Wave 1 Survivor Survey recruitment communications

Evaluation of Technical Assistance and Training Approaches to Accelerate Comprehensive Cancer Control Outcomes

Attachment 2g.

Wave 1 Survivor Survey

Recruitment Communications

Introductory Letter to Complete Online Survey – Wave 1

[Date]

Dear [Name],

The RTI International (RTI) and Implenomics Survey Team are working on behalf of the U.S. Centers for Disease Control and Prevention (CDC) to collect information about barriers that newly diagnosed patients and their caregivers face at each stage of cancer care: screening, diagnosis, treatment, and post-treatment. We are inviting individuals who were first diagnosed in 2021 with colorectal, female breast, or cervical cancer to participate in the study. We received your contact information from the [State] Cancer Registry, who identified you as an eligible participant. The survey contains questions about your personal and health background, your cancer screening and treatment history, your quality of life, and barriers to care.

If you take part in this survey, there are protections in place to keep your responses confidential and private, and your name will not be linked to your responses. Your responses will be combined with responses from about 3,000 individuals for analyses. If you choose to participate in this survey, you will be contacted again in one year for a follow-up survey. We hope you choose to participate because your experiences and perspectives are valuable.

Completing this survey is voluntary and should take only about 20 minutes. You will have up to 2 weeks to complete the survey. After you complete the survey, we will send you a $40 check or gift card to thank you for your participation. At the end of the survey, you can also volunteer for a 60-minute interview and 20 participants will be selected for the interview.

Please enter this link in your web browser (e.g., Google Chrome, Microsoft Edge, Firefox, Safari) to complete the survey: https://survey.rti.org/SE/1/BarriersW1/. You will need to enter this unique access code to begin the survey: [PIN]

You may also access the survey by scanning this QR code with your smartphone or tablet.

Please enter your access code once you are ready to begin: [PIN]

Please complete the survey at your earliest convenience. You can save your responses in case you need to complete the survey in more than one sitting. You can stop the survey anytime. If you already answered part of the survey but don't want your answers used, please contact us at [email protected] or 1-833-997-2714, and we will permanently delete your survey responses. If you do opt out of this cancer research study, please be aware that your information will remain in the state cancer registry, and you may be contacted by future studies. If you are contacted about participating in a different cancer study in the future, details will be provided to you so that you can ask questions and decline to participate if you wish.

If you have questions about the survey or any trouble with the survey, please contact us at [email protected] or toll free at 1-833-997-2714 for assistance in English or Spanish. If you have any questions about your rights as a survey respondent, you may call RTI’s Office of Research Protection toll free at 1-866-214-2043.

Sincerely,

Florence K.L. Tangka, PhD, MS

Division of Cancer Prevention and Control

Centers for Disease Control and Prevention

Postcard Reminder to Complete Online Survey – Wave 1

Two weeks ago, we sent you a letter to invite you to complete an online survey about barriers that individuals who have cancer or are living with cancer may face in seeking care. This survey will improve our understanding of the cancer care experience and how to improve care delivery.

If you have already completed the survey, please accept our sincere thanks. If not, please do so today. Your response is important so we can capture the experience of different populations. Completing this survey is voluntary and should take only about 20 minutes. If you would like to opt out or do not want your survey responses used in this cancer research study, contact us at [email protected] or 1-833-997-2714 and we will delete them. However, your information will still remain in the state cancer registry for future studies to potentially contact you about participation. After you complete the survey, we will send you a $40 check or gift card to thank you for your participation.

Please use this link (or QR code) to complete the survey: https://survey.rti.org/SE/1/BarriersW1/ and enter this unique access code: [insert participant ID#]. If you have questions about the survey, please contact us at [email protected] or toll free at 1-833-997-2714 for assistance in English or Spanish.

You may also access the survey by scanning this QR code with your smartphone or tablet.

Please enter your access code once you are ready to begin: [insert participant ID#]

Warm regards,

Florence K.L. Tangka, PhD, MS 

Division of Cancer Prevention and Control 

Centers for Disease Control and Prevention 

Follow-up Nonresponse Letter to Complete Online Survey – Wave 1

[Date]

Dear [Name],

We recently reached out to you about a study led by the RTI International (RTI) and Implenomics Survey Team on behalf of the U.S. Centers for Disease Control and Prevention (CDC) to collect information about barriers that individuals who had cancer or are living with cancer and their caregivers face at each stage of cancer care: screening, diagnosis, treatment, and post-treatment. We are inviting individuals who were first diagnosed in 2021 with colorectal, female breast, or cervical cancer to participate in the survey. We received your contact information from the [State] Cancer Registry, who identified you as an eligible participant. This survey will improve our understanding of the cancer care experience, and how experiences may vary for different populations.

The survey contains questions about your personal and health background, your cancer screening and treatment history, your quality of life, and barriers to care. Your name will not be linked to your responses. If you choose to participate in this survey, you will be contacted again in one year for a follow-up survey. We hope you choose to participate because your experiences and perspectives are valuable.

Completing this survey is voluntary and should take only about 20 minutes. You will have up to 2 weeks to complete the survey. After you complete the survey, we will send you a $40 check or gift card to thank you for your participation. At the end of the survey, you can also volunteer for a 60-minute interview and 20 participants will be selected for the interview.

Please enter this link in your web browser (e.g., Google Chrome, Microsoft Edge, Firefox, Safari) to complete the survey: https://survey.rti.org/SE/1/BarriersW1/. You will need to enter this unique access code to begin the survey: [PIN]

You may also access the survey by scanning this QR code with your smartphone or tablet.

