Autism CARES Public Law

Attachment A.
Autism CARES Public Law

[113th Congress Public Law 157]

[From the U.S. Government Printing Office]

[[Page 128 STAT. 1831]]

Public Law 113-157

113th Congress

An Act

To reauthorize certain provisions of the Public Health Service Act

relating to autism, and for other purposes. <<NOTE: Aug. 8,

2014 - [H.R. 4631]>>

Be it enacted by the Senate and House of Representatives of the

United States of America in Congress assembled, <<NOTE: Autism

Collaboration, Accountability, Research, Education, and Support Act of

2014. 42 USC 201 note. 42 USC 280i note. Consultation.>>

SECTION 1. SHORT TITLE.

This Act may be cited as the ``Autism Collaboration, Accountability,

Research, Education, and Support Act of 2014'' or the ``Autism CARES Act

of 2014''.

SEC. 2. NATIONAL AUTISM SPECTRUM DISORDER INITIATIVE.

(a) In General.--The Secretary of Health and Human Services shall

designate an existing official within the Department of Health and Human

Services to oversee, in consultation with the Secretaries of Defense and

Education, national autism spectrum disorder research, services, and

support activities.

(b) Duties.--The official designated under subsection (a) shall--

(1) implement autism spectrum disorder activities, taking

into account the strategic plan developed by the Interagency

Autism Coordinating Committee under section 399CC(b) of the

Public Health Service Act (42 U.S.C. 280i-2(b)); and

(2) ensure that autism spectrum disorder activities of the

Department of Health and Human Services and of other Federal

departments and agencies are not unnecessarily duplicative.

SEC. 3. RESEARCH PROGRAM.

Section 399AA of the Public Health Service Act (42 U.S.C. 280i) is

amended--

(1) in subsection (a)(1), by inserting ``for children and

adults'' after ``reporting of State epidemiological data'';

(2) in subsection (b)(1)--

(A) by striking ``establishment of regional centers

of excellence'' and inserting ``establishment or support

of regional centers of excellence''; and

(B) by inserting ``for children and adults'' before

the period at the end;

(3) in subsection (b)(2), by striking ``center to be

established'' and inserting ``center to be established or

supported''; and

(4) in subsection (e), by striking ``2014'' and inserting

``2019''.

SEC. 4. AUTISM INTERVENTION.

Section 399BB of the Public Health Service Act (42 U.S.C. 280i-1) is

amended--

[[Page 128 STAT. 1832]]

(1) in subsection (b)(1), by inserting ``culturally

competent'' after ``provide'';

(2) in subsection (c)(2)(A)(ii), by inserting ``(which may

include respite care for caregivers of individuals with an

autism spectrum disorder)'' after ``services and supports'';

(3) in subsection (e)(1)(B)(v), by inserting before the

semicolon the following: ``, which may include collaborating

with research centers or networks to provide training for

providers of respite care (as defined in section 2901)'';

(4) in subsection (f), by striking ``grants or contracts''

and all that follows through ``for individuals with'' and

inserting ``grants or contracts, which may include grants or

contracts to research centers or networks, to determine the

evidence-based practices for interventions to improve the

physical and behavioral health of individuals with''; and

(5) in subsection (g), by striking ``2014'' and inserting

``2019''.

SEC. 5. INTERAGENCY AUTISM COORDINATING COMMITTEE.

Section 399CC of the Public Health Service Act (42 U.S.C. 280i-2) is

amended--

(1) in subsection (b)--

(A) in paragraph (1)--

(i) by striking ``and annually update''; and

(ii) by striking ``intervention'' and

inserting ``interventions, including school and

community-based interventions'';

(B) by striking paragraph (2);

(C) by redesignating paragraph (1) as paragraph (2),

and inserting before such redesignated paragraph the

following:

``(1) monitor autism spectrum disorder research, and to the

extent practicable services and support activities, across all

relevant Federal departments and agencies, including

coordination of Federal activities with respect to autism

spectrum disorder;'';

(D) in paragraph (3), by striking ``recommendations

to the Director of NIH'';

(E) in paragraph (4), by inserting before the

semicolon the following: ``, and the process by which

public feedback can be better integrated into such

decisions''; and

(F) by striking paragraphs (5) and (6) and inserting

the following:

``(5) <<NOTE: Strategic plan.>> develop a strategic plan

for the conduct of, and support for, autism spectrum disorder

research, including as practicable for services and supports,

for individuals with an autism spectrum disorder and the

families of such individuals, which shall include--

``(A) proposed budgetary requirements; and

``(B) recommendations to ensure that autism spectrum

disorder research, and services and support activities

to the extent practicable, of the Department of Health

and Human Services and of other Federal departments and

agencies are not unnecessarily duplicative; and

``(6) submit to Congress and the President--

``(A) an annual update on the summary of advances

described in paragraph (2); and

[[Page 128 STAT. 1833]]

