Behavioral Assessment (English)

Barriers and Facilitators to Expanding the NHBS to Conduct HIV Behavioral Surveillance Among Transgender Women (NHBS-Trans)

Att 4b_Behavioral Assessment (English)

OMB: 0920-1262

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Form Approved

OMB No: 0920-1262

OMB Exp. Date: XX/XX/XXXX











National HIV Behavioral Surveillance System among Transgender Women (NHBS-Trans)

Attachment #5b (English)

Behavioral Assessment (English)

















Public reporting burden of this collection of information is estimated to average 40 minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to CDC/ATSDR Reports Clearance Officer; 1600 Clifton Road NE, MS D-74, Atlanta, Georgia 30329; Attn: OMB-PRA (0920-1262)













CORE INTRODUCTION (CI)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle

Consent

CN1

CONSENTA

Consent to survey



Universe_CI.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1).


CI1_OMB.

DISPLAY: Public reporting burden of this collection of information is estimated to average 40 minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to: CDC, Project Clearance Officer, 1600 Clifton Road, MS D-74, Atlanta, GA 30329, ATTN: PRA (0920-1262). Do not send the completed form to this address.




CALC_START_C.



START_C

Interview start time

START_C = Current time





INTRO_CORE.

On one screen, DISPLAY: "GET READY TO BEGIN THE SURVEY."



On the next screen, DISPLAY:

"READ: Most people have never been in an interview like this one, so I'm going to describe how it works before we start. I will read you questions exactly as they are written. Some may sound awkward, but I need to read them as worded so everyone in the study is asked the same questions. Some questions will ask you to recall if you did something, when you did it, or how often you did it. For others, I'll read or show you a list of responses to choose from. Please be as accurate as you can. During the survey, the terms “transgender” and “gender nonconforming” are used broadly to refer to persons who identify, live, or present as a gender other than the one associated with their sex assigned at birth."

Then, go to END_CI.





END_CI.

Go to Network Section (NS).

NETWORK SECTION (NS)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Interviewer Entered Information

IE2

CITY

City

Interviewer Entered Information

IE5

ISEED

Respondent is a seed

Eligibility Screener


EL_TRANS

Eligible: TRANS cycle

Consent

CN1

CONSENTA

Consent to survey



UNIVERSE_NS.

TRANS cycle eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1).



CALC_BEGNS.



BEGNS

Time at beginning of network section

BEGNS = Current time



Check_INTRO_NS1.

If R is not a seed (IE5 EQ 0), go to INTRO_NS1.

If R is a seed (IE5 EQ 1), go to INTRO_NS2.

TRANS Recruiter Relationship

INTRO_NS1.

DISPLAY: "READ: I'm going to start by asking you about the person who gave you this coupon and about other people you know in [if the project area is Norfolk (IE2 EQ 17), fill with “Hampton Roads”, else, fill with project area (city name from IE2)]. Please remember that your answers will be kept private."



NS1.

[Give Respondent Flashcard C.]



Which of the following describes how you know the person who gave you this coupon? You can choose more than one answer.



[READ choices. CHECK ALL that apply.]

NS_TREL

Relationship to Recruiter, TRANS



NS_TRELA

A relative or family member




NS_TRELB

A person you have sex with




NS_TRELC

A friend




NS_TRELD

An acquaintance, that is, a person you know but do not consider a friend




NS_TRELE

A stranger, you don't know the person or just met them





Refuse to Answer

7




HardEdit_NS1.

If recruiter was a stranger and some other relationship type (NS_TRELE EQ 1 & NS_TREL GT 1), DISPLAY: "INTERVIEWER: Respondent cannot choose stranger along with some other relationship type. Clarify respondent's relationship with their recruiter." Then, go back to NS1.

Else, go to Check_NS1CONF.





Check_NS1CONF.

If recruiter was a stranger (NS_TRELE EQ 1), go to NS1CONF.

If recruiter was not a stranger (NS_TRELE NE 1), go to INTRO_NS2.





NS1CONF.

When and where did you first see this person?



[DO NOT read choices.]



[INTERVIEWER: If the respondent indicates that he first saw the recruiter in a situation related to the project (e.g. receiving their coupon, waiting outside of the storefront, etc.), then check "Recruiter is a stranger".]

NS_RSTRT

Confirmation: recruiter is a stranger




Recruiter is a stranger

1




Recruiter is NOT a stranger

2




Check_INTRO_NS2.

If R does not confirm that recruiter was a stranger (NS1CONF EQ 2), go back to NS1.

If R confirms that recruiter was a stranger (NS1CONF EQ 1), go to INTRO_NS2.



Network Size



INTRO_NS2.

DISPLAY: "READ: Now, I'm going to ask you about transgender women and transfeminine people you know and interact with, for example by phone, email, online, or in person. I will not ask you any questions about any specific person."





NS2.

Think about all the transgender women and transfeminine people you know who are at least 18 years old, and live in [if the project area is Norfolk (IE2 EQ 17), fill with “Hampton Roads”, else, fill with project area (city name from IE2)]. How many of these transgender women and transfeminine people have you interacted with in the past 30 days? [If R is not a seed (IE5 EQ 0), fill with "Please include the person who gave you the coupon."]

NS_TWR2

# trans women known: net size




Range

0 - 7500




Don't Know

9999




Refuse to Answer

7777






Check_NS2CONFa.

If R has not seen any other transgender women (NS_TW EQ 0), go to NS2CONFa.

Else, go to CALC_ENDNS.





NS2CONFa.

You said you haven't interacted with any transgender women or transfeminine people in the past 30 days in [if the project area is Norfolk (IE2 EQ 17), fill with “Hampton Roads”, else, fill with project area (city name from IE2)] who is someone you know who is at least 18 years old. Is this correct? [If R is not a seed (IE5 EQ 0), fill with "Did you include the person who gave you the coupon?"]

NS_TZEROR2

Confirmation: NSC_TRAN = 0




No - - DOES know others

0




Yes - - does NOT know any others

1






Check_NS2CONFb.

If R does not know others (NS2CONFa EQ 1), go to CALC_ENDNS.

If R does know others (NS2CONFa EQ 0), DISPLAY: "INTERVIEWER: Please re-enter the correct network size." Then, go back to NS2.



CALC_ENDNS.



ENDNS

Time network section ended

ENDNS = Current time



END_NS.

Go to Demographic Section (DM).



NHBS TRANS QUESTIONNAIRE

DEMOGRAPHICS (DM)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Preloaded variables

--

IDATE

Interview date

Interviewer Entered Information

IE2

CITY

City

Eligibility Screener

ES1

DOB

Date of birth

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle

Consent

CN1

CONSENTA

Consent to survey



Universe_DM.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1).



CALC_BEGDM.



BEGDM

Time at beginning of DM section

BEGDM = Current time



Homelessness



INTRO_DM1.

DISPLAY: "READ: Next, I'd like to ask you some questions about where you live. Please remember your answers will be kept private."





DM1.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you experienced homelessness at any time? By homelessness, I mean you were living on the street, in a shelter, in a Single Room Occupancy hotel (SRO), or in a car.

P12HOMLS

Homeless during past 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7






Check_DM2a.

If R homeless in last 12 months (DM1 EQ 1), go to DM2.

Else, go to DM4.



DM2.

Are you currently homeless?

CNTHOMLS

Currently homeless




No

0




Yes

1




Don't Know

9




Refuse to Answer

7






DM3.

In the past 12 months, about how many total nights were you homeless?

HOMLSNTS

Nights homeless




__ __ __





Range

0-365




Don’t Know

999




Refuse to Answer

777






DM4.

In the past 12 months, have you been refused access to a shelter because you are transgender or gender nonconforming? By “refused access”, I mean you were turned away, forced to house with people of a gender you don’t identify with, or forced to change any aspect of your appearance before being allowed inside.

SHLTRRFR2

Homeless shelter refusal because transgender




No

0




Yes

1




Don't Know

9




Refuse to Answer

7






DM5.

In the past 12 months, did you ever move in with other people even for a little while because of financial problems?

COUCH

Couch surfing




No

0




Yes

1




Don't Know

9




Refuse to Answer

7






DM6.

In the past 12 months, how many times have you moved?

NUMMOVE

Times moved




__ _____





Range

0-100




Don't Know

9




Refuse to Answer

7






DM7.

Have you ever been denied housing or been evicted?

EVRHOUS

Housing denial ever




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_DM8.

If R denied housing or evicted (DM7 EQ 1), go to DM8.

Else, go to DM9.





DM8.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you been denied housing or been evicted?

HOUSINGR2

Housing denial, p12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7








DM9.

What zip code do you live in?

ZIP

Zip code




__ __ __ __ __





Range

00500-99501




Don't Know

999999




Refuse to Answer

777777




HardEdit_DM9.

If response to DM9 is not 5 digits long, DISPLAY: "INTERVIEWER: The ZIP code you entered was [fill with response to DM9]. This number should be 5 digits long. Please re-enter the zip code." Then, go back to DM9.

Else, go to DM10.



Nativity



DM10.

Now, I would like to ask you some questions about your background. What country were you born in?


[DO NOT read choices.]

COUNTRY

Country of birth




United States

1




Mexico

2




Puerto Rico

3




Cuba

4




Other

5




Don't Know

9




Refuse to Answer

7




Check_DM10spec.

If R born in 'other' country (DM10 EQ 5), go to DM10spec.

Else, go to Check_DM10a.



DM10spec.

INTERVIEWER: Specify other country of birth

SPECBORN

Specify country of birth



__ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __




{text response; max length = 100 characters}



Check_DM10a.

If R interviewed in San Juan & born in Mexico, Cuba, or 'other' country (IE2 EQ 23 & DM10 EQ 2, 4, or 5) or R interviewed in any other city & born in Mexico, Puerto Rico, Cuba, or 'other' country (IE2 NE 23 & DM10 EQ 2, 3, 4, or 5), go to DM10a.

Else, go to Check_DM10b1.



DM10a.

What year did you first come to live in the United States?


YEARUSA

Year first came to US




__ __ __ __





Range

1900-2100




Don't Know

9999




Refuse to Answer

7777




HardEdit_DM10a.

If DM10a after year of interview (DM10a AFTER IDATE (year)), DISPLAY: "INTERVIEWER: The year first came to US cannot be after the current year." Then, go back to DM10a.

If DM10a before year of birth (DM10a BEFORE ES1 (year)), DISPLAY: "INTERVIEWER: The year first came to US cannot be before participant's birth year." Then, go back to DM10a.

Else, go to Check_DM10b1.



Language


Check_DM10b1.

If R is being interviewed in English (LANGUAGE=1), go to DM10b1.

Else, go to DM11.



DM10b1.

Do you speak a language other than English at home?

SPKOTLN

Speak language other than English at home




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Marital status



DM11.

What is your current marital status?



[READ choices.]

MSTAT

Marital status




Married

1




Living together as married

2




Separated

3




Divorced

4




Widowed

5




Never married

6




Don't Know

9




Refuse to Answer

7




Socioeconomic Status



DM12.

What is the highest level of education you completed?



[DO NOT read choices.]

SCHOOL

Education




Never attended school

0




Grades 1 through 8

1




Grades 9 through 11

2




Grade 12 or GED

3




Some college, Associate's Degree, or Technical Degree

4




Bachelor's Degree

5




Any post graduate studies

6




Don't Know

9




Refuse to Answer

7






DM13.

What best describes your employment status? Are you:



[READ choices.]

EMPSTAT

Employment status



Employed full-time

1



Employed part-time

2



A homemaker

3



A full-time student

4



Retired

5



Unable to work for health reasons

6



Unemployed

7



Other

8



Don't Know

99



Refuse to Answer

77




DM13a.

Have you ever had trouble getting a job?


EVRTRBLJOB

Trouble getting job





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not applicable

8




Check_DM13b.

If R ever had trouble getting job (DM13a EQ 1), go to DM13b.

Else, go to INTRO_DM14.



DM13b.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you had trouble getting a job?


TRBLJOBR2

Trouble getting job, past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not applicable

8




INTRO_DM14.

If R currently homeless (DM2 EQ 1), DISPLAY: "READ: Next I'd like to ask you some questions about your income. By "income," I mean the total amount of money you earn or receive. This includes money other people share with you."

Else, DISPLAY: "READ: Next I'd like to ask you some questions about your household income. By "household income," I mean the total amount of money earned and shared by all people living in your household."



DM14.

[Give Respondent Flashcard D.]



What was your [if R currently homeless (DM2 EQ 1), fill with "income", else, fill with "household income"] in [fill with year before interview, formatted as text] from all sources before taxes? Please take a look at this card and tell me the letter that best corresponds to your monthly or yearly income.



[DO NOT read choices.]

HHINCOM

Household Income




A - 0 to $416 (M) 0 to $4,999 (Y)

0




B - $417 to $833 (M) $5,000 to $9,999 (Y)

1




C - $834 to $1041 (M) $10,000 to $12,499 (Y)

2




D - $1042 to $1249 (M) $12,500 to $14,999 (Y)

3




E - $1250 to $1666 (M) $15,000 to $19,999 (Y)

4




F - $1667 to $2083 (M) $20,000 to $24,999 (Y)

5




G - $2084 to $2499 (M) $25,000 to $29,999 (Y)

6




H - $2500 to $2916 (M) $30,000 to $34,999 (Y)

7




I - $2917 to $3333 (M) $35,000 to $39,999 (Y)

8




J - $3334 to $4166 (M) $40,000 to $49,999 (Y)

9




K - $4167 to $4999 (M) $50,000 to $59,999 (Y)

10




L - $5000 to $6249 (M) $60,000 to $74,999 (Y)

11




M - $6250 to $8332 (M) $75,000 to $99,999 (Y)

12




N - $8333 or more (M) $100,000 or more (Y)

13




Don't Know

99




Refuse to Answer

77




Check_DM14a.

If R reported income (DM14 GE 0 & LE 13), go to DM14a.

Else, go to DM15.



DM14a.

Including yourself, how many people depended on this income?



[INTERVIEWER: Must be at least 1.]

DEPEND

Number of dependents




__ __




Range

1-76




Don't Know

99




Refuse to Answer

77




Food Insecurity



DM15.

In the past 12 months, did you ever cut the size of your meals or skip meals because there wasn’t enough money for food?

CUTMLSZ

Cut or skip meal due to money






No

0





Yes

1





Don’t Know

9





Refuse to Answer

7





DM16.

In the past 12 months, did you ever not eat for a whole day because there wasn’t enough money for food?


NOTEAT

Not eat for a day due to money





No

0




Yes

1




Don’t Know

9



Refuse to Answer

7





INTRO_DM17a.

DISPLAY: "The next questions are about your overall health."


DM17a.

Are you deaf or do you have serious difficulty hearing?

DISDEAF

Disability - hearing




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



DM17b.

Are you blind or do you have serious difficulty seeing, even when wearing glasses?

DISBLND

Disability - vision




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



DM17c.

Because of a physical, mental, or emotional condition, do you have serious difficulty concentrating, remembering, or making decisions?

DISCOGN

Disability - Cognition




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



DM17d.

Do you have serious difficulty walking or climbing stairs?

DISWALK

Disability - Ambulation




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



DM17e.

Do you have difficulty dressing or bathing?

DISCARE

Disability - Self-care




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



DM17f.

Because of a physical, mental, or emotional condition, do you have difficulty doing errands alone, such as visiting a doctor's office or shopping?

DISERND

Disability - Errands




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




CALC_ENDDM.



ENDDM

Time demographics section ended

ENDDM = Current time





END_DM.

Go to Healthcare Access Section (HA).

HEALTHCARE ACCESS (HA)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Preloaded variables

--

IDATE

Interview date

Eligibility Screener


EL_TRANS

Eligible: TRANS cycle

Consent

CN1

CONSENTA

Consent to survey



Universe_HA.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1).



CALC_BEGHA.



BEGHA

Time at beginning of HA section

BEGHA = Current time



INTRO_HA1.

DISPLAY: "The next questions are about health insurance. By health insurance, we mean health plans people get through employment or purchased directly, as well as government programs like Medicare and Medicaid that provide medical care or help pay medical bills."



HA1.

Do you currently have health insurance or health care coverage?

CURRHLTH

Currently insured




No

0




Yes

1




Don't Know

9




Refuse to Answer

7






Check_HA1a.

