Crosswalk

Proposed Question
Existing Question (2024) (2025)

Type of Change

Reason for Change

Burden Change

Clarification to specify
which individual from
survey cover letter

No

Clarification to specify
which individual from
survey cover letter

No

3. While your family
member was in hospice
care, how often did you
take part in or oversee
care for them?
Wording change "him or Simplified and genderher" to "them"
neutral language

No

1.
How are you related 1. How are you related
to the person listed on to the patient listed on
the survey cover letter? the survey cover letter? Wording change
"person" to "patient"
2. For this survey, the
2.
For this survey, the
phrase "family
phrase "family
member" refers to the
member" refers to the patient listed on the
person listed on the
survey cover letter.
survey cover letter. In
what locations did your In what locations did
family member receive your family member
care from this hospice? receive care from this
Please choose one or
hospice? Please choose
more.
one or more.
Wording change
"person" to "patient"
3.
While your family
member was in hospice
care, how often did you
take part in or oversee
care for him or her?

(4-Intro) As you answer
the rest of the
questions in this survey,
please think only about
your family member's
experience with the
hospice named on the
survey cover.
4.
For this survey, the
hospice team includes
all the nurses, doctors,
social workers,
chaplains and other
people who provided
hospice care to your
family member. While
your family member
was in hospice care, did
you need to contact the
hospice team during
evenings, weekends, or
holidays for questions
or help with your family
member’s care?

5.
How often did you
get the help you needed
from the hospice team
during evenings,
weekends, or holidays?

(4-Intro) For the rest of
the questions, please
think only about your
family member's
experience with the
hospice listed on the
survey cover.
4. For this survey, the
hospice team means all
the nurses, doctors,
social workers,
chaplains and others
who gave hospice care
to your family member.
While your family
member was in hospice
care, did you need to
contact anyone on the
hospice team during
evenings, weekends, or
holidays for questions
or help?

5. How often did you
get the help you needed
from the hospice team
during evenings,
weekends, or holidays?

Wording changes "As
you answer" to "For"
AND "named" to
"listed"

Improve
readability/lower
reading level

No

Wording change

Improve
readability/lower
reading level

No

No

6.
While your family
member was in hospice
care, how often did the
hospice team keep you
informed about when
they would arrive to
care for your family
member?
7.
While your family
member was in hospice
care, when you or your
family member asked
for help from the
hospice team, how
often did you get help
as soon as you needed
it?

6. How often did the
hospice team let you
know when they would
arrive to care for your
family member?

Wording change

Improve
readability/lower
reading level

No

Wording change

Improve
readability/lower
reading level

No

8.
While your family
member was in hospice
care, how often did the
hospice team explain
things in a way that was
easy to understand?

8. How often did the
hospice team explain
things in a way that was
easy to understand?
Wording change

Improve
readability/lower
reading level

No

9.
While your family
member was in hospice
care, how often did the
hospice team keep you
informed about your
family member’s
condition?

9. How often did the
hospice team keep you
informed about your
family member’s
condition?
Wording change

Improve
readability/lower
reading level

No

7. When you or your
family member asked
for help from the
hospice team, how
often did you get help
as soon as you needed
it?

10.
While your family
member was in hospice
care, how often did
anyone from the
hospice team give you
confusing or
contradictory
information about your
family member’s
condition or care?
11.
While your family
member was in hospice
care, how often did the
hospice team treat your
family member with
dignity and respect?
12.
While your family
member was in hospice
care, how often did you
feel that the hospice
team really cared about
your family member?

Item removed

Item removed because
of the complexity of its
wording, low intraclass
correlation coefficient
(ICC) and low
correlation with overall
rating, and ceiling
effects.
Yes

10. How often did the
hospice team treat your
family member with
dignity and respect?
Wording change

Improve
readability/lower
reading level

11. How often did you
feel that the hospice
team really cared about
your family member?
Wording change
12. Did the hospice
team provide care that
respected your family
member's wishes?
New item

Improve
readability/lower
reading level
New item to address
stakeholder requests
for items on patient
care preferences.

13. Did the hospice
team make an effort to
listen to the things that
mattered most to you
or your family member? New item

New item to address
stakeholder requests
for items addressing
what matters most to
patients.

No

No

Yes

Yes

13.
While your family
member was in hospice
care, did you talk with
the hospice team about
any problems with your
family member’s
hospice care?
14.
How often did the
hospice team listen
carefully to you when
you talked with them
about problems with
your family member’s
hospice care?

