes
No

30. If yes, what have been the barriers to your program receiving data on your residents discharged in
bordering states?

16

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Quality, Completeness and Validation
* 31. What technical documentation about the data does your program receive? Check all that apply.
No technical documentation received

Frequency tables

Data layout/code book

Quality control and processes

User’s guide

Percent of errors found in data

Other (please specify)

* 32. Does your program conduct your own data validation upon receiving the data from the data
agency/organization/department?
Yes
No

17

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Quality, Completeness and Validation
* 33. Please describe the most common errors/problems your program finds in the data after performing your
validation process.

* 34. How does your program correct errors/problems you find with the data?
Errors are not corrected
Erroneous records are deleted
Erroneous records are corrected
Our program asks the data agency/organization/department to correct and resubmit the data
Other (please specify)

18

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Quality, Completeness and Validation
* 35. Who removes duplicate records?
Data provider
Our program
Duplicates aren’t removed
Other (please specify)

* 36. Not all states get data from all facilities, such as tribal hospitals, Veteran’s Affairs (VA) hospitals, etc.
Please indicate which facilities are excluded from the states reporting requirements that your program is
aware of (check all that apply)
We are not aware of any exclusions

Tribal

Federal facilities

Specialty Hospitals (e.g. psych, cancer)

Veterans Affairs (VA)

Critical Access Hospitals

Other (please specify)

19

* 37. On a scale of 1 to 5, how well is information about the quality of the data your program receives
communicated by the data provider?
1= Very poor
2= Somewhat poor
3= Neither poor nor good
4= Somewhat good
5= Very Good
N/A
If your program has anything to add about the communication of the quality of the data your program receives please let us know here

20

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Use
The next set of questions are focused on how your program uses the data.
* 38. Our program uses the data for environmental public health tracking for the following uses (check all that
apply):
To calculate NCDMs and send to CDC National Tracking
Program

To inform public health actions
To conduct routine data analyses

To display non-NCDM measures on our program’s state
tracking portal
To create reports
Other (please specify)

* 39. How does your program make the data agency/organization/department that provide your program with
data aware of the ways your program is using the data received? (select best answer)
We don’t communicate data use back to the data
agency/organization/department

We inform the data agency/organization/department of any
new data use project before we begin

We notify the data agency/organization/department after any
product is released

Our data sharing agreement with the data
agency/organization/department prevents us from using the
data in any way that is not explicitly described in the
agreement

We notify the data agency/organization/department before any
product is released
Other (please specify)

21

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Partnership with Data Agency/Organization/Department
* 40. Has your program encountered issues/problems using the data to meet all the requirements of the CDC
National Tracking Program?
Yes
No

41. If yes please share these issues and how you have worked to overcome then

22

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
42. If there’s anything else your program would like to add about the data partnership, accessing and/or
using inpatient and emergency department discharge data for your Tracking program please let us know
here

23

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Providers
You indicated that your program receives data from two different agencies/organizations please tell
us the name of these.
* 43. What is the name of the agency/organization/department that provides your program with
your inpatient discharge data?

* 44. What is the name of the agency/organization/department that provides your program with your
emergency department discharge data?

24

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Because your program receives your inpatient discharge data and emergency department
discharge data from different agencies/organizations/departments we will be asking you to answer
the same set of questions for the two different data types. We will begin with asking about the
inpatient discharge data your program receives.

25

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Agreement- Inpatient Data
Please tell us about your programs agreement to receive inpatient discharge data
* 45. What type of agreement does your program have in place to acquire your programs data? Check all
that apply.
No agreement in place

Interagency Agreement

Data Use Agreement or Data Sharing Agreement

IRB review was required

Memorandum of Understanding
Other (please specify)

26

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Agreement-Inpatient Data
* 46. On a scale of 1 to 5 how easy was it to establish the agreement
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about establishing the agreement please let us know here

* 47. What year did your program first establish this agreement with this data
agency/organization/department ? If you don’t know the year, please write don’t know.

* 48. How often does your program renew this agreement?
Annually

Every 4-5 years

Every 2 years

As needed

Every 3 years

Unknown

Other (please specify)

* 49. On a scale of 1 to 5 how easy is it to amend or add to the agreement?
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about amending the agreement please let us know here

27

28

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Cost of Data-Inpatient Data
* 50. How much does your program pay per year to access the data?
Our program doesn’t pay a fee

$1001-$5000

$1-$500

Over $5000

$501-$1000

Unknown

Other (please specify)

29

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Timeliness of the data-Inpatient Data
Next, we’re going to ask about the timeliness of the inpatient discharge data your program receives
from the agency/organization/department.
* 51. How often does your program receive the data?
Monthly
Quarterly
Annually
Unknown
Other (please specify)

* 52. What is the most recent time period of data that your program has received?

