0920-1266 ChiCAS Follow Up Questionnaire - English JUN2021

Form Approved

OMB No: 0920-1266

Exp. Date: 06/30/2021

HIV prevention among Latina transgender women who have sex with men:

Evaluation of a locally developed intervention

Attachment 4e

ChiCAS Questionnaire English: 6-Month Follow-Up

HIV Prevention among Latina Transgender Women Who Have Sex with Men: Evaluation of a Locally Developed Intervention

Baseline and Follow-up Assessment Questionnaire

(NOTE: The Spanish version of the baseline assessment will be used in the proposed study; this English version is included solely for purposes of review.)

Date:
Interviewer:
Participant ID:
Place and city of interview:
Time interview started:
Time interview completed:

Form Approved

OMB No: 0920-1266

Exp. Date: 06/30/2021

Privacy Act Statement:

This information is collected under the authority of the Public Health Service Act, Section 301, "Research and Investigation," (42 U.S.C. 241); and Sections 304, 306 and 308(d) which discuss authority to maintain data and provide privacy for health research and related activities (42 U.S.C. 242 b, k, and m(d)). This information is also being collected in conjunction with the provisions of the Government Paperwork Elimination Act and the Paperwork Reduction Act (PRA). This information will only be used by the Centers for Disease Control and Prevention (CDC) staff to evaluate the efficacy of the locally developed ChiCAS HIV prevention intervention for Hispanic/Latina transgender women.

Public reporting burden of this collection of information is estimated to average 60 minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to CDC/ATSDR Reports Clearance Officer; 1600 Clifton Road NE, MS D-74, Atlanta, Georgia 30333. Attn: OMB-PRA (0920-New)

Again, we thank you for your time and participation in this assessment. Please remember that when answering these questions, it is very important to be honest. Some of the items will be very personal. Questions about your own health and sexual behaviors and feelings of discrimination, as examples, may be uncomfortable for you, but it is important that you be truthful.

Remember, all the information obtained you provide will be kept private. I am a trained professional and respect the trust you have given me. I will not make judgments about you or your answers. I will not tell anyone about what we talked about today and your answers will not be identifiable. Your name will be removed from the assessment so that others will not know your responses.

Also, there are no right or wrong answers, and we rely on you to be honest. The information that you provide will ensure the quality of this research. It will help us understand generally what is going on in the lives of transgender women like you and the needs of the community. It may create opportunities for new projects that are focused on these community needs. It will help us improve the quality of the lives of women like you. Simply, it will help us prevent HIV and support access to hormone therapy. Your honest answers can help us save lives.

Thanks for your participation. I have a few questions for you to get us started.

HORMONE THERAPY USE

I want to ask you a bit about your use of transition-related services such as hormone therapy. Remember that your answers are safe with me. I won’t tell anyone what we talked about today, and this information will help us plan for future potential projects.
15) Have you ever used hormones for feminization?	0 No 1 Yes [If no, skip to 21A]
16) Are you currently using hormones for feminization?	0 No 1 Yes
17) When did you first start using hormones for feminization?	__________ Month/year
18) When you first started using hormones for feminization, where did you get them?	1 Tienda in US 2 Tienda in your country of origin 3 Flea market in US 4 Flea market in your country of origin 5 Traditional healer (e.g., Curandero, Botanico or Husero) in US 6 Traditional healer (e.g., Curandero, Botanico or Husero) in your country of origin 7 Friends in US 8 Friends in your country of origin 9 Family in US 10 Family in your country of origin 11 The internet 12 A medical doctor or nurse in the US prescribed them and you obtained them at a pharmacy 13 A medical doctor or nurse in your country of origin prescribed them and you obtained them at a pharmacy 14 Other, please specify: ____________
19) When did you get your most recent hormones for feminization?	_______________ Month/Year
20A) Where did you get your most recent hormones for feminization?	1 Tienda in US 2 Tienda in your country of origin 3 Flea market in US 4 Flea market in your country of origin 5 Traditional healer (e.g., Curandero, Botanico or Husero) in US 6 Traditional healer (e.g., Curandero, Botanico or Husero) in your country of origin 7 Friends in US 8 Friends in your country of origin 9 Family in US 10 Family in your country of origin 11 The internet 12 A medical doctor or nurse in the US prescribed them and you obtained them at a pharmacy 13 A medical doctor or nurse in your country of origin prescribed them and you obtained them at a pharmacy 14 Other, please specify: ____________
20B) Where did you go to get your most recent prescription?	99 I did not obtain hormones prescribed by a medical doctor or nurse in the US. Name of place and provider: Address: City: State: Zip:
20C) What pharmacy did you use to get your most recent prescription filled?	99 I did not obtain hormones prescribed by a medical doctor or nurse in the US. Name: Address: City: State: Zip:

HORMONE THERAPY KNOWLEDGE

Please tell me if the following statements are true or false. But don’t worry if you don’t know an answer; you can also tell me that you don’t know.	False	True	Don’t Know
21A) Only a medical doctor or nurse can determine the appropriate hormone therapy and dose.	0	1	88
21B) Transgender women who are taking hormones should have periodic checkups with a medical doctor or nurse.	0	1	88
21C) It is dangerous to use hormones without supervision of a medical doctor or nurse.	0	1	88
21D) Hormones obtained from a tienda, the internet, or one’s friends are safe to use.	0	1	88
21E) Using hormones other than as prescribed by a medical doctor or nurse can cause damage to the kidneys, liver, and heart, and could increase risk for diabetes.	0	1	88
21F) Taking hormones changes the size of one’s adam’s apple.	0	1	88
21G) Taking hormones completely eliminates facial hair.	0	1	88
21H) There are places in NC that offer medically supervised hormone therapy for transgender women at reduce cost without insurance.	0	1	88
21I) A prescription for hormone therapy must be obtained from a medical doctor or nurse.	0	1	88

READINESS FOR MEDICALLY SUPERVISED HORMONES

	Not at all likely	A little likely	Moderately likely	Very likely	Extremely likely	I am already taking medically supervised hormone therapy
22) How likely is it that you would initiate medically supervised hormone therapy from a medical doctor or nurse in the US?	1	2	3	4	5	99 [Skip to 26A]
23) Are you planning to initiate medically supervised hormone therapy in the next 6 months?					0 No 1 Yes
24) Are you planning to initiate medically supervised hormone therapy in the next 30 days?					0 No 1 Yes
25) Have you made an appointment with a doctor or at a clinic to obtain medically supervised hormone therapy?					0 No 1 Yes

BARRIERS TO MEDICALLY SUPERVISED HORMONE THERAPY

Have any of the following reasons prevented you from seeking or obtaining medically supervised hormone therapy in the US in the past 12 months?
26A) You did not have health insurance.	0 No 1 Yes
26B) The clinic, health department, or hospital was too far away.	0 No 1 Yes
26C) You did not have transportation.	0 No 1 Yes
26D) You could not take time off from work.	0 No 1 Yes
26E) The clinic, health department, or hospital was not open when you could go.	0 No 1 Yes
26F) The staff and providers did not speak your language.	0 No 1 Yes
26G) You were not sure where to go for medically supervised hormone therapy.	0 No 1 Yes
26H) It took too long to get an appointment.	0 No 1 Yes
26I) During previous visits it took too long to see a doctor.	0 No 1 Yes
26J) You felt like you would be treated poorly.	0 No 1 Yes
26K) You didn’t know whether you were eligible to be seen.	0 No 1 Yes
26L) You were concerned about other people finding out about your health.	0 No 1 Yes
26M) You thought that the medical bill would be too high.	0 No 1 Yes

ACCESSING MEDICALLY SUPERVISED HORMONE THERAPY

27) If you wanted to learn more about hormones for feminization, where would you go?		88 Don’t know
28) If you wanted to get a prescription for hormones for feminization, where would you go?		88 Don’t know

