4 Site Survey

Ryan White HIV/AIDS Program Outcomes and Expanded Insurance Coverage

Site survey

Ryan White HIV/AIDS Program Outcomes and Expanded Insurance Coverage Guides

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DRAFT Ryan White HIV/AIDS Program Outcomes and Expanded Insurance Coverage Site Survey OMB Number: XXXX-XXXX

Expiration Date: XX-XX-20XX

CONSENT SCRIPT

Welcome. You are receiving this survey because you are a Ryan White HIV/AIDS Program (RWHAP) provider. This study is being implemented by Abt Associates and its research partners under contract to the HRSA, HIV/AIDS Bureau (HAB).

The focus of this evaluation is to determine the effect that the changing healthcare coverage landscape has had on overall health outcomes, service utilization, and gaps in care of HIV-positive individuals. It also seeks to understand how different RWHAP provider site models of care meet the needs of clients under the variety of healthcare coverage options, as well as to explore the challenges unique to clients with detectable viral loads. Your answers to the enclosed survey are essential to reaching the study goals.

Participation in this study.

  • You been selected to complete this survey as part of this study. Being in this study involves answering questions about your sites services, client outcomes and their experiences with receiving care. The survey will take about 30 minutes to complete.


Participation is voluntary. You do not have to complete this survey. Refusing to complete this survey will not affect your RWHAP funding or status as a grantee. You may choose not to answer a question or to stop the survey at any point.

Your privacy. Protecting your privacy is very important to us. Any reports or data files produced using your data will not include your name. Your responses to our questions will be combined with those of other RWHAP provider sites in all reports. There is minimal risk of breach of confidentiality. We will not share information that identifies you or your site anyone outside the study team, except as required by law.

Thank you for your participation. We know your time is valuable. We believe that this information will be very important to understand the future directions of the RWHAP.

Consent. Please click on “Begin” if you agree to participate in this survey. You may skip questions on the survey or stop at any time <Begin button>

Questions. If you have questions about the study or your rights as a research participant, please feel free to contact the study director, Michael Costa, MPH of Abt Associates Inc. at 617-349-2873 or by email at [email protected]. If you have questions about your rights as a research participant, you may contact Katie Speanburg, the Abt Institutional Review Board Chairperson at (877) 520-6835.  



Survey Welcome and Start Page

Thank you for participating in this survey. We are interested in information you can provide based upon your professional experience providing services at your clinic. Below are some definitions to help clarify what is being asked in each of the questions.



Medicaid Expansion/Newly Eligible Medicaid - Expanded Medicaid eligibility to include persons with income levels at or below 138 percent of the FPL, without a disability determination from the Social Security Administration. For the purpose of this survey, this includes clients covered through 1115 waiver programs.



Marketplace Insurance/Qualified Health Plan (QHP): A health insurance plan that is approved by a Federal or State-run Marketplace:

  • Provides essential health benefits

  • Follow limits on how much of their own money people pay for services covered by the health plan, such as limits on deductibles, co-payments, and out-of-pocket maximum amounts

  • Meet other requirements, such as being a licensed insurer

  • A qualified health plan must be approved by each Marketplace in which it is sold

HIV-related medication: HIV medications include ARVs, and medications for opportunistic infections (A1-OI)



RWHAP Core Medical and Support Services: When this term is used in the questions below it refers to services that were provided using RWHAP funds, e.g. if a client received care similar to that provided in a RWHAP service, but that care was reimbursed by third party coverage, then you would not count that service. If any RWHAP funds were used to provide that care because it was not third-party reimbursable, then it would be counted as a RWHAP service. Use of RWHAP funds for a service would include supporting out of pocket costs, such as copays and deductibles.



Viral Suppression: Being virally suppressed is defined as having a viral load of less than 200 copies/mL at last viral load test.



Shape1

An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number.  The OMB control number for this project is XXXX-XXXX.  Public reporting burden for this collection of information is estimated to average 30 minutes per response, including the time for reviewing instructions, searching existing data sources, and completing and reviewing the collection of information. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to HRSA Reports Clearance Officer, 5600 Fishers Lane, Room 10-29, Rockville, Maryland, 20857.



Click to begin the survey <Survey Start>





  1. Integration of HIV and primary care services.



Please answer these questions based upon your professional experience providing services at your clinic.



