Advance Letter

Attachment 2 – Advance letter

DEPARTMENT OF HEALTH & HUMAN SERVICES Public Health Service

Centers for Disease Control and Prevention

National Center for Health Statistics

3311 Toledo Road

Hyattsville, Maryland 20782

Date

Full name

Street address

City, State, Zip

Dear [Fill]:

The Centers for Disease Control and Prevention’s National Center for Health Statistics (NCHS) is planning on conducting a new National Study of Long-Term Care Providers (NSLTCP), which includes a survey of [residential care communities/adult day service centers]. I hope you will be willing to help us with some preliminary research on this study.

The NSLTCP is intended to enable efficient monitoring of the dynamic, diverse, and evolving field of paid, regulated Long Term Care (LTC) and to help address the nation’s information needs to inform future policy. This survey will allow NCHS to continue broadening its coverage and reporting of LTC providers beyond nursing homes, home health care agencies, and hospices to also include residential care facilities, adult day services centers, and other similar providers.

Someone from the National Center for Health Statistics’ Questionnaire Design Research Laboratory will call to ask if you are willing to participate in a research interview. These research interviews will be used to help us improve the survey questions before they are fielded.

If you are willing to participate in a one-hour, in-person research survey and interview, you will receive $100 as a token of our appreciation.

Participation is, of course, voluntary, and you may refuse to answer any question or may stop participating at any time without penalty or loss of benefits. All of your data will be kept confidential.¹

If you would like to schedule an interview or if you have any questions about this research, please call Paul Scanlon at 301-458-4649. If you have any questions about your rights as a participant in this research study, please call the Research Ethics Review Board at the National Center for Health Statistics toll-free at 1-800-223-8118. Please leave a brief message with your name and phone number. Say that you are calling about Protocol #2010-19. Your call will be returned as soon as possible. We greatly appreciate your interest and your help and do look forward to working with you on this very important topic.

Sincerely,

Charles J. Rothwell

Acting Director

National Center for Health Statistics

3311 Toledo Road

Hyattsville, MD 20782

¹This study is authorized by Section 306 of the Public Health Service Act (Title 42, U.S. Code, 242k). All information collected as part of this study will be used for statistical purposes only and held in the strictest confidence according to Section 308(d) of the Public Health Service Act (42, U.S. Code, 242m(d)) and the Confidential Information Protection and Statistical Efficiency Act (Title 5 of PL 107-347).