Reference material (surveys) with Covid-19 question content

ITEM #1 Appendix A_COV-IMP_Surveys with prior COVID content.docx

The Study to Explore Early Development (SEED) - Phase 3 (Modified for COVID-19 Impact Assessment)

Reference material (surveys) with Covid-19 question content

OMB: 0920-1171

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SEED3 Supplemental COVID-19 Impact Assessments – Prior surveys with related COVID-19 question content



Survey

Sponsoring Organization

URL

Target Population

Questionnaire Topics

Prospective Research on Early Determinants of Illness and Children’s Health Trajectories (PREDICT) Research Study

Johns Hopkins All Children's Hospital

Sponsoring Organization: https://www.hopkinsallchildrens.org/Academics/Research/Clinical-and-Translational-Research-Organization/Multicenter-Studies-(1)/PREDICT-(1)

Parents and children enrolled in the PREDICT study

  • Participant child's health and development

  • Participant’s family

  • Participant’s neighborhood

COVID-19 Adolescent Symptom & Psychological Experience Questionnaire (CASPE): Parent

Center for Health Security [Johns Hopkins University, Bloomberg School of Public Health]

Sponsoring Organization:

https://www.centerforhealthsecurity.org


Survey:

https://www.nlm.nih.gov/dr2/CASPE_PARENT_Qualtrics.pdf


Source Information:

Cecile D. Ladouceur, PhD: [email protected]

Families of children and adolescents

  • Child’s experience during the COVID-19 outbreak

2020 COVID-19 Household Pulse Questionnaire (HPQ)

U.S. Census Bureau and other federal agencies

Sponsoring Organization:

https://www.census.gov/data/experimental-data-products/household-pulse-survey.html


Survey:

https://www2.census.gov/data/experimental-data-products/household-pulse-survey/household-pulse-survey-questionaire.pdf


American households impacted by COVID-19

  • Employee status

  • Food security

  • Housing security

  • Education disruptions

  • Physical and mental wellbeing

COVID-19 Community Response Survey

Johns Hopkins Bloomberg School of Public Health

Sponsoring Organization:


JHU COVID-19 Community Response Survey:

https://www.nlm.nih.gov/dr2/JHU_COVID-19_Community_Response_Survey_v1.3.pdf


Source Information:

Shruti Mehta, PhD, MPH, Professor and Deputy Chair Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health: [email protected]

Households impacted by COVID-19

  • Module 1 - Demographics

  • Module 2 - Housing and Family Structure

  • Module 3 - Knowledge & Attitudes towards COVID-19

  • Module 4 - COVID-19 Symptoms and Testing Experience

  • Module 5 - Comorbidities and Care Engagement

  • Module 6 - Mental Health Impacts

  • Module 7 - Coronavirus Impact and Pandemic Stress

  • Module 8 - Social Distancing Impacts

  • Module 9 - Violence and Trauma

  • Module 10 - Substance Use

  • Module 11 - Sexual behavior

NIH Environmental Influences on Child Health Outcomes (ECHO) – COVID-19 Questionnaire – Child Parent-Report Version

The National Institutes of Health (NIH) Environmental influences on Child Health Outcomes (ECHO) Program


Sponsoring Organization:

https://www.nih.gov/echo


Survey:

https://www.nlm.nih.gov/dr2/C19-cPR_COVID-19_Questionnaire-Child_Parent-Report_Version_20200409_v01.30.pdf


Source Information:

Duke University

Dr. Brian Smith

[email protected]

Primary caregiver of a child enrolled in an ECHO cohort during the life stages of infancy, early childhood, middle childhood, and adolescence through age 12 years

  • COVID-19 Infection

  • Impacts of the COVID-19 Outbreak on the Child Enrolled in ECHO

NIH Environmental Influences on Child Health Outcomes (ECHO) – COVID-19 Questionnaire - Adult Primary Version

The National Institutes of Health (NIH) Environmental influences on Child Health Outcomes (ECHO) Program


Sponsoring Organization:

https://www.nih.gov/echo


Survey:

https://www.nlm.nih.gov/dr2/C19-aPV_COVID-19_Questionnaire-Adult_Primary_Version_20200409_v01.30.pdf


Source Information:

Duke University

Dr. Brian Smith

[email protected]

Primary caregiver of a child enrolled in an ECHO cohort during the life stages of infancy, early childhood, middle childhood, and adolescence through age 12 years

  • COVID-19 Infection

  • Impacts of the COVID-19 Outbreak on You

  • Impacts of the COVID-19 Outbreak on Pregnancy – Current

  • Impacts of the COVID-19 Outbreak on Pregnancy - Recall

Well-being of Parents and Children During the COVID-19 Pandemic: A National Survey


Survey:

https://pediatrics.aappublications.org/content/pediatrics/early/2020/07/22/peds.2020-016824.full.pdf

Parents with children under age 18

  • How the pandemic affected the physical and emotional wellbeing of parents and children

Services and Treatment Questionnaire

Georgia Study to Explore Early Development

Sponsoring Organization:

https://www.cdc.gov/ncbddd/autism/seed-ga.html


Primary caregiver of a child enrolled in GA SEED study

  • Services and/or therapies

COVID Impact Survey – 2020 COVID-19 Tracking Survey Questionnaire

COVID Impact

Sponsoring Organization:

https://covid-impact.org


Households impacted by COVID-19

  • Social impact of COVID

  • Economic impact of COVID

SFARI COVID-19 Survey – Impact of COVID-19 on ASD Services and Mental Health

SPARK: Simons Foundation Powering Autism Research for Knowledge

Sponsoring Organization:

https://sparkforautism.org/

Primary caregiver of children/dependents enrolled in SPARK

  • Impact of COVID-19 on child’s (or dependent’s) ASD services and mental health

  • Primary caregiver’s mental health

  • Household’s experiences as related to COVID-19 policies and news

  • Finding out about what online and remote therapies are working, or not working, for family


File Typeapplication/vnd.openxmlformats-officedocument.wordprocessingml.document
AuthorWard, Folasade (CDC/DDNID/NCBDDD/DHDD)
File Modified0000-00-00
File Created2021-01-12

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