Reference material (surveys) with Covid-19 question content

SEED3 Supplemental COVID-19 Impact Assessments – Prior surveys with related COVID-19 question content

Survey	Sponsoring Organization	URL	Target Population	Questionnaire Topics
Prospective Research on Early Determinants of Illness and Children’s Health Trajectories (PREDICT) Research Study	Johns Hopkins All Children's Hospital	Sponsoring Organization: https://www.hopkinsallchildrens.org/Academics/Research/Clinical-and-Translational-Research-Organization/Multicenter-Studies-(1)/PREDICT-(1)	Parents and children enrolled in the PREDICT study	Participant child's health and development Participant’s family Participant’s neighborhood
COVID-19 Adolescent Symptom & Psychological Experience Questionnaire (CASPE): Parent	Center for Health Security [Johns Hopkins University, Bloomberg School of Public Health]	Sponsoring Organization: https://www.centerforhealthsecurity.org Survey: https://www.nlm.nih.gov/dr2/CASPE_PARENT_Qualtrics.pdf Source Information: Cecile D. Ladouceur, PhD: [email protected]	Families of children and adolescents	Child’s experience during the COVID-19 outbreak
2020 COVID-19 Household Pulse Questionnaire (HPQ)	U.S. Census Bureau and other federal agencies	Sponsoring Organization: https://www.census.gov/data/experimental-data-products/household-pulse-survey.html Survey: https://www2.census.gov/data/experimental-data-products/household-pulse-survey/household-pulse-survey-questionaire.pdf	American households impacted by COVID-19	Employee status Food security Housing security Education disruptions Physical and mental wellbeing
COVID-19 Community Response Survey	Johns Hopkins Bloomberg School of Public Health	Sponsoring Organization: JHU COVID-19 Community Response Survey: https://www.nlm.nih.gov/dr2/JHU_COVID-19_Community_Response_Survey_v1.3.pdf Source Information: Shruti Mehta, PhD, MPH, Professor and Deputy Chair Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health: [email protected]	Households impacted by COVID-19	Module 1 - Demographics Module 2 - Housing and Family Structure Module 3 - Knowledge & Attitudes towards COVID-19 Module 4 - COVID-19 Symptoms and Testing Experience Module 5 - Comorbidities and Care Engagement Module 6 - Mental Health Impacts Module 7 - Coronavirus Impact and Pandemic Stress Module 8 - Social Distancing Impacts Module 9 - Violence and Trauma Module 10 - Substance Use Module 11 - Sexual behavior
NIH Environmental Influences on Child Health Outcomes (ECHO) – COVID-19 Questionnaire – Child Parent-Report Version	The National Institutes of Health (NIH) Environmental influences on Child Health Outcomes (ECHO) Program	Sponsoring Organization: https://www.nih.gov/echo Survey: https://www.nlm.nih.gov/dr2/C19-cPR_COVID-19_Questionnaire-Child_Parent-Report_Version_20200409_v01.30.pdf Source Information: Duke University Dr. Brian Smith [email protected]	Primary caregiver of a child enrolled in an ECHO cohort during the life stages of infancy, early childhood, middle childhood, and adolescence through age 12 years	COVID-19 Infection Impacts of the COVID-19 Outbreak on the Child Enrolled in ECHO
NIH Environmental Influences on Child Health Outcomes (ECHO) – COVID-19 Questionnaire - Adult Primary Version	The National Institutes of Health (NIH) Environmental influences on Child Health Outcomes (ECHO) Program	Sponsoring Organization: https://www.nih.gov/echo Survey: https://www.nlm.nih.gov/dr2/C19-aPV_COVID-19_Questionnaire-Adult_Primary_Version_20200409_v01.30.pdf ‘ Source Information: Duke University Dr. Brian Smith [email protected]	Primary caregiver of a child enrolled in an ECHO cohort during the life stages of infancy, early childhood, middle childhood, and adolescence through age 12 years	COVID-19 Infection Impacts of the COVID-19 Outbreak on You Impacts of the COVID-19 Outbreak on Pregnancy – Current Impacts of the COVID-19 Outbreak on Pregnancy - Recall
Well-being of Parents and Children During the COVID-19 Pandemic: A National Survey		Survey: https://pediatrics.aappublications.org/content/pediatrics/early/2020/07/22/peds.2020-016824.full.pdf	Parents with children under age 18	How the pandemic affected the physical and emotional wellbeing of parents and children
Services and Treatment Questionnaire	Georgia Study to Explore Early Development	Sponsoring Organization: https://www.cdc.gov/ncbddd/autism/seed-ga.html	Primary caregiver of a child enrolled in GA SEED study	Services and/or therapies
COVID Impact Survey – 2020 COVID-19 Tracking Survey Questionnaire	COVID Impact	Sponsoring Organization: https://covid-impact.org	Households impacted by COVID-19	Social impact of COVID Economic impact of COVID
SFARI COVID-19 Survey – Impact of COVID-19 on ASD Services and Mental Health	SPARK: Simons Foundation Powering Autism Research for Knowledge	Sponsoring Organization: https://sparkforautism.org/	Primary caregiver of children/dependents enrolled in SPARK	Impact of COVID-19 on child’s (or dependent’s) ASD services and mental health Primary caregiver’s mental health Household’s experiences as related to COVID-19 policies and news Finding out about what online and remote therapies are working, or not working, for family