Outcome Measure Repository

In line with the organization’s goals, AHRQ has developed the Registry of Patient Registries (RoPR). By providing a centralized point of collection for information about all patient registries in the United States, the RoPR furthers AHRQ’s goals by enhancing patient registry information, extracted from ClinicalTrials.gov or modeled based on the ClinicalTrials.gov data elements, to further describe the quality, appropriateness, and effectiveness of health services (and patient registries in particular) in a more readily available, central location. AHRQ is now proposing the development of the Outcome Measure Repository (OMR), a web-based database intended to house detailed information about outcome measures currently used in patient registries. This system will be linked to RoPR in two key ways. First, users entering registry information in the RoPR system will be able to associate OMR measure records with the RoPR registry records. Second, measure stewards listing a measure record in the OMR system will be able to associate the measure with an existing RoPR patient registry. Users will be able to access both databases with a single account (i.e., users with a RoPR account will be able to log in/access the OMR using that account, and vice versa). The OMR database system aims to achieve the following objectives: 1) Provide a searchable database of outcome measures used in patient registries in the United States (to promote collaboration, reduce redundancy, and improve transparency); 2) Facilitate the use of standardized data elements and outcome measures; 3) Facilitate the identification of potential areas of harmonization; To achieve the three objectives of this project, the following data collections will be implemented: 1) Collect information on outcome measures and related sub-elements from measure stewards who populate the OMR database system.

The latest form for Outcome Measure Repository expires 2021-06-30 and can be found here.