SEARCH for Diabetes in Youth Study

CDC requests OMB approval to continue collecting information in Phase 4 of a registry study known as SEARCH for Diabetes in Youth. OMB first approved this study in 2011 (OMB # 0920-0904, exp. 11/30/2014), and a revision was approved in 2014 (exp. 8/31/2017). OMB approval is requested for the final three years of the five year project. Phase 4 is built upon activities a multi-center initiated in 2000 through collaborative research project that involved six clinical sites and a data coordinating center, all funded through cooperative agreements. Phase 3 and 4 only included 5 clinical sites and a data coordinating center. A number of changes have been implemented and will continue during Phase 4. Respondents will continue to be youth < 20 years of age who have been diagnosed with diabetes or their parents. Information will support a case registry that can be used to estimate the incidence and prevalence of diabetes in youth in the U.S. IN Phase 3, CDC also funded a cohort component to this study. For Phase 4, CDC is no longer funding this component. The registry study will continue to collect information from participants who were initially diagnosed with diabetes in 2016 to complete an in-person study examination.

The latest form for SEARCH for Diabetes in Youth Study expires 2020-10-31 and can be found here.

SEARCH - Initial Participant Survey - Incident

Federal Enterprise Architecture: Health - Consumer Health and Safety

Review document collections for all forms, instructions, and supporting documents - including paper/printable forms.