Wave 2 Survivor Survey recruitment communications

Evaluation of Technical Assistance and Training Approaches to Accelerate Comprehensive Cancer Control Outcomes

Attachment 3g.

Wave 2 Survey

Recruitment Communications

Introductory Letter to Complete Online Survey – Wave 2

[Date]

Dear [Name],

The RTI International (RTI) and Implenomics Survey Teams are working on behalf of the U.S. Centers for Disease Control and Prevention (CDC) to collect information about barriers that individuals diagnosed with cancer and their caregivers have faced. You previously completed a survey that included questions about your personal and health background, your cancer screening and treatment history, your quality of life, and barriers to care. This follow-up survey will focus on your experience in treatment and post-treatment. It will examine your quality of life, health-care related failures, and factors that may have affected your life during this period. As a reminder, the survey will improve our understanding of the cancer care experience, and how experiences may vary for different populations. We will use findings to address barriers to cancer screening, timely diagnosis, treatment, and quality of life post-treatment—which will help improve the experiences and outcomes for other individuals diagnosed with cancer and their caregivers.

If you take part in this follow-up survey, there are protections in place to keep your responses confidential and private , and your name will not be linked to your responses. Your responses will be combined with responses from about 1,200 individuals diagnosed with for analyses. We will share any findings with you at the end of the study. We hope you choose to participate because your experiences and perspectives are valuable.

Completing this survey is voluntary and should take only about 20 minutes. You will have up to 2 weeks to complete the survey. After you complete the survey, we will send you a $40 check or gift card to thank you for your participation.

Please enter this link in your web browser (e.g., Google Chrome, Microsoft Edge, Firefox, Safari) to complete the survey: [weblink here]. You will need to enter this unique access code to begin the survey: [PIN]

You may also access the survey by scanning this QR code with your smartphone or tablet.

Please enter your access code once you are ready to begin: [PIN]

Please complete the survey at your earliest convenience. You can save your responses in case you need to complete the survey in more than one sitting. You can stop the survey anytime. If you already answered part of the survey but don't want your answers used, please contact us at [email protected] or 1-833-997-2714, and we will permanently delete your survey responses. If you do opt out of this cancer research study, please be aware that your information will remain in the state cancer registry, and you may be contacted by future studies. If you are contacted about participating in a different cancer study in the future, details will be provided to you so that you can ask questions and decline to participate if you wish.

If you have questions about the survey or any trouble with the survey, please contact us at [email protected] or toll free at 1-833-997-2714 for assistance in English or Spanish. If you have any questions about your rights as a survey respondent, you may call RTI’s Office of Research Protection toll free at 1-866-214-2043.

Sincerely,

Florence K.L. Tangka, PhD, MS

Division of Cancer Prevention and Control

Centers for Disease Control and Prevention

Postcard Reminder to Complete Online Survey – Wave 2

You may also access the survey by scanning this QR code with your smartphone or tablet.

Please enter your access code once you are ready to begin: [insert participant ID#]

Two weeks ago, we sent you a letter to invite you to complete an online survey about barriers that individuals who have cancer or are living with cancer may face during and post treatment. This survey builds upon a previous survey you completed, which was about your experiences with cancer screening, diagnosis, and initial treatment.

If you have already completed the survey, please accept our sincere thanks. If not, please do so today. Your response is important so we can capture the experience of different populations. Completing this survey is voluntary and should take only about 20 minutes. If you would like to opt out or do not want your survey responses used in this cancer research study, contact us at [email protected] or 1-833-997-2714 and we will delete them. However, your information will still remain in the state cancer registry for future studies to potentially contact you about participation. After you complete the survey, we will send you a $40 check or gift card to thank you for your participation.

Please use this link (or QR code) to complete the survey: [weblink here] and enter this unique access code: [insert participant ID#]. If you have questions about the survey, please contact us at [email protected] or toll free at 1-833-997-2714 for assistance in English or Spanish.

Warm regards,

Florence K.L. Tangka, PhD, MS 

Division of Cancer Prevention and Control 

Centers for Disease Control and Prevention 

Follow-up Nonresponse Letter to Complete Online Survey – Wave 2

[Date]

Dear [Name],

We recently reached out to you about a study led by the RTI International (RTI) and Implenomics Survey Teams on behalf of the U.S. Centers for Disease Control and Prevention (CDC) to collect information about barriers that individuals who had cancer or are living with cancer and their caregivers face at each stage of cancer care: screening, diagnosis, treatment, and post-treatment. You previously completed a survey about your experience with cancer screening, diagnosis, and treatment. This letter invites you to participate in a follow-up survey about your experience in treatment and post-treatment, and your quality of life. This survey will improve our understanding of the cancer care experience, and how experiences may vary for different populations.

Your name will not be linked to your responses. We will share any findings with you at the end of the study. Findings will be used to improve access to care, from screening to post-treatment. We hope you choose to participate because your experiences and perspectives are valuable.

Completing this survey is voluntary and should take only about 20 minutes. You will have up to 2 weeks to complete the survey. After you complete the survey, we will send you a $40 check or gift card to thank you for your participation.

Please enter this link in your web browser (e.g., Google Chrome, Microsoft Edge, Firefox, Safari) to complete the survey: [Weblink here]. You will need to enter this unique access code to begin the survey: [PIN]

You may also access the survey by scanning this QR code with your smartphone or tablet.

