Kidney Transplant Recipient Follow Up 6 Month_5 Year_Form_redline.xlsx

Data System for Organ Procurement and Transplantation Network

Kidney Transplant Recipient Follow Up 6 Month_5 Year_Form_redline.xlsx

OMB: 0915-0157

Document [xlsx]
Download: xlsx | pdf
TRF - Kidney - Adult

TRF - Kidney - Pediatric
Fields to be completed by members
Fields to be completed by members







Form Section Field label Notes
Form Section Field label Notes
Recipient Information Organ Type Display Only - Cascades from Database
Recipient Information Organ Type Display Only - Cascades from Database
Recipient Information Follow-up code Display Only - Cascades from Database
Recipient Information Follow-up code Display Only - Cascades from Database
Recipient Information Recipient First Name Display Only - Cascades from TCR
Recipient Information Recipient First Name Display Only - Cascades from TCR
Recipient Information Recipient Last Name Display Only - Cascades from TCR
Recipient Information Recipient Last Name Display Only - Cascades from TCR
Recipient Information Recipient Middle Initial Display Only - Cascades from TCR
Recipient Information Recipient Middle Initial Display Only - Cascades from TCR
Recipient Information SSN Display Only - Cascades from TCR
Recipient Information SSN Display Only - Cascades from TCR
Recipient Information HIC Display Only - Cascades from TCR
Recipient Information HIC Display Only - Cascades from TCR
Recipient Information Previous Follow-up Display Only - Cascades from prior TRF
Recipient Information Previous Follow-up Display Only - Cascades from prior TRF
Recipient Information DOB Display Only - Cascades from TCR
Recipient Information DOB Display Only - Cascades from TCR
Recipient Information Gender Display Only - Cascades from TCR
Recipient Information Gender Display Only - Cascades from TCR
Recipient Information Tx Date Display Only - Cascades from Database
Recipient Information Tx Date Display Only - Cascades from Database
Recipient Information Previous Px Stat Date Display Only - Cascades from prior TRF
Recipient Information Previous Px Stat Date Display Only - Cascades from prior TRF
Recipient Information Transplant Discharge Date
Recipient Information Transplant Discharge Date
Recipient Information State of Permanent Residence
Recipient Information State of Permanent Residence
Recipient Information Zip Code
Recipient Information Zip Code
Provider Information Recipient Center Display Only - Cascades from TCR
Provider Information Recipient Center Display Only - Cascades from TCR
Provider Information Recipient Center Type Display Only - Cascades from TCR
Provider Information Recipient Center Type Display Only - Cascades from TCR
Provider Information Follow-up Center Code Display Only - Cascades from Database
Provider Information Follow-up Center Code Display Only - Cascades from Database
Provider Information Follow-up Center Type Display Only - Cascades from Database
Provider Information Follow-up Center Type Display Only - Cascades from Database
Provider Information Physician Name
Provider Information Physician Name
Provider Information NPI#
Provider Information NPI#
Provider Information Follow-up Care Provided By
Provider Information Follow-up Care Provided By
Provider Information Follow-up Care Provided By//Specify
Provider Information Follow-up Care Provided By//Specify
Donor Information UNOS Donor ID # Display Only - Cascades from Database
Donor Information UNOS Donor ID # Display Only - Cascades from Database
Donor Information Donor Type Display Only - Cascades from Database
Donor Information Donor Type Display Only - Cascades from Database
Donor Information OPO Display Only - Cascades from feedback
Donor Information OPO Display Only - Cascades from feedback
Patient Status at Time of Follow-up Date: Last Seen, Retransplanted or Death
Patient Status at Time of Follow-up Date: Last Seen, Retransplanted or Death
Patient Status at Time of Follow-up Patient Status
Patient Status at Time of Follow-up Patient Status
Patient Status at Time of Follow-up Primary Cause of Death
Patient Status at Time of Follow-up Primary Cause of Death
Patient Status at Time of Follow-up Primary Cause of Death//Specify
Patient Status at Time of Follow-up Primary Cause of Death//Specify
Patient Status at Time of Follow-up Contributory Cause of Death Not required
Patient Status at Time of Follow-up Contributory Cause of Death Not required
Patient Status at Time of Follow-up Contributory Cause of Death//Specify Not required
Patient Status at Time of Follow-up Contributory Cause of Death//Specify Not required
Patient Status at Time of Follow-up Contributory Cause of Death Not required
Patient Status at Time of Follow-up Contributory Cause of Death Not required
Patient Status at Time of Follow-up Contributory Cause of Death//Specify Not required
Patient Status at Time of Follow-up Contributory Cause of Death//Specify Not required
Patient Status at Time of Follow-up Has the patient been hospitalized since the last patient status date
Patient Status at Time of Follow-up Has the patient been hospitalized since the last patient status date
Patient Status at Time of Follow-up Disease Recurrence
Patient Status at Time of Follow-up Disease Recurrence
Patient Status at Time of Follow-up Disease Recurrence Display Only - Cascades from Database
Patient Status at Time of Follow-up Disease Recurrence Display Only - Cascades from Database
Clinical Information Confirmed Biopsy from Previous Follow- up Display Only - Cascades from Database
Clinical Information Confirmed Biopsy from Previous Follow-up Display Only - Cascades from Database
Patient Status at Time of Follow-up Functional Status
Patient Status at Time of Follow-up Functional Status
Patient Status at Time of Follow-up Working for income
Patient Status at Time of Follow-up Cognitive Development
Patient Status at Time of Follow-up Primary Insurance at Follow-up
Patient Status at Time of Follow-up Motor Development
Patient Status at Time of Follow-up Primary Source of Payment, Specify
Patient Status at Time of Follow-up Working for income
Clinical Information HIV Serology