If R currently insured (HA1 EQ 1), go to HA1a.

Else, go to HA1b.



HA1a.

[Give Respondent Flashcard E.]



What kind of health insurance or coverage do you currently have?



[READ choices. CHECK ALL that apply.]

TYP_INS

Type of health insurance



TYP_INSA

A private health plan - through an employer or purchased directly




TYP_INSB

Medicaid - for people with low incomes




TYP_INSC

Medicare - for the elderly and people with disabilities




TYP_INSD

Some other government plan




TYP_INSE

TRICARE / CHAMPUS




TYP_INSF

Veterans Administration coverage




TYP_INSG

Some other health insurance





Don't Know

99




Refuse to Answer

77




Check_HA1aspec.

If R reported 'other' insurance type (TYP_INSG EQ 1), go to HA1aspec.

Else, go to HA1b.



HA1aspec.

INTERVIEWER: Specify other health insurance or coverage:

SPECINS

Specify other health insurance



__ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __



{text response; max length = 100 characters}



HA1b.

Is there a place that you usually go when you are sick or you need advice about your health? Do NOT include internet web sites.

SRCCAREA

Have a usual source of care




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_HA1b.1.

If R has no usual source of care (HA1b EQ 0), go to HA1b.1.

Else, go to Check_HA1c.



HA1b.1.

Is this because there is no place you go for health care or because there is more than one place?

SRCCAREB

Why no usual source of care




There is no place

1




There is more than one place

2




Don't Know

9




Refuse to Answer

7




Check_HA1c.

If R has 1 or more usual source of care (HA1b EQ 1 or HA1b.1 EQ 2), go to HA1c.

Else, go to HA1d.



HA1c.

What kind of place [if R has usual source of care (HA1B EQ 1), fill with "is it", else, fill with "do you go to most often"] - a clinic, doctor's office, emergency room, or some other place?

SRCLOC

Location of usual care




Clinic or health center

1




Doctor's office or HMO

2




Hospital emergency room

3




Some other place

4




Doesn't go to one place most often

5




Don't Know

9




Refuse to Answer

7




HA1d.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you seen a doctor, nurse, or other health care provider?

VSITMD12

Health care visit, 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_HA1e.1

If whether R saw health care provider not reported (HA1d EQ DK or REF), go to HA1f.

If R saw health care provider (HA1d EQ 1), go to HA1e.1

If R did NOT see health care provider (HA1d EQ 0), go to HA1e.2



HA1e.1

At any of those times you were seen, were you offered an HIV test? An HIV test checks whether someone has the virus that causes AIDS.

RECCHIV

Provider offered HIV test, 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_HA1e.2.

Go to HA1f.



HA1e.2.

About how long has it been since you last saw a doctor, nurse, or other health care provider about your own health? Would you say it was...



[READ choices.]

WHNLHCP

When last visited health care provider




More than 1 year ago but less than 2 years ago

1




2 to 5 years ago

2




More than 5 years ago

3




Don't Know

9




Refuse to Answer

7




HA1f.

During the past 12 months, was there any time when you needed medical care but didn't get it because you couldn't afford it?

HCAFF

Lacked health care due to cost




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




INTRO_HA2.

DISPLAY: "The next questions will ask you about your experiences with health care providers."



HA2.

Have you ever had a health care provider with whom you felt comfortable discussing gender-related health issues?

EVRCOMF

Ever comfortable with provider




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_HA2a.

If R has ever had a health care provider they feel comfortable with (HA2 EQ 1), go to HA2a.

Else, go to HA3.



HA2a.

Do you currently have a health care provider with whom you feel comfortable discussing gender-related health issues?

PROVCOMF

Comfortable with provider




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




HA3.

Have you ever been denied or given lower quality health care because you are transgender or gender nonconforming?


EVRHCR

Ever denied health care because transgender





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_HA3a.

If R has had health care discrimination (HA3 EQ 1), go to HA3a.

Else, go to HA4.



HA3a.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you been denied or given lower quality health care because you are transgender or gender nonconforming?


PRHLTHCR

Denied health care because transgender





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not applicable

8




HA4.

Have you ever avoided seeking healthcare because you were worried about being treated poorly by healthcare staff because you are transgender or gender nonconforming?


EVRAVOID

Ever avoided health care because transgender





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_HA3a.

If R has avoided health care (HA4 EQ 1), go to HA4a.

Else, go to CALC_ENDHA.



HA4a.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you avoided seeking healthcare because you were worried about being treated poorly by healthcare staff because you are transgender or gender nonconforming?


AVOID

Avoided health care because transgender p 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7






CALC_ENDHA.



ENDHA

Time healthcare access section ended

ENDHA = Current time



END_HA.

Go to Gender Affirmation section (GA).

GENDER AFFIRMATION (GA)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Eligibility Screener

--

AGE

QDS calculated age today

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle

Consent

CN1

CONSENTA

Consent to survey



Universe_GA.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1).



CALC_BEGGA.



BEGGA

Time at beginning of GA section

BEGGA = Current time





INTRO_GA1.

DISPLAY: "READ: The next questions are about your gender identity."



GA1.

At what age did you start to think you were transgender, nonbinary, or gender nonconforming, even if you did not have a way to say what you were feeling?

AGEGENDR2

Age aware of gender identity




__ __ __





Range

0-100




Don’t Know

999




Refuse to Answer

777




Not applicable

888




HardEdit_GA1.

If age of gender identity awareness greater than current age (GA1 GT AGE), DISPLAY: “INTERVIEWER: The age of gender identity awareness cannot be greater than respondent’s current age ([fill with R’s age (AGE)]). Please clarify and re-enter response.” Then, go back to GA1.

Else, go to GA2.



GA2.

Thinking about your gender identity or self-expression, how supported did you feel by your immediate family members that you grew up with, such as your parents or siblings, when you were growing up?


[READ CHOICES.]

FAMSUPP

Level of support




Very supported

0




Somewhat supported

1




A little supported

2




Not at all supported

3




Don't Know

9




Refuse to Answer

7




INTRO_GA2a.

DISPLAY: “READ: Now I'm going to read you a list of things that your immediate family members that you grew up with may have done to support you. Please tell me if your family members did these things.”



GA2a.

Told you they respect and/or support you?

FAMILYSUPP

Told about support




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




GA2b.

Used your chosen name?

FAMILYNAME

Family used preferred name




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




GA2c.

Used your correct pronouns?

FAMILYPRO

Family used correct pronouns




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




GA2d.

Financially supported any part of your gender transition?

FAMMONEY

Family gave money for transition




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




GA2e.

Helped you change your name and/or gender on your legal documents such as a driver’s license or ID?

FAMLEGAL

Helped change name/gender




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




GA2f.

Did research to learn how to best support you such as reading books, using online information or attending a conference?

FAMRESRCH

Family did research to support




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




GA2g.

Stood up for you to family, friends, or others?

FAMSTOOD

Stood up against others




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




GA2h.

Supported you in some other way?

FAMOTHER

Other type of support




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




INTRO_GA3.

DISPLAY: “READ: Now we are going to talk a little about your support system. By support system, I mean the person or people you rely on most in your day-to-day life.”



GA3.

[Give Respondent Flashcard F.]


When you think of your support system, who do you think of?


[READ choices. CHECK ALL that apply.]


SUPPSYS

Support System




SUPPSYSA

Chosen family




SUPPSYSB

Biological or foster family




SUPPSYSC

Friends




SUPPSYSD

Mentors




SUPPSYSE

Partners




SUPPSYSF

Special person or people



SUPPSYSG

Therapist/counselor/support groups



SUPPSYSH

Religious community



SUPPSYSI

Sex worker community




SUPPSYSJ

No one





Don’t Know

9




Refuse to Answer

7




Check_GA4.

If R has a support system (SUPPSYSJ NE 1, DK, REF), go to INTRO_GA4.

Else, go to INTRO_GA13.



INTRO_GA4.

DISPLAY: "[Give Respondent Flashcard G.]



READ: The next set of statements is about your support system. For each statement, please tell me how strongly you agree or disagree with it, using one of the options on this card.”



GA4.

I can talk about my problems with my support system. Do you…

[READ choices.]


SUPPTALK

Talk about problems to support system





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA5.

My support system is willing to help me make decisions. Do you…

[READ choices.]


SUPPDEC

Support system decision help





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA6.

My support system really tries to help me. Do you…

[READ choices.]


SUPPHELP

Support system help





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA7.

I get the emotional help and support I need from my support system. Do you…

[READ choices.]


SUPPEMOT

Emotional support from support system





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7






GA8.

My support system is around when I am in need. Do you…

[READ choices.]


SUPPAROU

Support system is around





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA9.

I can share joys and sorrows with my support system. Do you…

[READ choices.]


SUPPJOY

Support system share joys





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA10.

My support system is a real source of comfort to me. Do you…

[READ choices.]


SUPPCOMF

Support system comfort





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA11.

I can count on my support system when things go wrong. Do you…

[READ choices.]


SUPPWRONG

Count on support system when things go wrong





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA12.

The people in my support system care about my feelings. Do you…

[READ choices.]


SUPPCARE

Support system cares about feelings





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7






INTRO_GA13.

DISPLAY: “READ: The following items are about your attitudes regarding having your gender affirmed. For each statement, please tell me how strongly you agree or disagree with it, using one of the options on this card.”



GA13.

It is important to me that people I do not know use the correct pronouns when talking to me. Do you…

[READ choices.]


PROSTRAN

Correct pronouns with strangers





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA14.

It is important to me that biological or foster family members use the correct pronouns when talking to me. Do you…

[READ choices.]


PROFAMILY

Correct pronouns with family





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA15.

It is important to me that friends use the correct pronouns when talking to me. Do you…

[READ choices.]


PROFRIEND

Correct pronouns with friends





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA16.

It is important to me that health care providers use the correct pronouns when talking to me. Do you…

[READ choices.]


PROHCPROV

Correct pronouns with HC providers





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA17.

It is important to me to have legal documents such as a driver’s license or ID that accurately reflect my current gender identity or self-expression. Do you…

[READ choices.]


GENIDID

Gender identity correct on ID





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




INTRO_GA18.

DISPLAY: “READ: The following items are about your level of comfort and satisfaction while navigating the world as a transgender person. For each statement, please tell me how strongly you agree or disagree with it, using one of the options on this card.”



GA18.

I am comfortable going out in public during the day. Do you…

[READ choices.]


COMPUB

Comfortable in public





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA19.

I am comfortable with people knowing my current gender identity or self-expression. Do you…

[READ choices.]


COMGEN

Comfortable in knowing gender identity





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA20.

I am satisfied with my body as it is right now, not just today but in general. Do you…

[READ choices.]


SATBODY

Satisfied with body





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA21.

I am satisfied with the way I look right now, not just today but in general. Do you…

[READ choices.]


SATLOOKS

Satisfied with the way I look





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




GA22.

I am satisfied with the way my gender expression reflects my gender identity. Do you…

[READ choices.]


SATFEM

Satisfied with level of femininity





Strongly agree

1




Agree

2




Neither agree nor disagree

3




Disagree

4




Strongly disagree

5




Don’t Know

9




Refuse to Answer

7




INTRO_GA24.

DISPLAY: “READ: The following items are about changes you may have made to better reflect your identity on legal documents such as your IDs and records.”



GA24.

Thinking about how your NAME is listed on all of your legal documents that list your name, such as your birth certificate, driver’s license, passport, etc., which of these statements is most true?



[READ choices.]


NAMEIDS

IDs listing preferred name





All of my IDs and records list my chosen name

1




Some of my IDs and records list my chosen name

2




None of my IDs and records list my chosen name

3




Not applicable

8




Don’t Know

9




Refuse to Answer

7




GA25.

Thinking about how your GENDER is listed on all of your legal documents that list your gender, such as your birth certificate, driver’s license, passport, etc., which of these statements is most true?



[READ choices.]


GENDIDS

IDs listing preferred gender





All of my IDs and records list the gender I would like listed

1




Some of my IDs and records list the gender I would like listed

2




None of my IDs and records list the gender I would like listed

3




Not applicable

8




Don’t Know

9




Refuse to Answer

7




INTRO_GA26.

DISPLAY: “READ: Now, I’d like to ask about experiences you may have had while navigating the world as a transgender, nonbinary, or gender nonconforming person.”



GA26.

Have you ever been denied access to bathrooms that were appropriate to your gender identity or self-expression?


BTHRMEV

Ever denied access to appropriate bathroom





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not applicable

8




Check_GA26a.

If R has had bathroom discrimination (GA26 EQ 1), go to GA26a.

Else, go to GA27.



GA26a.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you been denied access to bathrooms that were appropriate to your gender identity or self-expression?


BTHRMR2

Denied access to appropriate bathroom, past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not applicable

8




GA27.

Have you ever received poorer services than other people in restaurants, stores, or other businesses because you are transgender or gender nonconforming?

PRSRVCEV

Poorer service because transgender ever




No

0



Yes

1



Don't Know

9



Refuse to Answer

7



Not applicable

8




Check_GA27a.

If R has had public discrimination (GA27 EQ 1), go to GA27a.

Else, go to GA28.



GA27a.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you received poorer services than other people in restaurants, stores, or other businesses because you are transgender or gender nonconforming?


PRSRVCR2

Poorer service because transgender past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not applicable

8




GA28.

Have you ever been fired from a job because you are transgender or gender nonconforming?


FIREDEV

Ever fired because transgender





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not applicable

8




Check_GA28a.

If R ever fired from job (GA28 EQ 1), go to GA28a.

Else, go to CALC_ENDGA.



GA28a.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you been fired from a job because you are transgender or gender nonconforming?


FIREDR2

Fired because transgender, past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not applicable

8




CALC_ENDGA.



ENDGA

Time gender affirmation section ended

ENDGA = Current time



END_GA.

Go to Medical Gender Affirmation section (MG).

MEDICAL GENDER AFFIRMATION (MG)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Eligibility Screener


EL_TRANS

Eligible: TRANS cycle

Eligibility Screener

--

AGE

QDS calculated age today

Consent

CN1

CONSENTA

Consent to survey

Healthcare Access

HA1

CURRHLTH

Currently insured

Gender Identity

GI1

AGEGEND

Age aware of gender identity



Universe_MG.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1).



CALC_BEGMG.



BEGMG

Time at beginning of MG section

BEGMG = Current time



INTRO_MG1.

DISPLAY: "READ: The next set of questions is about hormones and surgeries you may have used for gender transition, affirmation, or to help make your body align with your gender identity or self-expression. These things are sometimes referred to as medical gender affirmation or gender transition, though we recognize that there are many ways to define gender transition that do not include hormones or surgery.”



MG1.

Have you ever taken hormones for gender transition or affirmation?

EVRHORM

Medical gender transition initiation




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_MG1a.

If R has used hormones (MG1 EQ 1), go to MG1a.

Else, go to Check_MG1b.



MG1a.

Are you currently taking hormones?

CURHORM

Currently on hormones




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_MG1b.

If R did not report ever having taken hormones for gender transition (MG1 EQ 0, DK, or REF) or is not currently taking hormones (MG1a EQ 0, DK, or REF), go to MG1b.

Else, go to Check_MG2.



MG1b.

Would you like to take hormones?

WNTHORM

Want hormones




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_MG2.

If R currently has health insurance (HA1 EQ 1) and is currently taking hormones or would like to take hormones (MG1a EQ 1 or MG1b EQ 1), go to MG2.

Else, go to Check_MG3.



MG2.

Does your current health insurance cover hormones?

INSHORM

Insurance cover hormone treatments




No

0




Yes

1




Don’t Know

9




Refuse to Answer

7




Check_MG2a.

If R currently has health insurance coverage for hormones (MG2 EQ 1), go to MG2a.

Else, go to Check_MG3.



MG2a.

Does your current health insurance cover the kind of hormones you prefer?

INSHORMTYPE

Insurance cover desired hormone treatments




No

0




Yes

1




Don’t Know

9




Refuse to Answer

7




Check_MG3.

If R has ever taken hormones (MG1 EQ 1), go to MG3.

Else, go to INTRO_MG7.



MG3.

How old were you when you began taking hormones?

AGEHORM

Age began hormones




__ __ __





Range

0-100




Don’t Know

999




Refuse to Answer

777




HardEdit_MG3.

