OMB control number

[NCCDPHP]Sudden Death in the Young Registry

OMB 0920-1092 ยท HHS/CDC.

OMB 0920-1092

The goal of the Sudden Death in the Young (SDY) Case Registry is to improve and standardize case ascertainment so funded jurisdictions can better their understanding of the incidence and risk factors for sudden death in youth. Data will be used to inform the descriptive epidemiology of SDY, including the incidence, and risk factors. These data will be used to inform prevention strategies as well as best practices for national surveillance of SDY. The changes proposed with this reinstatement include a decrease in burden due to more accurate estimates of time needed to complete modules and better estimates of the number of respondents and the number requiring advanced review. This is an extension of a collection set to expire 9/30/25

The latest form for [NCCDPHP]Sudden Death in the Young Registry expires 2028-11-30 and is listed under ICR 202508-0920-008.

Latest Forms, Documents, and Supporting Material

Latest forms, documents, and information collections
DocumentType
Form 0920-1092 N SUID AND SDY CASE REGISTRYForm
Form 0920-1092 SDY Module N for State Health PersonnelForm
Form 0920-1092 Att 2b_Advanced Review Topics_3_17_2025Form
Form 0920-1092 Att 2a_NFR-CRS-SDY Module IForm
NCFRP Cases Reporting System SDY Module 1Form
SDY Module - State Health PersonnelForm
Att 6 SUIDSDY_ResearchDetermination_Yr1.pdfSupplementary Document
Att 5_NCFRP Child Death Review _Case Reporting System Security Information.pdfSupplementary Document
Att 4_ MPHI Security Policy, #06-02 _ SDY.pdfSupplementary Document
Att 3a 2025-published 60 day FRN.pdfSupplementary Document
Att 3a 2025-published 60 day FRN.pdf Supplementary Document
Att 1b_Authorizing Legislation SUDDEA Act.pdfSupplementary Document
Att 1a_Authorizing Legislation Public Health Service Act.pdfSupplementary Document
Att 1a_Authorizing Legislation Public Health Service Act.pdf Supplementary Document
30-Day-FRN-508 - Updated 8-22-25.docxSupplementary Document
30-Day-FRN-508 - Updated 8-22-25.docx Supplementary Document
30-day-FRN_Publication_Request_Worksheet (4) Ver. 2.docxSupplementary Document
30-day-FRN_Publication_Request_Worksheet (4) Ver. 2.docx Supplementary Document
Att 8 Privacy-narrative-_SDY.pdfSupplementary Document
Att 8 Privacy-narrative-_SDY.pdf Supplementary Document
Att 7 Institutional Determination of Research Status_SDY.pdfSupplementary Document
Att 7 Institutional Determination of Research Status_SDY.pdf Supplementary Document
Att 6_NCFRP Child Death Review _Case Reporting System Security Information.pdfSupplementary Document
Att 6_NCFRP Child Death Review _Case Reporting System Security Information.pdf Supplementary Document
Att 5_ MPHI Security Policy, #06-02 _ SDY.pdfSupplementary Document
Att 5_ MPHI Security Policy, #06-02 _ SDY.pdf Supplementary Document
Att 4b DUA between CDC and Awardees Alaska Example.pdfSupplementary Document
Att 4a DUA between CDC and MPHI.pdfSupplementary Document
Att 3a_60 day Federal Reserve Notice.pdfSupplementary Document
Att 3a_60 day Federal Reserve Notice.pdf Supplementary Document
Att 1b_Authorizing Legislation SUDDEA Act.pdfSupplementary Document
Att 1b_Authorizing Legislation SUDDEA Act.pdf Supplementary Document
Att 1a_Authorizing Legislation Public Health Service Act.docxSupplementary Document
Supporting-Statement-B_Sudden Death in the Young.docxSupporting Statement B
Supporting-Statement-B_Sudden Death in the Young.docxSupporting Statement B
Supporting-Statement-A-508_Sudden Dealth in the Young - FINAL DRAFT 3 - Updated 8-22-25.docxSupporting Statement A
Supporting-Statement-A-508_Sudden Dealth in the Young - FINAL DRAFT 3 - Updated 8-22-25.docxSupporting Statement A
SDY Module N for State Health Personnel Form
SDY Module N for State Health Personnel Form
Advanced Review Form
Advanced Review Other-Discussion Guide
SDY Module - State Health Personnel Form
SDY Module - State Health Personnel Form
SDY Module - State Health Personnel Form

All Historical Document Collections

Historical document collections
ReferenceFilingReceivedConcludedAction
202508-0920-008 Revision of a currently approved collection 2025-09-09
202201-0920-011 Revision of a currently approved collection 2022-03-16 Approved without change
201902-0920-005 Reinstatement with change of a previously approved collection 2019-02-26 Approved without change
201507-0920-009 New collection (Request for a new OMB Control Number) 2015-07-30 Approved with change

OMB Details

SDY Module - State Health Personnel

Federal Enterprise Architecture: Health - Public Health Monitoring

Information collection instruments
FormNameElectronic accessType
Form 0920-1092Att 2a_NFR-CRS-SDY Module IFillable FileableForm
Form noneNCFRP Cases Reporting System SDY Module 1Fillable FileableForm

Review document collections for all forms, instructions, and supporting documents - including paper/printable forms.