Telephone Interview

9/27/17

Form Approved

OMB No. 0920-XXXX

Exp. Date XX/XX/20XX

Cancer Survivorship Awardee Survey Follow-Up Key Informant Interviews

Public reporting burden of this collection of information is estimated to average 1 hour and 30 minutes per response, including the time for scheduling interviews, reviewing instructions, searching existing data sources, gathering and maintaining the data needed, and completing and reviewing the collection of information. An agency may not conduct or sponsor, and a person is not required to respond to a collection of information unless it displays a currently valid OMB control number. Send comments regarding this burden estimate or any other aspect of this collection of information, including suggestions for reducing this burden to CDC/ATSDR Information Collection Review Office, 1600 Clifton Road NE, MS D-74, Atlanta, Georgia 30329; ATTN: PRA (0920-XXXX).

Cancer Survivorship Awardee Survey Follow-up Key Informant Interviews:

Exploring Implementation of Cancer Survivorship Strategies among DP15-1501 Awardees

Interviewer:

Note taker:

Participant:

1. Introduction

• Thank you for your participation in our survey in [MONTH] and for agreeing to participate in this follow-up interview.

• This interview is a follow-up to the survey so, while we won’t repeat questions from the survey, at certain points we will review some of your program’s survey responses and ask you to expand on them.

• We appreciate your time and will keep the interview to 60 minutes or less.

• We do want to reiterate that your participation in this discussion is completely voluntary. You may choose to skip questions and may stop the interview at any time.

• We also want to note that our evaluation report to CDC will include names of programs BUT will not include names of individuals. This will allow us to highlight program’s achievements and lessons learned. Responses to questions about sensitive topics (e.g., barriers to program implementation) will be aggregated. We will not associate responses to sensitive items with the names of programs or interview participants because we want all interview participants to feel comfortable providing candid feedback on these topics.

• Do you consent to participate?  Yes No

• With your permission, we would like to digitally record today’s discussion as a back-up to the typed notes NOTETAKER will be taking. Recordings will be destroyed after notes are cleaned and finalized—is it okay to record?  Yes No

Please let us know if you would like us to pause the recording at any time during our discussion.

• Do you have any questions or concerns before we start the interview?

2. Administration of the Behavioral Risk Factor Surveillance System (BRFSS) Cancer Survivorship Module

The first set of interview questions are designed to help us learn more about your experiences implementing the BRFSS Cancer Survivorship Module.

1. In the survey, your program reported that you [HAVE / HAVE NOT] been involved in efforts to add the Cancer Survivorship module to your state’s BRFSS.

If ‘HAVE’ above:

1. In what ways has your DP15-1501 team been involved with the implementation of the module?

Probe: Did you adopt the full module or certain questions?

• Subprobe: If only certain questions: how did you select the questions you included? Why were these questions selected?

1. Are there questions that seem more helpful then others? Why or why not?

2. What factors do you think facilitated smooth implementation of the module?

3. What lessons learned would you share with other NCCCP grantees who are working to incorporate the Cancer Survivorship Module into their state’s BRFSS?

Note to interviewer: not asking about barriers, as this is covered in the performance measures survey.

If “HAVE NOT” above:

a. What circumstances prevented your state from adopting the Cancer Survivorship Module to the BRFSS?

2. In what ways are you supporting the use of surveillance data to inform program planning, for example, among providers or coalition members?

Note to interviewer: Examples might include disseminating burden reports, fact sheets, one-pagers, user-friendly documents tailored to specific audiences that highlight data implications for needs and gaps, or other documents that outline specific calls to action and/or evidence-based strategies.

Probe: What changes or results have you seen after disseminating surveillance data?

• Subprobe: How have you seen disseminated data used? For example, in program planning, development of interventions, informing survivorship cancer plans, etc.?

3. Communication, Education & Training

The next set of interview questions are designed to help us learn more about your communication activities related to educating providers and survivors.

I’d like to start by asking about your efforts to educate providers.

3. In the survey, your program reported that you’ve implemented communication activities for providers including [INSERT DATA FROM SURVEY ITEM]. Can you tell me more about this? [Note: if multiple activities reported, ask respondent to elaborate on the activity they think has been most successful.]

Note to interviewer: Examples might include communication campaign materials, social media or independently developed education materials, webinars or other CME earning activities, printed materials such as fact sheets or educational one-pagers, as well as lunch and learn/brown bag series.

If response to survey item 18 indicates no communication activities for providers:

Are there reasons that your program has not implemented communication activities for providers? Please explain.