If age of first hormones greater than current age (MG3 GT AGE), DISPLAY: “INTERVIEWER: The age at first hormones cannot be greater than respondent’s current age ([fill with R’s age (AGE)]). Please clarify and re-enter response.” Then, go back to MG3.

Else, go to Check_MG4.

If age of first hormones less than age of first trans identity (MG3 LT GA1), DISPLAY: “INTERVIEWER: The age at first hormones cannot be less than respondent’s age of first trans identity ([fill with R’s age of first trans identity (GA1)]). Please clarify and re-enter response.” Then go back to MG3.

Else, go to Check_MG4.



Check_MG4.

If R has ever taken hormones but did not report not currently taking hormones (MG1 EQ 1 and MG1a NE 1), go to MG4.

Else, go to Check_MG5.



MG4.

In the past 12 months, have you used hormones?

HORMAFF

Taken hormones for gender affirmation




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_MG5.

If R has taken hormones in the past 12 months (MG4 EQ 1) or is currently taking hormones (MG1a EQ 1), go to MG5.

Else, go to INTRO_MG7.



MG5.

In the past 12 months, have you used hormones that were not prescribed to you by a doctor or other health care provider?

HORMRX

Taken hormones not prescribed




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_MG5a.

If R has taken hormones in the past 12 months that were not prescribed to them (MG5 EQ 1), go to MG5a.

Else, go to MG6.



MG5a.

[Give Respondent Flashcard H.]



In the past 12 months, where did you get your hormones that were not prescribed to you? You can choose more than one answer.



[READ choices. CHECK ALL that apply.]

GETHORM

Where did you get hormones



GETHORMA

Pharmacy or drug store




GETHORMB

Doctor’s office, clinic or hospital




GETHORMC

Friend, acquaintance, relative, or sex partner




GETHORMD

Off the streets




GETHORME

Internet




GETHORMF

Other





Don’t Know

9




Refuse to Answer

7




MG6.

[Give Respondent Flashcard I.]



In the past 12 months, what forms of hormones did you take? You can choose more than one answer.



[READ choices. CHECK ALL that apply.]

TYPHORM

What types of hormones



TYPHORMA

Pills




TYPHORMB

Skin patch or cream




TYPHORMC

Shots/injection




TYPHORMD

Other





Don’t Know

9




Refuse to Answer

7




Check_MG6a.

If R selected shots/injection (TYPHORMC EQ 1), go to MG6a.

Else, go to INTRO_MG7.



MG6a.

[Give Respondent Flashcard J.]



In the past 12 months, when you had a hormone injection or shot, where did the needle(s) come from? You can choose more than one answer.



[READ choices. CHECK ALL that apply.]

WHRNDL

Where needle came from for hormone shot



WHRNDLA

Pharmacy or drug store




WHRNDLB

Doctor’s office, clinic, or hospital




WHRNDLC

Friend, acquaintance, relative, or sex partner




WHRNDLD

Off the streets




WHRNDLE

Needle exchange program or someone who got them from a needle exchange program




WHRNDLF

Internet




WHRNDLG

Other





Don’t Know

9




Refuse to Answer

7




MG6b.

[Give Respondent Flashcard K.]



In the past 12 months, when you had a hormone shot, how often was a new, sterile needle used? By a new, sterile needle, I mean a needle never used before by anyone, even you.



[READ choices.]

STRLHORM

How often sterile needle used




Never

0




Rarely

1




About half the time

2




Most of the time

3




Always

4




Don’t Know

9




Refuse to Answer

7




INTRO_MG7.

DISPLAY: "READ: The next questions are about surgeries or other procedures available for gender transition or affirmation. By surgeries or other procedures, I mean procedures that pertain to your gender identity, gender expression, or a gender transition. These include but are not limited to: bottom surgery, top surgery, facial feminization, trachea shave, vocal feminization surgery, or other procedures like laser hair removal, electrolysis, piercings or tattoos. It also includes injection of silicone, Botox, or injectable dermal fillers such as collagen, Restylane, or Juvederm.”



MG7.

Have you ever had any type of surgery or other procedure for gender transition or affirmation?

EVRSURGR2

Ever had surgery for gender affirmation




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_MG7a.

If R has had surgery (MG7 EQ 1), go to MG7a.

If R does not know or refuses to report if ever had surgery (MG7 EQ DK or REF), go to CALC_ENDMG.

Else, go to MG11.



MG7a.

Do you plan or want to get additional surgeries or procedures for gender transition or affirmation?

MORESURGR2

Want additional surgeries




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




MG8.

Have you ever had substances other than hormones injected for gender transition or affirmation? This could include silicone, Botox, or injectable dermal fillers such as collagen, Restylane, or Juvederm.

OTHINJR2

Ever injected other substances for gender identity




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_MG9.

If R has ever injected substances other than hormones (MG8 EQ 1), go to MG9.

Else, go to CALC_ENDMG.



MG9.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you had these other injections?

RECINJR2

Other injection in past 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_MG10.

If R injected other substances in the past 12 months (MG9 EQ 1), go to MG10.

Else, go to CALC_ENDMG.



MG10.

In the past 12 months, who gave you these other injections? You can choose more than one answer.



[READ choices. CHECK ALL that apply.]

WHOINJ

Who gave you other injections



WHOINJA

A doctor, nurse or other health care provider

1



WHOINJB

Licensed non-medical professional

2



WHOINJC

You gave them to yourself

3



WHOINJE

Someone else gave them to you

4




Don’t Know

9




Refuse to Answer

7




Check_MG18.

Go to CALC_ENDMG.



MG11.

Do you want to have surgery or other procedures for gender transition or affirmation?

WNTSURGR2

Want surgery




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




CALC_ENDMG.



ENDMG

Time MG section ended

ENDMG = Current time



END_MG.

Go to Sexual Behavior section (SX).

SEXUAL BEHAVIOR (SX)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle

Consent

CN1

CONSENTA

Consent to survey

Preloaded variables

--

AGO12M_C

12 mos before interview: Century Month

Preloaded variables

--

IDATEY

Interview date: Year

Preloaded variables

--

IDATE

Interview date

Eligibility Screener

--

AGE

QDS calculated age today



Universe_SX.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1).



CALC_BEGSX.



BEGSX

Time at beginning of SX section

BEGSX = Current time

Cumulative Sexual Behavior

INTRO_SX1.

DISPLAY: “READ: Next, I’m going to ask you some questions about sex. Please remember your answers will be kept private.”


SX1.

In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you had any kind of sex?


RECNTSEX

Sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX1a.

If R had sex in past 12 months (SX1 EQ 1), go to INTRO_SX1a.

Else, go to CALC_ENDSX.


INTRO_SX1a.

DISPLAY: “READ: The next two questions are about your sexual body parts. These questions may be uncomfortable to hear or answer. We need this information so we can avoid questions that are not relevant to your body.”



SX1a.

Do you have a vagina?


VAGINA

Have a vagina





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX1b.

If (VAGINA EQ 1), go to SX1b. Otherwise, go to SX1c.


SX1b.

At any time in the past 12 months, did you have a penis?


PENIS12

Have a penis in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX1c.

Go to INTRO_SX2a.


SX1c.

Do you have a penis?


PENIS

Have a penis





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



INTRO_SX2a.

DISPLAY: “READ: The next set of questions are about the terms we should use when we ask you about sex. Surveys often use terms that may be uncomfortable for transgender people. To address this, we will ask you what terms you’d like us to use so we can ask the remaining questions using those terms.”


SX2a.

In this section, we use the word “penis” to ask questions about sex. Would you like to use the word “penis”, or is there another word that would help you feel more comfortable answering questions about sex?

PENISALT

R requests replacement term for penis


I’d like to use the term ‘penis ...................................................

0



I’d like to use another term ......................................................

1




Don’t Know

9




Refuse to Answer

7



Check_SX2a.1.

If R did not request a replacement term for penis (SX2a EQ 0, REF OR DK), go to CALC_SPECPENIS.

Else, go to SX2a.1.


SX2a.1.

Please tell me what word you would prefer to use.

SPECPENIS

Specified replacement term for penis



__ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ _



{text response; max length = 100 characters}



Don’t Know

9




Refuse to Answer

7



HardEdit_SX2a.1.

If replacement term for penis is the word penis (SX2c.1. EQ “penis”), DISPLAY: "INTERVIEWER: The replacement term provided for penis is the word penis. Clarify and re-enter response to current or prior item as needed." Then, go back to SX2a.1.


CALC_SPECPENIS

If R did not request a replacement term for penis (SX2a EQ 0, REF OR DK) or R requested a replacement term but provided no term (SX2a.1 EQ REF OR DK), set SPECPENIS = “penis”.


Check_SX2a.2.

If R does not have a penis (SX1b EQ 0 or SX1c EQ 0), go to CALC_YOURPENIS.

Else, go to SX2a.2.


SX2a.2.

Should I use [fill with penis term (SPECPENIS)] to describe your body parts, but use “penis” when talking about other people’s body parts? Or should I use [fill with penis term (SPECPENIS)] to describe your body parts AND other people’s body parts?


PENISSCOPE

Scope of Penis term replacement






Use [fill with penis term (SPECPENIS)] to describe my body parts only

0





Use [fill with penis term (SPECPENIS)] to describe my body parts AND other people’s body parts…

1





Don't Know

9





Refuse to Answer

7




CALC_YOURPENIS

If (PENIS EQ 1) or (PENIS12 EQ 1), set YOURPENIS = SPECPENIS; otherwise, YOURPENIS = .


CALC_THEIRPENIS

If (PENISSCOPE EQ 1), set THEIRPENIS = SPECPENIS; otherwise, fill with “penis”.


SX2b.

In this section, we use the word “vagina” to ask questions about sex. Would you like to use the word “vagina”, or is there another word that would help you feel more comfortable answering questions about sex?

VAGINAALT

R requests replacement term for vagina


I’d like to use the term ‘vagina’ .......................................................

0



I’d like to use another term...............................................................

1




Don’t Know

9




Refuse to Answer

7



Check_SX2b.1.

If R did not request a replacement term for vagina (SX2b EQ 0, REF OR DK), go to CALC_SPECVAGINA.

Else, go to SX2b.1.


SX2b.1.

Please tell me which word you would prefer to use. Be sure that the word you request is different from other words you may have requested.

SPECVAGINA

Specified replacement term for vagina



__ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ _



{text response; max length = 100 characters}



Don’t Know

9




Refuse to Answer

7



HardEdit_SX2b.1.

If replacement term for vagina is the word vagina (SX2b.1. EQ “vagina”), DISPLAY: "INTERVIEWER: The replacement term provided for vagina is the word vagina. Clarify and re-enter response to current or prior item as needed." Then, go back to SX2b.1.



If replacement term for vagina the same as the replacement term for penis (SX2b.1. EQ SX2a.1.), DISPLAY: "INTERVIEWER: READ: If I understood you correctly, you’d like me to use the term”, [fill with SPECVAGINA], “in place of both penis and vagina. The way our questions are worded requires us to use unique terms for each body part, to avoid confusion. Please provide a different, unique term for either penis or vagina.” " Then, go back to SX2b.1.

Else, go to CALC_SPECVAGINA.


CALC_SPECVAGINA

If R did not request a replacement term for vagina (SX2b EQ 0, REF OR DK) or if R requested a replacement term but provided no term (SX2b.1 EQ REF OR DK), set SPECVAGINA = “vagina”.


Check_SX2b.2.

If R does not have a vagina (SX1a EQ 0), go to CALC_YOURVAGINA.

Else, go to SX2b.2.


SX2b.2.

Should I use [fill with vagina term (SPECVAGINA)] to describe your body parts, but use “vagina” when talking about other people’s body parts? Or should I use [fill with vagina term (SPECVAGINA}] or to describe your body parts AND other people’s body parts?


VAGINASCOPE

Scope of vagina term replacement






Use [fill with vagina term (SPECVAGINA)] to describe my body parts only

0





Use [fill with vagina term (SPECVAGINA)] to describe my body parts AND other people’s body parts…

1





Don't Know

9





Refuse to Answer

7




CALC_YOURVAGINA

If (VAGINA EQ 1), set YOURVAGINA = SPECVAGINA; otherwise, YOURVAGINA = .


CALC_THEIRVAGINA

If (VAGINASCOPE EQ 1), set THEIRVAGINA = SPECVAGINA; otherwise, fill with “vagina”.


SX2c.

In the next section, we use the word “anus” to ask questions about sex. Would you like to use the word “anus”, or is there another word that would help you feel more comfortable answering questions about sex?

ANUSALT

R requests replacement term for anus


I’d like to use the term ‘anus’ ...........................................................

0



I’d like to use another term ...............................................................

1




Don’t Know

9




Refuse to Answer

7



Check_SX2c.1.

If R did not request a replacement term for anus (SX2c EQ 0, REF OR DK), go to CALC_SPECANUS.

Else, go to SX2c.1.


SX2c.1.

Please tell me which word you would prefer to use. Be sure that the word you request is different from other words you may have requested.

SPECANUS

Specified replacement term for anus



__ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ _



{text response; max length = 100 characters}



Don’t Know

9




Refuse to Answer

7



HardEdit_SX2c.1.

If replacement term for anus is the word anus (SX2c.1. EQ “anus”), DISPLAY: "INTERVIEWER: The replacement term provided for anus is the word anus. Clarify and re-enter response to current or prior item as needed." Then, go back to SX2c.1.

If replacement term for anus the same as the replacement term for penis (SX2c.1. EQ SX2a.1.), DISPLAY: "INTERVIEWER: READ: If I understood you correctly, you’d like me to use the term”, [fill with SPECANUS], “in place of both penis and anus. The way our questions are worded requires us to use unique terms for each body part, to avoid confusion. Please provide a different, unique term for either penis or anus.” Then, go back to SX2c.1.

If replacement term for anus the same as the replacement term for vagina (SX2c.1. EQ SX2b.1.), DISPLAY: "INTERVIEWER: READ: If I understood you correctly, you’d like me to use the term” [fill with SPECANUS] “in place of both vagina and anus. The way our questions are worded requires us to use unique terms for each body part to avoid confusion. Please provide a different unique term for either vagina or anus.” Then, go back to SX2c.1.

Else, go to CALC_SPECANUS.


CALC_SPECANUS

If R did not request a replacement term for anus (SX2c EQ 0, REF OR DK) or if R requested a replacement term but provided no term (SX2c.1 EQ REF OR DK), set SPECANUS = “anus”.


SX2c.2.

Should I use [fill with anus term (SPECANUS)] to describe your body parts only, but use “anus” when talking about other people’s body parts? Or should I use [fill with anus term (SPECANUS)] to describe your body parts AND other people’s body parts?


ANUSSCOPE

Scope of anus term replacement






Use [fill with anus term (SPECANUS)] to describe my body parts only

0





Use [fill with anus term (SPECANUS)] to describe my body parts AND other people’s body parts…

1





Don't Know

9





Refuse to Answer

7




CALC_YOURANUS

YOURANUS = SPECANUS.


CALC_THEIRANUS

If (ANUSSCOPE EQ 1), set THEIRANUS = SPECANUS; otherwise, fill with “anus”.




















INFO_TERMS.

DISPLAY: "INTERVIEWER: Respondent has indicated they would like to use the following terms for body parts:



- Preferred term for respondent’s penis: [If YOURPENIS NE SK, DK, or REF, fill with response to YOURPENIS, else fill with “penis”]

- Preferred term for other person’s penis: [If THEIRPENIS NE SK, DK, or REF, fill with response to THEIRPENIS, else fill with “penis”]



- Preferred term for respondent’s vagina: [If YOURVAGINA NE SK, DK, or REF, fill with response to YOURVAGINA, else fill with “vagina”]

- Preferred term for other person’s vagina: [If THEIRVAGINA NE SK, DK, or REF, fill with response to THEIRVAGINA, else fill with “vagina”]



- Preferred term for respondent’s anus: [If YOURANUS NE SK, DK, or REF, fill with response to YOURANUS, else fill with “anus”]

- Preferred term for another person’s anus: [If THEIRANUS NE SK, DK, or REF, fill with response to THEIRANUS, else fill with “anus”]



If any of these is incorrect, GO BACK to the previous screens and re-enter the correct responses."



