Attachment 8_Cancer Registry Data Fields

Attachment 8.

Cancer Registry Data Fields

These fields are already being collected under the NPCR-CSS data collection and are included in the annual call for data.

Label/Description	Justification
First Name	To contact survivor by mail for participation in the study
Last Name	To contact survivor by mail for participation in the study
Current Mailing Address	To contact survivor by mail for participation in the study
Current Mailing Address--Supplemental	To contact survivor by mail for participation in the study
Current City	To contact survivor by mail for participation in the study
Current State	To contact survivor by mail for participation in the study
Current Postal Code	To contact survivor by mail for participation in the study
Race/Ethnicity	For Sample Selection/ Understanding discrepancies between different races/ethnicities
Spanish/Hispanic Origin	For Sample Selection/ Understanding discrepancies between different races/ethnicities
Date of Birth	To be able to estimate participants’ age at diagnosis if “age at diagnosis” variable is unavailable
Marital Status	Confirmation of survey responses
Address at Diagnosis--Postal Code	To be used in analysis when comparing geographic location to barriers faced
Date of Diagnosis	To confirm eligibility for the study
Age at Diagnosis	To confirm eligibility for the study and to assess differences stratified by age; control variable in multivariate regression analysis
Diagnostic Confirmation	To exclude cases not microscopically confirmed
Vital Status	To assess status as only those alive at the time of mailings will be contacted
Date of Death	To exclude deceased individuals
Cause of Death	To exclude deceased individuals
Reporting Source	To exclude autopsy only cases
Tumor Characteristics/Stage at Diagnosis	To validate staging data entered on survey and also serve as a proxy for participants who do not respond to the survey question about staging. This variable will be used in our analysis to explore whether patients who encounter specific barriers to screening and diagnosis are diagnosed at a later stage.
Stage of Breast Cancer	Confirmation of survey responses (to verify information is accurate as this may be subject to recall bias by participants)
First Malignancy Primary Indicator	To identify cases with multiple malignancies
Tumor Size	To better understand the type of disease
Extension	To better understand the type of disease
Lymph Nodes	To better understand the type of disease
Metastatic at Diagnosis	Confirmation of survey responses
Treatment Receipt	Confirmation of treatment from survey responses
Receptor Status	Confirmation of survey responses
Date of last contact	To help assess lost to follow up and deaths
Treatment Date (and for the different modalities if available)	To identify date treatment was provided
Histologic Type ICD-O-3 and Behavior Code ICD-O-3: Morphology	Can impact treatment outcome and patient experience
Grade	Can impact treatment outcome and patient experience
County of residence	To identify potential geographic differences; control variable in multivariate regression analysis
Treatment modalities	All treatment variables are requested to supplement treatments identified in the survey.