Patient Status at Time of Follow-up Academic Progress
Clinical Information HIV NAT

Patient Status at Time of Follow-up Academic Activity Level
Clinical Information HbsAg

Patient Status at Time of Follow-up Primary Insurance at Follow-up
Clinical Information HBV DNA

Patient Status at Time of Follow-up Primary Source of Payment, Specify
Clinical Information HBV Core Antibody

Clinical Information Date of Measurement
Clinical Information HCV Serology

Clinical Information Height Measurement Date
Clinical Information HCV NAT

Clinical Information Height
Clinical Information New diabetes onset between last follow-up to the current follow-up
Clinical Information Height//Status Value or status is reported, not both
Clinical Information If yes, insulin dependent
Clinical Information Height Percentile Calculated for display only
Clinical Information Graft Status
Clinical Information Weight Measurement Date
Clinical Information If Functioning, Most Recent Serum Creatinine
Clinical Information Weight
Clinical Information If Functioning, Most Recent Serum Creatinine//Status Value or status is reported, not both
Clinical Information Weight//Status Value or status is reported, not both
Clinical Information Date of Graft Failure:

Clinical Information Weight Percentile Calculated for display only
Clinical Information Primary Cause of Graft Failure:

Clinical Information BMI Display Only - Cascades from Database
Clinical Information Primary Cause of Graft Failure//Other, Specify:

Clinical Information BMI Percentile Calculated for display only
Clinical Information Dialysis Since Last Follow-up
Clinical Information HIV Serology
Clinical Information Date Maintenance Dialysis Resumed
Clinical Information HIV NAT
Clinical Information Did patient have any acute rejection episodes during the follow-up period
Clinical Information HbsAg
Clinical Information CMV IgG
Clinical Information HBV DNA
Clinical Information CMV IgM
Clinical Information HBV Core Antibody
Clinical Information Post Transplant Malignancy
Clinical Information HCV Serology
Clinical Information Donor Related
Clinical Information HCV NAT
Clinical Information Recurrence of Pre-Tx Tumor
Clinical Information New diabetes onset between last follow-up to the current follow-up
Clinical Information Post Tx De Novo Solid Tumor
Clinical Information If yes, insulin dependent
Clinical Information De Novo Lymphoproliferative disease and Lymphoma
Clinical Information Graft Status
Immunosuppressive Information Were any medications given during the follow-up period for maintenance
Clinical Information Date of Graft Failure:
Immunosuppressive Information Previous Validated Maintenance Follow-up Medications Display Only - Cascades from Database
Clinical Information Primary Cause of Graft Failure:
Immunosuppressive Information Immunosuppression medication