HIV KNOWLEDGE

I’d like to ask you about what you know about HIV. By answering the following questions as honestly as possible, you will help ensure that this and future projects are meeting the health needs of Latinas like yourself. Please tell me if the following statements are true or false.
	False	True	Don’t Know
29A) HIV is a virus that causes AIDS.	0	1	88
29B) Coughing and sneezing do not spread HIV.	0	1	88
29C) A person can get HIV by sharing a glass of water with someone who has HIV.	0	1	88
29D) Showering, douching, or washing one’s genitals/private parts after sex keeps a person from getting HIV.	0	1	88
29E) If a man looks good, he doesn’t have HIV.	0	1	88
29F) All pregnant women infected with HIV will have babies born with HIV.	0	1	88
29G) People who have been infected with HIV quickly show physical signs of being infected.	0	1	88
29H) I am safe from HIV if I only have unprotected sex with married men.	0	1	88
29I) There is a vaccine that can stop adults from getting HIV.	0	1	88
29J) An animal skin condom works better against HIV than does a latex condom.	0	1	88
29K) A person will not get HIV if she or he is taking antibiotics.	0	1	88
29L) Vaseline and baby oil are products that should be used with latex condoms.	0	1	88
29M) There is a cure for HIV.	0	1	88
29N) Latinos in the US have higher rates of HIV infection than whites.	0	1	88
29O) During anal sex, the “top” (or insertive partner) is not at risk for HIV.	0	1	88
29P) The southeastern US has higher rates of HIV infection than other regions of the US.	0	1	88
29Q) North Carolina has one of the fastest growing HIV infection rates in the US.	0	1	88
29R) North Carolina ranks within the top 10 US states with new HIV diagnoses.	0	1	88
29S) Transgender women have higher rates of HIV than than the general population.	0	1	88

STD KNOWLEDGE

Next are a few statements about sexually transmitted diseases, also known as STDs. Please tell me if the following statements are true or false.
	False	True	Don’t Know
30A) Someone infected with an STD will always develop symptoms within 2 months.	0	1	88
30B) There is a vaccine that prevents Hepatitis B.	0	1	88
30C) It is possible to self-diagnosis for STD infection.	0	1	88
30D) Female infertility can result from an untreated STD.	0	1	88
30E) People who have another STD, such as herpes, chlamydia, and gonorrhea are at greater risk for contracting HIV.	0	1	88
30F) People infected with genital herpes (Herpes Simplex Virus-type 2) can only pass the infection to someone else during the time that they have blisters or sores in the genital region.	0	1	88
30G) Oral-anal sexual contact (‘rimming’) can spread Hepatitis A infection.	0	1	88
30H) Chlamydia is the most common bacterial STD in the United States.	0	1	88
30I) There is an STD that can cause cancer.	0	1	88
30J) Genital warts can never be transmitted as long as condoms are used.	0	1	88
30K) Painful urination is a symptom of gonorrhoea.	0	1	88
30L) I was treated for an STD so I am now immune from getting it again.	0	1	88
30M) If someone is being treated for HIV, they cannot get an STD.	0	1	88
30N) Only those with lots of partners are at risk for STD infection.	0	1	88
30O) Syphilis infection in North Carolina is increasing among men who have sex with men.	0	1	88

PrEP

One way to prevent HIV is to use a medication called PrEP. PrEP stands for pre-exposure prophylaxis.
31) Have you heard of PrEP?	0 No 1 Yes
32) Are you currently using PrEP?	0 No 1 Yes [If no, skip to 38]
33) When did you first start using PrEP?	__________ Month/year
34) When you first started using PrEP, where did you go to get a prescription?	Name of place and provider: Address: City: State: Zip:
35) Where did you go to get your most recent prescription?	Name of place and provider: Address: City: State: Zip:
36) What pharmacy did you use to get your most recent prescription filled?	Name: Address: City: State: Zip:
37) In the past seven days, how many days did you not take PrEP?	[Fill in number here:] __________ 0 I took PrEP as prescribed
38) On a scale from 0 to 10, with 0 being knowing nothing at all and 10 being a lot, how much would you say you know about PrEP?	0 1 2 3 4 5 6 7 8 9 10 (Nothing (A lot) at all)

PrEP KNOWLEDGE

Please tell me if the following statements are true or false. But don’t worry if you don’t know an answer; you can also tell me that you don’t know.	False	True	Don’t Know
39A) PrEP can reduce the chances of getting HIV among those without HIV.	0	1	88
39B) The medication that is currently approved for use as PrEP is called Truvada.	0	1	88
39C) If taken every day as directed by a doctor, PrEP can be 99% effective against getting HIV.	0	1	88
39D) PrEP protects against other STDs.	0	1	88
39E) PrEP is a cure for HIV.	0	1	88
39F) Most people who take PrEP report side effects.	0	1	88
39G) PrEP can be taken with food.	0	1	88
39H) Someone who has HIV should take PrEP.	0	1	88
39I) PrEP interacts with female hormones that some transgender take or plan to take.	0	1	88
39J) To be effective, PrEP must be taken every day.	0	1	88
39K) A prescription for PrEP must be obtained from a medical doctor or nurse.	0	1	88
39L) Only a pharmacy can provide PrEP.	0	1	88
39M) There are no places available to get PrEP in the local community.	0	1	88