INTRO_SX3.

DISPLAY: “READ: The next set of questions are about having sex. I need to ask you all of these questions, even if some may not apply to your situation.”



SX3.

In the past 12 months, have you had sex where anyone put their [fill with (THEIRSPECPENIS)] in your [fill with (YOURANUS)] [if (VAGINA EQ 1), fill with “ or “] + (YOURVAGINA)]?


RECEPSEX

Receptive sex in past 12 months





No

0




Yes

1




Don’t Know

9




Refuse to Answer

7



Check_SX3a.

If R had receptive sex in the past 12 months and has a vagina (SX3 EQ 1 and SX2a EQ 1), go to SX3a.

If R had receptive sex in the past 12 months and does not have a vagina (SX3 EQ 1 and SX2a EQ 0, DK or REF), go to SX3a.1.

Else, go to Check_SX4.


SX3a.

In the past 12 months, did anyone put their [fill with (THEIRPENIS)] in your [fill with (YOURANUS)]?


RCPANALR2

Receptive anal sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX3a.1.

If R had receptive anal sex in the past 12 months (SX3a EQ 1), go to SX3a.1.

Else, go to Check_SX3b.


SX3a.1.

In the past 12 months, did anyone put their [fill with (THEIRPENIS)] in your [fill with (YOURANUS)] without a condom?


RCPANA_CR2

Condomless receptive anal sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX3b.

If R had receptive sex in the past 12 months and has a vagina (SX3 EQ 1 and SX2a EQ 1), go to SX3b.

Else, go to Check_SX4.


SX3b.

In the past 12 months, did anyone put their [fill with (THEIRPENIS)] in your [fill with (YOURVAGINA)]?


RCPVAGSXR2

Receptive vaginal sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX3b.1.

If R had receptive vaginal sex in the past 12 months (SX3b EQ 1), go to SX3b.1.

Else, go to HardEdit_SX3b.


SX3b.1.

In the past 12 months, did anyone put their [fill with (THEIRPENIS)] in your [fill with (YOURVAGINA)] without a condom?


RCPVAG_CR2

Condomless receptive vaginal sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



HardEdit_SX3b.

If R reported receptive sex in the past 12 months (SX3 EQ 1) but did not report having either receptive anal or vaginal sex (SX3a EQ 0 and SX3b EQ 0), DISPLAY: "INTERVIEWER: The response entered is inconsistent with a prior response (R reported receptive sex in the past 12 months). Clarify and re-enter response to current or prior item as needed." Then, go back to SX3.

Else, go to SX4.


Check_SX4.

If R has had a penis in the past 12 months (SX1b EQ 1 or SX1c EQ 1), go to SX4.

Else, go to SX5.


SX4.

In the past 12 months, have you had sex where you put your [fill with (YOURPENIS)] in anyone’s [fill with (THEIRANUS)] or [fill with (THEIRVAGINA)]?


INSERTSEX

Insertive sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX4a.

If R had insertive sex in the past 12 months (SX4 EQ 1), go to SX4a.

Else, go to SX5.


SX4a.

In the past 12 months, did you put your [fill with (YOURPENIS)] in anyone’s [fill with (THEIRANUS)]?


INSANALR2

Insertive anal sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX4a.1.

If R had insertive anal sex in the past 12 months (SX4a EQ 1), go to SX4a.1.

Else, go to SX4b.


SX4a.1.

In the past 12 months, did you put your [fill with (YOURPENIS)] in anyone’s [fill with (THEIRANUS)] without a condom?


INSANA_CR2

Condomless insertive anal sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



SX4b.

In the past 12 months, did you put your [fill with (YOURPENIS)] in anyone’s [fill with (THEIRVAGINA)]?


INSVAGSX

Insertive vaginal sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX4b.1.

If R had insertive vaginal sex in the past 12 months (SX4b EQ 1), go to SX4b.1.

Else, go to HardEdit_SX4b.



SX4b.1.

In the past 12 months, did you put your [fill with (YOURPENIS)] in anyone’s [fill with (THEIRVAGINA)] without a condom?


INSVAG_CR2

Condomless insertive vaginal sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



HardEdit_SX4b.

If R reported insertive sex in the past 12 months (SX4 EQ 1) but did not report having either insertive anal or vaginal sex ((SX4a EQ 0 and SX4b EQ 0), DISPLAY: "INTERVIEWER: The response entered is inconsistent with a prior response (R reported insertive sex in the past 12 months). Clarify and re-enter response to current or prior item as needed." Then, go back to SX4.

Else, go to SX5.


SX5.

In the past 12 months, have you had sex where you put your mouth on anyone’s [fill with (THEIRPENIS)], [fill with (THEIRVAGINA)], or [fill with (THEIRANUS)]?


GAVEORAL

Gave oral sex in past 12 months





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not applicable

8



SX5a.

In the past 12 months, have you had sex where anyone put their mouth on your [if (PENIS EQ 1) or (PENIS12 EQ 1), fill with (YOURPENIS)] [if (VAGINA EQ 1) and (PENIS12 EQ 1), fill with “, “] [if (VAGINA EQ 1), fill with (YOURVAGINA)] or [fill with (YOURANUS)]?

RECORAL

Received oral sex in past 12 months



No

0




Yes

1




Don't Know

9




Refuse to Answer

7



CALC_RCPSEX_type

If (RCPANAL EQ 1) and (RCPVAGI EQ 1), set RCPSEX_type = “ put their ” + [fill with (THEIRPENIS)] + “ in your “ + [fill with (YOURVAGINA)] + “ or “ + [fill with (YOURANUS)]


If (RCPANAL EQ 1) and (RCPVAGI NE 1), set RCPSEX_type = “ put their “ + [fill with (THEIRPENIS)] + “ in your “ + [fill with (YOURANUS)]


If (RCPANAL NE 1) and (RCPVAGI EQ 1), set RCPSEX_type = “ put their “ + [fill with (THEIRPENIS)] + “ in your “ + [fill with (YOURVAGINA)]


If (RCPANAL NE 1) and (RCPVAGI NE 1), set RCPSEX_type = .


CALC_INSSEX_type

If (INSANAL EQ 1) and (INSVAGI EQ 1), set INSSEX_type = “ put your “ + [fill with (YOURPENIS)] + “ in your partner’s “ + [fill with (YOURVAGINA)] + “ or “ + [fill with (YOURANUS)]


If (INSANAL EQ 1) and (INSVAGI NE 1), set INSSEX_type = “ put your “ + [fill with (YOURPENIS)] + “ in your partner’s “ + [fill with (YOURANUS)]


If (INSANAL NE 1) and (INSVAGI EQ 1), set INSSEX_type = “ put your “ + [fill with (YOURPENIS)] + “ in your partner’s “ + [fill with (YOURVAGINA)]


If (INSANAL NE 1) and (INSVAGI NE 1), set INSSEX_type = .


SX5b.

In the past 12 months, have you had sex without penetration? By sex without penetration, I mean sex where no one put their [if (PENISSCOPE EQ 0), fill with penis term (SPECPENIS) and “ or penis”. If (PENISSCOPE EQ 1), fill with penis term (SPECPENIS). Otherwise, fill with “penis”] into anyone’s mouth, [if (VAGINASCOPE EQ 0), fill with vagina term (SPECVAGINA) and “ or vagina”. If (VAGINASCOPE EQ 1), fill with vagina term (SPECVAGINA). Otherwise, fill with “vagina”] [if (ANUSSCOPE EQ 0), fill with " , ". if (ANUSSCOPE EQ 1) or (SPECANUS EQ REF), fill with " or "] [if (ANUSSCOPE EQ 0), fill with anus term (SPECANUS) and “ or anus”. If (ANUSSCOPE EQ 1), fill with anus term (SPECANUS). Otherwise, fill with “anus”]?

NOPENET

Sex without penetration in past 12 months



No

0




Yes

1




Don't Know

9




Refuse to Answer

7



SX6.

How old were you the first time you had any type of sex?


AGESEXR2

Age at first sex





__ __





Range

0-70




Don't Know

99




Refuse to Answer

77



HardEdit_SX6.

If age of first sex greater than current age (SX6 GT AGE), DISPLAY: "INTERVIEWER: The age of first sex cannot be greater than respondent's current age ([fill with R's age (AGE)]). Please clarify and re-enter response." Then, go back to SX6.

Else, go to SX7.


SX7.

In the past 12 months, how many sex partners have you had? Please include partners from whom you may have received payment or trade for sex.


NUMPTNRR2

Number of sex partners in past 12 months





__ __ __ __





Range

0-7000




Don't Know

9999




Refuse to Answer

7777



HardEdit_SX7.

If R reported oral, vaginal, or anal sex in the past 12 months (SX1 EQ 1) but reports zero sex partners (SX7 EQ 0), DISPLAY: "INTERVIEWER:  The response entered is inconsistent with a prior response (R reported having sex in the past 12 months). Clarify and re-enter response to current or prior item as needed."  Then, go back to SX7.

Else, go to Check_SX8.


Check_SX8.

If R does not report having any sex partners in the past 12 months (SX7 EQ DK or REF), go to CALC_ENDSX.

If R had one sex partner (SX7 EQ 1), go to SX8a.

If R had more than one sex partner (SX7 GT 1), go to SX8b.

SX8a.

Was this person a main partner? By main partner, I mean a person who you have sex with and who you feel committed to above anyone else. This is a partner you would call your significant other, life partner, boyfriend, girlfriend or joyfriend.


MN1PTR

Main partner – one partner





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX8b.

Go to Check_SX9.


SX8b.

Of the [fill with total partners (SX7)] sex partners you’ve had in the past 12 months, how many would you consider main partners? By main partner, I mean a person who you have sex with and who you feel committed to above anyone else. This is a partner you would call your significant other, life partner, boyfriend, girlfriend or joyfriend.


MNPTNRS

Number of main partners





__ __ __ __





Range

0-7000




Don't Know

9999




Refuse to Answer

7777



HardEdit_SX8.

If # main partners GT total partners (SX8b GT SX7), DISPLAY: "INTERVIEWER: The response entered is inconsistent with a prior response (number of total partners). Clarify and re-enter response to current or prior item as needed." Then, go back to SX8b.

Else, go to Check_SX9.


Check_SX9.

If R had anal sex in the past 12 months (SX3a EQ 1 or SX4a EQ 1) and had more than one sex partner (SX7 GT 1), go to SX9.

Else, go to INTRO_SX10.


SX9.

Of the [fill with total partners (SX7)] sex partners you’ve had in the past 12 months, with how many did you have

sex where [if (RCPSEX_type NE .), fill with “ you “ + [fill with (RCPSEX_type)]] [if (RCPSEX_type NE .) and (INSSEX_type NE .), fill with “ or “] [if (INSSEX_type NE .), fill with “ your partner “ + [fill with (INSSEX_type)]]?


ANALPTNR

Number of anal sex partners





__ __ __ __





Range

0-7000




Don't Know

9999




Refuse to Answer

7777




HardEdit_SX9.

If # anal sex partners GT total partners (SX9 GT SX7), DISPLAY: “INTERVIEWER: The response entered is inconsistent with a prior response (number of total partners). Clarify and re-enter response to current or prior item as needed.” Then, go back to SX9.



If R reports anal sex and 0 anal sex partners in past 12 months ((SX3a EQ 1 or SX4 EQ 1) and SX9 EQ 0), DISPLAY: "INTERVIEWER: The response entered is inconsistent with a prior response (report of anal sex). Clarify and re-enter response to current or prior item as needed." Then, go back to SX9.



Else, go to INTRO_SX10.

Exchange sex

INTRO_SX10.

DISPLAY: “READ: Now I will ask you about times when you may have received money, drugs, or some other type of payment or trade for sex.”


SX10.

In the past 12 months, have you received money, drugs, or some other type of payment or trade for any type of sex?


EXCHSEX

Exchange sex, 12m





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX11.

If R had exchange sex in the past 12 months, go to SX11.

Else, go to INTRO_SX15


SX11.

In the past 12 months, how many sex partners gave you money, drugs, or some other type payment or trade for any type of sex?


EXCHPTNR

Number of exchange partners





__ __ __ __





Range

0-7000




Don't Know

9999




Refuse to Answer

7777



HardEdit_SX11.

If # exchange partners GT total partners (SX11 GT SX7), DISPLAY: "INTERVIEWER: The response entered is inconsistent with a prior response (number of total partners). Clarify and re-enter response to current or prior item as needed." Then, go back to SX11.

Else, go to Check_SX12a.


SX12a.

In the past 12 months, have you received payment or trade for sex where [if (RCPSEX_type NE .), fill with your partner “ + [fill with (RCPSEX_type)] [if (INSSEX_type NE .) and (RCPSEX_type NE .), fill with “ or “] [if (INSSEX_type NE .), fill with “ you “ + [fill with (INSSEX_type)]]?


EXCHPEN

Penetrative exchange sex, 12m





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_SX12b.

If R had penetrative exchange sex in the past 12 months, go to SX12b.

Else, go to SX13.


SX12b.

In the past 12 months, have you received payment or trade for sex where [if (RCPSEX_type NE .), fill with your partner “ + [fill with (RCPSEX_type)] [if (INSSEX_type NE .) and (RCPSEX_type NE .), fill with “ or “] [if (INSSEX_type NE .), fill with “ you “ + [fill with (INSSEX_type)]] without using a condom?


EXCHPE_C

Condomless penetrative sex, 12m





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




SX13.

How old were you the first time you received payment or trade for any type of sex?


AGEEXSEX

Age at first exchange sex





__ __





Range

0-70




Don't Know

99




Refuse to Answer

77



HardEdit_SX13.

If age of first sex greater than age of first exchange sex (SX6 GT SX13), DISPLAY: "INTERVIEWER: The age of first sex cannot be greater than age of first exchange sex. Please clarify and re-enter response." Then, go back to SX13.

Else, go to SX14a.


SX14a.

[Give Respondent Flashcard L.]



In the past 12 months, what were all the ways you found clients? You can choose more than one answer.



[READ choices. CHECK ALL that apply.]


FNDEXCH

Ways found exchange partners




FNDEXCHA

Walking on the street or “stroll”




FNDEXCHB

Online (websites or apps)




FNDEXCHC

Working in a strip club, massage parlor, brothel, or other similar place you are employed




FNDEXCHD

Picking up clients at a public place, such as a bar, hotel, or the mall



FNDEXCHE

Introduced by someone you know




FNDEXCHF

Some other way





Don't Know

99




Refuse to Answer

77




SX14b.

[Give Respondent Flashcard M.]



In the past 12 months, which of the following have you received as payment or trade for sex?



[READ choices. CHECK ALL that apply.]


RECPAY

Payment for exchange




RECPAYA

Money



RECPAYB

Alcohol




RECPAYC

Drugs




RECPAYD

Rent/mortgage payments



RECPAYE

Shelter or place to stay or sleep



RECPAYF

Food



RECPAYG

School fees/tuition



RECPAYH

Security or protection




RECPAYI

Other goods/payment





Don't Know

99




Refuse to Answer

77




Check_SX14c.

If R received money for exchange sex in the past 12 months (RECPAYA EQ 1), go to SX14c.

Else, go to INTRO_SX15.


SX14c.

During the past 12 months, was receiving money for sex your main source of income?


MAININC

Main source of income





No

0




Yes

1




Don't Know

9




Refuse to Answer

7



LP: Last Partner

INTRO_SX15.

DISPLAY: READ: Now I'm going to ask you some questions about the last time you had sex.



LP: Last Sex Date

SX15. 

When was the last time you had sex? Just tell me the month and year. 

LPDATE 

LP: date of most recent sex 



 __ __ / __ __ __ __  




Range (Year)  

1900 - 2100 



Don't Know (Year)  

9999 



Refuse to Answer (Year)  

7777 


 

CALC_LPDATE_C. 

 

 

LPDATE_C 

Century month version of LPDATE date 

LPDATE_C= ((LPDATEY-1900)*12) + LPDATEM. 



HardEdit_SX15. 

If R's date of last sex with LP after date of interview (LPDATE_C GT IDATE_C), DISPLAY: "INTERVIEWER:  The date respondent last had sex cannot be after today's date."  Then, go back to SX15.   