    1. Which statement best describes the model of care utilized for RWHAP clients at your clinic? (Check one)


Check One

Exclusively primary care: Primary care provider is the lead provider for care of the patient’s HIV in providing most primary care and most HIV-related care; no specialist physician (HIV specialist or Infectious Disease (ID) physicians) provides any HIV care.


Primary care-dominant, co-management: Primary care provider provides majority of HIV-related care, and a specialist physician provides some HIV care (on or off-site).


Specialist-dominant, co-management: HIV specialist provides majority of HIV-related care, and a primary care provider provides some primary care (on or off-site).


Exclusively HIV specialist care: A HIV specialist provides all HIV-related care and primary care (non HIV care).






    1. Please select the level that best describes the extent of collaboration or integration of HIV services and primary care services for the RWHAP clients at your clinic. (Check one)


Levels of Collaboration or Integration1

Check One

Coordinated Care

Level 1Minimal Collaboration: HIV specialists and primary care providers work at separate facilities and have separate systems. Providers communicate rarely about cases. When communication occurs, it is usually based on a particular provider’s need for specific information about a mutual client.


Level 2Basic Collaboration at a Distance: HIV specialists and primary care providers maintain separate facilities and separate systems. Providers view each other as resources and communicate periodically about shared clients. These communications are typically driven by specific issues.


Co-Located Care

Level 3Basic Collaboration Onsite: HIV specialists and primary care providers are co-located in the same facility, but may or may not share the same practice space. Providers still use separate systems, but communication becomes more regular due to close proximity, especially by phone or email, with an occasional meeting to discuss shared clients. Movement of clients between practices is most often through a referral process that has a higher likelihood of success because the practices are in the same location.


Level 4Close Collaboration with Some System Integration: There is closer collaboration among primary care providers and HIV specialists due to co-location in the same practice space, and there is the beginning of integration in care through some shared systems. A typical model may involve a primary care setting embedding a HIV specialist. In an embedded practice, the primary care front desk schedules all appointments and the HIV specialist has access and enters notes in the medical record.


Integrated care

Level 5Close Collaboration Approaching an Integrated Practice: There are high levels of collaboration and integration between HIV specialists and primary care providers. The providers begin to function as a true team, with frequent personal communication. However, some issues, like the availability of an integrated medical record, may not be readily resolved. Providers understand the different roles team members need to play and they have started to change their practice and the structure of care to better achieve client goals.


Level 6Full Collaboration in a Transformed/Merged Practice: The highest level of integration involves the greatest amount of practice change. Fuller collaboration between providers has allowed antecedent system cultures (whether from two separate systems or from one evolving system) to blur into a single transformed or merged practice. Providers and clients view the operation as a single health system treating the whole person.




Heath B, Wise Romero P, and Reynolds K. A Standard Framework for Levels of Integrated Healthcare. Washington, D.C.SAMHSA-HRSA Center for Integrated Health Solutions. March 2013. Page 10 Table 1 or use text only page 6



    1. Is your clinic officially recognized or certified as a Patient Centered Medical Home (PCMH)?

  • Yes

  • No



  1. Staffing and team composition.



    1. Does your clinic use a team-based approach in providing HIV care for RWHAP clients in your clinic?

  • Yes

  • No (when selected, removes 2.2.c as option)



    1. Indicate the type and number of providers staffed at your clinic that provide care for RWHAP clients. (Column c. doesn’t appear if answer selected for 2.1 is “No.”)


Provider types at your clinic

  1. How many of each provider type at your clinic care for RWHAP clients? (enter # 0 to 25)

  1. Which of these is considered the primary provider for RWHAP clients? (select one only)

  1. Which providers make up the core team that manages HIV care for RWHAP clients?

Primary Care Physician (Board certified internal medicine, Family medicine)




HIV Specialist (MD), Infectious Disease Physician




Physician Assistant




Nurse Practitioner




Registered Nurse (RN)




Social Worker




Medical Case Manager




Case Manager




Outreach Worker




Peer Navigator/Coach




Pharmacist





Psychiatrist





Psychologist





Other Mental Health Clinician





Nutritionist/Registered Dietician





Psychiatrist





Substance Abuse Counselor/Addiction Specialist





Dentist





Dental Hygienist





Other (please specify)









  1. Provision of Non-HIV Specific Care



    1. Indicate from the following list, which of the following screenings and preventative services do you provide to your RWHAP clients on a routine basis?


