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Dear Dr. X.,

Thank you for using the NINDS Human Genetics Resource Center! In order to support the continued operation and services provided by the NINDS Human Genetics Resource Center, NINDS is requesting information regarding publications that resulted from the use of this long-standing research resource. Such information will lend support to the continuing operations of this resource due to increasingly restrictive and unpredictable Federal budgets and ensure that this resource continues to play an important role in the support of Neurological research.

Therefore, NINDS is requesting that users of the resource who ordered samples prior to January 1, 2017 respond to this brief publication survey. Please gather a list of your publications that used samples from the NINDS Repository. If your research involved the collection of genetic or genomic data that have been deposited to the database of genotypes and phenotypes (dbGaP), please additionally gather a list of these accessions. Once this information is collected, this survey should take less than ten minutes. The information can also be copied and pasted into the survey.

Note that the survey saves the responses to questions so you may start the survey and then complete it at a later time. You can also review or revise your responses by using the back button at any time before reaching the last question. We thank you for your cooperation.

Please follow the link below to access the survey.

Use this link to start answering

http://novi.coriell.org/TakeSurvey.aspx?s=zzz9b

Please do not hesitate to contact me if you have questions about the survey. If the survey should be filled out by somebody else, please send me the contact information for the appropriate person.

We look forward to hearing from you.

Best Regards,

Laura Scheinfeldt, Ph.D.

Principal Investigator, NINDS Repository

Coriell Institute for Medical Research

P | 856-757-9763

E | [email protected]