Introductory Letter to Surveys

ATTACHMENT C: INTRODUCTORY NOTICE - Draft Memo to Stakeholders

Dear [Member]:

You have been randomly selected [in some cases indicating affiliation if the survey is sponsored by an organization (e.g., “…from the membership of the American Academy of Family Physicians”)] to respond to a survey on the Evaluation of Genomic Applications in Practice and Prevention (EGAPP) pilot project. EGAPP is a project that has developed a systematic evidence-based process for assessing genetic tests and other applications of genomic technology in transition from research to practice. The EGAPP project is sponsored by the Centers for Disease Control and Prevention (CDC).

The survey at the link below is intended to determine your level of awareness and interest in EGAPP, and to get feedback from you on the EGAPP-sponsored evidence reports and EGAPP Working Group recommendations on specific genetic tests that have been produced and disseminated. The EGAPP Working Group is very interested in hearing from stakeholders, so that they can assess the usefulness of the EGAPP process, and the quality and impact of the information developed on the genetic tests reviewed. Even if this is the first time you have heard about EGAPP, you can still provide valuable feedback by completing the survey.

Response is voluntary, but we hope that you will take the opportunity to complete the survey at the following link: www.xxx.org. It will take only about 10 minutes of your time.

Comments on the quality and value of EGAPP products from your perspective will provide important insights to guide the development of this process. We know your time is valuable and thank you for completing this survey.

All survey responses cannot be traced to any information that identifies you, and all reporting will be done in summary form. More detailed privacy information is provided below.

This survey is being conducted on behalf of CDC by Judith L. Johnson, PhD, who is contracted through McKing Consulting, Inc. Questions about the survey may be directed to Dr. Johnson at (207)784-0301 or [email protected] .

Thank you again for your help. After completing the survey, you may learn more about the EGAPP project at http://www.egappreviews.org.

Privacy Information: Completion of this survey is voluntary. You do not have to answer every question and can skip those that you do not feel comfortable answering. You can stop answering the survey at any time. There are no foreseeable or expected risks for participation in this survey. Reports will not include any information that will make it possible to identify participants. Your individual responses will remain not be linkable to any information that identifies you and will be seen only by the evaluator of this project. All data will be reported out in the aggregate only. The mechanism for collecting survey information is Survey Monkey, a secure website that meets the Safe Harbor and EU Data Protection Requirements. Data are collected and stored, but are only available to Dr. Johnson. All information collected is maintained in a secure manner. There are no plans to share this information with any third parties.