Inpatient Start Date

DD/MM/YYYY
Inpatient End Date

DD/MM/YYYY

* 53. Does your program receive these data according to the specified schedule in your agreement?
Yes
No specified schedule in our agreement
No
No agreement in place

30

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Timeliness of the data-Inpatient Data
54. What reason does the data agency/organization provide for the lag time/delay in your program
receiving the data?

31

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data transmission-Inpatient Data
* 55. How does your program receive these data?
CD or thumb drive
Secure email
Secure FTP site
Web Portal
Granted access a specified database
Other (please specify)

32

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Acquired Data Attributes-Inpatient Data
The next section explores the details of the inpatient data your programs receives for
environmental public health tracking purposes.
* 56. What type of dataset is your program receiving as it relates to Protected Health Information (PHI)?
Record level identifiable data set (with PHI)
Record level de-identified data set (with PHI removed)
Aggregated data set (not record level)
Other (please specify)

* 57. What is the spatial resolution of the data your program receives?
Street address level
Census tract level
Zip code level
County level
Other (please specify)

* 58. Does your program receive the necessary variables to identify transfers?
Yes, patient id is provided
Yes, a combination of variables such as age, date of birth, date of admission, etc is provided
No, but data provider identifies/flags transfers
No, data are too aggregated to identify transfers

33

* 59. What is the scope of the data your program receives as it relates to your ability to calculate NCDMs?
We receive full records/all discharges for all diagnosis (in addition to those needed to calculate NCDMs).
We only receive records/discharges with specified data elements required to calculate NCDMs
Other (please specify)

* 60. On a scale of 1 to 5 how easy is it to request additional data elements and or records/discharges in the
data your receive?
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about requesting additional data elements please let us know here

61. What data elements/fields, if any is your program NOT getting that you would like to/need?
What is the reason given by the data provider as to why NOT?

34

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States-Inpatient Data
Next we will ask you about how your programs accesses inpatient discharge data on your states
residents discharged in bordering states inpatient facilities.
* 62. Does your program receive data on your states’ residents that were discharged in facilities in bordering
states?
Yes, all bordering states
Yes, some but not all bordering states
No

35

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States-Inpatient Data
* 63. List the bordering states that your program receive data for your residents from and who provides the
data.
State

Who provides the data

Most recent year
of data

1.
2.
3.
4.
5.
6.
7.
8.

36

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States -Inpatient Data
* 64. Approximately how often does your program receive the data on your residents discharged in bordering
states?
Monthly
Quarterly
Annually
Unknown
Other (please specify)

* 65. On a scale of 1 to 5 how easy is the process for getting data on your states residents discharged in
your bordering state(s)?
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about requesting data on your states residents discharged in bordering states please let us know
here

37

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States-Inpatient Data
* 66. Has your program attempted to get these data?
Yes
No

67. If yes, what have been the barriers to your program receiving data on your residents discharged in
bordering states inpatient facilities?

38

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Quality, Completeness and Validation-Inpatient Data
* 68. What technical documentation about the data does your program receive? Check all that apply.
No technical documentation received

Frequency tables

Data layout/code book

Quality control and processes

User’s guide

Percent of errors found in data

Other (please specify)

* 69. Does your program conduct your own data validation upon receiving the data from the data
agency/organization/department?
Yes
No

39

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Quality, Completeness and Validation-Inpatient Data
* 70. Please describe the most common errors/problems your program finds in the data after performing your
validation process.

* 71. How does your program correct errors/problems you find with the data?
Errors are not corrected
Erroneous records are deleted
Erroneous records are corrected
Our program asks the data agency/organization/department to correct and resubmit the data
Other (please specify)

40

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Quality, Completeness and Validation-Inpatient Data
* 72. Who removes duplicate records?
Data provider
Our program
Duplicates aren’t removed
Other (please specify)

* 73. Not all states get data from all facilities, such as tribal hospitals, Veteran’s Affairs (VA) hospitals, etc.
Please indicate which facilities are excluded from the states reporting requirements that your program is
aware of (check all that apply)
We are not aware of any exclusions

Tribal

Federal facilities

Specialty Hospitals (e.g. psych, cancer)

Veterans Affairs (VA)

Critical Access Hospitals

Other (please specify)

41

* 74. On a scale of 1 to 5, how well is information about the quality of the data your program receives
communicated by the data provider?
1= Very poor
2= Somewhat poor
3= Neither poor nor good
4= Somewhat good
5= Very Good
N/A
If your program has anything to add about the communication of the quality of the data your program receives please let us know here

