[NCBDDD] The Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet) Living with Muscular Dystrophy Survey

OMB 0920-1405

Latest Forms, Documents, and Supporting Material

Document Name
MD STARnet Women Living with Muscular Dystrophy Survey Form and Instruction
MD STARnet Men Living with Muscular Dystrophy Survey Form and Instruction
Attachment Ra-i_RecruitmentandFollow-upCommunication.docx Supplementary Document
Attachment Q_Study Flowchart.docx Supplementary Document
Attachment P_MD STARnet Survey Research Determination.pdf Supplementary Document
Attachment O_VCU IRB Approval MDSTARnet Survey.pdf Supplementary Document
Attachment N_UUtah IRB Approval MDSTARnet Survey.docx Supplementary Document
Attachment M_SCDHEC IRB Approval MDSTARnet Survey.pdf Supplementary Document
Attachment L_NYSDOH IRB Exemption MDSTARnet Survey.pdf Supplementary Document
Attachment K_RTI IRB Exemption MDSTARnet Survey.pdf Supplementary Document
Attachment J_UIowa IRB Approval MDSTARnet Survey.rtf Supplementary Document
Attachment I_UFlorida IRB Approval MDSTARnet Survey.pdf Supplementary Document
Attachment H_MD_STARnet_CaseDefinitions_8.6.2021.docx Supplementary Document
Attachment G_60 Day Federal Register Notice.pdf Supplementary Document
Attachment B_MD CARE Act of 2001.pdf Supplementary Document
Attachment A_Public Health Service Act.docx Supplementary Document
2023 2 13 SSA MDSTARnet_Survey.docx Supporting Statement A
2023 2 13 SSB MDSTARnet_Survey.docx Supporting Statement B
MD STARnet Women Living with Muscular Dystrophy Survey Form and Instruction
MD STARnet Men Living with Muscular Dystrophy Survey Form and Instruction