Birth Certificate and Hospital Discharge Survey - AMCHP

Birth Certificate and Hospital Discharge Linkage—State Survey (AMCHP)

Page 1 - Question 1 - Choice - One Answer (Bullets) [Mandatory]

Has any organization, including your state health department, or another organization or university, linked your state’s birth records and hospital discharge records (maternal and/or infant discharges) in the last 4 years?

• Yes

• No [Skip to 19]

• Don't know [Skip to 19]

Page 2 - Question 2 - Choice - One Answer (Bullets) [Up To 2 Answers]

Which inpatient hospital discharge records are linked to the birth record, in the last 4 years?

• Maternal

• Infant

• Both

Page 2 - Question 3 - Choice - One Answer (Bullets)

Does your state health department currently have access to this linked file for analysis?

• Yes

• No

• Don't know

Page 2 - Question 4 - Choice - One Answer (Bullets)

How often is the linked file updated?

• Less than once every two years

• Every other  year

• Annually

• More frequently than annually

• Have only done the linkage once

• Don't know

• Other, please specify

Page 2 - Question 5 - Choice - One Answer (Bullets) [Mandatory]

Is your linkage automated (i.e. when data are received, there is already code developed to clean and merge into full dataset)?

• Yes

• No [Skip to 4]

• Don't know [Skip to 6]

Page 3 - Question 6 - Open Ended - Comments Box

If yes, what percentage of records can be linked electronically without manual judgment or intervention?

[Skip Unconditionally to 5]

Page 4 - Question 7 - Choice - Multiple Answers (Bullets)

If no, why not? (Check all that apply)

• Lack of experience

• Lack of software

• Data not provided in an electronic format

• Data files are sent in different format

• Don't know

• Other, please specify

[Skip Unconditionally to 6]

Page 5 - Question 8 - Choice - Multiple Answers (Bullets) [Up To 11 Answers]

What data linkage software is used to automate the linkage? (Check all that apply)

• By hand

• SAS

• Stata

• SPSS

• Microsoft Access

• SQL Server

• Oracle

• FRIL

• LinkPlus

• Link Pro

• Link King

• Other, please specify

Page 6 - Question 9 - Choice - One Answer (Bullets) [Mandatory]

Would you be interested in collaborating with other states in sharing linkage processes, including lessons learned, challenges encountered, and codes?

• Yes [Skip to 9]

• No [Skip to 7]

• Not sure [Skip to 8]

Page 7 - Question 10 - Choice - Multiple Answers (Bullets)

If no, why not? (Check all that apply)

• Lack of staff time

• Confidentiality of data

• Other, please specify

[Skip Unconditionally to 9]

Page 8 - Question 11 - Choice - Multiple Answers (Bullets)

If not sure, what are your concerns? (Check all that apply)

• Time commitment

• Cost

• Confidentiality of data

• Other, please specify

[Skip Unconditionally to 9]

Page 9 - Question 12 - Choice - One Answer (Bullets) [Mandatory]

Has your state health department conducted this linkage, either maternal or infant, in the last 4 years?

• Yes

• No [Skip to 11]

• Don't know [Skip to 11]

Page 10 - Question 13 - Choice - Multiple Answers (Bullets)

Which organizational unit or program in the state health department was responsible for doing the linkage? (Check all that apply)

• Vital Records/Health Statistics Office

• Epidemiology Office

• MCH  Program Office

• Office responsible for collecting hospital discharge abstracts

• Other, please specify

Page 11 - Question 14 - Choice - Multiple Answers (Bullets) [Up To 14 Answers]

What data elements are used to link the data sources? (Check all that apply)

• Maternal social security number

• Child’s Date of birth

• Child’s name

• Race

• Gender of child

• Mother's first name

• Mother's last name

• Mother's surname prior to first marriage

• Hospital medical record

• Birth facility / Hospital name

• Discharge date

• Patient address (city, state, house number, zip code)

• Don't know

• Other patient identifier, please specify

Page 12 - Question 15 - Open Ended - One or More Lines with Prompt

What is the methodology used for linking the records? (Fill in percent of records linked using each methodology)

Deterministic (specify % below)
Probabilistic (specify % below)
Other (specify and % below)

Page 13 - Question 16 - Choice - One Answer (Bullets) [Mandatory]

Has the quality of the birth-hospital record linkage been evaluated?