14. Did you talk with the
hospice team about any
problems with your
family member’s
hospice care?
Wording change

15. How often did the
hospice team listen
carefully to you when
you talked with them
about problems with
your family member’s
hospice care?
15.
While your family
16. While your family
member was in hospice member was in hospice
care, did he or she have care, did they have any
any pain?
pain?
Wording change
16.
Did your family
17. Did your family
member get as much
member get as much
help with pain as he or help with pain as they
she needed?
needed?
Wording change

Improve
readability/lower
reading level

No

No

Simplified and genderneutral language

No

Simplified and genderneutral language

No

17.
While your family
member was in hospice
care, did he or she
receive any pain
medicine?

18.
Side effects of pain
medicine include things
like sleepiness. Did any
member of the hospice
team discuss side
effects of pain medicine
with you or your family
member?

Item dropped

This item (and all other
items used to calculate
the existing multi-item
Getting Hospice Care
Training measure)
dropped and replaced
with a single-item
Getting Hospice Care
Training measure with
strong psychometric
performance.
Addresses stakeholder
request for a shorter
Yes
instrument.

Item dropped

This item (and all other
items used to calculate
the existing multi-item
Getting Hospice Care
Training measure)
dropped and replaced
with a single-item
Getting Hospice Care
Training measure with
strong psychometric
performance.
Addresses stakeholder
request for a shorter
Yes
instrument.

19.
Did the hospice
team give you the
training you needed
about what side effects
to watch for from pain
medicine?

20.
Did the hospice
team give you the
training you needed
about if and when to
give more pain
medicine to your family
member?

Item dropped

This item (and all other
items used to calculate
the existing multi-item
Getting Hospice Care
Training measure)
dropped and replaced
with a single-item
Getting Hospice Care
Training measure with
strong psychometric
performance.
Addresses stakeholder
request for a shorter
Yes
instrument.

Item dropped

This item (and all other
items used to calculate
the existing multi-item
Getting Hospice Care
Training measure)
dropped and replaced
with a single-item
Getting Hospice Care
Training measure with
strong psychometric
performance.
Addresses stakeholder
request for a shorter
Yes
instrument.

21.
While your family
member was in hospice
care, did your family
member ever have
trouble breathing or
receive treatment for
trouble breathing?

18. While your family
member was in hospice
care, did they ever have
trouble breathing or
receive treatment for
trouble breathing?
Wording change

22.
How often did your
family member get the
help he or she needed
for trouble breathing?

19. How often did your
family member get the
help they needed for
trouble breathing?
Wording change

23.
Did the hospice
team give you the
training you needed
about how to help your
family member if he or
she had trouble
breathing?
24.
While your family
member was in hospice
care, did your family
member ever have
trouble with
constipation?
25.
How often did your
family member get the
help he or she needed
for trouble with
constipation?

Item dropped
20. While your family
member was in hospice
care, did they ever have
trouble with
constipation?
Wording change
21. How often did your
family member get the
help they needed for
trouble with
constipation?
Wording change

Simplified and genderneutral language

No

Simplified and genderneutral language
Item replaced with a
single comprehensive
multi-item Getting
Hospice Care Training
measure with a singleitem measure with
strong psychometric
performance.
Addresses stakeholder
request for a shorter
instrument.

Yes

Simplified and genderneutral language

No

Simplified and genderneutral language

No

No

26.
While your family
member was in hospice
care, did he or she show
any feelings of anxiety
or sadness?

22. While your family
member was in hospice
care, did they show any
feelings of anxiety or
Wording change
sadness?

Simplified and genderneutral language

No

27.
How often did your
family member get the
help he or she needed
from the hospice team
for feelings of anxiety or
sadness?

23. How often did your
family member get the
help they needed from
the hospice team for
feelings of anxiety or
sadness?
Wording change

Simplified and genderneutral language

No

28.
While your family
member was in hospice
care, did he or she ever
become restless or
agitated?

Item dropped

This item (and all other
items used to calculate
the existing multi-item
Getting Hospice Care
Training measure)
dropped and replaced
with a single-item
Getting Hospice Care
Training measure with
strong psychometric
performance.
Addresses stakeholder
request for a shorter
instrument.
Yes

29.
Did the hospice
team give you the
training you needed
about what to do if your
family member became
restless or agitated?
30.
Moving your family
member includes things
like helping him or her
turn over in bed, or get
in and out of bed or a
wheelchair. Did the
hospice team give you
the training you needed
about how to safely
move your family
member?