42

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Use-Inpatient Data
The next set of questions are focused on how your program uses the inpatient discharge data.
* 75. Our program uses the data for environmental public health tracking for the following uses (check all that
apply):
To calculate NCDMs and send to CDC National Tracking
Program

To inform public health actions
To conduct routine data analyses

To display non-NCDM measures on our program’s state
tracking portal
To create reports
Other (please specify)

* 76. How does your program make the data agency/organization/department that provide your program with
inpatient data aware of the ways your program is using the data received? (select best answer)
We don’t communicate data use back to the data
agency/organization/department

We inform the data agency/organization/department of any
new data use project before we begin

We notify the data agency/organization/department after any
product is released

Our data sharing agreement with the data
agency/organization/department prevents us from using the
data in any way that is not explicitly described in the
agreement

We notify the data agency/organization/department before any
product is released
Other (please specify)

43

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Partnership with Data Agency/Organization/Department-Inpatient Data
* 77. Has your program encountered issues/problems using the data to meet all the requirements of the CDC
National Tracking Program?
Yes
No

78. If yes please share these issues and how you have worked to overcome them

44

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Partnership-Inpatient
79. If there’s anything else your program would like to add about the data partnership, accessing and/or
using inpatient discharge data for your Tracking program please let us know here

45

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Agreement- Emergency Department Data
Now we will begin to ask questions about the Emergency Department Discharge Data your program
receives.
First, please tell us about your programs agreement to receive emergency department discharge
data
* 80. What type of agreement does your program have in place to acquire your programs data? Check all
that apply.
No agreement in place

Interagency Agreement

Data Use Agreement or Data Sharing Agreement

IRB review was required

Memorandum of Understanding
Other (please specify)

46

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Agreement-Emergency Department Data
* 81. On a scale of 1 to 5 how easy was it to establish the agreement
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about establishing the agreement please let us know here

* 82. What year did your program first establish this agreement with this data
agency/organization/department? If you don’t know the year, please write don’t know.

* 83. How often does your program renew this agreement?
Annually

Every 4-5 years

Every 2 years

As needed

Every 3 years

Unknown

Other (please specify)

* 84. On a scale of 1 to 5 how easy is it to amend or add to the agreement?
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about amending the agreement please let us know here

47

48

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Cost of Data-Emergency Department Data
* 85. How much does your program pay per year to access the data?
Our program doesn’t pay a fee

$1001-$5000

$1-$500

Over $5000

$501-$1000

Unknown

Other (please specify)

49

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Timeliness of the data-Emergency Department Data
Next, we’re going to ask about the timeliness of the emergency department discharge data your
program receives from the agency/organization/department.
* 86. How often does your program receive the data?
Monthly
Quarterly
Annually
Unknown
Other (please specify)

* 87. What is the most recent time period of data that your program has received?

Emergency Department Start Date

DD/MM/YYYY
Emergency End Date

DD/MM/YYYY

* 88. Does your program receive these data according to the specified schedule in your agreement?
Yes
No specified schedule in our agreement
No
No agreement in place

50

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Timeliness of the data-Emergency Department Data
89. What reason does the data agency/organization provide for the lag time/delay in your program
receiving the data?

51

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data transmission-Emergency Department Data
* 90. How does your program receive these data?
CD or thumb drive
Secure email
Secure FTP site
Web Portal
Granted access a specified database
Other (please specify)

52

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Acquired Data Attributes-Emergency Department Data
The next section explores the details of the emergency department discharge data your programs
receives for environmental public health tracking purposes.
* 91. What type of dataset is your program receiving as it relates to Protected Health Information (PHI)?
Record level identifiable data set (with PHI)
Record level de-identified data set (with PHI removed)
Aggregated data set (not record level)
Other (please specify)

* 92. What is the spatial resolution of the data your program receives?
Street address level
Census tract level
Zip code level
County level
Other (please specify)

* 93. Does your program receive the necessary variables to identify transfers?
Yes, patient id is provided
Yes, a combination of variables such as age, date of birth, date of admission, etc is provided
No, but data provider identifies/flags transfers
No, data are too aggregated to identify transfers

53

* 94. What is the scope of the data your program receives as it relates to your ability to calculate NCDMs?
We receive full records/all discharges for all diagnosis (in addition to those needed to calculate NCDMs).
We only receive records/discharges with specified data elements required to calculate NCDMs
Other (please specify)

* 95. On a scale of 1 to 5 how easy is it to request additional data elements and or records/discharges in the
data your receive?
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about requesting additional data elements please let us know here

96. What data elements/fields, if any is your program NOT getting that you would like/need?
What is the reason given by the data provider as to why NOT?

