Web Survey

Use of Evidence Based Practices for Comprehensive Cancer Control

Attachment D1. Program Partners Web Survey_rev 1 18 2012

Program Partners

OMB: 0920-0921

Document [docx]
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Form Approved

OMB No. 0920-xxxx

Exp. Date xx/xx/xxxx

Web Survey Instrument – Program Partners


Introduction [1st Web screen]


You have been asked to participate in this survey because you were identified as a key partner to the comprehensive cancer control (CCC) program in your state, tribe, or territory supported by the U.S. Centers for Disease Control and Prevention (CDC). In particular, you were identified as a key partner because of your involvement in the use of evidence-based public health practices to address cancer control priorities.


The results of this survey will help CDC understand the issues regarding the use of evidence-based cancer control practices by the CCC programs. Please answer the following questions as best as you can, based on your personal knowledge and experience with the CCC program in your state, tribe, or territory. (Please note: because some survey questions may be skipped based on your responses, the numbering of the questions may not always be consecutive.)


Your answers will be maintained in a secure manner and your responses will not be linked to you personally. You may choose not to participate in this survey, or terminate your involvement at any time without any penalty to you or the CCC program.


If you have any questions about this research study please contact John Rose at Battelle, at 919-544-3717, extension 102 or contact Brooke Steele at CDC at 770-488-4261. If you have any questions about your rights as a research participant you may call the Battelle Human Subjects Representative at 1-877-810-9530 (ext. 500).


[insert button to continue survey]

By clicking on this button you provide your consent to participate.


Important Terms and Definitions (2nd web screen)


For the purposes of this survey, we have provided the following terms and definitions:


  • Public health practices: Actions encompassing all aspects of public health including interventions, programs, strategies, policies, procedures, processes, and/or activities, that are intended to affect a change, including improvements in outcomes such as morbidity, mortality, disability, quality of life, or other aspects of the ten essential services of public health (http://www.cdc.gov/nphpsp/essentialServices.html) .

  • Evidence-based practices (EBPs): Evidence-based practices (EBPs) are public health practices that have been tested or evaluated and shown to be effective. The evidence for a public health practice may be based on the results of a single study or on the systematic review of the accumulated results over multiple studies.

  • NCCCP: The National Comprehensive Cancer Control Program in the Division of Cancer Prevention and Control at the U.S. Centers for Disease Control and Prevention (CDC).

  • Comprehensive cancer control (CCC) program: A public health program focused on supporting comprehensive cancer control processes and activities in a particular state, tribe, or U.S.-affiliated territory through coalitions, collaborations, and partnerships with organizations and communities. CCC Programs receive support from the NCCCP through financial and technical assistance. CCC Programs are typically housed in health departments or similar government agencies, but also universities and non-governmental organizations.

  • Jurisdiction: The area that a particular NCCCP-funded program covers, such as a state, tribe(s), or territory.

A. Use of Evidence-based Practices (EBPs) and EBP Resources.

  1. First, we would like to better understand how you work with the CCC program to identify and use evidence-based practices (EBPs) for addressing cancer control priorities in your state, tribe, or territory. Please indicate whether you are involved in the following types of activities.


Yes

No

a. Identifying. Finding and selecting existing EBPs.

[]

[]

b. Adapting. Adapting and modifying existing EBPs to better fit the target populations in your state, tribe, or territory.

[]

[]

c. Implementing. Implementing EBPs so that the interventions or services are delivered to the target population(s).

[]

[]

d. Evaluating. Evaluating the implementation and effectiveness of the selected EBPs.

[]

[]


[If respondent answers yes on Q1a, then they are automatically directed to Q’s 2-20.]



The next several questions ask about your use of various resources for finding evidence-based practices to address cancer control objectives in your jurisdiction.

