Birth Defects Prevalence

Environmental Public Health Tracking Network (Tracking Network)

Att4a_BirthDefectsPrevalence_2019_clean

Birth Defects Prevelance Form

OMB: 0920-1175

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Form Approved

OMB No. 0920-1175

Exp. Date 04/30/2020









Data Dictionary for Data Submission


Birth Defects


National Environmental Public Health Tracking Network


Characteristic

Description

Data Source

State Birth Defects Registries

Purpose

This data set will be used to calculate the nationally consistent data and measures (5 year rolling prevalence counts and rates) for birth defects for use on the national public portal.

Geographic Level

The smallest geographic unit to be represented in this data set is the county.

Restrictions

This is a restricted access data set.



Data will be displayed via the national public portal only when sufficient conditions have been met to protect data privacy.















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CDC estimates the average public reporting burden for this collection of information as 80 hours per response, including the time for reviewing instructions, searching existing data/information sources, gathering and maintaining the data/information needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to CDC/ATSDR Information Collection Review Office, 1600 Clifton Road NE, MS D-74, Atlanta, Georgia 30333; ATTN: PRA (0920-0853).



Birth Defects


Data Dictionary for Aggregate Data

Environmental Public Health Tracking

Field Name

Field Description

Data Type

Code Scheme

Legal Values

Field Length

Optionality

BIRTH DEFECT

Birth defect category.

Integer

1 = Anencephaly

2 = Cleft lip with cleft palate

3 = Cleft lip w/o cleft palate

4 = Cleft palate w/o cleft lip

5 = Gastroschisis

6 = Hypoplastic left heart syndrome

7 = Hypospadias

8 = Limb deficiencies combined

9 = Spina bifida (w/o anencephaly)

10 = Tetralogy of Fallot

11 = Transposition of the great arteries (vessels)

12 = Trisomy 21




1 – 12




2

Required

STATE

State FIPS code.

String

FIPS

A valid state FIPS code.

2

Not specified in schema

COUNTY

County FIPS code over which birth defect cases and underlying birth populations are counted.

String

FIPS

U = Unknown

A valid county FIPS code for the state, or ‘U’.

5

Optional

START DATE

Date on which data aggregation begins.

Date

yyyymmdd


8

Required

END DATE

Date on which data aggregation ends.

Date

yyyymmdd


8

Required

MATERNAL AGE GROUP

Five-year maternal age intervals for which cases and underlying birth populations are counted.

Integer

1 = <20 years

2 = 20-24 years

3 = 25-29

4 = 30-34

5 = 35-39

6 = 40

9 = Unknown

1 – 6, 9




1

Required

MATERNAL

ETHNICITY

Maternal Hispanic ethnicity for which cases and underlying birth populations are counted.

Text

H = Hispanic

NH = non-Hispanic

U = Unknown


H, NH, U




2

Required

MATERNAL RACE GROUP

Maternal race group for which cases and underlying birth populations are counted.

Text

W = White

B = Black

O = Other

U = Unknown

NS = Not submitted



Note: The code ‘NS’ is intended to allow the maternal race field to be selectively collapsed, for example, when maternal ethnicity is Hispanic. This code is not intended to indicate unknown race.

W, B, O, U, NS




2

Required

INFANT SEX

Infant sex for which cases and underlying birth populations are counted.

Text

M = Male

F = Female

U = Unknown

M, F, U




1

Required

TOTAL LIVE BIRTHS

Total number of live births.

Integer


0 to nnnnnnn

7

Required

LIVE BIRTHS WITH BIRTH DEFECT

Number of cases of birth defect among live births only.

Integer





-999 = Unknown



Note: The missing value code -999 is appropriate when a birth count is known for a demographic classification, but the birth defect count is unknown.

0 to nnnn



-999




4

Required

LIVE BIRTHS + FETAL DEATHS + TERMINATIONS WITH DEFECT

Number of cases of birth defect among live births plus fetal deaths and/or pregnancy terminations, in those states that ascertain cases among fetal deaths and/or terminations.


Integer





-999 = Unknown



Note: The missing value code -999 is appropriate when a birth count is known for a demographic classification, but the birth defect count is unknown.

0 to nnnn



-999




4

Optional



File Typeapplication/vnd.openxmlformats-officedocument.wordprocessingml.document
AuthorStrosnider, Heather (CDC/ONDIEH/NCEH)
File Modified0000-00-00
File Created2021-01-15

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