``(B) an annual update to the strategic plan

described in paragraph (5), including any progress made

in achieving the goals outlined in such strategic

plan.'';

(2) in subsection (c)--

(A) in paragraph (1)--

(i) by striking the paragraph designation, the

heading, and the matter preceding subparagraph (A)

and inserting the following:

``(1) Federal membership.--The Committee shall be composed

of the following Federal members--'';

(ii) in subparagraph (C)--

(I) by inserting ``, such as the

Administration for Community Living,

Administration for Children and

Families, the Centers for Medicare &

Medicaid Services, the Food and Drug

Administration, and the Health Resources

and Services Administration'' before the

semicolon at the end; and

(II) by adding at the end ``and'';

(iii) in subparagraph (D)--

(I) by inserting ``and the

Department of Defense'' after

``Department of Education''; and

(II) by striking at the end ``;

and'' and inserting a period; and

(iv) by striking subparagraph (E);

(B) in paragraph (2)--

(i) in the paragraph heading, by striking

``Additional'' and inserting ``Non-federal'';

(ii) in the matter preceding subparagraph (A),

by striking ``Not fewer than 6 members of the

Committee, or \1/3\ of the total membership of the

Committee, whichever is greater'' and inserting

``Not more than \1/2\, but not fewer than \1/3\,

of the total membership of the Committee'';

(iii) in subparagraph (A), by striking ``one

such member shall be an individual'' and inserting

``two such members shall be individuals'';

(iv) in subparagraph (B), by striking ``one

such member shall be a parent or legal guardian''

and inserting ``two such members shall be parents

or legal guardians''; and

(v) in subparagraph (C), by striking ``one

such member shall be a representative'' and

inserting ``two such members shall be

representatives''; and

(C) by adding at the end the following:

``(3) Period of appointment; vacancies.--

``(A) Period of appointment for non-federal

members.--Non-Federal members shall serve for a term of

4 years, and may be reappointed for one or more

additional 4-year terms.

``(B) Vacancies.--A vacancy on the Committee shall

be filled in the manner in which the original

appointment was made and shall not affect the powers or

duties of the Committee. Any member appointed to fill a

vacancy for an unexpired term shall be appointed for the

remainder of such term. A member may serve after the

expiration

[[Page 128 STAT. 1834]]

of the member's term until a successor has been

appointed.'';

(3) in subsection (d)--

(A) by striking paragraph (2); and

(B) by redesignating paragraphs (3) and (4) as

paragraphs (2) and (3), respectively; and

(4) in subsection (f), by striking ``2014'' and inserting

``2019''.

SEC. 6. REPORTS.

Section 399DD of the Public Health Service Act (42 U.S.C. 280i-3) is

amended--

(1) in the section heading, by striking ``report'' and

inserting ``reports'';

(2) in subsection (b), by redesignating paragraphs (1)

through (9) as subparagraphs (A) through (I), respectively, and

realigning the margins accordingly;

(3) by redesignating subsections (a) and (b) as paragraphs

(1) and (2), respectively, and realigning the margins

accordingly;

(4) by inserting after the section heading the following:

``(a) Progress Report.--'';

(5) in subsection (a)(1) (as so redesignated)--

(A) by striking ``2 years after the date of

enactment of the Combating Autism Reauthorization Act of

2011'' and inserting ``4 years after the date of

enactment of the Autism CARES Act of 2014'';

(B) by inserting ``and the Secretary of Defense''

after ``the Secretary of Education''; and

(C) by inserting ``, and make publicly available,

including through posting on the Internet Web site of

the Department of Health and Human Services,'' after

``Representatives''; and

(6) in subsection (a)(2) (as so redesignated)--

(A) in subparagraph (A), (as so redesignated), by

striking ``Combating Autism Act of 2006'' and inserting

``Autism CARES Act of 2014'';

(B) in subparagraph (B) (as so redesignated), by

striking ``particular provisions of Combating Autism Act

of 2006'' and inserting ``amendments made by the Autism

CARES Act of 2014'';

(C) by striking subparagraph (C) (as so

redesignated), and inserting the following:

``(C) information on the incidence and prevalence of

autism spectrum disorder, including available

information on the prevalence of autism spectrum

disorder among children and adults, and identification

of any changes over time with respect to the incidence

and prevalence of autism spectrum disorder;'';

(D) in subparagraph (D) (as so redesignated), by

striking ``6-year period beginning on the date of

enactment of the Combating Autism Act of 2006'' and

inserting ``4-year period beginning on the date of

enactment of the Autism CARES Act of 2014 and, as

appropriate, how this age varies across population

subgroups'';