  1. Have you ever heard of the Guide to Community Preventive Services (The Community Guide)?

[ ] Yes Go to Question 3

[ ] No Skip to Question 8

  1. Have you ever used The Community Guide to find EBPs for your jurisdiction?

[ ] Yes Go to Question 4

[ ] No Skip to Question 8

  1. Approximately how many times in the last 12 months have you visited The Community Guide website to find EBPs for use in your jurisdiction? (Please choose ONE of the responses below for your best estimate)

[ ] 0 (zero)

[ ] 1-5

[ ] 6-10

[ ] 11-15

[ ] 16 or more

[ ] Don't know/not sure

  1. What do you usually look for when visiting The Community Guide website? (Check all that apply)

[ ] Effective intervention strategies or approaches for cancer control

[ ] Specific evidence-based programs and products

[ ] Links to other resources

[ ] Information on areas where more evidence is needed

[ ] Logic models or analytic frameworks listing strategies for cancer control 

[ ] More information about The Community Guide

[ ] Nothing in particular

[ ] Other – Please describe: ________________________________________________

  1. How useful is The Community Guide for finding EBPs for your jurisdiction? (Please check only one)

[ ] Not at all useful

[ ] Somewhat useful

[ ] Moderately useful

[ ] Very useful

[ ] Don’t know/not sure

  1. If you selected “not at all useful” for Question 6 please briefly tell us why: __________________________________________

  2. Have you ever heard of the Cancer Control P.L.A.N.E.T. website?

[ ] Yes Go to Question 9

[ ] No Skip to Question 14

  1. Have you ever used the Cancer Control P.L.A.N.E.T. website to find EBPs for your jurisdiction?

[ ] Yes Go to Question 10

[ ] No Skip to Question 14

  1. Approximately how many times in the last 12 months have you visited the Cancer Control P.L.A.N.E.T. website to find EBPs for use in your jurisdiction? (Please choose ONE of the responses below for your best estimate)

[ ] 0 (zero)

[ ] 1-5

[ ] 6-10

[ ] 11-15

[ ] 16 or more

[ ] Don't know/not sure

  1. What do you usually look for when visiting the Cancer Control P.L.A.N.E.T. website? (Check all that apply)

[ ] Data on the cancer and/or risk factor burden within my state

[ ] Potential program/community partners

[ ] Potential research partners

[ ] Evidence-based practices for cancer control

[ ] Guidance for planning or evaluating your CCC program

[ ] Information about specific cancer control topics (e.g., breast cancer, diet/nutrition, survivorship)

[ ] Opportunities for training or continuing education

[ ] Other – Please describe: ________________________________________________

[ ] Don’t know/not sure

  1. How useful is the Cancer Control P.L.A.N.E.T. website for finding EBPs for your jurisdiction? (Please check only one)

[ ] Not at all useful

[ ] Somewhat useful

[ ] Moderately useful

[ ] Very useful

[ ] Don’t know/not sure

  1. If you selected “not at all useful” for Question 12 please briefly tell us why: ___________________________________________

  2. Have you ever heard of the Research-Tested Interventions & Programs (RTIPs) website?

[ ] Yes Go to Question 15

[ ] No Skip to Question 20

  1. Have you ever used the RTIPs website to find EBPs for your jurisdiction?

[ ] Yes Go to Question 16

[ ] No Skip to Question 20

  1. Approximately how many times in the last 12 months have you visited the RTIPs website to find EBPs for use in your jurisdiction? (Please choose ONE of the responses below for your best estimate)

[ ] 0 (zero)

[ ] 1-5

[ ] 6-10

[ ] 11-15

[ ] 16 or more

[ ] Don't know/not sure

  1. What do you usually look for when visiting the RTIPs website? (Check all that apply)

[ ] EBPs that would be appropriate for our use with no modifications

[ ] EBPs that have aspects that could be used for existing cancer control activities

[ ] EBPs that have aspects that could be used for newly-developed cancer control activities