Check all that apply

Hypertension


Other Cardiovascular Disease


Hepatitis C


Hepatitis B


Diabetes


Smoking Cessation

 

Routine Vaccination

 

Cervical Cancer Screening


Anal Cancer Screening


Mental Health


Substance Use


STI Screening




    1. Approximately what percentage of RWHAP clients do you treat in your clinic for the following clinical comorbidities?

Comorbidity

% RW clients treated in our clinic

Treatment for this condition is not offered in our clinic (Check if not offered)

Cardiovascular disease

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Percentage slide bar


Diabetes

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Percentage slide bar


Hepatitis B

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Percentage slide bar


Hepatitis C

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Percentage slide bar


Hyperlipidemia

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Percentage slide bar


Hypertension


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Percentage slide bar


Mental health disorders (e.g., anxiety)

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Percentage slide bar


Severe mental health disorders (e.g., major depressive disorder, schizophrenia, etc.)

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Percentage slide bar


Substance use disorders

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Percentage slide bar


STIs

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Percentage slide bar








  1. RWHAP Services and Overall Differential Impact of Healthcare coverage



    1. How many Individuals living with HIV does your clinic currently serve?________



    1. What percent of those individuals are eligible to receive RWHAP-funded services?__________





    1. From the following list, please indicate which of the following Ryan White HIV/AIDS Program service categories your clinic is funded to provide. [THIS WILL AUTO POPULATE THE CORE MEDICAL AND SUPPORT SERVICE CATEGORIES IN THE TABLES THAT FOLLOW.]


Pre January 1, 2014

Currently

RWHAP Core Medical Services (check all that apply)

Outpatient ambulatory medical care 



ADAP Drug Assistance Program



Early Intervention Services for Parts A and B



Health Insurance premium and cost sharing Assistance



Home and Community-Based Health Services



Home health Care



Hospice Services



Local AIDS Pharmaceutical Assistance



Medical case management services (including treatment adherence)



Medical Nutrition Therapy



Mental health services



Oral Health



Substance abuse services (outpatient)



RWHAP Support Services (check all that apply)

Case management services



Child care services



Pediatric developmental assessment/early intervention services



Emergency financial assistance



Food bank/home delivered meals



Health education/risk reduction



Housing services



Legal services



Linguistic services



Medical transportation services



Outreach services



Permanency planning



Psychosocial support services



Referral health care/support services



Rehabilitation services



Respite care



Substance Abuse Services – residential



Treatment adherence counseling





Please answer the questions below based on your experience and expert opinion as a Ryan White HIV/AIDS service provider.


Overall impact on RWHAP client health outcomes for those receiving new healthcare coverage available after January 1, 2014


    1. What is the overall impact on health outcomes for RWHAP clients receiving coverage through Medicaid expansion?




Very negative

Negative

Neither

Positive

Very Positive

HIV related health outcomes

 

 

 

 

 

Other primary care health outcomes

 

 

 

 

 



    1. What is the overall impact on health outcomes for RWHAP clients receiving coverage through marketplace insurance?




Very negative

Negative

Neither

Positive

Very Positive

HIV related health outcomes

 

 

 

 

 

Other primary care health outcomes

 

 

 

 

 



    1. Since January 1, 2014, which insurance-related factors have contributed the most negatively or positively to health outcomes for RWHAP clients receiving coverage through Medicaid expansion?


Insurance-Related Factors

Very negative

Negative

Neither

Positive

Very positive

Access to HIV services

 

 

 

 

 

Access to HIV Medications

 

 

 

 

 

Access to other primary care services/specialty care

 

 

 

 

 

Access to primary care medications (non-HIV)

 

 

 

 

 

Access to substance use services

 

 

 

 

 

Access to mental health services

 

 

 

 

 

Management of comorbidities

 

 

 

 

 

Gaps in care

 

 

 

 

 

Cost sharing

 

 

 

 

 

Prior authorizations

 

 

 

 

 

Insurer administrative requirements

 

 

 

 

 

Enrollment challenges

 

 

 

 

 

Lack of providers accepting insurance plan

 

 

 

 

 

Lack of HIV experienced providers

 

 

 

 

 

Lack of primary care physicians

 

 

 

 

 

Other _______

 

 

 

 

 


    1. Since January 1, 2014, which insurance-related factors have contributed the most negatively or positively to health outcomes for RWHAP clients receiving coverage through marketplace insurance?