READINESS FOR PrEP

	Not at all likely	A little likely	Moderately likely	Very likely	Extremely likely	I am already using PrEP
40) How likely is it that you’d use PrEP?	1	2	3	4	5	99 [Skip to 44A]

41) Are you planning to initiate PrEP use in the next 6 months?	0 No 1 Yes
42) Are you planning to initiate PrEP use in the next 30 days?	0 No 1 Yes
43) Have you made an appointment with a doctor or at a clinic to obtain a prescription for PrEP?	0 No 1 Yes

BARRIERS TO PrEP

Have any of the following reasons prevented you from seeking or obtaining PrEP in the US in the past 12 months?
44A) You did not have health insurance.	0 No 1 Yes
44B) The clinic, health department, or hospital was too far away.	0 No 1 Yes
44C) You did not have transportation.	0 No 1 Yes
44D) You could not take time off from work.	0 No 1 Yes
44E) The clinic, health department, or hospital was not open when you could go.	0 No 1 Yes
44F) The staff and providers did not speak your language.	0 No 1 Yes
44G) You were not sure where to go to get PrEP.	0 No 1 Yes
44H) It took too long to get an appointment.	0 No 1 Yes
44I) During previous visits it took too long to see a doctor.	0 No 1 Yes
44J) You felt like you would be treated poorly.	0 No 1 Yes
44K) You didn’t know whether you were eligible to be seen.	0 No 1 Yes
44L) You were concerned about other people finding out about your health.	0 No 1 Yes
44M) You thought that the medical bill would be too high.	0 No 1 Yes

ACCESSING PrEP

45) If you wanted to learn more about PrEP, where would you go?		88 Don’t know
46) If you wanted to get a prescription for PrEP, where would you go?		88 Don’t know

PROVIDER TRUST AND COMMUNICATION

Thinking about doctors in general, please tell me how strongly you agree or disagree with the following statements.
	Strongly disagree	Disagree	Agree	Strongly agree
47A) Sometimes doctors care more about what is convenient for them than about their patients’ medical needs.	1	2	3	4
47B) Doctors are extremely thorough and careful.	1	2	3	4
47C) I completely trust doctors’ decisions about which medical treatments are best.	1	2	3	4
47D) A doctor would never mislead me about anything.	1	2	3	4
47E) All in all, I trust doctors completely.	1	2	3	4
48A) When all is said and done, I am the person who is responsible for managing my health.	1	2	3	4
48B) Taking an active role in my own health care is the most important factor in determining my health and ability to function.	1	2	3	4
48C) I am confident that I can take actions that will help prevent or minimize some symptoms or problems associated with my health.	1	2	3	4
48D) I know what each of my prescribed medications do.	1	2	3	4
48E) I am confident that I can tell when I need to go get medical care and when I can handle a health problem myself.	1	2	3	4
48F) I am confident I can tell my health care provider concerns I have even when he or she does not ask.	1	2	3	4
48G) I am confident that I can follow through on medical treatments I need to do at home.	1	2	3	4
48H) I understand my health.	1	2	3	4
48I) I know the different medical treatment options available for me.	1	2	3	4
48J) I have been able to maintain the lifestyle changes for my health that I have made.	1	2	3	4
48K) I know how to prevent problems with my health.	1	2	3	4
48L) I am confident I can figure out solutions when situations or problems arise with my health.	1	2	3	4
48M) I am confident that I can maintain lifestyle changes even during times of stress	1	2	3	4

SEX WITH MEN AND WOMEN

Now, I want to ask you about sex with men. In these next questions when we say “sex” we mean “oral” or “anal” sex. Oral sex is when someone puts their penis in another person’s mouth. Anal sex is when someone puts their penis in another person’s anus. Do you understand these terms?
52) How many men have you had sex with in the past 6 months?	___­­­­_____# men
53) How many women have you had sex with in the past 6 months?	___­­­­_____# women