54

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States-Emergency Department Data
Next we will ask you about how your programs accesses emergency department discharge data on
your states residents discharged in bordering states emergency departments.
* 97. Does your program receive data on your states’ residents that were discharged in emergency
departments in bordering states?
Yes, all bordering states
Yes, some but not all bordering states
No

55

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States-Emergency Department Data
* 98. List the bordering states that your program receive data for your residents from and who provides the
data.
State

Who provides the data

Most recent year
of data

1.
2.
3.
4.
5.
6.
7.
8.

56

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States -Emergency Department Data
* 99. Approximately how often does your program receive the data on your residents discharged in bordering
states?
Monthly
Quarterly
Annually
Unknown
Other (please specify)

* 100. On a scale of 1 to 5 how easy is the process for getting data on your states residents discharged in
your bordering state(s)?
1=Very hard

4= Somewhat easy

2=Somewhat hard

5= Very easy

3=Neither hard nor easy

N/A

If your program has anything to add about requesting data on your states residents discharged in bordering states please let us know
here

57

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data from Bordering States-Emergency Department Data
* 101. Has your program attempted to get these data?
Yes
No

102. If yes, what have been the barriers to your program receiving data on your residents discharged in
bordering states emergency departments?

58

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Quality, completeness and Validation-Emergency Department Data
* 103. What technical documentation about the data does your program receive? Check all that apply.
No technical documentation received

Frequency tables

Data layout/code book

Quality control and processes

User’s guide

Percent of errors found in data

Other (please specify)

* 104. Does your program conduct your own data validation upon receiving the data from the data
agency/organization/Department?
Yes
No

59

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Quality, Completeness and Validation-Emergency Department Data
* 105. Please describe the most common errors/problems your program finds in the data after performing
your validation process.

* 106. How does your program correct errors/problems you find with the data?
Errors are not corrected
Erroneous records are deleted
Erroneous records are corrected
Our program asks the data agency/organization to correct and resubmit the data
Other (please specify)

60

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Quality, Completeness and Validation-Emergency Department Data
* 107. Who removes duplicate records?
Data provider
Our program
Duplicates aren’t removed
Other (please specify)

* 108. Not all states get data from all facilities, such as tribal hospitals, Veteran’s Affairs (VA) hospitals, etc.
Please indicate which facilities are excluded from the states reporting requirements that your program is
aware of (check all that apply)
We are not aware of any exclusions

Tribal

Federal facilities

Specialty Hospitals (e.g. psych, cancer)

Veterans Affairs (VA)

Critical Access Hospitals

Other (please specify)

61

* 109. On a scale of 1 to 5, how well is information about the quality of the data your program receives
communicated by the data provider?
1= Very poor
2= Somewhat poor
3= Neither poor nor good
4= Somewhat good
5= Very Good
N/A
If your program has anything to add about the communication of the quality of the data your program receives please let us know here

62

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Data Use-Emergency Department Data
The next set of questions are focused on how your program uses the emergency
department discharge data.
* 110. Our program uses the data for environmental public health tracking for the following uses (check all
that apply):
To calculate NCDMs and send to CDC National Tracking
Program

To inform public health actions
To conduct routine data analyses

To display non-NCDM measures on our program’s state
tracking portal
To create reports
Other (please specify)

* 111. How does your program make the data agency/organization/department that provide your program with
data aware of the ways your program is using the data received? (select best answer)
We don’t communicate data use back to the data
agency/organization/department

We inform the data agency/organization/department of any
new data use project before we begin

We notify the data agency/organization/department after any
product is released

Our data sharing agreement with the data
agency/organization/department prevents us from using the
data in any way that is not explicitly described in the
agreement

We notify the data agency/organization/department before any
product is released
Other (please specify)

63

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Partnership with Data Agency/Organization/Department-Emergency Department Data
* 112. Has your program encountered issues/problems using the data to meet all the requirements of the
CDC National Tracking Program?
Yes
No

113. If yes please share these issues and how you have worked to overcome then

64

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
114. If there’s anything else your program would like to add about the data partnership accessing and/or
using emergency department data for your Tracking program, please let us know here

65

CDC Environmental Public Health Tracking Hospitalization Data Needs Assessment
Form approved
OMB No: 0920-1154
Expiration Date: 01/31/2020
Thank you
Thank you for taking the time to provide us with this information. A summary of the findings will be
shared with recipients. Information gathered will be used to strategize on activities around
improving access, use and quality of hospital discharge data for your Tracking program.
As always, NAHDO and CDC staff are available to provide your program with technical assistance
with your issues related to hospital discharge data

66


File Typeapplication/pdf
File TitleView Survey
File Modified2019-05-21
File Created2019-05-17

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