• Yes

• No [Skip to 15]

• Don't know [Skip to 15]

Page 14 - Question 17 - Choice - Multiple Answers (Bullets) [Up To 3 Answers]

How has the quality of the linkage been evaluated? (Check all that apply)

• Review sample of records

• Chart review

• Other, please specify

Page 15 - Question 18 - Choice - One Answer (Bullets) [Mandatory]

Does your state utilize the linked birth and hospital record dataset for research, policy, surveillance or programs?

• Yes

• No [Skip to 17]

• Don't know [Skip to 17]

Page 16 - Question 19 - Choice - Multiple Answers (Bullets) [Up To 6 Answers]

If yes, how does your state currently use your birth-hospital record linked dataset? (Check all that apply)

• Statistical reports (regular published or unpublished written reports)

• Surveillance (understand trends and prevalence estimates)

• Special studies

• Policy evaluation (pass legislation, provide legal support)

• Program or quality improvement

• Other, please specify

Page 17 - Question 20 - Choice - Multiple Answers (Bullets) [Up To 6 Answers]

What other ways would you like to use your birth-hospital record linked dataset? (Check all that apply)

• Statistical reports (regular published or unpublished written reports)

• Surveillance (understand trends and prevalence estimates)

• Special studies

• Policy evaluation (pass legislation, provide legal support)

• Program or quality improvement

• Other, please specify

Page 18 - Question 21 - Choice - Multiple Answers (Bullets)

What prevents your state from using the birth-hospital record linked dataset the way you would like to use it? (Check all that apply)

• Cost

• Lack of staff time available

• Lack of interest in utilizing the linkage

• Most people are not aware of the availability of the linkage

• Access to linkage too difficult to obtain

• Don't know

• Other, please specify

[Skip Unconditionally to 21]

Page 19 - Question 22 - Choice - Multiple Answers (Bullets) [Up To 10 Answers]

In your organization or state, what prevents birth-hospital discharge linkages from occurring? (Check all that apply)

• Cost

• Lack of staff time available for linkage

• Data linkage is not a priority

• Cannot access raw hospital discharge data

• Cannot access raw birth certificate data

• No statewide hospital discharge data collected

• Linkage fields (e.g. name, SSN, or other identifiers) not collected or not available

• Lack of effective matching/linkage software

• Lack of interest in obtaining/using these data

• Don't know

• Other, please specify

Page 19 - Question 23 - Choice - One Answer (Bullets)

Does your organization or state want to have a linkage of birth and hospital discharge records?

• Yes, definitely

• Yes, no rush

• Undetermined

• No, not right now

• No, never

• Don't know

Page 20 - Question 24 - Choice - One Answer (Bullets)

Would you be interested in collaborating with other states to learn about the linkage process?

• Yes

• No

• Don't know

Page 21 - Heading

The following questions are to get an understanding of the quality of each individual data source. Please answer to the best of your ability.

Description

Page 21 - Question 25 - Choice - One Answer (Bullets) [Mandatory]

Has the the quality of the data items from the birth record only been evaluated?

• Yes

• No [Skip to 23]

• Don't know [Skip to 23]

Page 22 - Question 26 - Choice - Multiple Answers (Bullets) [Up To 3 Answers]

How has the quality of the data items from the birth record been evaluated? (Check all that apply)

• Medical chart validation

• Linkage with other data sets

• Don't know

• Other, please specify

Page 23 - Question 27 - Choice - One Answer (Bullets) [Mandatory]

Has the quality of the data items from the hospital discharge abstract only been evaluated?

• Yes

• No [Skip to 25]

• Don't know [Skip to 25]

Page 24 - Question 28 - Choice - Multiple Answers (Bullets) [Up To 3 Answers]

How has the quality of the data items from the hospital discharge abstract been evaluated ? (Check all that apply)

• Medical chart validation

• Linkage with other data sets

• Don't know

• Other, please specify

Page 25 - Question 29 - Choice - One Answer (Bullets)

Is there a state developed instruction manual for completing the birth record for the birth clerk?

• Yes

• No

• Don't know

Page 25 - Question 30 - Choice - One Answer (Bullets) [Mandatory]

Are there training programs available for hospital and birthing center staff on how to fill out the birth record?

