Att J - Invite Letter

Attachment J- Email letter of invitation for newborn screening PROGRAM directors

Dear Dr. _______

In preparation for the 2013 50 Years of Newborn Screening campaign, the Newborn Screening and Molecular Biology Branch at the Centers for Disease Control and Prevention (CDC NSMBB) is assessing the needs and capacity of state newborn screening laboratories and programs. This information will be used to demonstrate the impact of newborn screening laboratory activities across the United States and to inform CDC NSMBB programs.

As the Director of a State or Territorial Newborn Screening Program, we hope you, or your designee, will provide information that will help CDC NSMBB toward these goals. Your participation is voluntary but is very important to help us assess and improve newborn screening across the nation.

CDC NSMBB created a SurveyMonkey questionnaire and will distribute this questionnaire to all 50 State Newborn Screening Programs. The questionnaire asks for the year when statewide testing began and the number of confirmed cases in 2009, 2010, and 2011 for all conditions on the current Recommended Universal Screening Panel.

In order to provide accurate information as part of the 2013 50 Years of Newborn Screening campaign, we are seeking a 100% response rate to this questionnaire.

The questionnaire can be accessed at the following URL: https://www.surveymonkey.com/s/Newborn_Screening_Program

Responses are requested by (one month from the date sent).

Thank you in advance for your valuable input. If you have any questions regarding the survey, you may contact Carla Cuthbert, Ph.D., Branch Chief, Newborn Screening and Molecular Biology Branch, CDC Atlanta, by phone 404-488-7571 or email [email protected].