NSCH - summary of revisions for 2011

Attachment 6: Summary of additions, deletions, and revisions by section, 2011 NSCH

2011 National Survey of Children’s Health

Summary of Additions, Deletions, and Revisions, by Section

January 21, 2011

Abbreviations: “SC” = sampled child. “HCP” = health care provider. “CSHCN” = children with special health care needs. “NSCH” = National Survey of Children’s Health.

Section 1: Initial Demographics

Deletion:

• How well respondent speaks English (asked only of respondents for whom the NSCH interview was not conducted in English)

Section 2: Health and Functional Status

Additions:

• Age at first diagnosis

  • Attention Deficit Disorder (ADD), Attention Deficit Hyperactivity Disorder (ADHD)

  • Anxiety problems

  • Behavioral or conduct problems

  • Autism, Autism Spectrum Disorder (ASD)

  • Developmental delay

  • Intellectual disability

  • Cerebral palsy

  • Speech or other language problems

  • Tourette Syndrome

  • Vision problems that cannot be corrected with standard glasses or contact lenses

• Follow-up questions for children ever diagnosed with autism or ASD

  • Type of doctor or other HCP who first told you SC had autism or ASD

  • To the best of your knowledge, did SC ever have autism or ASD

  • Reasons why SC may no longer have autism or ASD

    • Treatment helped condition go away

    • Condition went away on its own

    • Behaviors or symptoms changed

    • A doctor or HCP changed the diagnosis

    • Any other reasons (verbatim)

  • Reasons why a doctor, HCP, or school professional may have told you SC had a condition (he/she) never had

    • With more information, diagnosis was changed

    • Diagnosis was given so (SC) could receive needed services

    • You disagree with the doctor or other HCP about (his/her) opinion that (SC) had autism or ASD

    • Any other reasons (verbatim)

Deletions:

• Low birth weight

• Age at first diagnosis

  • Learning disability

• Chronic conditions

  • Hay fever or any kind of respiratory allergy

  • Any kind of food or digestive allergy

  • Eczema or any kind of skin allergy

  • Migraine headaches

  • Three or more ear infections

• Severity of chronic conditions (mild, moderate, severe)

  • Hay fever or any kind of respiratory allergy

  • Any kind of food or digestive allergy

  • Eczema or any kind of skin allergy

  • Migraine headaches

  • Three or more ear infections

• Follow-up: Are SC’s current problems related to his/her bones, joints, or muscles

• Assistive equipment

Revisions:

• Dental health

  • Past 6 months did SC have toothache

  • Past 6 months did SC have decayed teeth or cavities

  • Combined these two separate questions into one question, which was moved to Section 4, Subdomain 2

  • Added “unfilled” before “cavities” in the new question

  • Lengthened reference period from “past 6 months” to “past 12 months”

Section 3: Health Insurance Coverage

Deletions:

• Difficulties enrolling in health plans

• Past 12 months –tried to enroll SC in new health care plan

• Ease or difficulty to complete application

• If difficult, why

• Burden of expenses

  • Respondent or other family members pay all or part of the cost of family’s health insurance

  • Cost of health insurance cause financial problems for family

Additions:

• Expenses and barriers to care

  • Cost of SC’s health care caused financial problems for family (wording aligned with the National Health Interview Survey question; also slightly adapted for the NSCH)

  • Frustrated in efforts to obtain health care services for SC

Section 4: Health Care Access and Utilization

Additions:

• Home visitation (for SC less than 4 years of age only)

  • Any home visits from someone from a maternal, infant, and early childhood home visiting program

  • If so, number of professionals that visited

  • If so, concerns about children and families that may have been discussed

• Vision screening

  • Did SC receive vision testing with pictures, shapes, or letters (ever < 5 years old SC, past 2 years > 5 years old)

  • Kind of place/places where SC received vision test(s)

Deletion:

• Child needed care right away from his/her personal doctor or nurse for illness or injury

Section 5: Medical Home

Deletions:

• Needed an interpreter to speak with SC’s doctors or other HCP

• When needed an interpreter – how often was respondent able to get someone other than a family member to translate

Section 6: Early Childhood (0 – 5 years)

Additions:

• Flourishing

  • (attachment/bonding): affectionate & tender with you

  • (happy/joy): smiles & laughs a lot

Revisions:

• Screen & media time on an average weekday (split into two separate questions)

Deletions:

• Receipt of specific information to address concerns from SC’s doctors or other HCP (if the respondent had any concerns about SC’s learning, development, or behavior)

• Child care

  • Among children who received at least 10 hours of care in non-relative setting, where child care was provided