Item dropped

This item (and all other
items used to calculate
the existing multi-item
Getting Hospice Care
Training measure)
dropped and replaced
with a single-item
Getting Hospice Care
Training measure with
strong psychometric
performance.
Addresses stakeholder
request for a shorter
Yes
instrument.

Item dropped

Dropped this item, as it
is not included in scored
measures. Also
addresses stakeholder
request for a shorter
instrument.
Yes

32.
Some people
receive hospice care
while they are living in a
nursing home. Did your
family member receive
care from this hospice
while he or she was
living in a nursing
home?

33.
While your family
member was in hospice
care, how often did the
nursing home staff and
hospice team work well
together to care for
your family member?

34.
While your family
member was in hospice
care, how often was the
information you were
given about your family
member by the nursing
home staff different
from the information
you were given by the
hospice team?

Item dropped

Not included in scored
measures. Also
addresses stakeholder
request for a shorter
instrument.

Yes

Item dropped

Not included in scored
measures. Also
addresses stakeholder
request for a shorter
instrument.

Yes

Item dropped

Not included in scored
measures. Also
addresses stakeholder
request for a shorter
instrument.

Yes

24. Hospice teams may
teach you how to care
for family members
who need pain
medicine, have trouble
breathing, are restless
or agitated, or have
other care needs.
Did the hospice team
teach you how to care
for your family
member?
35.
While your family
member was in hospice
care, how often did the
hospice team listen
carefully to you?
31.
Did the hospice
team give you as much
information as you
wanted about what to
expect while your family
member was dying?

New item

Replaces existing multiitem Getting Hospice
Care Training measure. Yes

25. While your family
member was in hospice
care, how often did the
hospice team listen
carefully to you?

No

26. Did the hospice
team give you as much
information as you
wanted about what to
expect while your family
member was dying?

No

36.
Support for
religious or spiritual
beliefs includes talking,
praying, quiet time, or
other ways of meeting
your religious or
spiritual needs. While
your family member
was in hospice care,
how much support for
your religious and
spiritual beliefs did you
get from the hospice
team?

27. Support for
religious, spiritual, or
cultural beliefs may
include talking, praying,
quiet time, or
respecting traditions.

37.
While your family
member was in hospice
care, how much
emotional support did
you get from the
hospice team?
38.
In the weeks after
your family member
died, how much
emotional support did
you get from the
hospice team?

28. While your family
member was in hospice
care, how much
emotional support did
you get from the
hospice team?
29. In the weeks after
your family member
died, how much
emotional support did
you get from the
hospice team?

While your family
member was in hospice
care, how much support
for your religious,
spiritual, or cultural
beliefs did you get from
the hospice team?
Wording change

Edits to item to address
stakeholder requests
for items addressing
cultural sensitivity.
No

No

No

39.
Please answer the
following questions
about your family
member’s care from the
hospice named on the
survey cover. Do not
include care from other
hospices in your
answers.

30. Please answer the
following questions
about the hospice
named on the survey
cover. Do not include
care from other
hospices in your
answers.

Using any number from
0 to 10, where 0 is the
worst hospice care
possible and 10 is the
best hospice care
possible, what number
would you use to rate
your family member’s
hospice care?
40.
Would you
recommend this
hospice to your friends
and family?

Using any number from
0 to 10, where 0 is the
worst hospice care
possible and 10 is the
best hospice care
possible, what number
would you use to rate
your family member’s
Wording change
hospice care?
31. Would you
recommend this
hospice to your friends
and family?

41.
What is the highest
grade or level of school
that your family
member completed?
42.
Was your family
member of Hispanic,
Latino, or Spanish origin
or descent?

32. What is the highest
grade or level of school
that your family
member completed?
33. Was your family
member of Hispanic,
Latino, or Spanish origin
or descent?

Improve
readability/lower
reading level

No

No

No

No

43.
What was your
family member’s race?
Please choose one or
more.

34. What was your
family member’s race?
Please choose one or
more.

35. How often was your
family member treated
unfairly by the hospice
team because of their
race or ethnicity?
New item
44.
What is your age?
36. What is your age?
45.
Are you male or
37. Are you male or
female?
female?
46.
What is the highest 38. What is the highest
grade or level of school grade or level of school
that you have
that you have
completed?
completed?
47.
What language do
39. What language do
you mainly speak at
you mainly speak at
home?
home?

No

New item to address
stakeholder requests
for items addressing
cultural sensitivity.

Yes
No
No

No

No