First, I want to ask you about the times that a man put his penis in your anus to have sex.
54) About when was the most recent time that a man put his penis in your anus?	77 I have never had a man put his penis in my anus. [Skip to 58] 1 Within the past week 2 Within the past 30 days, but more than a week ago 3 Over one month ago but within the past 3 months 4 3 months but less than 6 months ago 5 6 months ago but less than a year ago 6 A year or more ago
55) Thinking about the most recent time that a man put his penis in your anus, did he use condoms?	0 No 1 Yes
56) Thinking about all the times that a man put his penis in your anus during the past 30 days, how often did he use condoms?	77 I have not had a man put his penis in my anus in the past 30 days. 1 Never 2 Once in awhile 3 About half the time 4 Most of the time 5 Always
57) Thinking about all the times that a man put his penis in your anus during the past 3 months, how often did he use condoms?	77 I have not had a man put his penis in my anus in the past 3 months. 1 Never 2 Once in awhile 3 About half the time 4 Most of the time 5 Always

Some transgender women have vaginas. If you have a vagina, we want to know about your use of condoms when a man puts his penis in your vagina.
58) About when was the most recent time that a man put his penis in your vagina, if you have a vagina?	77 I have never had a man put his penis in my vagina or I don’t have a vagina. [Skip to 62] 1 Within the past week 2 Within the past 30 days, but more than a week ago 3 Over one month ago but within the past 3 months 4 3 months but less than 6 months ago 5 6 months ago but less than a year ago 6 A year or more ago
59) Thinking about the most recent time that a man put his penis in your vagina, did he use condoms?	0 No 1 Yes
60) Thinking about all the times that a man put his penis in your vagina during the past 30 days, how often did he use condoms?	77 I have not had a man put his penis in my vagina in the past 30 days 1 Never 2 Once in awhile 3 About half the time 4 Most of the time 5 Always
61) Thinking about all the times that a man put his penis in your vagina during the past 3 months, how often did he use condoms?	77 I have not had a man put his penis in my vagina in the past 3 months 1 Never 2 Once in awhile 3 About half the time 4 Most of the time 5 Always

Some transgender women have penises. If you have a penis, we want to know about your use of condoms when you have sex with men and women. First, I want to ask you about the times you put your penis in the anus of a man to have sex.
62) About when was the most recent time that you put your penis in the anus of a man?	77 I never have put my penis in the anus of a man or I don’t have a penis [Skip to 66] 1 Within the past week 2 Within the past 30 days, but more than a week ago 3 Over one month ago but within the past 3 months 4 3 months but less than 6 months ago 5 6 months ago but less than a year ago 6 A year or more ago
63) Thinking about the most recent time you put your penis in the anus of a man, did you use condoms?	0 No 1 Yes
64) Thinking about all the times you put your penis in the anus of a man during the past 30 days, how often did you use condoms?	77 I have not put my penis in the anus of a man in the past 30 days 1 Never 2 Once in awhile 3 About half the time 4 Most of the time 5 Always
65) Thinking about all the times you put your penis in the anus of a man during the past 3 months, how often did you use condoms?	77 I have not put my penis in the anus of a man in the past 3 months 1 Never 2 Once in awhile 3 About half the time 4 Most of the time 5 Always

Now, I want to ask you about the times you put your penis in the vagina of a woman to have sex.
66) About when was the most recent time that you put your penis in the vagina of a woman?	77 I never have put my penis in the vagina of a woman or I don’t have a penis [Skip to 70] 1 Within the past week 2 Within the past 30 days, but more than a week ago 3 Over one month ago but within the past 3 months 4 3 months but less than 6 months ago 5 6 months ago but less than a year ago 6 A year or more ago
67) Thinking about the most recent time you put your penis in the vagina of a woman, did you use condoms?	0 No 1 Yes
68) Thinking about all the times you put your penis in the vagina of a woman during the past 30 days, how often did you use condoms?	77 I have not put my penis in the vagina of a woman in the past 30 days 1 Never 2 Once in awhile 3 About half the time 4 Most of the time 5 Always
69) Thinking about all the times you put your penis in vagina of a woman during the past 3 months, how often did you use condoms?	77 I have not put my penis in the vagina of a woman in the past 3 months 1 Never 2 Once in awhile 3 About half the time 4 Most of the time 5 Always