  • Did child ever receive at least 10 hours of care per week from a relative other than parents/guardians

  • Where this care from a relative was received

  • Past month, did respondent need child care for SC

  • Did SC’s behavior limit respondent’s ability to find child care for SC

  • Did SC’s health limit respondent’s ability to find child care for SC

  • During past month how many times did respondent need to make different arrangements for child care at the last minute due to circumstances beyond his/her control

• Injury

  • Past 12 months/since birth – has SC been injured & required medical attention

  • If so, where did this injury occur (mark all that apply: home, child care, some other place)

• Flourishing

  • Comforts or helps others

Section 7: Middle Childhood and Adolescence (6 – 17 years)

Revisions:

• Screen & media time (split into two separate questions)

  • Amount of time on an average weekday

  • Clarified “limiting the amount of time” and “monitoring the content”

    • reordered questions

    • will be emphasized in interviewer training

Deletions:

• School performance in reading and language arts

• School performance in math

• Number of hours taking care of self in past week (SC 13+ years old)

• Exercise to strengthen/tone muscles

• Social competence scale

  • He/she shows respect for teachers and neighbors

  • Gets along well with other children

  • Is disobedient

  • Is stubborn, sullen, or irritable

  • Tries to understand other people’s feelings

  • Tries to resolve conflicts with classmates, family, or friends

• Depressed mood

  • Feels worthless or inferior

  • Is withdrawn, and does not get involved with others

• Flourishing

  • Able to relax and enjoy life

  • Religious or spiritual beliefs shape how SC lives life

Section 8: Family Functioning

Deletion:

• Warmth and closeness of relationship

Section 9: Parental Health

Deletions:

• Maternal exercise

• Paternal exercise

• Respondent exercise (if not SC’s mother or father)

Section 10: Neighborhood & Community Characteristics

Deletion:

• Children in this neighborhood can grow up to be anything they want to be

Section 11: Additional Demographics

Deletions:

• Length of time SC lived at current address

• Past month - any day when respondent or anyone in family went hungry because they did not have enough money for food

Section 12: Additional Health Insurance Questions

(supported by the Office of the Assistant Secretary for Planning and Evaluation, DHHS)

Unchanged (relative to similar questions used for 2001 evaluation):

• Main reason for being uninsured (K12Q01) – options modified to delete those unused in 2001 and add commonly reported “other reasons”

• Length of current period of uninsurance (K12Q02)

• Ever heard of Medicaid / CHIP (K12Q11, K12Q21)

• Ever been enrolled in Medicaid / CHIP (K12Q12, K12Q22)

• Ever applied for Medicaid / CHIP (K12Q15, K12Q25)

• Date when last applied for Medicaid / CHIP (K12Q16, K12Q26)

• Belief that child is currently eligible for Medicaid / CHIP (K12Q34)

• Desire to enroll child if told that child was eligible (K12Q35)

• Main reason parent would not want to enroll child (K12Q36) – options modified to delete those unused in 2001 and add commonly reported “other reasons”

• Main reason child is not enrolled (K12Q37) – options modified to delete those unused in 2001 and add commonly reported “other reasons”

Additions:

• Ever covered by private insurance (K12Q03 / K12Q04)

• Date when last enrolled in Medicaid / CHIP (K12Q13, K12Q23)

• Main reason why Medicaid / CHIP enrollment ended (K12Q14, K12Q24)

• Knowledge about where to go for information about Medicaid / CHIP (K12Q30)

• Knowledge about how to enroll in Medicaid / CHIP (K12Q31)

• Main reason why parent does not think child is eligible (K12Q38)

• Parents’ coverage (K12Q40, K12Q41, K12Q50, K12Q51, K12Q60, K12Q61)

• Availability of employer-sponsored insurance (K12Q42-K12Q44, K12Q52-K12Q54, K12Q62-K12Q64)

• Main reason child is not covered by ESI, if available to child (K12Q45, K12Q55, K12Q65)

• Size of parents’ employers, if ESI is available to parent (K12Q46, K12Q47, K12Q56, K12Q57, K12Q66, K12Q67)

Revisions:

• Main reason unable to enroll in Medicaid / CHIP (K12Q17, K12Q27) – was main reason application process was not finished, options modified to delete those unused in 2001 and add commonly reported “other reasons”

• Perceived difficulty completing an initial application or re-enrolling (K12Q32, K12Q33) – did not previously include re-enrollment, asked only about “an application”

Deletions:

• Secondary reasons for being uninsured

• Source where first heard of Medicaid / CHIP

• Secondary reasons for not wanting to enroll child

• Ever tried to enroll but not finish application process

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