Follow-up Consent and Landing Page

HIGH-RISK FOLLOW UP CONSENT16.ll continue to refine the draft questionnaire for submission to CDC by April 13th ulation Survey.

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Welcome to the What do you have to say about cancer? survey

NORC at the University of Chicago is conducting a survey sponsored by the Centers for Disease Control and Prevention. This survey is to learn about your genetic testing for cancer risk and how your family talks about cancer risk. Your participation will help us identify aspects of family communication about cancer and genetic testing to better understand how such information is shared in families.

The survey will take about 20 minutes to complete. The survey will include general demographics and questions related to health and cancer in your family.

Any information you provide will be maintained in a secure manner. No one will know how you answered the questions. Only project staff will have access to the study data. The data we collect from you will be combined with data from other participants.

This research is covered by a Certificate of Confidentiality from the Centers for Disease Control and Prevention. The researchers with this Certificate may not disclose or use information or documents that may identify you in any federal, state, or local civil, criminal, administrative, legislative, or other action, suit, or proceeding, or be used as evidence, for example, if there is a court subpoena, unless you have consented for this use.

Completion of this survey is your choice. You may skip questions you do not wish to answer and you may stop the survey at any time. Eligible participants will receive $5 cash in the mail at the end of the survey.

If you have any questions about the survey, you may call the NORC IRB Administrator toll-free at:

866-309-0542.

Your opinions and insights are very important to us,

and we greatly appreciate your help.

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