Now, I want to ask you about the times you put your penis in the anus of a woman to have sex.
70) About when was the most recent time that you put your penis in the anus of a woman?	77 I never have put my penis in the anus of a woman or I don’t have a penis [Skip to 74] 1 Within the past week 2 Within the past 30 days, but more than a week ago 3 Over one month ago but within the past 3 months 4 3 months but less than 6 months ago 5 6 months ago but less than a year ago 6 A year or more ago
71) Thinking about the most recent time you put your penis in the anus of a woman, did you use condoms?	0 No 1 Yes
72) Thinking about all the times you put your penis in the anus of a woman during the past 30 days, how often did you use condoms?	77 I have not put my penis in the anus of a woman in the past 30 days. 1 Never 2 Once in awhile 3 About half the time 4 Most of the time 5 Always
73) Thinking about all the times you put your penis in the anus of a woman during the past 3 months, how often did you use condoms?	77 I have not put my penis in the anus of a woman in the past 3 months. 1 Never 2 Once in awhile 3 About half the time 4 Most of the time 5 Always

74) Where did you first meet your most recent male sex partner?

1 Adult bookstore 2 Through friend(s) 3 Gay bar / Club 4 Sex club / Bathhouse 5 Non-gay bar / Club 6 Gym / health club / athletic activity 7 Facebook 8 Internet dating or social networking site, including apps like Grindr, Jackd, Adam4Adam, and badoo 9 Public places including park, shopping mall, library, public transportation 10 School 11 Social organizations / volunteer service activities 12 Private party or social club 13 Vacation / Business trip 13 Work 14 Grocery store 16 Church, political group 17 Some other­­ way (please specify): _______________________

CONDOM USE SKILLS

There are certain steps to using a condom correctly. The following are statements about using a condom, some of which are correct, and some of which are incorrect. Tell me whether the statement is correct or incorrect.
	Correct	Incorrect	Don’t know
75A) Use a latex condom.	0	1	88
75B) Tear along one side of the foil, being sure not to rip the condom inside.	0	1	88
75C) Put the condom on anytime before ejaculation.	0	1	88
75D) Put the condom on when the penis is erect, before there is any contact between the penis and the other partner’s anus or vagina.	0	1	88
75E) Completely unroll the condom before placing on the penis.	0	1	88
75F) Withdraw the penis while it is still erect by holding the condom firmly in place, then remove the condom.	0	1	88
75G) If the penis is uncircumcised, pull the foreskin towards the base (hair) of the penis before putting the condom on.	0	1	88
75H) Use a water-based lubricant (e.g., KY Jelly).	0	1	88
75I) Squeeze the closed end of the condom between your forefinger and thumb and unroll the condom over the erect penis.	0	1	88
75J) Wrap the used condom back in the foil to save for the next time.	0	1	88
75K) Unroll the condom to the base (hair) of the penis.	0	1	88
75L) Use an oil-based lubricant. (i.e., oil, Vaseline, baby oil)	0	1	88
75M) Check the expiration date on the condom.	0	1	88
75N) Tear the condom package open with your teeth	0	1	88
75O) With one hand pinch the tip of the condom to leave space and prevent air bubbles, and with the other hand, unroll the condom	0	1	88
75P) Dispose of the used condoms.	0	1	88
75Q) Wash the condom to use it again.	0	1	88
75R) Use a lambskin condom.	0	1	88

CONDOM USE INTENTIONS

Now I am going to read some statements and want you to tell me how likely the following statement is to occur. You can choose: Not at all likely; A little likely; Moderately likely; Very likely; and Extremely likely
	Not at all likely	A little likely	Moderately likely	Very likely	Extremely likely
76A) During the next month, you intend to try to persuade your partner(s) to use condoms every time you have sex.	1	2	3	4	5
76B) You intend to get condoms during the next month.	1	2	3	4	5
76C) You intend to always have condoms handy during the next month.	1	2	3	4	5
76D) You intend to use condoms every time you have sex during the next month.	1	2	3	4	5

STD SELF REPORT

Now I’m going to ask questions about specific sexual activities and sexually transmitted diseases. You can stop and ask me if you don’t understand the names of these diseases.
Have you ever been to a clinic, hospital, health department, or doctor’s office for either of the following?
77) To be tested for sexually transmitted diseases (STDs)	0 No 1 Yes
78) To be tested for HIV	0 No 1 Yes