Please enter your access code once you are ready to begin: [PIN]

Please complete the survey at your earliest convenience. You can save your responses in case you need to complete the survey in more than one sitting. You can stop the survey anytime. If you already answered part of the survey but don't want your answers used, please contact us at [email protected] or 1-833-997-2714, and we will permanently delete your survey responses. If you do opt out of this cancer research study, please be aware that your information will remain in the state cancer registry, and you may be contacted by future studies. If you are contacted about participating in a different cancer study in the future, details will be provided to you so that you can ask questions and decline to participate if you wish.

If you have questions about the survey or any trouble with the survey, please contact us at [email protected] or toll free at 1-833-997-2714 for assistance in English or Spanish. If you have any questions about your rights as a survey respondent, you may call RTI’s Office of Research Protection toll free at 1-866-214-2043.

Sincerely,

Florence K.L. Tangka, PhD, MS

Division of Cancer Prevention and Control

Centers for Disease Control and Prevention

Final Nonresponse Letter to Complete Survey – Wave 2

[Date]

Dear [Name],

We recently reached out to you about a study led by the RTI International (RTI) and Implenomics Survey Teams on behalf of the U.S. Centers for Disease Control and Prevention’s (CDC) to collect information about the experiences of individuals who had cancer or are living with cancer from screening to diagnosis, treatment, and post-treatment. In [YYYY], you completed a survey about your personal and medical background and your experiences with cancer screening, diagnosis, and treatment. You are now being invited to participate in a follow-up survey which builds upon the information you shared previously. This follow-up survey will focus on your experience in treatment and post-treatment phases. It will examine your quality of life, health-care related failures, and factors that affected your life over this period. This survey will improve our understanding of the cancer care experience and identify barriers that should be addressed to improve cancer care.

Your name will not be linked to your responses. Your responses will be combined with responses from about 1,200 other individuals diagnosed with cancers for analyses. We hope you choose to participate because your experiences and perspectives are valuable.

Completing this survey is voluntary and should take only about 20 minutes. You will have up to 2 weeks to complete the survey. After you complete the survey, we will send you a $40 check or gift card to thank you for your participation.

You have the option to complete and return the enclosed printed survey (using the pre-paid business reply envelope), or you can enter this link in your web browser to complete the survey online (e.g., Google Chrome, Microsoft Edge, Firefox, Safari) to complete the survey: [web link]. You will need to enter this unique access code to begin the survey: [PIN]

You may also access the survey by scanning this QR code with your smartphone or tablet.

Please enter your access code once you are ready to begin: [PIN]

Please complete and submit/mail the survey by [DATE]. If you are completing the survey online, you can save your responses in case you need to complete the survey in more than one sitting. You can stop the survey anytime. If you already answered part of the survey but don't want your answers used, please contact us at [email protected] or 1-833-997-2714, and we will permanently delete your survey responses. If you do opt out of this cancer research study, please be aware that your information will remain in the state cancer registry, and you may be contacted by future studies. If you are contacted about participating in a different cancer study in the future, details will be provided to you so that you can ask questions and decline to participate if you wish. If you have questions about the survey or any trouble with the survey, please contact us at [email protected] or toll free at 1-833-997-2714 for assistance in English or Spanish. If you have any questions about your rights as a survey respondent, you may call RTI’s Office of Research Protection toll free at 1-866-214-2043.

Sincerely,

Florence K.L. Tangka, PhD, MS

Division of Cancer Prevention and Control

Centers for Disease Control and Prevention

Telephone Reminder Script – Wave 2

Hello [Name]!

We recently reached out to you about a study being conducted by RTI International and Implenomics on behalf of the U.S. Centers for Disease Control and Prevention. This study is about barriers that individuals who had cancer or are living with cancer and their caregivers may face from screening to diagnosis, treatment, and post-treatment. You completed an initial survey in [YYYY] about your personal and medical background and your experiences with cancer screening through treatment. You are now being invited to participate in a follow-up survey which builds upon the information you previously shared. The follow-up survey will focus on your experience with treatment and post-treatment phases. It will examine your quality of life, health-care related failures, and factors that affected your life during this period.

Your name will not be linked to your responses. Your responses will be combined with those from about 1,200 individuals for analyses.

Completing this survey is voluntary and should take only about 20 minutes. We will use survey findings to help identify and overcome barriers to cancer screening and care. After you complete the survey, we will send you a $40 electronic gift card or check to thank you for your participation.

Please enter this link in your web browser (e.g., Google Chrome, Microsoft Edge, Firefox, Safari) to complete the survey: [weblink here].

You will need to enter this unique access code to begin the survey: [PIN].

Please complete the survey by [DATE]. If you are completing the survey online, you can save your responses in case you need to complete the survey in more than one sitting You can stop the survey anytime. If you already answered part of the survey but don't want your answers used, please contact us at [email protected] or 1-833-997-2714, and we will permanently delete your survey responses. If you do opt out of this cancer research study, please be aware that your information will remain in the state cancer registry, and you may be contacted by future studies. If you are contacted about participating in a different cancer study in the future, details will be provided to you so that you can ask questions and decline to participate if you wish. If you have any questions or trouble with the survey, please contact us at [email protected] or toll-free at 1-833-997-2714 for assistance in English or Spanish. If you have any questions about your rights as a survey respondent, you may call RTI’s Office of Research Protection toll-free at 1-866-214-2043.

We will not contact you again about participating in this survey. Thank you for your time.

6