• Yes

• No [Skip to 27]

• Don't know [Skip to 27]

Page 26 - Question 31 - Choice - Multiple Answers (Bullets) [Up To 5 Answers]

If yes, who provides the trainings on procedures for completing the birth record?

• Online (if online, offered by whom? specify below)

• Someone in the health department (specify below)

• Someone from a hospital (specify below)

• Don’t know

• Other, specify below

Please specify who provides trainings here:

Page 27 - Question 32 - Choice - One Answer (Bullets) [Mandatory]

Are personnel completing the birth record provided any guidance (written, training, consultation) on how to prioritize different sources of information and make decisions when there are conflicting values?

• Yes

• No [Skip to 29]

• Don't know [Skip to 29]

Page 28 - Question 33 - Choice - One Answer (Bullets)

How often is training to complete the birth record offered?

• Monthly

• Quarterly

• Annually

• Less frequently than once a year

• As needed or on demand

• Available online at anytime

• Don't know

• Other, please specify

Page 29 - Question 34 - Choice - One Answer (Bullets)

Is there an instruction manual for abstracting hospital discharge data?

• Yes

• No

• Don't know

Page 29 - Question 35 - Choice - One Answer (Bullets) [Mandatory]

Are there training programs available for hospital and birthing center staff on how to abstract data from hospital discharge data records?

• Yes

• No [Skip to 31]

• Don't know [Skip to 31]

Page 30 - Question 36 - Choice - Multiple Answers (Bullets) [Up To 6 Answers]

If yes, who provides the trainings on procedures for completing the hospital discharge data?

• Online (if online, who is offering the training - specify below)

• Hospital association

• Someone in the health department (specify below)

• Someone from a hospital (specify below)

• Don't know

Please specify who provides trainings here:

Page 31 - Question 37 - Choice - One Answer (Bullets) [Mandatory]

Are personnel abstracting data from discharge records given guidance on how to prioritize different sources of information and make decisions when there are conflicting values?

• Yes

• No [Skip to 33]

• Don't know [Skip to 33]

Page 32 - Question 38 - Choice - One Answer (Bullets)

How often is training to abstract hospital discharge records offered?

• Monthly

• Quarterly

• Annually

• Less frequently than once a year

• As needed or on demand

• Available online at anytime

• Don't know

• Other, please specify

Page 33 - Question 39 - Choice - Multiple Answers (Bullets) [Up To 21 Answers]

What other data do you link to the birth record? (Check all that apply)

• No other linkages

• WIC

• Medicaid

• Infant deaths

• Death certificate of women of reproductive age

• PRAMS

• Birth defects registry

• Newborn blood spot screening

• Newborn hearing screening

• Immunizations

• Family planning (Title X)

• Health department client data

• Public health program data (Healthy Start, home visiting, etc.)

• Education data

• Child maltreatment data

• Children's special healthcare program

• Health insurance other than Medicaid

• Outpatient records

• ER/Ambulatory data

• EMS registry

• Other, please specify

Page 33 - Question 40 - Open Ended - Comments Box

Is there any other information you think we should know regarding hospital discharge and birth record linkages?

Page 33 - Question 41 - Open Ended - Comments Box

Any additional comments on this survey?

Page 33 - Question 42 - Choice - One Answer (Drop Down) [Mandatory]

What state or jurisdiction are you reporting from?

• Alabama

• Alaska

• Arizona

• Arkansas

• California

• Colorado

• Connecticut

• Delaware

• District of Columbia

• Florida

• Georgia

• Hawaii

• Idaho

• Illinois

• Indiana

• Iowa

• Kansas

• Kentucky

• Louisiana

• Maine

• Maryland

• Massachusetts

• Michigan

• Minnesota

• Mississippi

• Missouri

• Montana

• Nebraska

• Nevada

• New Hampshire

• New Jersey

• New Mexico

• New York

• New York City

• North Carolina

• North Dakota

• Ohio

• Oklahoma

• Oregon

• Pennsylvania

• Rhode Island

• South Carolina

• South Dakota

• Tennessee

• Texas

• Utah

• Vermont

• Virginia

• Washington

• West Virginia

• Wisconsin

• Wyoming

Thank You Page

Screen Out Page

Standard

Over Quota Page

Standard

Survey Closed Page

Standard