79) During the past 12 months, have you been to a clinic, hospital, health department, or doctor’s office to be tested for sexually transmitted diseases (STDs)? This does not include testing for HIV.		0 No 1 Yes
80) During the past 6 months, have you been to a clinic, hospital, health department, or doctor’s office to be tested for sexually transmitted diseases (STDs)? This does not include testing for HIV.		0 No 1 Yes
81) During the past 12 months, have you been to a clinic, hospital, health department, or doctor’s office to be tested for HIV?		0 No 1 Yes
82) During the past 6 months, have you been to a clinic, hospital, health department, or doctor’s office to be tested for HIV?		0 No 1 Yes
83) Where did you take your most recent HIV test? (What place or location? Examples include health department, free clinic, doctor’s office)
84) What was the result of your most recent HIV test?	1 Negative 2 Positive 3 Indeterminate 4 Did not get the result of the most recent past test

Has a doctor or nurse ever told you that you have the following sexually transmitted diseases (STDs)? If a doctor or nurse has told you, how long ago was the most recent diagnosis:
	Never (0)	Six months ago or less (1)	More than six months ago (2)
85) Gonorrhoea
86) Syphilis
87) Chlamydia
88) Herpes
89) Hepatitis A/B/C
90) HIV / AIDS
91) HPV / Genital Warts
92) Other: ___________

TRANSPHOBIA

On a scale of 1 to 7, which best describes your response to the following statements? The following questions are about how you have felt in the last 3 months about being transgender. Give your first response and don’t spend a lot of time on any of the statements.
113A) Being transgender makes me feel special and unique.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113B) Being perceived as transgender by others is okay for me.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113C) I sometimes resent my transgender identity.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113D) Being transgender makes me feel like a freak.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113E) I feel isolated and separate from other transgender people.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113F) I have no problem talking about my transgenderism to almost anyone.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113G) Being transgender is a gift.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113H) When I think of being transgender, I feel depressed.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113I) For me, passing is everything.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113J) I cannot be happy unless I am perceived as a woman.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113K) Being read makes me try harder to pass.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113L) I am like other people but I am also special because I am transgender.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113M) Passing is my biggest concern.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113N) When I think about being transgender, I feel unhappy.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113O) Often, I feel weird like an outcast or a pervert.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113P) I often ask myself: Why can't I just be normal?	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113Q) It's much better to pass as female than to be recognized as transgender.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113R) I sometimes feel that being transgender is embarrassing.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113S) I am proud to be a transgender person.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113T) If I look the part, talk the talk, and walk the walk of a woman, it will allow others to accept me.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113U) Passing is a standard to measure my success.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113V) When interacting with members of the transgender community, I often feel like I don't fit in.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113W) I envy people who are not transgender.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113X) I'm not like other transgender people.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113Y) I am comfortable revealing to others that I am transgender.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)
113Z) I'd rather have people know everything and accept me as transgender.	1 2 3 4 5 6 7 (Strongly (Strongly disagree) agree)

ETHNIC GROUP PRIDE

Now I am going to read some statements and want you to tell me how much you agree or disagree with each statement. You can choose: Strongly disagree; Disagree; Agree; and Strongly agree.
	Strongly disagree	Disagree	Agree	Strongly agree
121A) I have spent time trying to find out more about my ethnic group, such as its history, traditions, and customs.	1	2	3	4
121B) I am active in organizations or social groups that include mostly members of my own ethnic group.	1	2	3	4
121C) I have a clear sense of my ethnic background and what it means for me.	1	2	3	4
121D) I think a lot about how my life will be affected by my ethnic group membership.	1	2	3	4
121E) I am happy that I am a member of the group I belong to.	1	2	3	4
121F) I have a strong sense of belonging to my own ethnic group.	1	2	3	4
121G) I understand pretty well what my ethnic group membership means to me.	1	2	3	4
121H) In order to learn more about my ethnic background, I have often talked to other people about my ethnic group.	1	2	3	4
121I) I have a lot of pride in my ethnic group.	1	2	3	4
121J) I participate in cultural practices of my own group, such as special food, music, or customs.	1	2	3	4
121K) I feel a strong attachment towards my own ethnic group.	1	2	3	4
121L) I feel good about my cultural or ethnic background.	1	2	3	4

COMMUNITY ATTACHMENT

	Not at all	Very little	A little	Somewhat	Moderately	To a great extent
129A) Please indicate how much you feel a part of or connected to the gay community.	0	1	2	3	4	5
129B) Please indicate how much you feel a part of or connected to the Latino community.	0	1	2	3	4	5
129C) Please indicate how much you feel a part of or connected to the Latino gay community.	0	1	2	3	4	5
129D) Please indicate how much you feel a part of or connected to the transgender community.	0	1	2	3	4	5
129E) Please indicate how much you feel a part of or connected to the Latino transgender community.	0	1	2	3	4	5

