[NCEH] Enhancing Data-driven Disease Detection in Newborns (ED3N)

CDC's Newborn Screening and Molecular Biology Branch (NSMBB) is developing a National Newborn Screening Data Platform (known as ED3N) that will address analytic and post-analytic challenges and promote sharing of molecular, biochemical, and clinical information amongst state-based newborn screening (NBS) partners. The information shared will help NSMBB and newborn screening partners be better equipped to assess disease risk and will help harmonize approaches for disease detection in newborns. Given the rarity of newborn screening diseases, it is imperative that data be collected and analyzed at a national level in order to glean useful insights and trend analyses. The NSMBB is best-suited to oversee this work given its role in providing technical assistance to NBS programs nationally.

The latest form for [NCEH] Enhancing Data-driven Disease Detection in Newborns (ED3N) expires 2026-07-31 and is listed under ICR 202211-0920-010.

Set-up of ED3N Data Elements

Federal Enterprise Architecture: Health - Public Health Monitoring