(E) in subparagraph (E) (as so redesignated), by

striking ``6-year period beginning on the date of

enactment of the Combating Autism Act of 2006'' and

inserting ``4-year period beginning on the date of

enactment of the

[[Page 128 STAT. 1835]]

Autism CARES Act of 2014 and, as appropriate, how this

age varies across population subgroups'';

(F) in subparagraph (F) (as so redesignated), by

inserting ``and, as appropriate, on how such average

time varies across population subgroups'' before the

semicolon at the end;

(G) in subparagraph (G) (as so redesignated)--

(i) by striking ``including by various

subtypes,'' and inserting ``including by severity

level as practicable,''; and

(ii) by striking ``child may'' and inserting

``child or other factors, such as demographic

characteristics, may''; and

(H) by striking subparagraph (I) (as so

redesignated), and inserting the following:

``(I) a description of the actions taken to

implement and the progress made on implementation of the

strategic plan developed by the Interagency Autism

Coordinating Committee under section 399CC(b).''; and

(7) by adding at the end the following new subsection:

``(b) Report on Young Adults and Transitioning Youth.--

``(1) In general.--Not later than 2 years after the date of

enactment of the Autism CARES Act of 2014, the Secretary of

Health and Human Services, in coordination with the Secretary of

Education and in collaboration with the Secretary of

Transportation, the Secretary of Labor, the Secretary of Housing

and Urban Development, and the Attorney General, shall prepare

and submit to the Committee on Health, Education, Labor, and

Pensions of the Senate and the Committee on Energy and Commerce

of the House of Representatives, a report concerning young

adults with autism spectrum disorder and the challenges related

to the transition from existing school-based services to those

services available during adulthood.

``(2) Contents.--The report submitted under paragraph (1)

shall contain--

``(A) demographic characteristics of youth

transitioning from school-based to community-based

supports;

``(B) an overview of policies and programs relevant

to young adults with autism spectrum disorder relating

to post-secondary school transitional services,

including an identification of existing Federal laws,

regulations, policies, research, and programs;

``(C) proposals on establishing best practices

guidelines to ensure--

``(i) interdisciplinary coordination between

all relevant service providers receiving Federal

funding;

``(ii) coordination with transitioning youth

and the family of such transitioning youth; and

``(iii) inclusion of the individualized

education program for the transitioning youth, as

prescribed in section 614 of the Individuals with

Disabilities Education Act (20 U.S.C. 1414);

``(D) comprehensive approaches to transitioning from

existing school-based services to those services

available during adulthood, including--

[[Page 128 STAT. 1836]]

``(i) services that increase access to, and

improve integration and completion of, post-

secondary education, peer support, vocational

training (as defined in section 103 of the

Rehabilitation Act of 1973 (29 U.S.C. 723)),

rehabilitation, self-advocacy skills, and

competitive, integrated employment;

``(ii) community-based behavioral supports and

interventions;

``(iii) community-based integrated residential

services, housing, and transportation;

``(iv) nutrition, health and wellness,

recreational, and social activities;

``(v) personal safety services for individuals

with autism spectrum disorder related to public

safety agencies or the criminal justice system;

and

``(vi) evidence-based approaches for

coordination of resources and services once

individuals have aged out of post-secondary

education; and

``(E) proposals that seek to improve outcomes for

adults with autism spectrum disorder making the

transition from a school-based support system to

adulthood by--

``(i) increasing the effectiveness of programs

that provide transition services;

``(ii) increasing the ability of the relevant

service providers described in subparagraph (C) to

provide supports and services to underserved

populations and regions;

``(iii) increasing the efficiency of service

delivery to maximize resources and outcomes,

including with respect to the integration of and

collaboration among services for transitioning

youth;

``(iv) ensuring access to all services

necessary to transitioning youth of all

capabilities; and

``(v) encouraging transitioning youth to

utilize all available transition services to

maximize independence, equal opportunity, full

participation, and self-sufficiency.''.

SEC. 7. AUTHORIZATION OF APPROPRIATIONS.

Section 399EE of the Public Health Service Act (42 U.S.C. 280i-4) is

amended--

(1) in subsection (a), by striking ``fiscal years 2012

through 2014'' and inserting ``fiscal years 2015 through 2019'';

(2) in subsection (b), by striking ``fiscal years 2011

through 2014'' and inserting ``fiscal years 2015 through 2019'';

and

[[Page 128 STAT. 1837]]

(3) in subsection (c), by striking ``$161,000,000 for each

of fiscal years 2011 through 2014'' and inserting ``$190,000,000

for each of fiscal years 2015 through 2019''.

Approved August 8, 2014.

LEGISLATIVE HISTORY--H.R. 4631:

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HOUSE REPORTS: No. 113-490 (Comm. on Energy and Commerce).

CONGRESSIONAL RECORD, Vol. 160 (2014):

June 24, considered and passed House.

July 31, considered and passed Senate.