The following questions have to do with the possible effects of your documentation status on your life in the US.	No	Yes
130A) Do you think that your documentation status has limited contact between your family, friends and you?	0	1
130B) Have you ever been questioned about your documentation status?	0	1
130C) Do you think you will be deported or questioned about your documentation status if you go to a social agency or health department?	0	1
130D) Do you think you will be deported or questioned about your documentation status if you go to a clinic for HIV and STDs testing services?	0	1
130E) Do you think your documentation status has limited your ability to seek HIV and other STDs testing services?	0	1
130F) Do you avoid the police or other officials because of your documentation status?	0	1
130G) Do you find it difficult to find legal services?	0	1

SOCIAL SUPPORT

I am going to read a series of tasks and behaviors. Tell me if you know persons in NC or outside NC, with whom you are maintaining some form of regular contact, who would perform each helpful behavior.
	No one would do this	Someone would do this	A few would do this	Several would do this	Many would do this
131A) Comfort you whenever you feel homesick.	0	1	2	3	4
131B) Listen and talk with you whenever you feel lonely or depressed.	0	1	2	3	4
131C) Share your good and bad times.	0	1	2	3	4
131D) Spend some quiet time with you whenever you do not feel like going out.	0	1	2	3	4
131E) Spend time chatting with you whenever you are bored.	0	1	2	3	4
131F) Accompany you to do things whenever you need someone for company.	0	1	2	3	4
131G) Visit you to see how you are doing.	0	1	2	3	4
131H) Accompany you somewhere even if he or she doesn’t have to.	0	1	2	3	4
131I) Reassure you that you are loved, supported, and cared for.	0	1	2	3	4
131J) Provide necessary information to help orient you to your new surroundings.	0	1	2	3	4
131K) Help you deal with some local institutions’ official rules and regulations.	0	1	2	3	4
131L) Show you how to do something that you didn’t know how to do.	0	1	2	3	4
131M) Explain things to make your situation clearer and easier to understand.	0	1	2	3	4
131N) Tell you what can and cannot be done in North Carolina.	0	1	2	3	4
131O) Help you interpret things that you don’t really understand.	0	1	2	3	4
131P) Give you some tangible assistance in dealing with any communication or language problems that you might face.	0	1	2	3	4
131Q) Explain and help you understand the local culture and language.	0	1	2	3	4
131R) Tell you about available choices and options.	0	1	2	3	4

132) Thank you for participating in this assessment. Is there anything else that you would like to share with us?

INTERVIEWER NOTES

133) Please document any observations or thoughts you have about this interview, the participant, etc

NOTE TO STAFF: Please detach these pages from the rest of the assessment and store in a separate lock box when completed.

Participant ID: _________

CONTACT INFORMATION

Because we need to get in touch with you in the future for follow-up questions, we want to collect some information that will help us get in touch with you.
What is your current address? 135A) Street address: 135B) City, State: 135C) Zip code:
135D) What is your current personal cell phone number?
Is there another way to get in touch with you - maybe another telephone number and an e-mail address?	135E) Telephone number: 135F) E-mail address:
135G) What about your Facebook name; what is it?
Because you may forget to let us know that you have moved or that your telephone number has changed, we would like to get some supplemental ways to get in touch with you. We won’t tell them anything about you or the information you have provide to me, we just want to be able to find you.
Who else would know how to find you? 136A) Name: 136B) Relationship to you: 136C) Street address: 136D) City, State: 136E) Zip code: 136F) Telephone numbers:

Can you give me 2 more people who would know how to find you if we had trouble finding you? 137A) Name: 137B) Relationship to you: 137C) Street address: 137D) City, State: 137E) Zip code: 137F) Telephone numbers:
138A) Name: 138B) Relationship to you: 138C) Street address: 138D) City, State: 138E) Zip code: 138F) Telephone numbers:
I am also giving you a card for you to leave in your wallet that has the telephone number, mailing address, and e-mail address to get in touch with me in case your cell phone changes or address changes.

NOTE TO STAFF: Please provide a Stay-in-Touch card to the participant.

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