2021 Proposed New Content - Contents Summary

Attachment 5a

2021 NHIS Proposed New Content

Content Summary

SUMMARY: 2021

New rotating core include items on allergies and psychological distress. New sponsored content includes items on COVID-19 vaccination coverage, epilepsy, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), cancer control (i.e., colorectal cancer, prostate cancer, cervical cancer and breast cancer screening), , A1C testing, diabetes distress, insulin affordability, occupational health, hepatitis B vaccinations, life satisfaction, and loss of sense of taste and smell.

NEW ROTATING CONTENT

Allergies - Sample Adult and Sample Child

Concepts to be Measured

• Symptoms of hay fever, seasonal or year-round allergies (CURRESP_A, CURRESP_C)

• Doctor diagnosed hay fever, seasonal or year-round allergies (DXRESP_A, DXRESP_C)

• Have an allergy to one or more foods (CURFOOD_A, CURFOOD_C)

• Doctor diagnosed allergy to one or more foods (DXFOOD_A, DXFOOD_C)

• Itchy rash due to eczema or atopic dermatitis (CURSKIN_A, CURSKIN_C)

• Doctor diagnosed eczema or atopic dermatitis (DXSKIN_A, DXSKIN_C)

Serious Psychological Distress – Sample Adult

Concepts to be Measured

• In last 30 days:

  • Frequency of feeling so sad that nothing could cheer you up: SAD_A

  • Frequency of feeling nervous: NERVOUS_A

  • Frequency of feeling restless or fidgety: RESTLESS_A

  • Frequency of feeling hopeless: HOPELESS_A

  • Frequency of feeling everything was an effort: EFFORT_A

  • Frequency of feeling worthless: WORTHLESS_A

NEW SPONSORED CONTENT

COVID-19 Vaccination - Sample Adult and Sample Child (Content to start sometime around quarter 2 of 2021)

Sponsor: National Center for Immunization and Respiratory Diseases

Concepts to be Measured

Assuming Two Doses of the Vaccination:

• Since [DATE of Availability to be determined], have you had a COVID-19 vaccination?

• How many COVID-19 vaccinations have you received?

• During what month and year did you receive your first COVID-19 vaccination?

• During what month and year did you receive your second COVID-19 vaccination?

Epilepsy - Sample Adult

Sponsor: National Center for Chronic Disease Prevention and Health Promotion/Division of Population Health

Concepts to be Measured

• Ever diagnosed with seizure disorder or epilepsy (EPIEV_A)

• Currently take medicine to control seizure disorder or epilepsy (EPIMED_A)

• Number of seizures of any type in the past year (EPINUMSEIZ_A)

• Seen neurologist or epilepsy specialist for seizure disorder/epilepsy in the past year (EPIDR_A)

Chronic Fatigue and Myalgic Encephalomyelitis - Sample Adult

Sponsor: National Center for Emerging and Zoonotic Infectious Diseases

Concepts to be Measured

• Healthcare provider ever diagnosed Chronic Fatigue Syndrome (CFS) or (Myalgic Encephalomyelitis) ME: CFSEV_A

• Current Chronic Fatigue Syndrome (CFS) or (Myalgic Encephalomyelitis) ME: CFSNOW_A

Cancer Control - Sample Adult

Sponsor: National Center for Chronic Disease Prevention and Health Promotion and National Cancer Institute

Concepts to be measured

Colorectal cancer screening

• Colorectal cancer screening test use (COLORECTEV_A, COLORECTYP_A, COLROTH_A, CTCOLEV_A, FITHEV_A, COLOGUARD_A, FITCOLG_A)

• Timing of colorectal cancer screening test (COLWHEN_A, COLSIGWHEN_A, SIGWHEN_A, CTCOLWHEN_A, FITHWHEN_A, CGUARDWHEN_A)

• Reason for having colorectal cancer screening test (COLREASON_A)

• Colonoscopy payment (COLPAY_A)

• Doctor recommended colorectal cancer screening tests to respondents not recently screened (COLPROBLEM_A, COLKIND_A)

Prostate cancer screening

• Prostate cancer screening test use (PSATEST_A)

• Timing of most recent PSA test (PSAWHEN_A)

• Main reason for most recent PSA test (PSAREASON_A)

• Person who first suggested respondent’s most recent PSA test (PSASUGGEST_A)

Cervical cancer screening

• Cervical cancer screening test use (CERVICEV_A, PAPTEST_A, HPVTEST_A)

• Timing of most recent cervical cancer screening test (CERVICWHEN_A)

• Reason for having cervical cancer screening test (CERREASON_A)

• Doctor told respondent what type of cervical cancer screening test(s) they received (TELLCERVIC_A)

• Was follow-up required following cervical cancer screening test (CERVICRES_A)

• Reason for not having cervical cancer screening test (CERVICNOT_A)

• Eligibility for receiving cervical cancer screening- hysterectomy status (HYSTEV_A)

Breast cancer screening

• Breast cancer screening test use (MAMEV_A)

• Timing of most recent mammogram (MAMWHEN_A)

• Mammogram payment (MAMPAY_A)