Insurance-Related Factors

Very negative

Negative

Neither

Positive

Very positive

Access to HIV services

 

 

 

 

 

Access to HIV Medications

 

 

 

 

 

Access to other primary care services/specialty care

 

 

 

 

 

Access to primary care medications (non-HIV)

 

 

 

 

 

Access to substance use services

 

 

 

 

 

Access to Mental health services

 

 

 

 

 

Management of comorbidities

 

 

 

 

 

Gaps in care

 

 

 

 

 

Cost sharing

 

 

 

 

 

Prior authorizations

 

 

 

 

 

Insurer administrative requirements

 

 

 

 

 

Enrollment challenges

 

 

 

 

 

Lack of providers

 

 

 

 

 

Lack of HIV experienced providers

 

 

 

 

 

Lack of PCPs

 

 

 

 

 

Other _______

 

 

 

 

 





Healthcare system-level factors that have contributed the most to clients who received the greatest number and variety of RWHAP services and had the poorest health outcomes.

    1. Prior to January 1, 2014, which healthcare system-level factors contributed the most negatively or positively to the outcomes of clients who received the greatest number and variety of RWHAP services and had the poorest health outcomes?

System-Level Factors

Very negative

Negative

Neither

Positive

Very positive

Access to HIV services

 

 

 

 

 

Access to HIV Medications

 

 

 

 

 

Access to other primary care services/specialty care

 

 

 

 

 

Access to primary care medications (non-HIV)

 

 

 

 

 

Access to substance use services

 

 

 

 

 

Access to Mental health services

 

 

 

 

 

Management of comorbidities

 

 

 

 

 

Gaps in care

 

 

 

 

 

Cost sharing

 

 

 

 

 

Other _______

 

 

 

 

 



    1. After January 1, 2014, which healthcare system-level factors contributed the most negatively or positively to the outcomes of clients who received the greatest number and variety of RWHAP services and had the poorest health outcomes?

System-Level Factors

Very negative

Negative

Neither

Positive

Very positive

Access to HIV services

 

 

 

 

 

Access to HIV Medications

 

 

 

 

 

Access to other primary care services/specialty care

 

 

 

 

 

Access to primary care medications (non-HIV)

 

 

 

 

 

Access to substance use services

 

 

 

 

 

Access to Mental health services

 

 

 

 

 

Management of comorbidities

 

 

 

 

 

Gaps in care

 

 

 

 

 

Cost sharing

 

 

 

 

 

Other _______

 

 

 

 

 



  1. RWHAP Core Medical Services



    1. Prior to receiving their new healthcare coverage available after January 1, 2014, which RWHAP core medical services did your program provide most often to RWHAP clients?


Least Often

Not often

Neither

Often

Very often


Outpatient ambulatory medical care

 

 

 

 

 

ADAP Drug Assistance Program

 

 

 

 

 

Early Intervention Services for Parts A and B

 

 

 

 

 

Health Insurance premium and cost sharing Assistance

 

 

 

 

 

Home and Community-Based Health Services

 

 

 

 

 

Home health Care

 

 

 

 

 

Hospice Services

 

 

 

 

 

Local AIDS Pharmaceutical Assistance






Medical case management services (including treatment adherence)






Medical Nutrition Therapy






Mental health services






Oral Health






Health Insurance premium and cost sharing Assistance








    1. For clients who now have Medicaid-expansion coverage, which RWHAP core medical services does your program most commonly provide to them?



Very uncommonly

Uncommonly

Neither

Commonly

Very commonly

Outpatient ambulatory medical care

 

 

 

 

 

ADAP Drug Assistance Program

 

 

 

 

 

Early Intervention Services for Parts A and B

 

 

 

 

 

Health Insurance premium and cost sharing Assistance

 

 

 

 

 

Home and Community-Based Health Services

 

 

 

 

 

Home health Care

 

 

 

 

 

Hospice Services

 

 

 

 

 

Local AIDS Pharmaceutical Assistance

 

 

 

 

 

Medical case management services (including treatment adherence)

 

 

 

 

 

Medical Nutrition Therapy

 

 

 

 

 

Hospice Services

 

 

 

 

 

Local AIDS Pharmaceutical Assistance

 

 

 

 

 

Health Insurance premium and cost sharing Assistance

 

 

 

 

 







    1. For clients who now have marketplace insurance coverage, which RWHAP core medical services does your program most commonly provide to them?


