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OMB Control Number: 0925-0648
Expiration Date: 06/30/2024
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Instructions for completing the 2022 UMLS Annual Report
Thank you for your feedback in previous Annual Reports, the 2020 Request for
Information (RFI) on Next Directions for the UMLS, and routine service emails
and inquiries.
Link to previous feedback...
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We’ve simplified and focused the Annual Report questions this year, and, aside
from the first question, all questions are optional. We hope you'll take the time to
provide us feedback which will help us prioritize improvements of our health
data standards resources.
At the end of the questions, please press the "Next" button to submit your
responses. You can also download your responses into a PDF file.
Which of the following terminology products did you use this year?
UMLS (Unified Medical Language System) [NOTE: Do not select if you ONLY used
individual terminology products, such as LOINC or RxNorm, OUTSIDE of the UMLS
Metathesaurus]
RxNorm
VSAC (Value Set Authority Center)
MeSH (Medical Subject Headings)
NIH Common Data Elements (CDE) Repository
SNOMED CT - US Edition
SNOMED CT - International Release
LOINC (Logical Observation Identifier Names & Codes Terminology)
CPT (Current Procedural Terminology)
None of these
I don't know
Other; please specify:
UMLS block
In 2022, did you develop or launch an application, tool, or system that makes
use of the UMLS? If so, please describe it and its users.
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We’re considering simplifying the subset configuration provided in
MetamorphoSys. What specific subsetting properties and filters (e.g., source
selection, suppressibility) are essential to your work?
If you could improve one thing about the UMLS, what would it be and how
would it be improved?
We're planning to remove the following older source vocabularies from the
Metathesaurus based upon previous feedback from UMLS users.
*AIR93: AI/RHEUM
*ALT2009: Alternative Billing Concepts
*AOD2000: Alcohol and Other Drug Thesaurus
*AOT2003: Authorized Osteopathic Thesaurus
*BI98: Beth Israel Vocabulary
*CCPSS99: Canonical Clinical Problem Statement System
*CHV2011_02: Consumer Health Vocabulary
*COSTAR_89-95: COSTAR
*CPM2003: Medical Entities Dictionary
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*CSP2006: CRISP Thesaurus
*CST95: COSTART
*DDB00: Diseases Database
*DXP94: DXplain
*HLREL_1998: ICPC2E-ICD10 relationships from Dr. Henk Lamberts
*ICD10AE_1998: ICD10, American English Equivalents
*ICD10AM_2000: International Statistical Classification of Diseases and Related Health Problems, 10th
Revision, Australian Modification
*ICD10AMAE_2000: International Statistical Classification of Diseases and Related Health Problems,
Australian Modification, Americanized English Equivalents
*ICF_2008_12_19: International Classification of Functioning, Disability and Health
*ICF-CY_2008: International Classification of Functioning, Disability and Health for Children and Youth
*ICPC93: International Classification of Primary Care
*ICPC2EENG_200203: International Classification of Primary Care 2nd Edition, Electronic, 2E
*ICPC2ICD10ENG_200412: ICPC2 - ICD10 Thesaurus
*ICPC2P_2005: ICPC-2 PLUS
*JABL99: Online Congenital Multiple Anomaly/Mental Retardation Syndromes
*LCH90: Library of Congress Subject Headings
*LCH_NW_2013: Library of Congress Subject Headings, Northwestern University subset
*MCM92: McMaster University Epidemiology Terms
*MTHICD9_2014: International Classification of Diseases, Ninth Revision, Clinical Modification,
Metathesaurus additional entry terms
*MTHICPC2EAE_200203: International Classification of Primary Care 2nd Edition, Electronic, 2E, American
English Equivalents
*MTHICPC2ICD10AE_0412: ICPC2 - ICD10 Thesaurus, American English Equivalents
*MTHMST2001: Metathesaurus Version of Minimal Standard Terminology Digestive Endoscopy
*NCISEER_1999: NCI SEER ICD Neoplasm Code Mappings
*OMS2005: Omaha System
*PCDS97: Patient Care Data Set
*PPAC98: Pharmacy Practice Activity Classification
*PSY2004: Thesaurus of Psychological Index Terms
*QMR96: Quick Medical Reference (QMR)
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*RAM99: QMR clinically related terms from Randolph A. Miller
*RCD99: Clinical Terms Version 3 (CTV3) (Read Codes)
*RCDAE_1999: Read thesaurus, American English Equivalents
*RCDSA_1999: Read thesaurus Americanized Synthesized Terms
*RCDSY_1999: Read thesaurus, Synthesized Terms
*SNM2: SNOMED-2, 2
*SNMI98: SNOMED International, 1998
*SPN2003: Standard Product Nomenclature
*ULT93: UltraSTAR
*UWDA173: University of Washington Digital Anatomist
*WHO97: WHO Adverse Reaction Terminology
How would this affect your work?
RxNorm
We considering including the FDA Purple Book data on biological products in
RxNorm. If you would be interested in this information, how would you use it?
What is your use case?
We are also considering adding Risk Evaluation and Mitigation Strategies
(REMS) data to RxNorm. If you would be interested in this information, how
would you use it? What is your use case?
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CPT
How did you access CPT?
Files extracted from the Metathesaurus
Browsing on the UMLS Terminology Services
Download files from the American Medical Association
CPT Developer’s Tool Kit (CPT DTK)
Other; please specify:
SNOMED
What additional SNOMED CT features would be most useful to you or your
organization?
Downloadable content
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Educational Resources
VSAC
Aside from clinical quality measure reporting, how do you use the VSAC and
value sets?
If you use the VSAC FHIR API, is there additional VSAC FHIR functionality you
need? If so, please describe.
We recently implemented new features into VSAC, including a comparison tool,
value set review/maintenance status, and usage statistics. If you've used these
features, please provide your feedback.
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Comparison Tool
Review/Maintenance Status
Usage Statistics
CDE
How useful would you find these new features in searching, comparing, and
selecting common data elements (CDEs) for your research?
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I don’t
know
Core collections of NIH-Endorsed CDEs for broad
use in most clinical research (e.g., demographics,
medical history)
CDEs aligned with broader standards (e.g.,
USCDI, LOINC)
Searching/browsing CDEs by disease/scientific
area (e.g., cancer, asthma)
Searching/browsing CDEs by project or
organization (e.g., NICHD, NINDS, RECOVER,
HEAL)
Searching/browsing related CDEs (e.g.,
broader/narrower, similar, identical)
Links to ClinicalTrials.gov studies in which
CDEs/Forms were used
Links to datasets/publications in which
CDEs/Forms were used
Support compliance with the 2023 NIH Data
Management and Sharing Policy (e.g., exporting
CDEs in particular formats for research data
management)
Not
very
useful
Useful
Very
useful
What other features/changes would you like to see in the NIH CDE Repository?
Please feel free to expand on your responses above.
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| File Type | application/pdf |
| File Modified | 2022-12-12 |
| File Created | 2022-12-12 |