Please enter your access code once you are ready to begin: [PIN]

Please complete the survey at your earliest convenience. You can save your responses in case you need to complete the survey in more than one sitting. You can stop the survey anytime. If you already answered part of the survey but don't want your answers used, please contact us at [email protected] or 1-833-997-2714, and we will permanently delete your survey responses. If you do opt out of this cancer research study, please be aware that your information will remain in the state cancer registry, and you may be contacted by future studies. If you are contacted about participating in a different cancer study in the future, details will be provided to you so that you can ask questions and decline to participate if you wish.

If you have questions about the survey or any trouble with the survey, please contact us at [email protected] or toll free at 1-833-997-2714 for assistance in English or Spanish. If you have any questions about your rights as a survey respondent, you may call RTI’s Office of Research Protection toll free at 1-866-214-2043.

Sincerely,

Florence K.L. Tangka, PhD, MS

Division of Cancer Prevention and Control

Centers for Disease Control and Prevention

Final Nonresponse Letter to Complete Survey – Wave 1

[Date]

Dear [Name],

We recently reached out to you about a study led by RTI International (RTI) and Implenomics on behalf of the U.S. Centers for Disease Control and Prevention’s (CDC) to collect information about barriers that newly diagnosed individuals and their caregivers face at each stage of cancer care: screening, diagnosis, treatment, and post-treatment. We are inviting individuals who were first diagnosed in 2021 with colorectal, female breast, or cervical cancer to participate in the survey. We received your contact information from the [State] Cancer Registry, who identified you as an eligible participant. This survey will improve our understanding of the cancer care experience, and how experiences may vary for different populations.

The survey contains questions about your personal and health background, your cancer screening and treatment history, your quality of life, and barriers to care. Your name will not be linked to your responses. Your responses will be combined with responses from about 3,000 individuals for analyses. If you choose to participate in this survey, you will be contacted again in one year for a follow-up survey. We hope you choose to participate because your experiences and perspectives are valuable.

Completing this survey is voluntary and should take only about 20 minutes. You will have up to 2 weeks to complete the survey. After you complete the survey, we will send you a $40 check or gift card to thank you for your participation. At the end of the survey, you can also volunteer for a 60-minute interview and 20 participants will be selected for the interview.

You have the option to complete and return the enclosed printed survey (using the pre-paid business reply envelope), or you can enter this link in your web browser to complete the survey online (e.g., Google Chrome, Microsoft Edge, Firefox, Safari) to complete the survey: https://survey.rti.org/SE/1/BarriersW1/. You will need to enter this unique access code to begin the survey: [PIN]

You may also access the survey by scanning this QR code with your smartphone or tablet.

Please enter your access code once you are ready to begin: [PIN]

Please complete and submit/mail the survey by [DATE]. If you are completing the survey online, you can save your responses in case you need to complete the survey in more than one sitting. You can stop the survey anytime. If you already answered part of the survey but don't want your answers used, please contact us at [email protected] or 1-833-997-2714, and we will permanently delete your survey responses. If you do opt out of this cancer research study, please be aware that your information will remain in the state cancer registry, and you may be contacted by future studies. If you are contacted about participating in a different cancer study in the future, details will be provided to you so that you can ask questions and decline to participate if you wish.

If you have questions about the survey or any trouble with the survey, please contact us at [email protected] or toll free at 1-833-997-2714 for assistance in English or Spanish. If you have any questions about your rights as a survey respondent, you may call RTI’s Office of Research Protection toll free at 1-866-214-2043.

Sincerely,

Florence K.L. Tangka, PhD, MS

Division of Cancer Prevention and Control

Centers for Disease Control and Prevention

Telephone Reminder Script- Wave 1

Hello [Name]!

We recently reached out to you about a study led by RTI International and Implenomics on behalf of the U.S. Centers for Disease Control and Prevention. This study is about barriers that individuals who had cancer or are living with cancer and their caregivers may face during screening, diagnosis, treatment, and post-treatment. We are inviting individuals who were first diagnosed in 2021 with colorectal, female breast, or cervical cancer to participate in the survey. We received your contact information from the [State] Cancer Registry. This survey will improve our understanding of the cancer care experience, and how experiences may vary for different populations.

The survey contains questions about four topics: your personal and health background, your cancer screening and treatment history, your quality of life, and your barriers to care. Your name will not be linked to your responses. We will be combined with those from about 3,000 individuals for analyses. If you choose to participate in this survey, we will contact you in about one year to volunteer for a follow-up survey.

Completing this survey is voluntary and should take only about 20 minutes. You will have up to 2 weeks to complete the survey. After you complete the survey, we will send you a $40 check or gift card to thank you for your participation. At the end of the survey, you can also volunteer for a 60-minute interview and 20 participants will be selected for the interview.

Please enter this link in your web browser (e.g., Google Chrome, Microsoft Edge, Firefox, Safari) to complete the survey: https://survey.rti.org/SE/1/BarriersW1/. You will need to enter this unique access code to begin the survey: [PIN].

Please complete the survey by [DATE]. If you are completing the survey online, you can save your responses in case you need to complete the survey in more than one sitting. You can stop the survey anytime. If you already answered part of the survey but don't want your answers used, please contact us at [email protected] or 1-833-997-2714, and we will permanently delete your survey responses. If you do opt out of this cancer research study, please be aware that your information will remain in the state cancer registry, and you may be contacted by future studies. If you are contacted about participating in a different cancer study in the future, details will be provided to you so that you can ask questions and decline to participate if you wish. If you have any questions or trouble with the survey, please contact us at [email protected] or toll free at 1-833-997-2714 for assistance in English or Spanish. If you have any questions about your rights as a survey respondent, you may call RTI’s Office of Research Protection toll free at 1-866-214-2043.

We will not contact you again about participating in this survey. Thank you for your time.

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