• Reason for having most recent mammogram (MAMREASON_A)

• Approximate age at first mammogram (MAMAGE1ST_A)

• Reason for not recently having a mammogram (MAMNOT_A)

Diabetes A1C Testing

Sponsor: National Center for Chronic Disease Prevention and Health Promotion

Concepts to be Measured

• Last time had A1C checked by a doctor, nurse, or other health professional: DIBA1CLAST_A

• Frequency of A1C testing in the last year: DIBA1CNUM_A

Diabetes Distress

Sponsor: National Center for Chronic Disease Prevention and Health Promotion

Concepts to be Measured

• Frequency of feeling overwhelmed by the demands of living with diabetes in the last 30 days: DIBSTRESS_A

• Change in the feeling overwhelmed by the demands of living with diabetes between time before coronavirus pandemic and now: DCIBSTRESS_A

Insulin Affordability

Sponsor: National Center for Chronic Disease Prevention and Health Promotion

Concepts Measured

If takes insulin

• (Past 12 months) were any of the following true …you skipped insulin doses to save money: INSSKIP12M_A

• (Past 12 months) …you took less insulin than needed to save money: INSLESS12M_A

• (Past 12 months)…you DELAYED buying insulin to save money: INSDLY12M_A

Occupational Health

Sponsor: National Institute for Occupational Safety and Health

Concepts Measured

• Employer deducts or withholds taxes from pay (self-employment): JOBTAX_A

• Degree of earnings change from month to month: not at all, a small amount, a moderate amount, a large amount (income variability): JOBCHGEARN_A

• Usual hours of work on main job: daytime shift, evening shift, night shift, rotating shift, something else (shiftwork): JOBSHIFT_A

• Ease in changing work schedule for family obligations: very easy, somewhat easy, somewhat difficult, very difficult (schedule flexibility): JOBCHGSCH_A

• Does work schedule change on a regular basis (schedule predictability): JOBVARYSCH_A

• How far in advance do you know the hours you will work (schedule predictability): JOBADVSCH_A

• Next 12 months, how likely to lose job or be laid off: very likely, fairly likely, not too likely, not at all likely (job insecurity): JOBLKYLOSS_A

• Past 30 days, how many days work while physically ill (presenteeism): JOBWRKSICK_A

• Past 30 days, number days missed because of illness, injury, or disability (absenteeism): JOBMISS_A

Life Satisfaction – Sample Adult

Sponsor: National Center for Chronic Disease Prevention and Health Promotion, CDC Office of the Chief Operating Officer, National Institutes of Health Office of Disease Prevention

Concepts to be Measured

• On a scale of 0 to 10, where 0 means "very dissatisfied" and 10 means "very satisfied", how do you feel about your life as a whole right now: LSATIS11_A

• In general, how satisfied are you with your life? Would you say very satisfied, satisfied, dissatisfied, or very dissatisfied?: LSATIS4_A

Hepatitis Vaccinations - Sample Adult

Sponsor: National Center for Immunization and Respiratory Diseases

Concepts to be Measured

• Ever received the hepatitis B vaccine: SHTHEPB_A

• Ever received the hepatitis A vaccine: SHTHEPA_A

• Ever lived with someone with hepatitis: LIVEHEP_A

Taste and Smell - Sample Adult

Sponsor: National Institute on Deafness and Other Communication Disorders

Concepts to be Measured

• Past 12 months, have you had difficulty with sense of smell or ability to detect odors (SMELLDF_A)

• Compared to when you were (25 years old / 5 years younger), ability to smell (better, worse, no change)( SMELLCOMP_A)

• Past 12 months, smell an unpleasant, bad, metallic, or burning odor when nothing is there (SMELLPHT_A)

• Past 12 months, difficulty with your ability to taste sweet, sour, salty, or bitter foods and drinks (TASTEDF_A)

• Compared to when you were (25 years old / 5 years younger), ability to taste sweet, sour, salty, or bitter foods and drinks (better, worse, no change) (TASTECOMP_A)

• Compared to when you were (25 years old / 5 years younger), ability to taste flavors such as chocolate, vanilla, or strawberry (better, worse, no change) (TASTEFLAV_A)

• Past 12 months had an unwanted taste or other sensation in mouth that does not go away (TASTEUNW_A)

• Ever discussed any problem with, or a change in your ability to taste or smell, with a doctor or other health professional (TSTSMHP_A)

  • When was the last time discussed any problem with ability to taste or smell with a doctor or other health professional (TSTSMLAST_A)

• Past 12 months, had any of the following

  • … a head cold or flu for longer than a month (COLDFLU12M_A)

  • … persistent dry mouth (DRYMOUTH12M_A)

For those with positive coronavirus diagnosis

• Had coronavirus symptoms include losing sense of smell, having distortions, or smelling odors that were not there? (CVDSYMSM_A)

  • Has your sense of smell fully or partially recovered? (CVDSMREC_A)

• Had coronavirus symptoms include losing ability to taste or having unwanted tastes or sensations in your mouth that did not go away (CVDSYMTST_A)

  • Has ability to taste fully or partially recovered? (CVDTSTREC_A)

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