Clinical Information Primary Cause of Graft Failure//Other, Specify:
Immunosuppressive Information Immunosuppression medication indication

Clinical Information Dialysis Since Last Follow-up




Clinical Information Date Maintenance Dialysis Resumed



Clinical Information Did patient have any acute rejection episodes during the follow-up period




Clinical Information Is growth hormone therapy used during this follow-up period
PUBLIC BURDEN STATEMENT:

Clinical Information Post Transplant Malignancy
The private, non-profit Organ Procurement and Transplantation Network (OPTN) collects this information in order to perform the following OPTN functions: to assess whether applicants meet OPTN Bylaw requirements for membership in the OPTN; and to monitor compliance of member organizations with OPTN Obligations. An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number. The OMB control number for this information collection is 0915-0157 and it is valid until XX/XX/202X. This information collection is required to obtain or retain a benefit per 42 CFR §121.11(b)(2). All data collected will be subject to Privacy Act protection (Privacy Act System of Records #09-15-0055). Data collected by the private non-profit OPTN also are well protected by a number of the Contractor’s security features. The Contractor’s security system meets or exceeds the requirements as prescribed by OMB Circular A-130, Appendix III, Security of Federal Automated Information Systems, and the Departments Automated Information Systems Security Program Handbook. The public reporting burden for this collection of information is estimated to average 0.27 hours per response, including the time for reviewing instructions, searching existing data sources, and completing and reviewing the collection of information. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to HRSA Reports Clearance Officer, 5600 Fishers Lane, Room 14N136B, Rockville, Maryland, 20857 or [email protected].


Clinical Information Donor Related

Clinical Information Recurrence of Pre-Tx Tumor

Clinical Information Post Tx De Novo Solid Tumor

Clinical Information De Novo Lymphoproliferative disease and Lymphoma

Clinical Information Fracture in the past year (or since last follow-up)

Clinical Information Specify Location and number of fractures

Clinical Information Spine-compression fracture

Clinical Information Specify Location and number of fractures

Clinical Information Extremity

Clinical Information Specify Location and number of fractures

Clinical Information Other

Clinical Information AVN (avascular necrosis)

Immunosuppressive Information Were any medications given during the follow-up period for maintenance

Immunosuppressive Information Previous Validated Maintenance Follow-up Medications Display Only - Cascades from Database




Immunosuppressive Information Immunosuppression medication




Immunosuppressive Information Immunosuppression medication indication
























PUBLIC BURDEN STATEMENT:




The private, non-profit Organ Procurement and Transplantation Network (OPTN) collects this information in order to perform the following OPTN functions: to assess whether applicants meet OPTN Bylaw requirements for membership in the OPTN; and to monitor compliance of member organizations with OPTN Obligations. An agency may not conduct or sponsor, and a person is not required to respond to, a collection of information unless it displays a currently valid OMB control number. The OMB control number for this information collection is 0915-0157 and it is valid until XX/XX/202X. This information collection is required to obtain or retain a benefit per 42 CFR §121.11(b)(2). All data collected will be subject to Privacy Act protection (Privacy Act System of Records #09-15-0055). Data collected by the private non-profit OPTN also are well protected by a number of the Contractor’s security features. The Contractor’s security system meets or exceeds the requirements as prescribed by OMB Circular A-130, Appendix III, Security of Federal Automated Information Systems, and the Departments Automated Information Systems Security Program Handbook. The public reporting burden for this collection of information is estimated to average 0.27 hours per response, including the time for reviewing instructions, searching existing data sources, and completing and reviewing the collection of information. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden, to HRSA Reports Clearance Officer, 5600 Fishers Lane, Room 14N136B, Rockville, Maryland, 20857 or [email protected].





















































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