Letter to Mother - English

Attachment 16 – Letter to the Mother
July 21, 2017

«motherfirstname» «motherlastname»
«address1»
«address2»
«city», «state» «zip»

Dear Ms. «motherlastname»,
We are contacting you because your child, «patientfirstname» «patientlastname», was identified by the state where «heshe»
was born as a person born with a heart condition. We have been trying to reach «patientfirstname» to invite «himher» to take
part in the Congenital Heart Survey To Recognize Outcomes, Needs, and well-beinG (CH STRONG), a survey to examine the
healthcare needs of people born with heart conditions. This project is being conducted by the Arkansas Center for Birth
Defects Research and Prevention, Centers for Disease Control and Prevention (CDC), and the March of Dimes. To learn more
about this project, you can visit www.chstrong.org
We have not been able to successfully contact your child and would like to ask for your help reaching «himher». Information
from this survey will help us identify unmet needs of adults born with a heart condition. None of your child’s answers will be
linked to «hisher» name, nor will «hisher» name ever be released as having a heart condition, having completed the survey, or
having been asked to participate. If your child is physically or mentally unable to complete the survey, you may complete the
survey for «himher».
If you would like to provide us with your child’s contact information, please return the enclosed contact information form in
the postage paid envelop, or contact the CH STRONG Project Manager at [email protected] or (877) 662-4567.
Across the country, thousands of people born with a heart condition are taking part in this survey. Everyone’s answers are
important to us and will add to what we learn about how heart conditions affect adults. The findings from the survey will help
current adults who were born with heart conditions and the future lives of children born with heart conditions.
If we have contacted you in error and this is not your child, your child was not born with a heart condition, or your child is
deceased, please contact the CH STRONG Project Manager at [email protected] or (877) 662-4567 so that we can
update our records.
Thank you for providing this important information.

Sherry L. Farr, PhD
National Center on Birth Defects and Developmental Disabilities, CDC

Enclosures
Contact information form
Postage paid envelope

To learn more about this project, you can visit www.chstrong.org.
Si desea llenar la encuesta en Español, favor de enviar un correo electrónico a [email protected] o llamar al (877) 662-4567.