[ ] Guidance on adapting EBPs for populations in your jurisdiction

[ ] Program/community partners

[ ] Research partners/technical support

[ ] Other – Please describe: ________________________________________________

[ ] Don't know/not sure

  1. How useful is the RTIPs website for finding EBPs for your jurisdiction? (Please check only one)

[ ] Not at all useful

[ ] Somewhat useful

[ ] Moderately useful

[ ] Very useful

[ ] Don’t know/not sure

  1. If you selected “not at all useful” for Question 18 please briefly tell us why:

___________________________________________

  1. Have you ever utilized any of the additional resources listed below to find EBPs to address your CCC program’s objectives? For each one that you have used, please indicate how useful it is for finding EBPs for your jurisdiction.

Resources for Finding Evidence-Based Practice (EBPs)s

Check here if you have ever used the resource to find EBPs

If you have used a resource, please indicate how useful you think it is for finding EBPs.

Not at all useful

Somewhat useful

Moderately useful

Very useful

  1. Conferences

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Colleagues/co-workers

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Community members

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Newsletters/list serves

[ ]

[ ]

[ ]

[ ]

[ ]

  1. CDC/NCCCP program staff

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Professional organizations

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Journal articles/scientific literature

[ ]

[ ]

[ ]

[ ]

[ ]

  1. U.S. Preventive Services Task Force

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Cochrane Reviews

[ ]

[ ]

[ ]

[ ]

[ ]

  1. The Internet-websites showcasing EBPs

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Other:_________________________

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Other:_________________________

[ ]

[ ]

[ ]

[ ]

[ ]


B. Knowledge and Attitudes about Evidence-based Practices


  1. In general, how important are each of the following factors to your CCC program when choosing an EBP?


    Not at all important

    Somewhat important

    Moderately important

    Very important

    Don't know/not sure

    1. Easy to implement

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Available for free, or low cost

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Other organizations like ours are using it

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Easy to evaluate

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Cost effective

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Consistent with our organization's mission

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Technical assistance is available

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Innovative

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. We had used it before

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. People in our community requested it

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Encouraged by our funders

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Easily adaptable

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Scientific evidence saying the EBP works

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

    1. Lack of alternatives

    [ ]

    [ ]

    [ ]

    [ ]

    [ ]

  2. Please list up to three of the most important factors in choosing an EBP from among those listed in Question 21

(1) _______________________ (2) ____________________ (3) _______________________

  1. In your opinion, to what extent does each of the following contribute to establishing a public health practice as being evidence-based?


Not at all

A little

Moderately

A lot

  1. It was funded by a peer-reviewed grant (A panel of experts had to approve the intervention and evaluation study design)

[ ]

[ ]

[ ]

[ ]

  1. The findings have been published in at least one peer-reviewed journal

[ ]

[ ]

[ ]

[ ]

  1. It has been evaluated by a systematic review process (other researchers have tested similar practices)

[ ]

[ ]

[ ]

[ ]

  1. It uses strategies listed in the Guide to Community Preventive Services

[ ]

[ ]

[ ]

[ ]

  1. It uses strategies listed by other systematic reviews (such as Cochrane) but is not recommended by the Community Guide

[ ]

[ ]

[ ]

[ ]

  1. It has findings published in a peer-reviewed journal but is not funded by a peer-reviewed grant 

[ ]

[ ]

[ ]

[ ]

  1. It has been tested or evaluated and proven to be effective in a single study

[ ]

[ ]

[ ]

[ ]

  1. It has been reviewed and approved by members of the target audience or community

[ ]

[ ]

[ ]

[ ]

  1. It was used previously by your (or another) CCC program but has not been evaluated

[ ]

[ ]

[ ]

[ ]


[If respondent answers “yes” on Q1b, then they should answer Q’s 24-25a]

  1. When adapting an EBP for local use, to what extent would each of the following changes potentially reduce the effectiveness of the EBP?

