Sudden Death in the Young Registry

OMB 0920-1092

The goal of the Sudden Death in the Young (SDY) Case Registry is to improve and standardize case ascertainment so funded jurisdictions can better their understanding of the incidence and risk factors for sudden death in youth. Data will be used to inform the descriptive epidemiology of SDY, including the incidence, and risk factors. These data will be used to inform prevention strategies as well as best practices for national surveillance of SDY. The changes proposed with this reinstatement include a decrease in burden due to more accurate estimates of time needed to complete modules and better estimates of the number of respondents and the number requiring advanced review.

The latest form for Sudden Death in the Young Registry expires 2022-04-30 and can be found here.

Latest Forms, Documents, and Supporting Material

Document Name
Form 0920-1092 SDY Module N for State Health Personnel Form
SDY Module - State Health Personnel Form
Att 8 Privacy-narrative-_SDY.pdf Supplementary Document
Att 7 Institutional Determination of Research Status_SDY.pdf Supplementary Document
Att 6_NCFRP Child Death Review _Case Reporting System Security Information.pdf Supplementary Document
Att 5_ MPHI Security Policy, #06-02 _ SDY.pdf Supplementary Document
Att 4b DUA between CDC and Awardees Alaska Example.pdf Supplementary Document
Att 4a DUA between CDC and MPHI.pdf Supplementary Document
Att 3a_60 day Federal Reserve Notice.pdf Supplementary Document
Att 1b_Authorizing Legislation SUDDEA Act.pdf Supplementary Document
Att 1a_Authorizing Legislation Public Health Service Act.docx Supplementary Document
Supporting Statement B_Sudden Death in the Young_13Dec21.docx Supporting Statement B
Supporting Statement A_SDY _rev_022522.docx Supporting Statement A
SDY Module N for State Health Personnel Form
Advanced Review Other-Discussion Guide
SDY Module - State Health Personnel Form

All Historical Document Collections

202201-0920-011 Approved without change	Revision of a currently approved collection	2022-03-16
201902-0920-005 Approved without change	Reinstatement with change of a previously approved collection	2019-02-26
201507-0920-009 Approved with change	New collection (Request for a new OMB Control Number)	2015-07-30

OMB Details

SDY Module - State Health Personnel

Federal Enterprise Architecture: Health - Public Health Monitoring

Form none

NCFRP Cases Reporting System SDY Module 1

Fillable Fileable

Form

Review document collections for all forms, instructions, and supporting documents - including paper/printable forms.