Summary of ERB-requested changes

Attachment 2h - Summary of ERB requested changes to text in participant materials

We changed text to the following language in two sections in the NHANES Confidentiality Brochure:

Section “The Pledge”

“Anyone working on the NHANES must sign a pledge. As specified in this written pledge,

disclosing your private information is punishable by law.”

Section “Other ways we protect your Privacy”

“NCHS and NHANES have a strong record for maintaining privacy during data collection processing.”

We added the phrase in red to the NHANES laboratory tests on blood brochure:

Below are brief descriptions of reportable blood tests you may have had as part of the National Health and Nutrition Examination Survey. ‘

We added the word in red and a comma to the NHANES overview brochure: “An advanced secure computer system using high-end servers, desktop PCs, and wide-area networking, collect and process all of the NHANES data, nearly eliminating the need for paper forms and manual coding operations.

We added the phrase in red to the NHANES Examination Consent Brochure:

“When we share data with our partners to help prepare and process the data, we do so in a way that protects your privacy as required by law.”

We added the phrase in red to the NHANES Examination Assent Brochure:

“We will take your blood and have you pee in a cup.”

We added the phrase in red to the NHANES Consent/Assent and Parental Permission for Specimen Storage:

“Since testing of specimens will be done only for research purposes, the NHANES program will not contact you or your family with results from these future studies.

On the authorization for transportation form, we changed all references to the “CDC health survey” to the “CDC-NCHS health survey”

We will update all flyers or outreach materials that give examples of NHANES data findings or uses with the most recent NHANES publically available data.