Participant Information Sheet Eng

Form Approved

OMB No. 0920-0800

Exp. Date 10/31/2021

Attachment H:

Participant Information Sheet

Participant Information Sheet

Purpose of the Project

The purpose of this project is to understand young women’s knowledge, attitudes, and beliefs regarding breast health and breast cancer risk. We will ask you questions about what you know and where you go for information about breast cancer, what facilitators or barriers you encounter, as well as your opinions on the health information, online tools, and resources that are most needed to support young women like you. This project is being conducted by the U.S. Department of Health and Human Services (HHS) Centers for Disease Control and Prevention (CDC). Representatives from Hager Sharp will conduct the focus groups on behalf of CDC.

Description of Procedures

If you agree to participate in this project, you will be provided with a date, time, and location to take part in a small group discussion with 8-10 other women. During this focus group, a skilled moderator will use a guide to lead all participants through a series of questions for discussion. The discussion will last about 90 minutes and will be audio and video recorded. To thank you for your time, you will receive a $75 cash compensation.

Risks

Some questions in this focus group deal with health issues and your experiences, and these questions may be upsetting to some people. You may choose to skip any question for any reason.

Benefits

There are no direct benefits to you as a participant in this project. However, your participation will help CDC understand young women’s perceptions about and experiences with breast health and breast cancer risk, as well as help us determine the best health information tools needed to support the breast health of young women.

Confidentiality and Privacy

The information you give us will be kept private to the extent required by law. The personal information and identifiable information recorded to schedule the focus group will be kept with Hager Sharp. To protect your privacy, we will keep your discussion transcript under a code number instead of your name. The project staff will keep a link to you and your coded information that will be secured and available only to a limited number of staff. We will keep your records in locked files, and only project staff will be allowed to look at them. Your name and other facts that point to you (such as your email address and phone number) will never appear in any report or presentation.

Voluntary Participation and Withdrawal

You are free to choose not to take part in this project. You may stop participating at any time, for any reason.

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