If date of last sex is more than 12 months before interview [(LPDATEM is missing) and ((IDATEY-LPDATEY) GE 2)] or (LPDATE_C LT AGO12M_C), DISPLAY: "INTERVIEWER:  Response entered is inconsistent with prior response (reported at least one sex partner in past 12 months).  Clarify and re-enter response to current or prior item as needed." Then, go back to SX15. 

 

Else, go to SX17. 



LP: Partner characteristics

Check_SX17.

If R more than one partner in the past 12 months (SX7 GT 1) and reported at least one main partner (SX8b GT 0), go to SX17.

Else, go to SX17a.


SX17.

Was the person you had sex with that last time a main partner? A main partner is someone you feel committed to above anyone else.

LPTYPE

LP: type




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




SX17a.

Was the person you had sex with that last time younger than you, older than you, or the same age as you?

LPAGERL

LP: Relative age



Younger

0



Older

1



Same age

2



Don't Know

9



Refuse to Answer

7




Check_SX17b.

If LP is older than R (SX17a EQ 1), go to SX17b.

Else, go to SX18.



SX17b.

What was their age?

LPAGEY

LP: Age in years



__ __ __




Range

0-100



Don't Know

999



Refuse to Answer

777






HardEdit_SX17b.

If LP’s age is less than R’s age (SX17b LT AGE), DISPLAY: “INTERVIEWER: The response entered is inconsistent with a prior response (R reported that partner was older than them). Clarify and re-enter response to current or prior item as needed." Then, go back to SX17b.

Else, go to SX18.



SX18.

[Give Respondent Flashcard N.]



Which of the following best describes their racial or ethnic background? You may choose more than one option.



[READ choices. CHECK ALL that apply.]

LPRCETH

LP: race / ethnicity


LPRCETHA

American Indian or Alaska Native



LPRCETHB

Asian



LPRCETHC

Black or African American



LPRCETHD

Hispanic or Latino



LPRCETHE

Native Hawaiian or Other Pacific Islander



LPRCETHF

White




Don't Know

9



Refuse to Answer

7




LP: Last Sex - Behaviors



Check_SX19a.

If R reported receptive anal sex in past 12m (SX3a EQ 1), go to SX19a.

Else, go to Check_SX19c.



SX19a.

When you had sex that last time, did your partner put their [fill with (THEIRPENIS)] in your [fill with (YOURANUS)]?

LPRAS

LP: Receptive AS at last event



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




Check_SX19b.

If R had RAS at last event (SX19a EQ 1), go to SX19b.

Else go to Check_SX19c.



SX19b.

During that last time you had sex where your partner put their [fill with (THEIRPENIS)] in your [fill with (YOURANUS)], did your partner use a condom the whole time?

LPRASC

LP: Condom use during RAS at last event



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




Check_SX19c.

If R reported receptive vaginal sex in past 12m (SX3b EQ 1), go to SX19c.

Else, go to Check_SX20a.



SX19c.

When you had sex that last time, did your partner put their [fill with (THEIRPENIS)] in your [fill with (YOURVAGINA)]?

LPRVS

LP: receptive VS at last event




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_SX19d.

If R had RVS at last event (SX19c EQ 1), go to SX19d.

Else, go to Check_SX20a.



SX19d.

During that last time you had sex where your partner put their [fill with (THEIRPENIS)] in your [fill with (YOURVAGINA)], did you or your partner use a condom the whole time?

LPRVSC

LP: Used condom during RVS at last event




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_SX20a.

If R reported insertive anal sex in past 12m (SX4a EQ 1), go to SX20a.

Else, go to Check_SX20c.



SX20a.

When you had sex that last time, did you put your [fill with (YOURPENIS)] in your partner’s [fill with (THEIRANUS)]?

LPIAS

LP: Insertive AS at last event



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




Check_SX20b.

If R had IAS at last event (SX20a EQ 1), go to SX20b.

Else go to Check_SX20c.



SX20b.

During that last time you had sex where you put your [fill with (YOURPENIS)] in your partner’s [fill with (THEIRANUS)], did you use a condom the whole time?

LPIASC

LP: Condom use during IAS at last event



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




Check_SX20c.

If R reported insertive vaginal sex in past 12m (SX4b EQ 1), go to SX20c.

Else, go to SX21a.


SX20c.

When you had sex that last time, did you put your [fill with (YOURPENIS)] in their [fill with (THEIRVAGINA)]?

LPIVS

LP: insertive VS at last event



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




Check_SX20d.

If R reported insertive vaginal sex at last sex (SX20c EQ 1), go to SX20d.

Else, go to SX21a.



SX20d.

During that last time you had sex where you put your [fill with (YOURPENIS)] in their [fill with (THEIRVAGINA)], did you or your partner use a condom the whole time?

LPIVSC

LP: Condom use during IVS at last event



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




LP: Last Sex – Partner HIV status

SX21a.

The last time you had sex with this partner, did you know their HIV status?

LPKNWSTS

LP: Knew partner HIV status at last event



No

0



Yes

1



Refuse to Answer

7




Check_SX21b.

If R knew LP HIV status (SX21a EQ 1), go to SX21b.

Else, go to SX21f.



SX21b.

What was their HIV status?



[DO NOT read choices.]

LPHIVSTS

LP: Partner HIV status at last event



HIV-negative

1



HIV-positive

2



Indeterminate

3



Refuse to Answer

7




Notes_PartnerARTUse.

See Measure References.



Check_SX21c.

If LP HIV-positive (SX21b EQ 2), go to SX21c.

If LP not HIV-positive (SX21b NE 2), go to SX21f.



SX21c.

Did they tell you whether they were taking antiretroviral medicines or ART to treat their HIV?

LPARTDS

LP: Whether P disclosed ART use



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




Check_SX21d.

If LP disclosed ART use, (SX21c EQ 1), go to SX21d.

Else, go to SX22a.



SX21d.

Did they say they WERE taking antiretroviral medicines or were NOT taking antiretroviral medicines?

LPONART

LP: HIV+ partner on ART at last event



No, partner was NOT taking ART

0



Yes, partner WAS taking ART

1



Don't Know

9



Refuse to Answer

7




SX21e.

A person with HIV whose amount of virus in their body is very low may be told by a health care provider that their HIV viral load is undetectable. The last time you had sex with this partner, was their viral load undetectable, detectable, or you didn’t know?

PARTVL

LP: HIV+ partner VL undetectable



Viral load undetectable

0



Viral load detectable

1



Don't Know

9



Refuse to Answer

7




Check_SX21f.

Go to SX22a.



SX21f.

PRE-exposure prophylaxis, or PrEP, is an antiretroviral medicine, such as Truvada, taken for months or years by a person who is HIV-negative to reduce the risk of getting HIV. The last time you had sex with this partner, were they taking PrEP, NOT taking PrEP, or you didn’t know?

PARTPRP

LP: HIV+ partner VL undetectable



Partner was NOT taking PrEP

0



Partner was taking PrEP

1



Don't Know

9



Refuse to Answer

7



LP: Relationship Length

SX22a.

How long have you been having a sexual relationship with this partner? Please tell me how many days, months, or years.



[INTERVIEWER: If "one night stand," enter 0.]

LPLT_N

LP: Relationship length - Number



__ __ __




Range

0-365



Don't Know

999



Refuse to Answer

777




Check_SX22b.

If relationship length at least one day (SX22a NE 0, DK or REF), go to SX22b.

Else, go to CALC_LPRLLE1Y.



SX22b.

INTERVIEWER: Was this days or months or years?

LPLT_U

LP: Relationship length - Unit



Days

0



Months

1



Years

2



CALC_LPRLLE1Y.

LPRLLE1Y

Sexual relationship length for LP logic

If (LPLT_U=0 & LPLT_N<=365) or (LPLT_U=1 & LPLT_N<=12) or (LPLT_U=2 & LPLT_N<=1), LPRLLE1Y=1.

Else, LPRLLE1Y=0.



LP: Concurrency

Check_SX23.

If relationship was a one night stand (LPLT_N=0) or R did not report relationship length (LPLT_N EQ DK or REF), go to CALC_ENDSX.

Else, go to SX23.



SX23.

During the time you were having a sexual relationship with this partner, did you have sex with other people?

LPROTH

LP: R had other partners- relat ≤12m



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




CALC_ENDSX.



ENDSX

Time sexual behavior section ended

ENDSX = Current time



END_SX.

Go to Alcohol Use section (AL).

ALCOHOL USE (AL)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Eligibility Screener

--

EL_TRANS

Eligible: Trans cycle

Consent

CN1

CONSENTA

Consent to survey

Sexual Behavior

--

ENDSX

Time sexual behavior section ended



Universe_AL.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1) and completed prior section (ENDSX is not missing).



CALC_BEGAL.



BEGAL

Time at beginning of alcohol use section

BEGAL = Current time



INTRO_AL1.

DISPLAY: “[Give Respondent Flashcard O.]



READ: The next questions are about alcohol use. Please remember your answers will be kept private. For these questions, "a drink of alcohol" means a 12 oz beer, a 5 oz glass of wine, or a 1.5 oz shot of liquor.”



AL1.

During the past 30 days, have you had at least one drink of any alcoholic beverage, such as beer, wine, a malt beverage, or liquor?

ALC30D

Had one or more drinks past 30 days




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_AL2.

If R did not have any drinks in the past 30 days or did not report if had any drinks in the past 30 days (AL1 NE 1), go to CALC_ENDAL.

Else, go to AL2.



AL2.

During the past 30 days, what is the largest number of drinks you had within about two hours?

ALCLG30D

Largest no drinks at one time - p30 days




__ __





Range

0-99




Don't Know

999




Refuse to Answer

777








CALC_ENDAL.



ENDAL

Time alcohol use section ended

ENDAL = Current time



END_AL.

Go to Injection Drugs Section (ID).

INJECTION DRUGS (ID)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Preloaded Variables

--

AGO12M_C

12 mos before interview: Century Month

Eligibility Screener

CALC_AGE

AGE

QDS calculated age today

Eligibility Screener

--

EL_TRANS

Eligible: Trans cycle

Consent

CN1

CONSENTA

Consent to survey

Alcohol Use

--

ENDAL

Time alcohol use section ended



UNIVERSE_ID.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1) and completed prior section (ENDAL is not missing).



CALC_BEGID.



BEGID

Time at beginning of ID section

BEGID = Current time





INTRO_ID1.

DISPLAY: "READ: We’ve previously asked you about the injection of hormones and substances such as silicone. The next questions are about injection of other drugs such as heroin and methamphetamine. Please only think about drugs that you may have gotten without a prescription or drugs that were prescribed to you but you used them in ways other than instructed by a health care provider. Remember, this does not include drugs used for gender transition or affirmation, such as hormones or silicone. Your answers will be kept private."

Injection history, lifetime



ID1.

Aside from drugs used for gender transition or affirmation, have you ever in your life shot up or injected any drugs?

EVRINJ

Ever Injected drugs




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_ID1a.

If R has ever injected (ID1 EQ 1), go to ID1a.

Else, go to CALC_LINJ12.



ID1a.

Think back to the very first time you injected any drugs. How old were you when you first injected any drug?

AGEINJ

INJ Age at first injection




__ __





Range

0-75




Don't Know

99




Refuse to Answer

77




HardEdit_ID1a.

If age of first injection is greater than current age (ID1a GT AGE), DISPLAY: "INTERVIEWER: The age of first injection should be less than respondent's current age ([fill with current age (AGE)])." Then, go back to ID1a.

Else, go to ID1b.num.









ID1b.num.

Now, think about the last time you injected any drug. When was that – how many days or months or years ago did you last inject?



[INTERVIEWER: If today, enter "0"]

LINJN

When last injected, number




__ __ __





Range

0-365




Don't Know

999




Refuse to Answer

777




Check_ID1b.dmy.

If R does not report time since last injection (ID1b.num EQ DK or REF), go to CALC_LINJ12.

If R last injected on day of interview (ID1b.num EQ 0), go to INTRO_ID2.

Else, go to ID1b.dmy.



ID1b.dmy.

INTERVIEWER: Was this days or months or years ago that you last injected?

LINJ_U

When last injected: day, month or year




# of Days

0




# of Months

1




# of Years

2




Check_INTRO_ID2.


If R last injected in the past year ((ID1b.num LE 12 & ID1b.dmy EQ 1) or (ID1b.num LE 365 & ID1b.dmy EQ 0) or (ID1b.num LE 1 & ID1b.dmy EQ 2)), go to INTRO_ID2.

Else, go to CALC_LINJ12.



UNIVERSE_InjectionFrequency.

All Rs who injected in the past year (ID1b.num EQ 0 or (ID1b.num LE 12 & ID1b.dmy EQ 1) or (ID1b.num LE 365 & ID1b.dmy EQ 0) or (ID1b.num LE 1 & ID1b.dmy EQ 2)).



Injection Frequency, 12m





INTRO_ID2.

DISPLAY: "READ: The next questions are about injection drug use in the past 12 months, that is, since [fill with interview month, formatted as text] of last year."





ID2.

[Give Respondent Flashcard P.]



In the past 12 months, when you were injecting, about how often did you inject any drug?



[READ choices.]

INJFX12

Overall injection frequency, 12m




More than once a day

1




Once a day

2




More than once a week

3




Once a week or less

4




Don't Know

9




Refuse to Answer

7






ID3.

[Give Respondent Flashcard Q.]



In the past 12 months, which drug did you inject most often?



[READ choices.]

INJMOST1

Drug injected most often - 12 months




Speedball, which is heroin and cocaine together

1




Heroin, by itself

2




Powder cocaine, by itself

3




Crack cocaine, by itself

4




Methamphetamine, also known as meth or speed

5




Painkillers, such as Oxycontin, Dilaudid or Percocet

6




Something else

7




Don't Know

99




Refuse to Answer

77




ID4.

Did you inject any other drugs in the past 12 months?

INJOTHNI

Other drug injected - 12 m, y/n




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_ID5.

If R injected another drug in the past 12 months (ID4 EQ 1), go to ID5.

Else, go to INTRO_ID6.



ID5.

[Give Respondent Flashcard Q.]



What other drugs did you inject?



[READ choices. CHECK ALL that apply.]

INJMOST

Other drugs injected - 12 months



INJMOSTA

Speedball, which is heroin and cocaine together




INJMOSTB

Heroin, by itself




INJMOSTC

Powder cocaine, by itself




INJMOSTD

Crack cocaine, by itself




INJMOSTE

Methamphetamine, also known as meth or speed




INJMOSTF

Painkillers such as Oxycontin, Dilaudid or Percocet




INJMOSTG

Something else





Don't Know

99




Refuse to Answer

77




Injection Behaviors, 12m



INTRO_ID6.

DISPLAY: "READ: Next, I'm going to ask you about your injecting behaviors in the past 12 months, that is, since [fill with interview month, formatted as text] of last year. When I ask you about "needles," I'm talking about needles and syringes."



ID6.

[Give Respondent Flashcard K.]



In the past 12 months when you injected, how often did you use a new, sterile needle? By a new, sterile needle, I mean a needle never used before by anyone, even you.



[READ choices.]

STERILE

INJ Frequency used sterile needle - 12 months




Never

0




Rarely

1




About half the time

2




Most of the time

3




Always

4




Don't Know

9




Refuse to Answer

7




Check_ID7.

If R never used a new sterile needle in the past 12 months or did not report using new sterile needles (ID6 EQ 0, DK, or REF), go to ID8.

Else, go ID7.





ID7.

[Give Respondent Flashcard R.]



From which of the following places did you get new, sterile needles in the past 12 months? You may choose more than one option.



[READ choices. CHECK ALL that apply.]

SNDLSRC

New needle source


SNDLSRCA

Needle or syringe exchange program


SNDLSRCB

Someone who got them from a needle exchange


SNDLSRCC

Pharmacy or drug store


SNDLSRCD

Doctor’s office, clinic, or hospital


SNDLSRCE

HIV/AIDS focused organization


SNDLSRCF

Some other place



Don't Know

9


Refuse to Answer

7





Check_ID8.

If R always used a new sterile needle in the past 12 months (ID6 EQ 4), go to ID9.

Else, go ID8.



ID8.

[Give Respondent Flashcard K.]



In the past 12 months, how often did you use needles that someone else had already injected with?



[READ choices.]

