Form 1 ClinVar RCV survey

ClinVar RCV Page Survey 2022
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OMB Approval Info
OMB Control Number: 0925-0648
Expiration Date: 06/30/2024
Public reporting burden for this collection of information is estimated to average 5 minutes per response,
including the time for reviewing instructions, searching existing data sources, gathering and maintaining the
data needed, and completing and reviewing the collection of information. An agency may not conduct or
sponsor, and a person is not required to respond to, a collection of information unless it displays a current valid
OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of
information, including suggestions for reducing this burden, to NIH, Project Clearance Branch, 6705 Rockledge
Drive, MSC 7974, Bethesda, MD 20892-7974, ATTN: PRA (0925-0648). Do not return the completed form to
this address.
* Indicates required field

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Q1
Please select one professional category that describes you best. *

o Life Sciences Researcher
o Geneticist
o Genetic Counselor
o Laboratory Staff
o Physician
o Other Healthcare Professional
o Bioinformatics Professional
o Computer Scientist / Software Developer
o Educator
o Student
o Librarian / Information Specialist
o Patient and Family
o Other (please specify below) ________________________________________________

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Q2
Please select one type that describes your organization best? *

o College or University
o Commercial or Industry
o Hospital / Clinical / Medical Practice
o Non-Profit Organization
o Government
o Other (please specify below) ________________________________________________
Q3
How likely are you to recommend this resource to a friend or colleague? *

o0
o1
o2
o3
o4
o5
o6
o7
o8
o9
o 10
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Q4
Were you able to complete your work to your satisfaction today? *

o Yes
o No
o Not completed yet, but expect to
o Unsure
Display This Question:
If Were you able to complete your work to your satisfaction today? * = No

Q5
Please provide details of what you were not able to complete.
________________________________________________________________
________________________________________________________________

Display This Question:
If Were you able to complete your work to your satisfaction today? * = Yes
Or Were you able to complete your work to your satisfaction today? * = Not completed yet, but expect to
Or Were you able to complete your work to your satisfaction today? * = Unsure

Q6
How do you use the information on this page?
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Q7
Are you aware that ClinVar data are provided in two different ways – a VCV page which is a variant-centric
view and an RCV page which is for the variant-condition pair? *

o Yes
o No
o Unsure
Q8
Which is more useful to you? *

o A webpage with data aggregated by variant, e.g. https://www.ncbi.nlm.nih.gov/clinvar/variation/532063/
o
A webpage with data aggregated by variant and condition, e.g.
https://www.ncbi.nlm.nih.gov/clinvar/RCV000638660/
o Unsure
Q9
Please provide an explanation for your choice in the previous question. If you can include how you use this
information and / or examples, that will help us.
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________________________________________________________________

Q10
Is there anything else you would like to tell us?
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