Very uncommonly

Uncommonly

Neither


Commonly

Very

Commonly

Outpatient ambulatory medical care

 

 

 

 

 

ADAP Drug Assistance Program

 

 

 

 

 

Early Intervention Services for Parts A and B

 

 

 

 

 

Health Insurance premium and cost sharing Assistance

 

 

 

 

 

Home and Community-Based Health Services

 

 

 

 

 

Home health Care

 

 

 

 

 

Hospice Services

 

 

 

 

 

Local AIDS Pharmaceutical Assistance

 

 

 

 

 

Medical case management services (including treatment adherence)

 

 

 

 

 

Medical Nutrition Therapy

 

 

 

 

 

Mental health services

 

 

 

 

 

Oral Health

 

 

 

 

 

Substance abuse services (outpatient)

 

 

 

 

 


    1. Approximately what percentage of clients by insurance type receive(d) RWHAP core medical services from your organization pre-post January 1, 2014?

 

Pre January 1, 2014

Post January 1, 2014

Clients receiving Medicaid expansion coverage

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Percentage slide bar

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Percentage slide bar

Clients with insurance (including marketplace)

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Percentage slide bar

Shape15 0% 100%
Percentage slide bar

Uninsured clients

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Percentage slide bar

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Percentage slide bar


    1. Prior to January 1, 2014, what were the most common reasons that clients utilized the RWHAP core medical services you provided?


Reasons

Very

uncommon

Uncommon

Neither

Common

Very common


Lack of providers

 

 

 



Lack of experienced HIV providers

 

 

 



Lack of PCPs

 

 

 



Lack of insurance

 

 

 



Unable to access HIV medications

 

 

 





    1. Since January 1, 2014, what were the most common reasons that your clinic provided RWHAP core medical services for Medicaid expansion covered clients?


Reasons

Very

uncommon

Uncommon

Neither

Common

Very common


Change in Medicaid coverage

 





Medicaid enrollment backlog

 





Denied access to specific HIV medications

 





Service coverage limits

 





Lack of providers

 





Lack of experienced HIV providers

 





Lack of primary care providers

 





Lack of/insufficient medical case management

 





Lack of oral health care

 





Lack of medical nutrition therapy

 





Lack of/ insufficient mental health services

 





Lack of/insufficient substance abuse services

 





Client cost for co-pays






Client cost for deductibles






Client cost for premiums







    1. Since January 1, 2014, how common were the following reasons for providing RWHAP core medical services for marketplace insurance covered clients?


Factors

Very

uncommon

Uncommon

Neither

Common

Very common


Change in Medicaid coverage

 





Medicaid enrollment backlog

 





Denied access to specific HIV medications

 





Service coverage limits

 





Lack of providers

 





Lack of experienced HIV providers

 





Lack of primary care provides

 





Lack of/insufficient Medical case management

 





Lack of oral health care

 





Lack of medical nutrition therapy

 





Lack of/insufficient mental health services

 





Lack of/insufficient substance abuse services

 





Client cost for co-pays






Client cost for deductibles






Client cost for premiums












  1. Pharmaceutical Services



    1. What challenges to accessing pharmacy services or HIV-related medication did RWHAP clients report experiencing prior to and after January 1, 2014? Select all that apply.



Prior to January 1, 2014

After January 1, 2014

Clients receiving

coverage through:

Medicaid expansion

Marketplace insurance

No significant challenges

 

 


Changes to formularies

 

 


Prior authorizations

 

 


Pharmacy type required by insurer

 

 


Client co-pay/deductions for medications

 

 


Denials of specific HIV medications, Select all:

 

 


Tivicay

 

 


Stribild

 

 


Truvada

 

 


Egrifta

 

 


Other______






    1. What is your estimate of the percentage of clients enrolled in new healthcare coverage available after January 1, 2014 that experienced a change in coverage for obtaining HIV medications at any point in the past year?


Clients receiving Medicaid expansion coverage

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Percentage slide bar

Clients with insurance (including marketplace insurance)

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Percentage slide bar


    1. For most clients who were enrolled in Medicaid expansion coverage and became dis-enrolled, what were the main reasons for this change?


Not a common reason

Least common reason

Most common reason

Change in income




Change in state residence

 

 

 

Other_______

 

 

 


    1. For most clients who became enrolled in Medicaid through expansion coverage, how negatively or positively did it impact their ability to obtain their currently prescribed medications?