SHARNDLE

Used needle after- frequency




Never

0




Rarely

1




About half the time

2




Most of the time

3




Always

4




Don't Know

9




Refuse to Answer

7




ID9.


[Give Respondent Flashcard K.]



In the past 12 months, how often did you give your needle to someone else to use after you had already injected with it?



[READ choices.]

GIVENDLE

Gave needle after injected – freq.




Never

0




Rarely

1




About half the time

2




Most of the time

3




Always

4




Don't Know

9




Refuse to Answer

7




ID10.

[Give Respondent Flashcard K.]



In the past 12 months, how often did you use cookers, cottons, or water that someone else had already used?



[READ choices.]

SHARWORK

Used cooker, cotton, water after – freq.




Never

0




Rarely

1




About half the time

2




Most of the time

3




Always

4




Don't Know

9




Refuse to Answer

7






ID11.

[Give Respondent Flashcard K.]



In the past 12 months, how often did you use drugs that had been divided with a syringe that someone already injected with?



[READ choices.]

SAMESYR

Used drugs divided up after - frequency




Never

0




Rarely

1




About half the time

2




Most of the time

3




Always

4




Don't Know

9




Refuse to Answer

7






CALC_LINJ12.



LINJ12

Injected in last 12 months

LINJ12 = IF((LINJN=0), 1, if((LINJ_U=0 & LINJN<=365 ), 1, if((LINJ_U=1 & LINJN<=12 ), 1, if((LINJ_U=2 & LINJN <= 1), 1, 0))))





CALC_ENDID.



ENDID

Time injection drug use section ended

ENDID = Current time





END_ID.

Go to Non-Injection Drugs Section (ND).





NON-INJECTION DRUGS (ND)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle

Consent

CN1

CONSENTA

Consent to survey

Injection Drug Use

--

ENDID

Time injection drug use section ended



UNIVERSE_ND.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1) and completed prior section (ENDID is not missing).



CALC_BEGND.



BEGND

Time at beginning of ND section

BEGND = Current time





INTRO_ND1.

DISPLAY: "READ: Now I'm going to ask you about times when you may have used drugs but did not inject them. This includes times that you may have smoked, snorted, inhaled, or ingested drugs such as marijuana, methamphetamine, cocaine, or crack. This does not include drugs used for gender transition or affirmation, such as hormones."



ND1.

DISPLAY: “[Give Respondent Flashcard S.]”



In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, how often did you use marijuana?



[READ choices.]

ND_MJ

How often used marijuana past 12 months



More than once a day

1



Once a day

2



More than once a week

3



Once a week or less

4



Never

5



Don't Know

9



Refuse to Answer

7






ND1.

In the past 12 months, have you used any drugs other than marijuana that were not prescribed for you and that you did not inject?

NIUSE12

Non-injection drug use - 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_INTRO_ND2a.

If R has used non-injection drugs (ND1 EQ 1), go to INTRO_ND1a.

Else, go to CALC_ENDND.

.

INTRO_ND2a.

DISPLAY: "[Give Respondent Flashcard S.]



READ: I'm going to read you a list of drugs. For each drug I mention, please tell me how often you used it in the past 12 months. Do NOT include the times that you injected drugs or used drugs that were prescribed for you."





ND2a.

How often did you use methamphetamine, also known as meth or speed?



[READ choices.]

ND_METH

How often used methamphetamine past 12 months



More than once a day

1



Once a day

2



More than once a week

3



Once a week or less

4



Never

5



Don't Know

9



Refuse to Answer

7




ND2b.

How often did you use crack cocaine?



[READ choices.]

ND_CRACK

How often used crack cocaine past 12 months



More than once a day

1



Once a day

2



More than once a week

3



Once a week or less

4



Never

5



Don't Know

9



Refuse to Answer

7




ND2c.

How often did you smoke or snort powder cocaine?



[READ choices.]

ND_COKE

How often used powder cocaine that is smoked or snorted past 12 months



More than once a day

1



Once a day

2



More than once a week

3



Once a week or less

4



Never

5



Don't Know

9



Refuse to Answer

7




ND2d.

How often did you use downers (benzos) such as Klonopin, Valium, Ativan, or Xanax?



[READ choices.]

ND_DOWN

How often used downers (benzos) such as Valium past 12 months



More than once a day

1



Once a day

2



More than once a week

3



Once a week or less

4



Never

5



Don't Know

9



Refuse to Answer

7




ND2e.

How often did you use pain killers such as Oxycontin, Vicodin, morphine, or Percocet?



[READ choices.]

ND_PAIN

How often used pain killers such as Oxycontin, Vicodin past 12 months



More than once a day

1



Once a day

2



More than once a week

3



Once a week or less

4



Never

5



Don't Know

9



Refuse to Answer

7




ND2f.

How often did you use X or ecstasy?



[READ choices.]

ND_X

How often used X or ecstasy past 12 months



More than once a day

1



Once a day

2



More than once a week

3



Once a week or less

4



Never

5



Don't Know

9



Refuse to Answer

7




ND2g.

How often did you smoke or snort heroin?



[READ choices.]

ND_HER

How often used heroin that is smoked or snorted past 12 months



More than once a day

1



Once a day

2



More than once a week

3



Once a week or less

4



Never

5



Don't Know

9



Refuse to Answer

7




ND2h.

In the past 12 months, have you used any other drugs that you did NOT inject?

ND_OTHYN

Used other non-injection drugs past 12 mos



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




CALC_ENDND.



ENDND

Time ND section ended

ENDND = Current time





END_ND.

Go to Drug Treatment Section (TX).



DRUG TREATMENT (TX)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Eligibility Screener

--

EL_TRANS

Eligible: Trans cycle

Consent

CN1

CONSENTA

Consent to survey

Non-Injection Drug Use

--

ENDND

Time non-injection drug use section ended




UNIVERSE_TX.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1) and completed prior section (ENDND is not missing).



CALC_BEGTX.



BEGTX

Time at beginning of TX section

BEGTX = Current time





INTRO_TX1.

DISPLAY: "READ: Next, I'm going to ask you about programs that you may have participated in to treat drug use. These include out-patient, in-patient, residential, detox, methadone treatment, or 12-step programs."



TX1.

Have you participated in a program to treat drug use in the past 12 months, that is, since [fill with interview month, formatted as text] of last year?

DRUGTX

Drug treatment - 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not Applicable

8




TX2.

In the past 12 months, did you try to get into a program to treat drug use but were unable to?

DGTXTRY

Drug tx tried to get in




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Not Applicable

8




CALC_ENDTX.



ENDTX

Time drug treatment section ended

ENDTX = Current time





END_TX.

Go to HIV Testing Experiences Section (HT).





HIV AND OTHER TESTING EXPERIENCES (HT)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Preloaded Variable

--

IDATE

Interview date

Preloaded Variable

--

IDATEY

Interview date: Year

Preloaded Variable

--

IDATE_C

Interview date: Century Month

Preloaded Variable

--

AGO6M_C

6 mos before interview: Century Month

Preloaded Variable

--

AGO12M_C

12 mos before interview: Century Month

Eligibility Screener

ES1

DOB

Date of birth

Consent

CN1

CONSENTA

Consent to survey

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle

Drug Treatment

---

ENDTX

Time drug treatment section ended



Universe_HT.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1) and completed prior section (ENDTX is not missing).


CALC_BEGHT.



BEGHT

Time at beginning of HIV testing section

BEGHT = Current time


INTRO_HT1.

DISPLAY: "READ: Now I'm going to ask you a few questions about getting tested for HIV. Remember, an HIV test checks whether someone has the virus that causes AIDS."


HT1.

Have you ever had an HIV test?

EVERTEST

Ever tested for HIV




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_HT2.

If R ever tested for HIV (HT1 EQ 1), go to HT2.

If R never tested for HIV (HT1 EQ 0), go to HT6.

If R did not report if ever tested for HIV (HT1 EQ DK or REF), go to HT11.


HT2.

Have you ever tested positive for HIV, that is, do you have HIV?

EVERPOS

Ever test positive for HIV




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_NSRPSeries.

If R ever tested HIV-positive (HT2 EQ 1), go to Self-reported Positive (SRP) series (HT7).

If R ever tested & did NOT report ever testing HIV-positive (HT1 EQ 1) & (HT2 EQ 0, DK, or REF), go to Non-Self-reported Positive (NSRP) Series (HT3).



Universe_NSRPSeries.

Rs who ever tested and did NOT report ever testing HIV-positive (HT1 EQ 1) & (HT2 EQ 0, DK, or REF).



Non-Self-reported Positive (NSRP) Series (HT3 – HT6a)

Recent HIV testing

HT4.

When did you have your most recent HIV test? Please tell me the month and year.

RCNTST

Date of most recent HIV test




__ __ / __ __ __ __ (MM/YYYY)





Range (Year)

1900-2100




Don't Know (Year)

9999




Refuse to Answer (Year)

7777




Check_CALC_RCNTST_C.

If R did not report when they had their most recent HIV test, (HT4 EQ DK or REF), go to Check_HT4conf.

Else, go to CALC_RCNTST_C.


CALC_RCNTST_C.



RCNTST_C

Century month version of RCNTST date

RCNTST_C= ((RCNTSTY-1900)*12) + RCNTSTM.







SoftEdit_HT4.

If year of most recent test is before 1985 (HT4 (year) LT 1985), DISPLAY: "INTERVIEWER: HIV testing was not widely available before 1985. Please confirm the year of the most recent HIV test. If [fill with response to HT4 (year)] is NOT correct, please go back to the previous screen and re-enter the correct year." Then, go to HardEdit_HT4.



HardEdit_HT4.

If HT4 after interview date ((RCNTST_C GT IDATE_C) or (RCNTSTY AFTER IDATEY)), DISPLAY: "INTERVIEWER: The date of the most recent HIV test cannot be after today's date." Then, go back to HT4.

If HT4 before date of birth (HT4 BEFORE ES1), DISPLAY: "INTERVIEWER: The date of respondent's most recent HIV test cannot be before the date of birth, [fill with response to ES1, formatted as Month DD, YYYY]." Then go back to HT4.

Else, go to Check_HT4conf.



Check_HT4conf.

If R did not know either month or year of last test (HT4 EQ DK), or if year of last test is year before interview year & month of last test not reported ((HT4Y EQ IDATEY-1) & (HT4M is missing), go to HT4conf.

Else, go to HT4a.



HT4conf.

Was your most recent HIV test in the past 12 months, that is, since [fill with interview month, formatted as text] of last year?

C_RCNTST

HIV test in 12 months - y/n




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




HT4a.

When you got tested [if month & year of last test are known, fill with response to HT4, formatted as "in month, YYYY"; if month missing but year known, fill with response to HT4 (year), formatted as "in YYYY"; if month & year of last test not reported (HT4 EQ DK or REF), fill with "that last time"], where did you get tested?


[DO NOT READ choices.]

LOCHIV

Location of recent HIV test




HIV counseling and testing site

1




HIV/AIDS street outreach program or mobile unit

2




Drug treatment program

4




Needle or syringe exchange program

5




Correctional facility (jail or prison)

6




Family planning or obstetrics clinic

7




Public health clinic or community health center

8




Private doctor's office (including HMO)

9




Emergency room

10




Hospital (inpatient)

11




At home

12




Other

13




Don't Know

99




Refuse to Answer

77




HT4b.

Did you get the result of your most recent HIV test?

GOTRCNT

Got result most recent HIV test




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_HT4c.

If R received result of recent test (HT4b EQ 1), go to HT4c.

Else, go to Check_INTRO_HT5.




HT4c.

What was the result of your most recent HIV test?


[READ choices.]

RCNTRST

Result most recent HIV test




Negative, you do NOT have HIV

1




Positive, you DO have HIV

2




Don't Know

9




Refuse to Answer

7




Check_INTRO_HT5.

If recent test result was positive (HT4c EQ 2), go to Self-Reported Positive (SRP) Series.


If whether or not R tested in past 12 months is unknown (((HT4 EQ DK or REF) &(HT4conf EQ DK or REF)) or (HT4 EQ REF) or ((RCNTSTY=IDATEY-1) & (HT4conf EQ DK or REF))), go to HT11.


If recent test not positive (HT4c NE 2) & R tested in past 12 months ((RCNTST_C GE AGO12M_C) or (HT4conf EQ 1) or (RCNTSTM is missing & (IDATEY=RCNTSTY))), go to INTRO_HT5.


If recent test not positive (HT4c NE 2) & R NOT tested in past 12 months ((RCNTST_C LT AGO12M_C) or (IDATEY- RCNTSTY GT 1) or (HT4conf EQ 0)), go to HT6.



INTRO_HT5.

DISPLAY: “READ: A rapid home HIV test is a test you can do by yourself that can provide the result in about 20 minutes or less."



HT5.

During the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you tested yourself with a rapid home HIV test?

RHTST12M

Rapid home test,12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_BarrierstoHIVTesting

Go to HT11.



Barriers to HIV Testing

Universe_Barriers.

R's who have NOT tested in the past 12 months (HT1 EQ 0, DK, or REF) or (HT4 GT 12 months) or (HT4conf EQ 0)



HT6.

I'm going to read you a list of reasons why some people have not been tested for HIV. Which of these best describes the most important reason you have not been tested for HIV in the past 12 months?


[READ choices.]

RENT12M

Reason not tested past 12 mos




You think you are at low risk for HIV?

1




You were afraid of finding out that you had HIV?

2




You didn't have time?

3




Some other reason?

4




No particular reason

5




Don't Know

9




Refuse to Answer

7




Check_SRPSeries.

Go to HT11.



Universe_SRPSeries.

Rs who reported ever testing HIV-positive (HT2 EQ 1) or (HT4c EQ 2).



Self-Reported HIV-positive (SRP) Series (HT7 – HT7g)



HT7.

When did you first test positive for HIV? Please tell me the month and year.

POS1ST

Date of first positive test




__ __ / __ __ __ __ (MM/YYYY)





Range (Year)

1900-2100




Don't Know (Year)

9999




Refuse to Answer (Year)

7777




Check_CALC_POS1ST_C.

If R did not report when they first tested positive (HT7 EQ DK or REF), go to HT7a.

Else, go to CALC_POS1ST_C.


CALC_POS1ST_C.



POS1ST_C

Century month version of POS 1ST date

POS1ST_C = ((POS1STY-1900)*12) + POS1STM




SoftEdit_HT7.

If year of first positive test is before 1985 (HT7 (year) LT 1985), DISPLAY: "INTERVIEWER: HIV testing was not widely available before 1985. Please confirm the year respondent first tested HIV-positive. If [fill with response to HT7 (year)] is NOT correct, please go back to the previous screen and re-enter the correct year." Then, go to HardEdit_HT7.



HardEdit_HT7.

If date R first tested positive after interview date ((POS1ST_C GT IDATE_C ) or (POS1STY AFTER IDATEY)), DISPLAY: "INTERVIEWER: The date respondent first tested HIV-positive cannot be after today's date." Then, go back to HT7.



If date R first tested positive before date of birth (HT7 BEFORE ES1), DISPLAY: "INTERVIEWER: The date respondent first tested HIV-positive cannot be before the date of birth, [fill with response to ES1, formatted as Month DD, YYYY]." Then go back to HT7.



If date R first tested positive after most recent test date ((POS1ST_C GT RCNTST_C ) or (POS1STY AFTER RCNTSTY)), DISPLAY: "INTERVIEWER: The date respondent first tested HIV-positive cannot be after the most recent test [if month & year of last test are known, fill with response to HT4, formatted as "in month, YYYY"; if month missing but year known, fill with response to HT4 (year), formatted as "in YYYY"]. Then go back to HT7.



Else, go to HT7a.



HT7a.

What type of place or testing location did you first test positive?


[DO NOT READ choices.]

LOC1POS

Location of first HIV-positive test




HIV counseling and testing site

1




HIV/AIDS street outreach program or mobile unit

2




Drug treatment program

4




Needle or syringe exchange program

5




Correctional facility (jail or prison)

6




Family planning or obstetrics clinic

7




Public health clinic or community health center

8




Private doctor's office (including HMO)

9




Emergency room

10




Hospital (inpatient)

11




At home

12




Other

13




Don't Know

99




Refuse to Answer

77




HT7b.

