By creating a central point of
collection for information about all patient registries in the
United States, the Registry of Patient Registries (RoPR) helps to
further AHRQ's goals by making information regarding quality,
appropriateness, and effectiveness of health services (and patient
registries in particular) more readily available and
centralized.
US Code:
42
USC 299 Name of Law: Healthcare Research and Quality Act of
1999
This is an ongoing collection
of information. While user participation burden remains voluntary
and minimal, with continued marketing of the RoPR as knowledge
repository for patient registries, it is anticipated that the
number of respondents will increase over time. The total burden
hours, however, will remain the same as previously stated in
Exhibit 2.
On behalf of this Federal agency, I certify that
the collection of information encompassed by this request complies
with 5 CFR 1320.9 and the related provisions of 5 CFR
1320.8(b)(3).
The following is a summary of the topics, regarding
the proposed collection of information, that the certification
covers:
(i) Why the information is being collected;
(ii) Use of information;
(iii) Burden estimate;
(iv) Nature of response (voluntary, required for a
benefit, or mandatory);
(v) Nature and extent of confidentiality; and
(vi) Need to display currently valid OMB control
number;
If you are unable to certify compliance with any of
these provisions, identify the item by leaving the box unchecked
and explain the reason in the Supporting Statement.