Very negative

Negative

Neither

Positive

Very positive

Access to prescribed HIV medications

 

 

 

 

 

Change in HIV medications

 

 

 

 

 

Gaps in Medication treatment

 

 

 

 

 

Other ______








    1. For most clients who became dis-enrolled from Medicaid expansion coverage, how negatively or positively did it impact their ability to obtain their currently prescribed medications?


Very negative

Negative

Neither

Positive

Very positive

Access to prescribed HIV medications

 

 

 

 

 

Change in HIV medications

 

 

 

 

 

Gaps in Medication treatment

 

 

 

 

 

Other ______







    1. For most clients who were enrolled in marketplace insurance and became dis-enrolled, what were the main reasons for this change?


Not a common reason

Least common reason

Most common reason

Change in income




Change in state residence

 

 

 

Nonpayment of insurance premium




Other_______

 

 

 


    1. For most clients who became newly enrolled in marketplace insurance, how negatively or positively did it impact their HIV medication treatment?


Very negative

Negative

Neither

Positive

Very positive

Access to prescribed HIV medications

 

 

 

 

 

Change in HIV medications

 

 

 

 

 

Gaps in Medication treatment

 

 

 

 

 

Other ______







    1. For most clients who became dis-enrolled from marketplace insurance, how negatively or positively did it impact their HIV medication treatment?



Very negatively

Negatively

Neither

Positively

Very positively

Gaps in Medication treatment

 

 

 

 

 

Change in HIV medications

 

 

 

 

 

Access to prescribed HIV medications

 

 

 

 

 

Change in HIV regimen

Add a row for other

 

 

 

 

 



  1. RWHAP Support Services



    1. Prior to receiving their new healthcare coverage available after January 1, 2014, which RWHAP support services did your RWHAP program provide most commonly to RWHAP clients?



Very uncommonly


Uncommonly

Neither

Commonly

Very common

Case management services

 

 

 

 

 

Child care services

 

 

 

 

 

Pediatric developmental assessment/early intervention services

 

 

 

 

 

Emergency financial assistance

 

 

 

 

 

Food bank/home delivered meals

 

 

 

 

 

Health education/risk reduction

 

 

 

 

 

Housing services






Legal services






Linguistic services

 

 

 

 

 

Medical transportation services

 

 

 

 

 

Outreach services

 

 

 

 

 

Permanency planning

 

 

 

 

 

Psychosocial support services

 

 

 

 

 

Referral health care/support services

 

 

 

 

 

Rehabilitation services

 

 

 

 

 

Respite care

 

 

 

 

 

Substance Abuse Services – residential

 

 

 

 

 

Treatment adherence counseling

 

 

 

 

 


    1. For clients who now have Medicaid-expansion coverage, which RWHAP support services does your program most commonly provide to them?



Very Uncommonly

Uncommonly

Neither

Common

Very Common

Case management services

 

 

 

 

 

Child care services

 

 

 

 

 

Pediatric developmental assessment/early intervention services

 

 

 

 

 

Emergency financial assistance

 

 

 

 

 

Food bank/home delivered meals

 

 

 

 

 

Health education/risk reduction

 

 

 

 

 

Housing services

 

 

 

 

 

Legal services

 

 

 

 

 

Linguistic services

 

 

 

 

 

Medical transportation services

 

 

 

 

 

Outreach services

 

 

 

 

 

Permanency planning

 

 

 

 

 

Psychosocial support services

 

 

 

 

 

Referral health care/support services

 

 

 

 

 

Rehabilitation services

 

 

 

 

 

Respite care

 

 

 

 

 

Substance Abuse Services – residential






Treatment adherence counseling







    1. For clients who now have marketplace insurance coverage, which RWHAP support services does your program most commonly provide to them?


Very Uncommonly

Uncommonly

Neither

Common

Very Common

Case management services

 

 

 

 

 

Child care services

 

 

 

 

 

Pediatric developmental assessment/early intervention services

 

 

 

 

 

Emergency financial assistance

 

 

 

 

 

Food bank/home delivered meals

 

 

 

 

 

Health education/risk reduction

 

 

 

 

 

Housing services

 

 

 

 

 

Legal services

 

 

 

 

 

Linguistic services

 

 

 

 

 

Medical transportation services

 

 

 

 

 

Outreach services

 

 

 

 

 

Permanency planning

 

 

 

 

 

Psychosocial support services

 

 

 

 

 

Referral health care/support services

 

 

 

 

 

Rehabilitation services

 

 

 

 

 

Respite care

 