Adaptations to an evidence-based practice

Not at all

A little

Moderately

A lot

  1. Changing names of health care centers or systems

[ ]

[ ]

[ ]

[ ]

  1. Changing pictures of people and places in materials

[ ]

[ ]

[ ]

[ ]

  1. Changing hard-to-read words in materials that affect reading level

[ ]

[ ]

[ ]

[ ]

  1. Reaching your target audience in ways other than those discussed in the EBP

[ ]

[ ]

[ ]

[ ]

  1. Changing the incentives for participation

[ ]

[ ]

[ ]

[ ]

  1. Altering time-lines

[ ]

[ ]

[ ]

[ ]

  1. Changing culturally-tailored components or materials in order to fit a new population

[ ]

[ ]

[ ]

[ ]

  1. Changing the health topic

[ ]

[ ]

[ ]

[ ]

  1. Removing existing strategies or components

[ ]

[ ]

[ ]

[ ]

  1. Adding more strategies or components

[ ]

[ ]

[ ]

[ ]

  1. Changing the underlying communication theory or conceptual model

[ ]

[ ]

[ ]

[ ]

  1. Changing quotes and personal testimonials

[ ]

[ ]

[ ]

[ ]


  1. Have you ever used the resource manual “Using What Works: Adapting Evidence-Based Programs to Fit Your Needs” produced by the National Cancer Institute as a guide for adapting EBPs for implementation in your jurisdiction?

[ ] Yes Go to Question 25a

[ ] No Skip to Question 26



25a. How useful is the Using What Works resource manual for adapting EBPs for implementation in your jurisdiction? (Please check only one)

[ ] Not at all useful

[ ] Somewhat useful

[ ] Moderately useful

[ ] Very useful

[ ] Don’t know/not sure

  1. The following statements represent different opinions about EBPs for cancer control in general. Please indicate your level of agreement for each statement.


Strongly disagree

Disagree

Neither agree nor disagree

Agree

Strongly agree

Don’t know/not sure

a. EBPs may lack “real

world”/practical evidence

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

b. EBPs don't come with much

information about how to

implement them

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

c. People in our jurisdiction do not

respond well to public health

practices developed somewhere

else

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

d. EBPs are too costly

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

e. EBPs require more resources

than other practices

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

f. Using an existing EBP keeps our

organization from getting credit

for developing our own

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

g. Scientists don't agree about

what is evidence-based

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

h. EBPs lack technical assistance

or support

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

i. EBPs are difficult to adapt to

local conditions or our unique

population

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

j. It is difficult to find EBPs

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

k. Adopting a new EBP is more

difficult than continuing to use

our existing practices

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]


  1. [If respondent answers yes on Q1d, then ask this question] Which of the following processes or outcomes does the CCC program use to evaluate the EBPs or strategies used to address its cancer control objectives? (Check all that apply)

[ ] Implementation fidelity – whether it is implemented as planned

[ ] Number of participants enrolled or reached

[ ] Participant satisfaction

[ ] Media coverage

[ ] Knowledge and attitudes

[ ] Behavior change

[ ] Morbidity

[ ] Mortality

[ ] Other (please describe) _____________________________

[ ] None of the above

  1. What do you think are some of the benefits of using evidence-based public health practices for cancer prevention and control?

_____________________________________________

  1. What do you think are some of the challenges related to using EBPs?

_____________________________________________


C. Organizational Characteristics

  1. Are you involved with the CCC program grantee as an individual or as a representative of an organization?

[ ] As a representative of an organization Go to Question 30a

[ ] As an individual Skip to Question 32


30a What is the name of the organization that you represent?


___________________________________________________________________


30b. What is your role or title within the organization?