Within 30 days after you got your first positive HIV test, did someone let you know where you could go for outpatient care?

TLDCARE

Told where to get HIV care




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Linkage to Care

Universe_LinkagetoCare.

All HIV-positive Rs (HT2 EQ 1 or HT4c EQ 2).



HT8a.

Have you ever been seen by a doctor, nurse, or other health care provider for a medical evaluation or care related to your HIV?

POSMD

Seen health care provider for HIV




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_HT8b.

If R has ever been seen for HIV care (HT8a EQ 1), go to HT8b.

Else, go to HT11.



HT8b.

When did you first go to your health care provider after learning you had HIV? Please tell me the month and year.

FRSMD

First saw health care provider after learning HIV+




__ __ / __ __ __ __ (MM/YYYY)





Range (Year)

1900-2100




Don't Know (Year)

9999




Refuse to Answer (Year)

7777




Check_CALC_FRSMD_C.

If R did not report when they first went to a health care provider (HT8b EQ DK or REF), go to Check_HT8b.1

Else, go to CALC_FRSMD_C.


CALC_FRSMD_C.



FRSMD_C

Century month version of FIRST MD date

FRSMD_C = (FRSMDY-1900)*12) + FRSMDM



HardEdit_HT8b.

If R's date of first visit for HIV care is after date of interview ((FRSMD_C GT IDATE_C) or (FRSMDY AFTER IDATEY)), DISPLAY: "INTERVIEWER: The date respondent first saw a health care provider about her positive serostatus cannot be after today's date." Then, go back to HT8b.


If R's date of first visit for HIV care is before date of birth (HT8b BEFORE ES1), DISPLAY: "INTERVIEWER: The date respondent first saw a health care provider about her positive serostatus cannot be before the date of birth, [fill with (value for ES1, formatted as Month DD, YYYY)]. Then, go back to HT8b.


If R's date of first visit for HIV care is before date of first HIV-positive test date ((POS1ST_C GT FRSMD_C) or (POS1STY AFTER FRSMDY)), DISPLAY: "INTERVIEWER: The date respondent first saw a health care provider about her positive serostatus should not be before the first positive test." Then, go back to HT8b.


Else, go to Check_HT8b.1



Check_HT8b.1

If R did not know when first visit for HIV care occurred or date of first positive test result (HT8b or HT7 EQ DK) or if R did not know the month of first visit for HIV care or month of first positive test date (FRSMDM is missing or POS1STM is missing), go to HT8b.1.

Else, go to HT8c.



HT8b.1.

Did you first go to your health care provider for HIV care more than 30 days after learning you had HIV?

C_FRSMD

Confirm: 1st MD visit more than 30 days before 1st HIV-pos Dx




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




HT8c.

When did you last go to your health care provider for HIV care? Please tell me the month and year.

LASTMD

Last saw health care provider




__ __ / __ __ __ __ (MM/YYYY)





Range (Year)

1900-2100




Don't Know (Year)

9999




Refuse to Answer (Year)

7777




Check_CALC_LASTMD_C.

If R did not report when she last visited a health care provider (HT8c EQ DK or REF), go to Check_HT8c.1.

Else, go to CALC_LASTMD_C.



CALC_LASTMD_C.



LASTMD_C

Century month version of LAST MD date

LASTMD_C = (LASTMDY-1900)*12) + LASTMDM





HardEdit_HT8c.

If R's date of last visit for HIV care after date of interview ((LASTMD_C GT IDATE_C) or (LASTMDY AFTER IDATEY )), DISPLAY: "INTERVIEWER: The date respondent last saw a health care provider cannot be after today's date." Then, go back to HT8c.


If R's date of last visit for HIV care before date of birth (HT8c BEFORE ES1, DISPLAY: "INTERVIEWER: The date of respondent's last visit cannot be before the date of birth, [fill with value for ES1, formatted as Month DD, YYYY)]." Then, go back to HT8c.


If R's date of last visit for HIV care is before date of first visit for HIV care ((LASTMD_C LT FRSTMD_C)) or (FRSTMDY AFTER LASTMDY)), DISPLAY: "INTERVIEWER: The date of respondent's last visit cannot be earlier than the date of the first visit." Then, go back to HT8c.


If R's date of last visit for HIV care is before date of first positive test ((LASTMD_C LT POS1ST_C) or (POS1STY AFTER LASTMDY)), DISPLAY: "INTERVIEWER: The date of respondent's last visit cannot be earlier than the date of the first positive test." Then, go back to HT8c.


Else, go to Check_HT8c.1.



Check_HT8c.1.

If the date of R's last visit for HIV care is more than 6 months ago (LASTMD_C LT AGO6M_C), go to HT9.

If R’s date of last visit for HIV care is DK or month is missing, go to HT8c.1.

Else, go to HT9.


HT8c.1.

Was your last visit for HIV care in the past 6 months?

C_LASTMD

Last HIV care in the past 6 months - n/y




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




HIV Medications

Universe_HIVMedications.

Rs who reported having seen a health care provider for HIV care (HT8 EQ 1).


HT9.

Are you currently taking antiretroviral medicines to treat your HIV?

CURRAMED

Currently taking antiretrovirals




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



INTRO_HT10.

DISPLAY: "READ: Now I'm going to ask you a few questions about HIV viral load. HIV viral load tests measure the amount of HIV in your blood."


HT10.

Have you ever had an HIV viral load test?

EVRVLTST

Ever had viral load test




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_HT10a.

If R never had a viral load test or did not respond (HT10 EQ 0, DK or REF), go to HT11.

Else, go to HT10a.


HT10a.

When was your most recent viral load test? Please tell me the month and year.

RCVLTST

Date of most recent VL




__ __ / __ __ __ __ (MM/YYYY)





Range (Year)

1900-2100




Don't Know (Year)

9999




Refuse to Answer (Year)

7777



Check_CALC_VLTST_C.

If R did not report when they had most recent viral load test (HT10a EQ DK or REF), go to INTRO_HT10b.

Else, go to CALC_VLTST_C.


CALC_VLTST_C.



VLTST_C

Century month version of RCVLTST date

VLTST_C = (RCVLTSTY-1900)*12) + RCVLTSTM



HardEdit_HT10a.

If R's date of most recent viral load test after date of interview ((VLTST_C GT IDATE_C) or (RCVLTSTY AFTER IDATEY)), DISPLAY: "INTERVIEWER: The date of respondent's most recent viral load test cannot be after today's date." Then, go back to HT10a.


If R's date of most recent viral load test before date of birth (HT10a BEFORE ES1), DISPLAY: "INTERVIEWER: The date of respondent's most recent viral load test cannot be before the date of birth, [fill with (value for ES1, formatted as Month DD, YYYY])." Then, go back to HT10a.


If R's date of most recent viral load test is before date of first positive test ((VLTST_C LT POS1ST_C) or (POS1STY AFTER RCVLTSTY)), DISPLAY: "INTERVIEWER: The date of respondent's most recent viral load test cannot be earlier than the date of the first positive test." Then, go back to HT10a.


Else, go to INTRO_HT10b.


INTRO_HT10b.

DISPLAY: “[Give Respondent Flashcard T.]


READ: Next, I am going to ask about your most recent viral load test.”


HT10b.

Looking at this flashcard, what was the result of your most recent viral load test?


[READ choices.]

VRLTRSLT

Result for most recent VL




Undetectable or below the level of detection

1




Detectable but less than 1,000 viral copies/ml

2




Greater than 1,000 viral copies/ml

3




Don't Know

9




Refuse to Answer

7



Other Testing


INTRO_HT11.

DISPLAY: “READ: The next questions are about hepatitis C. There are three common types of hepatitis- hepatitis A, hepatitis B, and hepatitis C. Hepatitis C is spread through infected blood and is the type of hepatitis that DOES NOT have a vaccine.”


HT11.

Have you ever been tested for hepatitis C infection?

EVRHCTST

Ever tested for HCV




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_HT11a.

If R never had a HCV test or did not respond (HT11 EQ 0, DK or REF), go to HT12.

Else, go to HT11a.



HT11a.

Has a doctor, nurse, or other health care provider ever told you that you had hepatitis C?

HEPCEVER

Ever told had hepatitis C by doctor or nurse




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_HT11b.

If R never told they had HCV, (HT11a NE 1), go to HT12.

Else, go to HT11b.


HT11b.

Have you ever taken medicine to treat your hepatitis C infection?

HCVMEDS

Ever taken medicine to treat HCV




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



HT12.

Now I’m going to ask you some questions about sexually transmitted diseases, or STDs, other than HIV and hepatitis.


In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, were you tested by a doctor or other health care provider for a sexually transmitted disease like gonorrhea, chlamydia, or syphilis?

STDTEST

Tested for STD past 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_HT12a.

If R reported STD testing in past 12 months, (HT12 EQ 1), go to HT12a.

Else, go to INTRO_HT12b.



HT12a.

In the past 12 months, did you have an anal or rectal STD test?

RSTDTEST

Rectal STD past 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



INTRO_HT12b.

DISPLAY: “READ: In the past 12 months, has a doctor or other health care provider told you that you had…


[READ choices. CHECK YES or NO for each one.]”


HT12b.

Gonorrhea?

GONORR

Gonorrhea past 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



HT12c.

Chlamydia?

CHLAMYD

Chlamydia past 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



HT12d.

Syphilis?

SYPHILIS

Syphilis past 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




CALC_ENDHT.



ENDHT

Time HIV testing section ended

ENDHT = Current time


END_HT.

Go to Mental Health Section (MH).

MENTAL HEALTH (MH)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Preloaded variables

--

CYCLE

NHBS Cycle

Consent

CN1

CONSENTA

Consent to survey

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle

HIV Testing

--

ENDHT

Time HIV testing section ended



Universe_MH.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1) and completed prior section (ENDHT is not missing).



CALC_BEGMH.



BEGMH

Time at beginning of MH section

BEGMH = Current time


INTRO_MH1.

DISPLAY: “[Give Respondent Flashcard U.]


READ: These next questions ask how you have been feeling during the past 30 days. Please tell me how you have been feeling using one of the options on this card.”



MH1a.

During the past 30 days, how often did you feel nervous?


[READ choices.]


FEELNERV

Felt nervous





All of the time

1




Most of the time

2




Some of the time

3




A little of the time

4




None of the time

5




Don’t Know

9




Refuse to Answer

7



MH1b.

During the past 30 days, how often did you feel hopeless?


[READ choices.]


FEELHOPE

Felt hopeless





All of the time

1




Most of the time

2




Some of the time

3




A little of the time

4




None of the time

5




Don’t Know

9




Refuse to Answer

7



MH1c.

During the past 30 days, how often did you feel restless or fidgety?


[READ choices.]


FEELREST

Felt restless





All of the time

1




Most of the time

2




Some of the time

3




A little of the time

4




None of the time

5




Don’t Know

9




Refuse to Answer

7



MH1d.

During the past 30 days, how often did you feel so sad or depressed that nothing could cheer you up?


[READ choices.]


FEELSAD

Felt depressed





All of the time

1




Most of the time

2




Some of the time

3




A little of the time

4




None of the time

5




Don’t Know

9




Refuse to Answer

7



MH1e.

During the past 30 days, how often did you feel that everything was an effort?


[READ choices.]


FEELEFRT

Everything was an effort





All of the time

1




Most of the time

2




Some of the time

3




A little of the time

4




None of the time

5




Don’t Know

9




Refuse to Answer

7



MH1f.

During the past 30 days, how often did you feel down on yourself, no good or worthless?


[READ choices.]


FEELDOWN

Felt worthless





All of the time

1




Most of the time

2




Some of the time

3




A little of the time

4




None of the time

5




Don’t Know

9




Refuse to Answer

7



INTRO_MH2a

READ: “The next few questions are about thoughts of suicide.”


MH2a.

At any time in the past 12 months, that is, since [fill with interview month, formatted as text] of last year, up to and including today, did you seriously think about trying to kill yourself?

SUITH

Suicidal ideation




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_MH2b.

If R ever thought about suicide (MH2a EQ 1), go to MH2b.

Else, go to CALC_ENDMH.


MH2b.

During the past 12 months, did you make any plans to kill yourself?


SUIPL

Planned suicide




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



MH2c.

During the past 12 months, did you try to kill yourself?


SUIATT

Attempted suicide




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



CALC_ENDMH.



ENDMH

Time mental health section ended

ENDMH = Current time


END_MH.

Go to Abuse and Harassment section (AH).















ABUSE AND HARASSMENT (AH)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Preloaded variables

--

CYCLE

NHBS Cycle

Consent

CN1

CONSENTA

Consent to survey

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle

Discrimination

--

ENDDI

Time discrimination section ended



Universe_AH.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1) and completed prior section (ENDDI is not missing).





CALC_BEGAH.



BEGAH

Time at beginning of AH section

BEGAH = Current time





INTRO_AH1.

DISPLAY: "READ: The next set of questions is about verbal and physical abuse and harassment that you may have experienced. For each question, please tell me whether you have had this experience in the past 12 months.”





AH1.

In the past 12 months, have you been verbally abused or harassed?


VERBABUSR2

Verbally abused





No

0




Yes

1




Don't Know

9




Refuse to Answer

7






AH2.

In the past 12 months, have you been physically abused or harassed?


PHSYABUSR2

Physically abused





No

0




Yes

1




Don't Know

9




Refuse to Answer

7




AH3.

In the past 12 months, have you been physically abused or harassed by a sexual partner?


IPVABUS

Physically Abused IPV





No

0




Yes

1




Don't Know

9




Refuse to Answer

7






AH4.

In the past 12 months, has anyone forced or pressured you to have sex when you did not want to? By forced, I mean physically forced or verbally threatened. By sex, I mean any sexual contact.


SEXABUSR2

Forced sex





No

0




Yes

1




Don't Know

9




Refuse to Answer

7






CALC_ENDAH.



ENDAH

Time abuse and harassment section ended

ENDAH = Current time



END_AH.

Go to Incarceration section (IN).

INCARCERATION (IN)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Consent

CN1

CONSENTA

Consent to survey

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle

Abuse and Harassment

--

ENDAH

Time abuse and harassment section ended



Universe_IN.

All eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1) and completed prior section (ENDAH is not missing).



CALC_BEGIN.



BEGIN

Time at beginning of IN section

BEGIN = Current time



INTRO_IN1.

DISPLAY: "READ: Now I will ask you about experiences you may have had with the criminal justice system."



IN1.

Have you ever been held in a detention center, jail, or prison for more than 24 hours?

EVHELD

Ever held or arrested




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_IN1a.

If IN1 EQ 1, go to IN1a.

Else, go to CALC_ENDIN.



IN1a.


During the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you been held in a detention center, jail, or prison for more than 24 hours?

HELD12M

Held or arrested past 12 months




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




CALC_ENDIN.



ENDIN

Time incarceration section ended

ENDIN = Current time



END_IN.

Go to Assessment of Prevention Activities Section (PA).

ASSESSMENT OF PREVENTION ACTIVITIES (PA)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Injection Drug Use

--

ENDID

Time injection drug section ended

Consent

CN1

CONSENTA

Consent to survey

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle

Injection of Drugs

--

LINJ12

Injected in last 12 months

HIV Testing

HT2

EVERPOS

Ever test positive for HIV

HIV Testing

HT4c

RCNTRST

Result most recent HIV test

Incarceration

--

ENDIN

Time incarceration section ended



Universe_PA.

All Eligible Rs (EL_TRANS EQ 1) who consent to interview (CN1 EQ 1) and completed prior section (ENDIN is not missing).



CALC_BEGPA.



BEGPA

Time at beginning of PA section

BEGPA = Current time



HIV Prevention Resources

INTRO_PA1.

DISPLAY: "READ: Next, I'd like to ask you about HIV prevention activities that happen around here."



PA1.


In the past 12 months, that is, since [fill with interview month, formatted as text] of last year, have you gotten any free condoms, not counting those given to you by a friend, relative or sex partner?

COND12

Received free condoms past 12 mos




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




HIV Prevention Interventions



INTRO_PA2.

DISPLAY: “READ: Next, I would like to ask about participation in HIV prevention activities.”



PA2.


In the past 12 months, have you had a one-on-one conversation with an outreach worker, counselor, or prevention program worker or participated in an organized group session to discuss ways to prevent HIV? Do not count situations when you had a conversation as part of an HIV test or with a group of friends.