Now I’d like to ask about your efforts to educate survivors:

4. In the survey, your program reported that you’ve implemented communication activities for survivors including [INSERT DATA FROM SURVEY ITEM]. Can you tell me more about the content for this activity/these activities (e.g., related Survivorship Care Plans, emotional support, mental health, physical health, financial support/health insurance coverage)? [Note: if multiple activities reported, ask respondent to elaborate on the activity they think has been most successful.]

If response to survey item 19 indicates no communication activities for survivors:

Are there other reasons that your program has not implemented communication activities for survivors? Please explain.

4. Community Clinical Linkages

Now I’d like to ask about how your team is implementing community-clinical linkage strategies with your partners.

5. In what ways is your program implementing community-clinical strategies?

5a. Can you tell me about any patient navigator (PN) initiatives your program is implementing?

Probe: is there a training or certification component to your PN initiative?

If yes:

• Subprobe: In what ways has this certification program been successful?

• Subprobe: Of the PNs trained or certified, what proportion do you estimate are newly credentialed?

Note to interviewer: not asking about barriers, as this is covered in the performance measures survey.

5. Increased Knowledge

Now I’d like to ask about your programs increase in knowledge about cancer survivorship needs through the implementation of DP15-1501.

6. In what ways would you say that DP15-1501 has increased your program’s knowledge of cancer survivor needs?

Probe: Are there specific areas in which your program had the most substantial increase in understanding of survivor needs?

• Subprobe: Some areas to think about might include palliative care/pain management, access to care, access to screening, transition care/follow-up care, health/lifestyle behaviors such as resources for tobacco cessation, psychosocial concerns/support

Probe: Are any of these needs specific to certain populations of survivors?

7. In what ways has your program’s knowledge of gaps in services available to cancer survivors increased?

8. Are there plans for initiatives to address any of these needs or gaps?

Probe: What is the timeline for implementing this initiative?

Probe: Have you experienced any barriers or challenges in planning or implementing this (these) initiative(s)?

Probe: What has been helpful or facilitated planning or implementing this (these) initiative(s)?

Probe: If no: can you describe any barriers that have kept your program from planning or implementing initiatives to address survivor needs or gaps?

6. Enhanced Partnerships

Now I’d like to ask about how your partners have supported efforts to plan and implement evidence-informed cancer survivorship strategies.

9. Have you established any new external partnerships through this initiative? For example, partnerships with providers or cancer organizations.

Probe: If yes, please describe.

• Subprobe: What sectors do your new partners / partnerships represent?

• Subprobe: How many new partnerships have you established through this initiative?

• Subprobe: What has been helpful or facilitated development of these partnerships? What has been challenging?

• Subprobe: Can you describe any planned or current collaborations with your new partners?

Note to interviewer: barriers not addressed, as this is covered in the survey.

10. What types of opportunities have you had to partner with other DP15-1501 grantees around survivorship interventions?

Probe: What has been helpful or facilitated your establishing these partnerships or working with these partners?

Probe: Have you experienced any barriers or challenges in establishing these partnerships or working with these partners?

Probe: Can you describe any collaborative activities that you and your DP15-1501 grantee partners are currently planning and/or implementing?

7. Dissemination

Now I’d like to ask about your efforts to disseminate lessons learned from DP15-1501.

In the survey, you indicated that your program has disseminated findings through [INSERT DATA FROM SURVEY ITEM].

11. Have you conducted any additional dissemination activities since completing the survey? If yes, please describe.

12. Can you describe tools or methods you are using to track dissemination efforts?

8. Recommendations & Conclusion

Before we wrap up, I’d like to ask about your recommendations in relation to implementing cancer survivorship strategies.

13. What advice or lessons learned would you share with colleagues who are planning to implement cancer survivorship strategies?

14. What advice would you share with CDC about supporting programs to implement cancer survivorship strategies?

15. Before we conclude, is there anything else you would like to add about your program, or do you have any questions for me?

9. Wrap-Up

Thank you again for taking the time to talk with me today. As I mentioned at the start of our conversation, we will be synthesizing responses from today’s interview with information gathered through similar discussions with other CCC programs. It is our plan that interview findings will be shared under the umbrella of results from the larger DP15-1501 evaluation through our report to CDC, as well as presentations and manuscripts.

By the end of the day tomorrow, you will receive an e-mail from NOTETAKER with the list of items you offered to share with us. Thank you in advance for sharing these materials!

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