 

 

 

 

Substance Abuse Services – residential







    1. Overall, prior to January 1, 2014, what was the level of availability of RWHAP support services?


Support Service

Very

unavailable

Unavailable

Neither


Available

Very Available

Support services were available primarily through RWHAP

 

 

 

 

 

Support services were available through other community organizations

 

 

 

 

 

Support services were available through a combination of RWHAP providers and community organizations

 

 

 

 

 

Support services were limited

 

 

 

 

 

Community organizations providing services were limited

 

 

 

 

 

RWHAP providers with support services were limited

 

 

 

 

 

Gaps remain in the availability of support services









    1. Since January 1, 2014, how negatively or positively have healthcare system-level factors impacted the availability of RWHAP support services?


System-Level Factors

Very negative

Negative

Neither

Positive

Very positive

Shift in RWHAP funding from support services to insurance premium and copay assistance

 





Change in funded RWHAP support services

 





RWHAP support service funds decreased

 





RWHAP support services funds increased






RWHAP support services level-funded but there is increased need

 





Increased demand for specific support services and thus more limited access

 









    1. If RWHAP support services were not available, what kind of impact would it have on clients?



Strongly Disagree

Disagree

Neither

Agree

Strongly Agree

Clients wouldn’t access their HIV healthcare






Clients would have a harder time accessing their HIV healthcare

 





Clients would lose support that helps them stay in HIV care

 





Clients wouldn’t access other support services

 





Clients wouldn’t be linked to community services

 





Clients wouldn’t maintain HIV viral suppression

 





Other_______









  1. Viral Suppression



Please answer these questions based upon your professional experience providing services at your clinic.



    1. Which of the following barriers or challenges have the most impact on an individual’s ability to achieve and maintain viral suppression?




Drag and drop barriers into ranking from 1 to 5.

1 being the barrier that impacts most.

Shape20


Side effects from HIV medications



Lack of access to medication, if selected, select:

    • Formulary restrictions

    • Co-pay costs

    • Insurance premium costs

    • Limits on number of prescriptions permitted

    • Changes in formulary



Lack of behavioral health providers (mental health, substance use disorder providers)


1

Lack of peer support or supportive social networks


2

Lack of specialty care providers


3

Lack of support service providers


4

Mental health disorders


5

Cognitive impairment



Substance use



Unstable housing/sub-standard living conditions



Access to technology (internet; phone)



Criminal justice issues



Distrust of healthcare system



Food insecurity or access to food



Health literacy issues



Language



Socioeconomic conditions



Stigma



Transportation



Trauma



Unstable Employment



Other, Specify:







    1. Which RWHAP core medical services contribute the most to a client’s ability to achieve HIV viral suppression?



Drag and drop services into ranking from 1 to 5.

1 being the service that contributes most.

Shape21


Outpatient ambulatory medical care



ADAP Drug Assistance Program



Early Intervention Services for Parts A and B


1

Health Insurance premium and cost sharing Assistance


2

Home and Community-Based Health Services


3

Home health Care


4

Hospice Services


5

Local AIDS Pharmaceutical Assistance



Medical case management services (including treatment adherence)



Medical Nutrition Therapy



Mental health services



Oral Health



Substance abuse services (outpatient)




    1. Prior to and since January 1, 2014, which RWHAP support services contribute(d) the most to clients achieving HIV viral suppression? Select by dragging and dropping the top 5, with 1 being contributed the most and 5 being contributed the fifth most.



Drag and drop services into ranking from 1 to 5.

1 being the service that contributes most.

Shape22


Case management services



Child care services



Pediatric developmental assessment/early intervention services


1

Emergency financial assistance


2

Food bank/home delivered meals


3

Health education/risk reduction


4

Legal services


5

Housing services



Legal services



Linguistic services



Medical transportation services



Outreach services



Permanency planning



Psychosocial support services



Referral health care/support services



Rehabilitation services



Respite care



Substance Abuse Services – residential



Treatment adherence counseling




    1. For clients who are now virally suppressed and previously had challenges and barriers to treatment adherence and viral suppression, which strategies did you (your clinic) employ that resulted in clients reaching viral suppression? Select by dragging and dropping the top 5 strategies with 1 being the strategy that contributes the most.




Drag and drop strategies into ranking from 1 to 5.

1 being the strategy that contributes most.

