Information Collection Request

Using Social Media for Recruitment in Cancer Prevention and Control Survey-based Research (SMFR Study)

ICR 201903-0920-002 · OMB 0920-1272 · Historical Active

Forms and Documents
DocumentTypeStatusAvailability
Form 0920-18AWP Adults at High Risk for Cancer Follow-up Survey Form and Instruction New Available
Form 0920-18AWP Adults at High Risk for Cancer Survey Form and Instruction New Repair queued
Form 0920-18AWP Cancer Survivors - Survivorship Survey Form and Instruction New Available
Form 0920-18AWP General Population Survey Form and Instruction New Repair queued
Form 0920-18AWP Adults at High Risk for Cancer - Follow-up Screener Form and Instruction New Repair queued
Form 0920-18AWP Baseline Screener - Adults Over 40 / Cancer Survivors / Adults at High Risk for Cancer Form and Instruction New Available
Attachment 11 PIA from Social Media Study approved (11-6-2018).pdf Supplementary Document Uploaded 2019-03-18 Available
Attachment 10c 60FRN- comments and response.docx Supplementary Document Uploaded 2019-03-18 Available
Attachment 10a CDC-2018-0083-0001.pdf Supplementary Document Uploaded 2019-03-18 Available
Attachment 9c IRB Authorization Agreement.pdf Supplementary Document Uploaded 2019-03-18 Available
Attachment 9b CDC IRB Reliance Letter.docx Supplementary Document Uploaded 2019-03-18 Available
Attachment 9a NORC IRB Approval Renewal.pdf Supplementary Document Uploaded 2019-03-18 Available
Attachment 8e - Follow-up survey - web screenshots.pdf Supplementary Document Uploaded 2019-03-18 Available
Attachment 8d - High Risk Survey - web screenshots.pdf Supplementary Document Uploaded 2019-03-18 Available
Attachment 8c -Survivor survey - web screenshots.pdf Supplementary Document Uploaded 2019-03-18 Available
Attachment 8b -General Population survey - web screenshots.pdf Supplementary Document Uploaded 2019-03-18 Available
Attachment 8a - Survey screener - web screenshots.pdf Supplementary Document Uploaded 2019-03-18 Available
Attachment 7 Invitation Email.docx Supplementary Document Uploaded 2019-03-18 Available
Attachment 5c Follow Up Consent & Landing Page.docx Supplementary Document Uploaded 2019-03-18 Available
Attachment 5b Frequently Asked Questions.docx Supplementary Document Uploaded 2019-03-18 Available
Attachment 5a Consent & Landing Page.docx Supplementary Document Uploaded 2019-03-18 Available
Attachment 4 Web Recruitment Ads.docx Supplementary Document Uploaded 2019-03-18 Available
Attachment 1 Authorizing Legislation.pdf Supplementary Document Uploaded 2019-03-18 Repair queued
Supporting_Statement-Part_B- final-v4-clean.docx Supporting Statement B Uploaded 2019-10-31 Available
Supporting_Statement-Part_A- FINALv5 ICRO.docx Supporting Statement A Uploaded 2019-10-31 Available
IC Document Collections
IC IDCollectionTypeStatusForm
235389 Adults at High Risk for Cancer Follow-up Survey Form and Instruction New
235388 Adults at High Risk for Cancer Survey Form and Instruction New
235387 Cancer Survivors - Survivorship Survey Form and Instruction New
235386 General Population Survey Form and Instruction New
235385 Adults at High Risk for Cancer - Follow-up Screener Form and Instruction New
235383 Baseline Screener - Adults Over 40 / Cancer Survivors / Adults at High Risk for Cancer Form and Instruction New
ICR Details
0920-1272 201903-0920-002
Historical Active
HHS/CDC 0920-18AWP
Using Social Media for Recruitment in Cancer Prevention and Control Survey-based Research (SMFR Study)
New collection (Request for a new OMB Control Number)   No
Regular
Approved with change 11/05/2019
Retrieve Notice of Action (NOA) 03/26/2019
Consistent with the Supporting Statements, the methods for recruiting participants for this study limit CDC’s ability to make inferences about broader populations, and as such, OMB approves this collection consistent with the understanding that CDC will only be conducting formative research that will not be used as influential information to support agency policies or decisions. Approval for collection through social media sampling is provided specifically for the purposes of capturing diverse experiences from a hard to reach population and informing more robust future studies. When communicating findings from this collection, all publications will clearly describe the scope and limitations of the methods and findings. Approval is provided contingent upon a commitment to work with the National Center for Health Statistics to minimize duplication of effort and to align efforts within CDC; should modifications to the methodology, data quality, or instruments be necessary, CDC will consult with both NCHS and OMB in advance of submission. CDC commits to peer review on all publications, abstracts, poster presentations, and manuscripts based upon this research and will share final copies of each publication with OMB. CDC further commits to submitting a data quality report to OMB summarizing the results of its feasibility research within 18 months of approval. The report will receive review and comment from NCHS and should include but is not limited to a discussion of break offs, missing items, benchmarking to NCHS or other high quality statistics where applicable, and fraudulent responses.
  Inventory as of this Action Requested Previously Approved
11/30/2020 12 Months From Approved
13,250 0 0
1,646 0 0
0 0 0

The purpose of this study is to assess the feasibility of conducting survey-based cancer prevention and control research using social media and web platforms for study recruitment. Surveys will evaluate cancer screening and access to medical care in the general population, general health and well-being post-treatment among cancer survivors, and genetic risk communication patterns among those at high risk for cancer. Results will be compared to data collected from proportional samples to assess sampling bias.

US Code: 42 USC 241 Name of Law: PHSA
  
None

Not associated with rulemaking

  83 FR 47170 09/18/2018
84 FR 11101 03/25/2019
Yes

  Total Approved Previously Approved Change Due to New Statute Change Due to Agency Discretion Change Due to Adjustment in Estimate Change Due to Potential Violation of the PRA
Annual Number of Responses 13,250 0 0 13,250 0 0
Annual Time Burden (Hours) 1,646 0 0 1,646 0 0
Annual Cost Burden (Dollars) 0 0 0 0 0 0
Yes
Miscellaneous Actions
No
This is a new ICR

$563,013
Yes Part B of Supporting Statement
    Yes
    No
No
No
No
Uncollected
Kevin Joyce 404 639-1944 [email protected]

  No

On behalf of this Federal agency, I certify that the collection of information encompassed by this request complies with 5 CFR 1320.9 and the related provisions of 5 CFR 1320.8(b)(3).
The following is a summary of the topics, regarding the proposed collection of information, that the certification covers:
 
 
 
 
 
 
 
    (i) Why the information is being collected;
    (ii) Use of information;
    (iii) Burden estimate;
    (iv) Nature of response (voluntary, required for a benefit, or mandatory);
    (v) Nature and extent of confidentiality; and
    (vi) Need to display currently valid OMB control number;
 
 
 
If you are unable to certify compliance with any of these provisions, identify the item by leaving the box unchecked and explain the reason in the Supporting Statement.
03/26/2019