HIVINT12

HIV intervention past 12 mos




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_INTRO_PA3.

If R did not report ever testing HIV-positive (HT4c NE 2 and HT2 NE 1), go to INTRO_PA3.

Else, go to CALC_ENDPA.



PrEP/PEP

INTRO_PA3.

DISPLAY: "READ: The next questions are about the use of anti-HIV medicines, also called antiretrovirals. There are two ways that people who are HIV-negative can take anti-HIV medicines to reduce their risk of becoming infected.“



PA3.

When a person who is HIV-negative takes pills for 28 days after a single high-risk exposure to reduce their chances of getting HIV, this is called POST-exposure prophylaxis, or PEP. In the past 12 months, have you taken PEP?

PEPUSE

PEP, use, 12m




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




PA4.

PRE-exposure prophylaxis, or PrEP, is an antiretroviral medicine, such as Truvada, taken for months or years by a person who is HIV-negative to reduce the risk of getting HIV. Before today, have you ever heard of PrEP?

PRPAWR

PrEP, awareness




No

0




Yes

1




Don't Know

9




Refuse to Answer

7



Check_PA5.

If R heard of PrEP before today (PA4 EQ 1), go to PA5.

Else, go to CALC_ENDPA.



PA5.

In the past 12 months, have you had a discussion with a health care provider about taking PrEP?

PRPDSC

PrEP, discussed with HCP, 12m




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




PA6.

In the past 12 months, have you taken PrEP to reduce the risk of getting HIV?

PRPUS12M

PrEP use, 12 m (y/n)




No

0




Yes

1




Don't Know

9




Refuse to Answer

7




Check_PA6a.

If R did not take PrEP, 12m (PA6 EQ 0), go to PA6a.

If R reported using PrEP, 12m (PA6 EQ 1), go to PA7.

Else, go to CALC_ENDPA.



PA6a.

Sometimes people are prescribed medications but later decide not to take them. In the past 12 months, did a health care provider prescribe PrEP for you?

PRPPRSB

PrEP, HCP prescribed, 12m



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




Check_PA6b.

If R received PrEP Rx in p 12m (PA6a EQ 1), go to PA6b.

Else, go to CALC_ENDPA.



PA6b.

Did you fill the PrEP prescription that the health care provider gave you?

PRPFLPR

PrEP, filled prescription, 12m



No

0



Yes

1



Don't Know

9



Refuse to Answer

7




Check_PA6.

Go to CALC_ENDPA.



PA7.

Were you taking PrEP the last time you had sex?

PRPLASTS

PrEP use at last sex



No

0



Yes

1



Don't Know

9



Refuse to Answer

7





PA9.

When was the last time you took PrEP? That is, how many days, weeks, or months ago did you last take PrEP?



[INTERVIEWER: If today, enter "0".]

PRPLDN

Time since last PrEP, number



__ __ __




Range

0 - 365



Don't Know

999



Refuse to Answer

777




Check_PA9a.

If R last took PrEP at least 1 day ago (PA9 GE 1), go to PA9a.

Else, go to CALC_PRP30D.



PA9a.

[INTERVIEWER: Was this days, weeks, or months?]

PRPLDU

Time since last PrEP, unit



Days

0



Weeks

1



Months

2




CALC_PRP30D.



PRP30D

Took PrEP in past 30 days

PRP30D = if (PRPLDN=DK or PRPLDU=REF), ., if((PRPLDN=0), 1, if((PRPLDU=0 & PRPLDN<=31), 1, if((PRPLDU=1 & PRPLDN<=5 ), 1, if((PRPLDU=2 & PRPLDN<= 1), 1, 0)))))



PA10.

Which PrEP drug did you take the last time you took PrEP?


[READ choices.]

PRPDRUG

PrEP drug taken



Truvada…………………………………………………………………………..

1



Descovy

2



Injectable Cabotegravir…………………………………………………..

3



Other

4



Don't Know

9



Refuse to Answer

7



Check_ PA10a.

If R reports “Other” type of PrEP drug taken (PA10 EQ 4), go to PA10a.

Else, go to Check_PA11.



PA10a.

INTERVIEWER: Specify other PrEP drug taken


PRPDGSPEC

Specify other PrEP drug



__ __ __ __ __ __ __ __ __ ____ __ __ __ ____ __ __ __ ____ __ __ _ __ __ __ ____ __ __ __ ____ __ __ __



{text response; max characters = 100}




Check_PA11.

If R last took PrEP in past 30 days or 5 weeks or 1 month (PRP30D EQ 1) and took a pill for PrEP (PA10 EQ 1 or EQ 2), go to PA11.

Else, go to CALC_ENDPA.


PA11.

When you took PrEP in the past 12 months, did you take it every day, almost every day, or less often?

PRPFX12M

PrEP use, frequency, 12m




Every day

2




Almost every day

1




Less often

0




Don't Know

9




Refuse to Answer

7




INTRO_PA12.

DISPLAY: "A lot of people don’t take medications exactly as they are supposed to, at least some of the time. We’d like to know about your experiences with PrEP.”


PA12.

In the past 30 days, on how many days did you miss a dose of your PrEP medicine?

PRPDM30

PrEP adherence, Days missed, 30 d



__ __ __




Range

0 - 30



Don't Know

99



Refuse to Answer

77





CALC_ENDPA.



ENDPA

Time prevention activities section ended

ENDPA = Current time



End_PA.

Go to End of Survey Section (END).





NHBS TRANS QUESTIONNAIRE

END OF SURVEY (END)

Variables from prior section(s) used in this section of the questionnaire

Section

Question #

Variable name

Variable label

Prevention Activities

PA4f

PRPSRC

PrEP, sources, 12m

Preloaded Variables

--

LANGUAGE

Language

Eligibility Screener

ES3

E_GEND

Gender

Consent

CN1

CONSENTA

Consent to survey

Consent

CN2

CONSENTB

Consent to HIV testing

Interviewer Entered Information

IE5

ISEED

Respondent is a seed

Injection Drug Use

ID1

EVRINJ

Ever Injected drugs

Eligibility Screener

--

EL_TRANS

Eligible: TRANS cycle



UNIVERSE_END.

All Rs.



Check_END1.

If R NOT eligible for cycle (EL_TRANS EQ 0), go to INTRO_END6.

If last question asked of all Rs EQ DK or REF (PA2 EQ DK or REF), go to END1.

Else, go to CALC_ENDCORE.



END1.

Interviewer: Please confirm. Did the person complete the survey?

C_CMPLT

Confirm Complete




Did NOT complete the survey

0




DID complete the survey

1



CALC_ENDCORE.



ENDCORE

Timestamp at end of core

ENDCORE = Current time


CALC_COMPLETE.



COMPLETE

Interview complete

COMPLETE = IF(HIVINT12 EQ 0 or HIVINT12 EQ 1, 1, IF(C_CMPLT=1, 1, 0))


Check_END2a.

If R did NOT consent to HIV test before interview (CN2 EQ 0), go to END2a.

Else, go to END5.


HIV Test Consent Confirmation

END2a.

My records reflect that you did not agree to HIV testing when asked earlier during the interview. Before I close out the survey, I'd like to ask you again about whether or not you would like an HIV test. Did you want the HIV test that is part of today's survey?


[DO NOT read choices.]

C_T_CNST

Confirmation of HIV Testing Consent




No – Respondent DOES NOT want an HIV test

0




Yes – Respondent DOES want an HIV test

1



Check_END2b.

If R wants HIV test (END2a EQ 1), go to END2b.

Else, go to END5.


END2b.

Do you agree to HIV counseling and testing?

HIVCNSTB

Revised Consent to HIV testing




No

0




Yes

1



Check_END4.

If R consented to HIV test after interview (END2b EQ 1), go to END4.

Else, go to END5.



END4.

Do you agree to let us store some of your test sample(s) for future testing?

HIVCNSTD

Revised Consent to Specimen Storage




No

0




Yes

1



Interviewer Assessment – Post-Interview


END5.

INTERVIEWER: How confident are you of the validity of the respondent's answers?

VALIDITY

Confidence in validity of answers




Confident

1




Some doubts

2




Not confident at all

3



Check_END5a.

If Interviewer doubts validity of responses (END5 EQ 2 or 3), go to END5a.

Else, go to CALC_TRN_RCTR.


END5a.

INTERVIEWER: Please explain why you are not confident in the respondent's answers:

VALSPEC

Specify why not confident in answers





__ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __



{text response; max length = 1000 characters}




RDS Recruiter Variables


CALC_TRN_RCTR.



TRN_RCTR

Eligible: TRANS RDS Recruiter

If data are valid (VALIDITY EQ 1 or 2) & complete (COMPLETE EQ 1) & current gender identity includes “Woman”, “Transgender Woman” or “Transfeminine” (GENDA=1 OR GENDB=1 OR GENDC=1), R selected to receive coupons (TRN_RCTR=1).

Else, R is NOT to receive coupons (TRN_RCTR EQ=0).



INFO_RCTR.

If RDS cycle & R IS eligible to recruit (TRN_RCTR EQ 1), DISPLAY: "The computer SELECTED this respondent to recruit others and receive coupons."


If RDS cycle & R NOT eligible to recruit (TRN_RCTR EQ 0), DISPLAY: "The computer did NOT select this respondent to recruit others and receive coupons."


Check_INTRO_END6.

Go to END6.


INTRO_END6.

DISPLAY: "READ: Thank you for answering these questions. Unfortunately, the computer has not selected you to participate in the health survey. Thank you again for your time."


Interviewer Comments

END6.

INTERVIEWER: Do you have any comments to add?

INTCOMM

Interviewer Comments




No

0




Yes

1



Check_END7.

If END6 EQ 1, go to END7.

Else, go to CALC_END.


END7.

Enter interviewer comments

INTTXT

Interviewer comments text


__ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __

__ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __

__ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __ __



{text response; max length = 1000 characters}


CALC_END.



END

Interview end time

END = Current time


CALC_EDATE.



EDATE

End date

EDATE = Today's date


CALC_INTTIME.



INTTIME

Elapsed interview/data entry time

INTTIME = Elapsed interview/data entry time


Check_END8.

If TRANS cycle & R not eligible (EL_TRANS EQ 0), go to END9.

Else, go to END8.


END8.

INTERVIEWER: Do you want to proceed to the local survey?

LOCSURV

Proceed to local survey




No

0




Yes

1



Check_END9.

If Interviewer wants to proceed to local survey & English interview (END8 EQ 1 & LANGUAGE EQ 1), open ENGLISH LOCAL FILE.

If Interviewer wants to proceed to local survey & Spanish interview (END8 EQ 1 & LANGUAGE EQ 2), open SPANISH LOCAL FILE.

Else, go to END9.


END9.

INTERVIEWER: Do you want to end this survey?

ENDSURV

End survey




No

0




Yes

1



Check_ENDSURVEY.

If Interviewer does not want to end survey (END9 EQ 0), go back to END6.

Else, end interview.

FLASHCARDS

Flashcard A

FLASHCARD A

  • American Indian or Alaska Native

  • Asian

  • Black or African American

  • Native Hawaiian or Other Pacific Islander

  • White


Flashcard B

FLASHCARD B

  • Woman

  • Transgender woman

  • Transfeminine

  • Man

  • Transgender man

  • Transmasculine

  • Nonbinary

  • A gender not listed here


Flashcard C

FLASHCARD C

  • A relative or family member

  • A person you have sex with

  • A friend

  • An acquaintance, that is, a person you know but do not consider a friend

  • A stranger, you don't know the person or just met them


Flashcard D

FLASHCARD D


MONTHLY INCOME

OR


YEARLY INCOME

A.

$0 to $416


A.

$0 to $4,999

B.

$417 to $833


B.

$5,000 to $9,999

C.

$834 to $1,041


C.

$10,000 to $12,499

D.

$1,042 to $1,249


D.

$12,500 to $14,999

E.

$1,250 to $1,666


E.

$15,000 to $19,999

F.

$1,667 to $2,083


F.

$20,000 to $24,999

G.

$2,084 to $2,499


G.

$25,000 to $29,999

H.

$2,500 to $2,916


H.

$30,000 to $34,999

I.

$2,917 to $3,333


I.

$35,000 to $39,999

J.

$3,334 to $4,166


J.

$40,000 to $49,999

K.

$4,167 to $4,999


K.

$50,000 to $59,999

L.

$5,000 to $6,249


L.

$60,000 to $74,999

M.

$6,250 to $8332


M.

$75,000 to $99,999

N.

$8333 or more


N.

$100,000 or more




Flashcard E

FLASHCARD E

  • A private health plan - through an employer or purchased directly

  • Medicaid - for people with low incomes

  • Medicare – for the elderly and people with disabilities

  • Some other government plan

  • TRICARE / CHAMPUS

  • Veterans Administration coverage

  • Some other health insurance

Flashcard F

FLASHCARD F

  • Chosen family

  • Biologic or foster family

  • Friends

  • Mentors

  • Partners

  • Special person or people

  • Therapist/counselor/support group

  • Religious community

  • Sex worker community

  • No one


Flashcard G

FLASHCARD G

  • Strongly agree

  • Agree

  • Neither agree nor disagree

  • Disagree

  • Strongly disagree




Flashcard H

FLASHCARD H

  • Pharmacy or drug store

  • Doctor’s office, clinic or hospital

  • Friend, acquaintance, relative, or sex partner

  • Off the streets

  • Internet

  • Other


Flashcard I

FLASHCARD I

  • Pills

  • Skin patch or cream

  • Shots/injection

  • Other




Flashcard J

FLASHCARD J

  • Pharmacy or drug store

  • Doctor’s office, clinic or hospital

  • Friend, acquaintance, relative, or sex partner

  • Off the streets

  • Needle exchange program or someone who got them from a needle exchange program

  • Internet

  • Other

Flashcard K

FLASHCARD K

  • Never

  • Rarely

  • About half the time

  • Most of the time

  • Always



Flashcard L

FLASHCARD L

  • Walking on the street or “stroll”

  • Online (websites or apps)

  • Working in a strip club, massage parlor, brothel, or other similar place you are employed

  • Picking up clients at a public place, such as a bar, hotel, or the mall

  • Introduced by someone you know

  • Some other way


Flashcard M

FLASHCARD M

  • Money

  • Alcohol

  • Drugs

  • Rent/Mortgage payments

  • Shelter or place to stay or sleep

  • Food

  • School fees/tuition

  • Security or protection

  • Other goods/payment



Flashcard N

FLASHCARD N

  • American Indian or Alaska Native

  • Asian

  • Black or African American

  • Hispanic or Latino

  • Native Hawaiian or Other Pacific Islander

  • White


Flashcard O

FLASHCARD O
FOR USE WITH ALCOHOL QUESTIONS




1 Shot of Liquor 1 Regular Beer 1 Glass of Wine
(Whisky, Vodka, Gin, etc.) 12 oz. 5 oz.
1.5 oz.



Flashcard P

FLASHCARD P

  • More than once a day

  • Once a day

  • More than once a week

  • Once a week or less


Flashcard Q

FLASHCARD Q

  • Speedball, which is heroin and cocaine together

  • Heroin, by itself

  • Powder cocaine, by itself

  • Crack cocaine, by itself

  • Methamphetamine, also known as meth or speed

  • Painkillers, such as Oxycontin, Dilaudid or Percocet

  • Something else




Flashcard R

FLASHCARD R

  • Needle or syringe exchange program



  • Someone who got them from a needle exchange



  • Pharmacy or drug store



  • Doctor’s office, clinic, or hospital



  • HIV/AIDS focused organization



  • Some other place




Flashcard S

FLASHCARD S

  • More than once a day



  • Once a day



  • More than once a week



  • Once a week or less



  • Never



Flashcard T

FLASHCARD T

  • Undetectable or below the level of detection

  • Detectable but less than 1,000 viral copies/ml

  • Greater than 1,000 viral copies/ml


Flashcard U

FLASHCARD U

  • All of the time

  • Most of the time

  • Some of the time

  • A little of the time

  • None of the time






File Typeapplication/vnd.openxmlformats-officedocument.wordprocessingml.document
AuthorDoyle, Katherine (CDC/OID/NCHHSTP)
File Modified0000-00-00
File Created2023-08-27

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