1 GARD Survey questions

GARD Survey

OMB#: 0925-0648 Exp., date: 05/2021

Thank you for taking the time to help improve this website. Be assured that your responses will remain completely anonymous and will only be used for the purpose of improving the website.

* Required

1. How did you first learn about this website? *

Search engine (Google, Yahoo, etc.)

Recommended by friend or colleague

Social Media

Doctor / Specialist

Patient Advocacy Group

Other:

2. Are you seeking information for yourself or on behalf of someone else? *

For myself

For someone else

Other:

3. What information were you looking to find on the website? *

Select all that apply

Signs & symptoms

Cause

Inheritance

Diagnosis

Treatment

Statistics

Long-term outlook

Support

Research

Financial aid

Experts & specialists

Keep up to date

Other:

4. Did you find what you were looking for? *

Yes, easily

Yes, eventually

No

5. Is anything missing from the website? *

No

Other:

6. How easy is it to understand the information on the website? *

Not east at all

1

2

3

4

5

Very easy

7. How likely are you to recommend the website to a friend or colleague? *

Not at all likely

1

2

3

4

5

Extremely likely

8. How accurate do you think the information on the website is? *

Very inaccurate

1

2

3

4

5

Very accurate

9. What do you like the most about visiting the website? *

Your answer

10. What could we have done better? *

Your answer

Disclaimer

Public reporting burden for this collection of information is estimated to average ten minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to: NIH, Project Clearance Branch, 6705 Rockledge Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0648). Do not return the completed form to this address.

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