___________________________________________________________________


  1. Please indicate your level of agreement with the following:


Strongly disagree

Disagree

Neither agree nor disagree

Agree

Strongly Agree

Don’t know/not sure

  1. My organization has sufficient staff in place to develop new EBPs

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. My organization has sufficient staff in place to implement EBPs

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. My organization has sufficient financial resources to develop new EBPs

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. My organization has sufficient financial resources to implement EBPs

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. My organization has adequate access to cancer registry data

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. My organization has sufficient data support to inform our cancer control planning (i.e., data analysis support, access to other data sources)

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. My organization has sufficient access to epidemiological expertise

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. My organization has sufficient evaluation capabilities

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. My organization has community members who can advise us on EBPs

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. My organization has a champion who supports the use of EBPs

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. My organization understands the importance of using EBPs

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Using EBPs is part of the norm in my organization

[ ]

[ ]

[ ]

[ ]

[ ]

[ ]



  1. How confident are you in your ability to do the following regarding EBPs for cancer control?


Not at all confident

Not very confident

Somewhat confident

Totally confident

Don’t know / Not sure

  1. Find potential EBPs that could be used for cancer control planning

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Assess whether EBPs are appropriate for your community

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Adapt EBPs for specific populations or settings in your community

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Implement EBPs with fidelity (i.e., as intended by the developers)

[ ]

[ ]

[ ]

[ ]

[ ]

  1. Evaluate the implementation and effectiveness of EBPs

[ ]

[ ]

[ ]

[ ]

[ ]


D. Technical Assistance and Capacity-Building

  1. Which types of training or technical assistance would help the cancer control coalition in your state, tribe, or territory identify, adapt, and implement EBPs? (Check all that apply )

[ ] How to involve other stakeholders/partners

[ ] How to assess and utilize current available resources

[ ] How to find and secure additional resources (e.g. funding, technical assistance)

[ ] How to obtain EBP materials (e.g. educational/promotional materials)

[ ] How to adapt an EBP and its materials for cultural appropriateness

[ ] How to identify what aspects should and should not be changed in an EBP

[ ] How to pilot test an EBP with the intended audience

[ ] How to develop an implementation and evaluation plan

[ ] How to recruit participants for interventions

[ ] How to implement and evaluate an EBP

[ ] Other (please describe)

[ ] No training or technical assistance is needed

[ ] Don't know/not sure

  1. Please list up to three of the most important types of trainings that you identified in Question 33.

(1) _______________________ (2) ____________________ (3) _______________________

E. Respondent Characteristics

  1. What is the highest level of education you have completed?

[ ] Some high school or less

[ ] High school graduate/GED

[ ] Technical or vocational school

[ ] Some college

[ ] College graduate

[ ] Graduate or Professional degree

[ ] Other (please specify)

  1. If you have a graduate or professional degree, is that degree in a public health or medical field?

[ ] Yes, please specify:_______________________

[ ] No

[ ] Not applicable - I do not have a graduate or professional degree

  1. Which one of the following best describes you? (Check only one)

[ ] Health educator (or health promotion/communications specialist)

[ ] Healthcare provider (non-physician)

[ ] Healthcare provider (physician)

[ ] Human resources professional

[ ] Journalist

[ ] Caregiver/friend/family member of cancer survivor

[ ] Policy maker

[ ] Program planner or manager

[ ] Researcher/program evaluator

[ ] Lay health worker

[ ] Community outreach coordinator

[ ] Volunteer

[ ] Student

[ ] Teacher

[ ] Cancer Survivor

[ ] Other (please describe)

[ ] Don’t know/prefer not to answer

  1. Please indicate the length of time you have been working with the CCC program in your state, tribe, or territory.

[ ] Less than 1 year

[ ] 1-3 years

[ ] 4-5 years

[ ] More than 5 years


  1. Is there anything else that you would like to tell us?

________________________________________________


Shape1

Thank you for taking this survey. Your responses are very important to this study.

Shape2


Public reporting burden of this collection of information is estimated to average 30 minutes per response, including the time for reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to CDC/ATSDR Reports Clearance Officer, 1600 Clifton Road NE, MS D-74, Atlanta, GA 30333, ATTN: PRA (0920-xxxx).

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