Shape23


Accompanied client to appointments (medical, behavioral health)



Assisted with making appointments (medical, behavioral health, community services)



Immediate access to appointment with provider – same day


1

Access to appointment with provider – same week


2

Changed ARV regimen, if selected, select

o Changed to mono ARV regimen

o Changed to dual ARV regimen

o Changed to triple ARV regimen


3

Check ins via email, phone, text


4

Counseling


5

Dedicated pharmacist



Developed and disseminated print resources on treatment adherence to medications



Intensive case management (client check-ins, calls, appointment reminders, follow up)



Linkage to community services for housing



Linkage to community services for legal assistance



Linkage to food pantry



Medication reminders, if selected, select

o Text reminders

o Dosage reminders

o Prescription fill reminders

o Daily reminders



Client navigator assistance



Peer counseling



Provided stipends or incentives to clients



Transportation assistance



Other, specify:







8.5 Thinking of the majority of your clients, have you been more successful in achieving viral suppression with clients diagnosed:


Select one

In the past 6 months


In the past year


Greater than one year since diagnosis


Two or more years since diagnosis




    1. Which comorbidities most adversely affect a client’s ability to achieve/sustain viral suppression? Select by dragging and dropping the top 5 comorbidities with 1 being the comorbidity that most adversely affects the client’s ability to achieve viral suppression.




Drag and drop comorbidities into ranking from 1 to 5.

1 being the comorbidity that most adversely affects client’s ability to achieve viral suppression.

Shape24


Bipolar disorder



Cardiovascular disease



Diabetes


1

Hepatitis B


2

Hepatitis C


3

Hypertension


4

Hyperlipidemia


5

Mental health disorder



Severe mental health disorder



Opportunistic infections



Renal disease



STIs



Substance use disorders













    1. For clients who refused ARV therapy and are now receiving it, what are the most important factors that positively impacted their decision to accept ARV treatment? Select by dragging and dropping the top 5 factors with 1 being the most important factor.



System-level Factors

Drag and drop factors into ranking from 1 to 5.

1 being the most important factor.

Shape25


Co-pay assistance



Deductible assistance



Insurance premium assistance


1

Access to HIV Medications


2

Access to primary care services


3

Access to mental health services


4

Access to specialty care services


5

Access to substance use services



Access to support services



Transportation assistance





Personal Factors

Drag and drop factors into ranking from 1 to 5.

1 being the most important factor.

Shape26


Stable primary relationship



Stable employment



Stable support system


1

Mental health issues stabilized


2

Substance use issues improved


3

Stable housing


4

Stable transportation


5

Legal issues resolved or improved



Improvement in financial stability



Improvement in care for comorbidities







    1. For clients who are not virally suppressed, what are the top 3 unavailable or very limited services in your organization or service area that are critical to clients achieving viral suppression (healthcare services, support services, RWHAP services)?

  1. (TEXT BOX)

  2. (TEXT BOX)

  3. (TEXT BOX)



    1. Which successful re-engagement strategies for clients who fell out of care or experienced a disruption in care did your organization successfully employ? Select by dragging and dropping the top 5 successful re-engagement strategies with 1 being the most successful.




Drag and drop factors into ranking from 1 to 5.

1 being the most successful strategy.

Shape27


Adherence Specialists



HIV services in jail



In reach


1

Motivational Interviewing


2

Outreach specialists


3

Client Navigators


4

Peer Counselors


5

Retention Specialists



Street/Social outreach



Use of surveillance data



Utilization of performance measures



Other (TEXT BOX)







    1. Thinking about clients who’ve struggled with maintaining viral suppression, which social determinant factors contributed the most to their inability to achieve viral suppression? Select by dragging and dropping the top 5 social determinant factors with 1 being the factor that contributes most.




Drag and drop factors into ranking from 1 to 5.

1 being the factor that contributes most.

Shape28


Access to employment



Access to technology (internet; phone)



Criminal justice issues



Distrust of healthcare system



Education Level



Food insecurity or access to food


1

Health literacy issues


2

Language – English is not primary language


3

Living conditions are sub-standard (number of residents in small space; access to bathrooms/kitchens is inadequate; presence of trash, etc.)


4

Safety issues (in neighborhood, home, area)


5

Socioeconomic conditions (e.g., concentrated poverty and the stressful conditions that accompany it)



Stigma related to HIV



Transportation



Trauma



Unstable employment



Unstable housing



Unsupportive social/support network






10


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AuthorDiane Fraser
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File Created2021-01-22

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